Join Us

We are 217,695 members in 84 forums discussing 160,686 topics.

Help with Abbreviations

Topic: Totally lost

Forum: Not Diagnosed With a Recurrence or Metastases but Concerned —

Meet others concerned about developing a recurrence or metastases.

Posted on: Mar 5, 2020 01:02PM

ipenelope wrote:

Hello again everyone. Ive been here on the periphery given I thought I was done with my battle. Just found out I have a tumor in my left lung that it's believed to be metastatic from my breast cancer. The oncologist thinks that even though my breast tumor was very minimally estrogen positive that it was a triple negative though it was treated as a hormone positive. ACT chemo likely did nothing other then put me through hell.

Im so lost right now and don't know what to think. I want to be angry, I want to ball my eyes out but I feel numb.

~Katieđź’—

Katieđź’— Diagnosed stage IIB at 42, diagnosed stage 4 mets to left lung age 44 Dx 9/12/2018, IDC, Left, 4cm, Stage IIB, Grade 3, 1/21 nodes, ER+/PR-, HER2- (IHC) Surgery 11/15/2018 Lymph node removal: Left, Sentinel, Underarm/Axillary; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 12/20/2018 AC + T (Taxol) Surgery 6/13/2019 Reconstruction (left): Fat grafting, Silicone implant; Reconstruction (right): Fat grafting, Silicone implant Hormonal Therapy 6/22/2019 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 11/21/2019 Reconstruction (left): Fat grafting; Reconstruction (right): Fat grafting Dx 2/24/2020, IDC, Left, 1cm, Stage IV, metastasized to lungs, ER-/PR-, HER2- Surgery 3/18/2020 Chemotherapy 4/20/2020 Abraxane (albumin-bound or nab-paclitaxel) Immunotherapy 4/20/2020 Tecentriq (atezolizumab)
Log in to post a reply

Page 1 of 1 (8 results)

Posts 1 - 8 (8 total)

Log in to post a reply

Mar 5, 2020 01:12PM moth wrote:

Hi Katie, sorry you find yourself here again. Fwiw, I was being treated as triple neg when Stage 1 and ACT is pretty much the standard of care for it so that was a good hard attack on it. But cancer is wiley bastard.


There's a lung mets thread on the Stage IV forums. I'm only a bit ahead of you - found out about my lung met on Feb 10. If you're exp is like mine, get ready for many scans and biopsies. This is hard, not gonna lie, but we can hold each other's hands & pass the kleenex & stomp & punch & yell, and others asssure me that it does get a bit better so I guess we cling to that.

hugs

Seriously???? “Sometimes the future changes quickly and completely and we’re left with only the choice of what to do next." nevertellmetheodds2017.tumblr.... Dx 12/2017, IDC, Left, 1cm, Stage IA, Grade 3, 0/5 nodes, ER-/PR-, HER2- (IHC) Surgery 12/12/2017 Lumpectomy: Left; Lymph node removal: Sentinel Chemotherapy 2/13/2018 AC + T (Taxol) Radiation Therapy 8/13/2018 Whole-breast: Breast Dx 2/2020, IDC, Stage IV, metastasized to liver/lungs, Grade 3, ER-/PR-, HER2- Chemotherapy 3/18/2020 Taxol (paclitaxel) Immunotherapy 3/18/2020 Tecentriq (atezolizumab)
Log in to post a reply

Mar 5, 2020 03:04PM DogMomRunner wrote:

ipenelope- I am so sorry to hear this. I remember your posts from this past summer (as I was going through chemo) as being so positive and uplifting. I know that you will use that wonderful attitude to deal with whatever this is.

You ain't run far enough to say My legs have failed You ain't gone far enough You ain't worked hard enough You ain't run far enough to say It ain't gonna get any better. Nathaniel Rateliff Dx 4/24/2019, DCIS/IDC, Left, 1cm, Stage IA, Grade 3, 0/8 nodes, ER-/PR-, HER2+ (FISH) Surgery 5/17/2019 Lumpectomy: Left; Lymph node removal: Left, Sentinel Targeted Therapy 6/6/2019 Herceptin (trastuzumab) Chemotherapy 6/6/2019 Taxol (paclitaxel) Radiation Therapy 9/22/2019 Whole-breast: Breast
Log in to post a reply

Mar 5, 2020 05:38PM KBeee wrote:

((((HUGS)))) I hate cancer. I hate that you are dealing with this. Praying you have a treatment plan in place soon to deal with this. Do keep us posted. I am sorry you have to deal with this.

Karen. Dx 8/5/2013, IDC, Right, 1cm, Grade 2, 0/1 nodes, ER+/PR+, HER2- (IHC) Surgery 8/26/2013 Mastectomy: Left, Right Chemotherapy 9/20/2013 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 12/12/2013 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 1/23/2014 Reconstruction (left); Reconstruction (right) Surgery 1/29/2015 Lumpectomy: Right Dx 2/2/2015, IDC, Right, 1cm, Grade 2, 0/0 nodes, ER+/PR-, HER2- (FISH) Dx 2/25/2015, IDC, Right, 1cm, Grade 3, 0/13 nodes, ER+/PR-, HER2- (IHC) Surgery 2/25/2015 Lumpectomy: Right; Lymph node removal: Right, Sentinel, Underarm/Axillary; Prophylactic ovary removal Chemotherapy 3/31/2015 AC + T (Taxol) Radiation Therapy 8/25/2015 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy Femara (letrozole)
Log in to post a reply

Mar 5, 2020 11:57PM nonomimi5 wrote:

Ipenelope and Moth - I am so sorry for everything you are going through. It really sucks. Sending you prayers

DX at 53. Surgery at 54. Oncotype 17 Dx 3/23/2018, DCIS/IDC/IDC: Tubular, Right, 2cm, Stage IIA, Grade 2, 0/3 nodes, ER+/PR+, HER2- (IHC) Surgery 4/30/2018 Lumpectomy; Lymph node removal Radiation Therapy 5/29/2018 Breast Hormonal Therapy 7/1/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Log in to post a reply

Mar 6, 2020 12:02AM dysonsphere wrote:

I'm still going through my first cancer step, ACT chemo, but I'm sorry that you are going through this and you are in my prayers!

Age 50 at Dx, 11/20 abnormal Mammo, 12/2 Ultra sound, 12/3 Biopsy,12/31/19 Started treatment at MD Anderson , 1/9/2020 Node biopsy, malignant 1/13/2020 Genetic Test negative 2/6 Started 16 cycles of chemo (completed 6/18) Dx 12/10/2019, IDC, Right, 1cm, Stage IIA, Grade 2, 5/27 nodes, ER+/PR+, HER2- Chemotherapy 2/6/2020 AC + T (Taxol) Surgery 7/17/2020 Lumpectomy: Right
Log in to post a reply

Mar 26, 2020 03:43AM Anx789 wrote:

Katie and Moth, I am really sorry to hear this. Sending you hugs and prayers. How did you find out, do you have any symptoms?

Dx 9/25/2018, IDC, Left, 2cm, Stage IA, Grade 3, 0/1 nodes, ER+/PR+, HER2- (IHC)
Log in to post a reply

Apr 2, 2020 05:53PM - edited Apr 3, 2020 05:13PM by ipenelope

Anxious,

I was having pain to middle left side of my sternum and had a really bad episode so requested a ct scan to make sure nothing was there and sadly the ct scan showed 2 areas in my left lung. I ended up having a wedge resection to left upper lobe and then had my left lower lobe completely removed 2 weeks ago Wed.

I was told my cancer changed to triple negative and I will be doing oral chemo and immunotherapy to treat it.

I hope everyone is doing good and staying safe and as healthy as possible!!

~Katie đź’—

Katieđź’— Diagnosed stage IIB at 42, diagnosed stage 4 mets to left lung age 44 Dx 9/12/2018, IDC, Left, 4cm, Stage IIB, Grade 3, 1/21 nodes, ER+/PR-, HER2- (IHC) Surgery 11/15/2018 Lymph node removal: Left, Sentinel, Underarm/Axillary; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 12/20/2018 AC + T (Taxol) Surgery 6/13/2019 Reconstruction (left): Fat grafting, Silicone implant; Reconstruction (right): Fat grafting, Silicone implant Hormonal Therapy 6/22/2019 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 11/21/2019 Reconstruction (left): Fat grafting; Reconstruction (right): Fat grafting Dx 2/24/2020, IDC, Left, 1cm, Stage IV, metastasized to lungs, ER-/PR-, HER2- Surgery 3/18/2020 Chemotherapy 4/20/2020 Abraxane (albumin-bound or nab-paclitaxel) Immunotherapy 4/20/2020 Tecentriq (atezolizumab)
Log in to post a reply

Apr 2, 2020 06:21PM Bright55 wrote:

Hi IP sorry you have progressed

Its good that your treatment has started .Hoping that post surgery you are managing.

I have been checking usual posts but no recent activity for met..I am in nsw australia

I have asymptomatic estrogen postive lung mets some changes over four years but still in lungs

Yes there is a lung mets thread but we seem to post infrequently...so maybe check out the other different mets posts ..past content can be both uplifting and informative

All the best with therapy

Bright in hope


Dx 2011, DCIS, Right, <1cm, Stage 0, Grade 2, 0/2 nodes, ER+/PR+, HER2- Dx 2016, Right, 2cm, Stage IV, metastasized to lungs, ER+/PR+, HER2- Hormonal Therapy 10/4/2019 Aromasin (exemestane), Femara (letrozole), Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery Mastectomy: Right

Page 1 of 1 (8 results)