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Topic: Very Scared and Confused about Possible Mets w/ Mom

Forum: Not Diagnosed With a Recurrence or Metastases but Concerned —

Meet others concerned about developing a recurrence or metastases.

Posted on: Mar 30, 2020 09:33PM

ANSMommy wrote:

Hi there,

My mom is three years into her BC diagnosis (Age: 64, Stage 2b, ER+/PR+, Oncotype Low Risk).


She recently had her six month checkup. Labs looked great. But her X-ray showed fracture in her T9 Vertebrae. At her Oncologist appointment, he wasn’t at all concerned. She had a tennis injury a few months ago and has elevated osteoporosis due to her Arimidex. But he scheduled a MRI w/ and w/o contrast. That was done last Tuesday. We hadn’t heard anything from his office last week.

My mom called his office today about results and was told by the new nurse there was concerning info found on the MRI and that he was referring her to a neurosurgeon. She called records to get her MRI results. It said:

‘Compression deformity with edema at T9. Mild extraosseous signal abnormality raising the possibility of neoplastic involvement.‘

Really bothered that she had to call for her results. I get that COVID is slowing things down. Her main nurse called this afternoon and said the abnormality could be either due to the fracture and be benign or Mets.

But no explanation what the neurosurgeons role in this?

I lost my father to ALS in 2010 and now terrified I’m going to lose my Mom.

We are stuck in a hellish limbo.

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Mar 31, 2020 12:03AM AliceBastable wrote:

A neurosurgeon consult is pretty standard for any skeletal back problem. That's who I saw for a badly ruptured disc years ago. Please don't assume the worst; you're moms at an age where back problems are common.

Endometrial cancer 2010, basal cell multiples, breast cancer 2018, kidney cancer 2018. Cancer's a bitch, but I'm a bigger one with more practice. Dx 5/2018, ILC/IDC, Left, 2cm, Stage IA, Grade 2, 1/1 nodes, ER+/PR+, HER2- Surgery 7/10/2018 Lumpectomy: Left; Lymph node removal: Sentinel Surgery 8/7/2018 Radiation Therapy 10/28/2018 Whole-breast: Breast, Lymph nodes
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Mar 31, 2020 12:21AM ANSMommy wrote:

Thank you. My mom is already predisposed to osteoporosis. Her mother had it. And she meets other criteria too. The ironic part is that before her cancer, my Mom’s main health concern was getting knee replacements as her knees are about shot. The Arimidex is speeding things along too.

I’ll pass this along to my Mom. I wish I could go to the appointment with her but with COVID, I can’t go.

As you know, the waiting game is awful.

Again thank you

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Mar 31, 2020 07:06AM - edited Mar 31, 2020 07:07AM by Bonnie7

Totally agree with Alice- our backs were originally meant to hold out until our 40's - we have well and truly exceeded that!

I suspect the Armidex has played a part here together with genetics as you mentioned. Truly hope you get peace of mind soon!

Good luck to yr Mum!

Keep posting pse! Xx

Dx 2002, DCIS, Right, Stage 0, Grade 1, ER+/PR+, HER2- Dx 2005, IDC, Right, 2cm, Stage IIIA, Grade 3, ER+/PR+, HER2- Dx 2016, IDC, Right, 2cm, Stage IIIB, Grade 3, ER+/PR+, HER2- Surgery Mastectomy Hormonal Therapy Aromasin (exemestane), Femara (letrozole) Surgery Lumpectomy Radiation Therapy Hormonal Therapy Chemotherapy Surgery Lymph node removal Hormonal Therapy Aromasin (exemestane) Surgery Reconstruction (right): Latissimus dorsi flap Surgery
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Apr 3, 2020 12:29PM KBeee wrote:

Hoping she can get in to see the specialist soon and that it's benign. Stressful, for sure. Horrible that the office did not call with results. I would definitely express my displeasure with that to them.

Karen. Dx 8/5/2013, IDC, Right, 1cm, Grade 2, 0/1 nodes, ER+/PR+, HER2- (IHC) Surgery 8/26/2013 Mastectomy: Left, Right Chemotherapy 9/20/2013 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 12/12/2013 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 1/23/2014 Reconstruction (left); Reconstruction (right) Surgery 1/29/2015 Lumpectomy: Right Dx 2/2/2015, IDC, Right, 1cm, Grade 2, 0/0 nodes, ER+/PR-, HER2- (FISH) Dx 2/25/2015, IDC, Right, 1cm, Grade 3, 0/13 nodes, ER+/PR-, HER2- (IHC) Surgery 2/25/2015 Lumpectomy: Right; Lymph node removal: Right, Sentinel, Underarm/Axillary; Prophylactic ovary removal Chemotherapy 3/31/2015 AC + T (Taxol) Radiation Therapy 8/25/2015 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy Femara (letrozole)

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