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Topic: Questions about possible recurrence

Forum: Not Diagnosed With a Recurrence or Metastases but Concerned —

Meet others concerned about developing a recurrence or metastases.

Posted on: May 7, 2020 10:13PM

Iamloved wrote:

I found a lump about 2 weeks ago in the same breast as my orginal dx. It is tender and at times seems to ache. The lump seems to be about where a clip was placed during my biopsies or at least the general area. I had no lymph node involvement and got really good margins. I have an upcoming appointment at the Mayo clinic which is where all this took place. So a few questions...

1. At 60 years old can it be something besides cancer?

2. If it is cancer, do I do a bilateral mastectomy even if nothing is in the left breast?

3. Anyone else have a recurrence without lymph nodes involved?

I am trying to be calm and prepare for the worst but hope for the best.

Thx in advance.

Surgery December 1 2020 Lumpectomy and oncoplastic surgery Dx 8/8/2018, IDC, Right, 2cm, Stage IIB, Grade 3, 0/3 nodes, ER+/PR+, HER2+ (IHC) Surgery 8/30/2018 Lumpectomy: Right; Lymph node removal: Sentinel Dx 5/14/2020, IDC, Right, 6cm+, Stage IIB, Grade 3, 0/2 nodes, ER+/PR+, HER2+ (IHC) Targeted Therapy 7/14/2020 Herceptin (trastuzumab) Chemotherapy 7/14/2020 Carboplatin (Paraplatin), Taxotere (docetaxel)
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May 8, 2020 12:52AM Beesie wrote:

So sorry you are going through this. To your questions:

1. Absolutely. For example, while cysts are less common after menopause, lots of women still get them.

2. No one can - or at least should - answer this one. There is no right or wrong answer, and it is simply too personal a decision.

3. Not sure if you mean having a recurrence after an initial diagnosis that was lymph node negative, or having a recurrence with the recurrence itself being lymph node negative. In either case, the answer is "yes, it's quite common".

Good luck. Hopefully this is something benign and not a recurrence.


“No power so effectually robs the mind of all its powers of acting and reasoning as fear.” Edmund Burke
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May 16, 2020 05:22PM Iamloved wrote:

Recurrence.😪

Surgery December 1 2020 Lumpectomy and oncoplastic surgery Dx 8/8/2018, IDC, Right, 2cm, Stage IIB, Grade 3, 0/3 nodes, ER+/PR+, HER2+ (IHC) Surgery 8/30/2018 Lumpectomy: Right; Lymph node removal: Sentinel Dx 5/14/2020, IDC, Right, 6cm+, Stage IIB, Grade 3, 0/2 nodes, ER+/PR+, HER2+ (IHC) Targeted Therapy 7/14/2020 Herceptin (trastuzumab) Chemotherapy 7/14/2020 Carboplatin (Paraplatin), Taxotere (docetaxel)
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May 16, 2020 06:28PM BevJen wrote:

Iamloved,

is it a new cancer or a recurrence of the old one? Same spot? Hang in there until you get all of the info that your doctors can provide you with. Good luck.

Microwave Ablations of the Liver: 7/2019; 10/2020; 12/2020 Dx 11/2003, ILC, Left, Stage IIIC, 13/18 nodes, ER+/PR+, HER2- Dx 6/2006, ILC, Stage IV, metastasized to other, ER+, HER2- Dx 5/2019, ILC, Stage IV, metastasized to liver, ER+/PR+, HER2- Surgery 7/4/2019 Targeted Therapy 7/31/2019 Ibrance (palbociclib) Immunotherapy Radiation Therapy Surgery Lymph node removal: Left, Sentinel; Mastectomy: Left, Right; Reconstruction (left): Pedicled TRAM flap; Reconstruction (right): Pedicled TRAM flap Chemotherapy TAC Hormonal Therapy Faslodex (fulvestrant) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery Lymph node removal; Mastectomy; Reconstruction (left): Pedicled TRAM flap; Reconstruction (right): Pedicled TRAM flap Hormonal Therapy Femara (letrozole)
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May 17, 2020 02:07PM Iamloved wrote:

It is a recurrence. Same breast but mnew location, same grade, triple positive. Pet scan and other testing scheduled for June 8th at Mayo in Rochester MN. Not surprised really but curious about the location of it because the area was biopsied at the same time as my orginal dx in 2018. And now there are several tumors in that area. Trying to stay positive and do my research on a unilateral mastectomy or possibly a bilateral one as the MRI showed something in the left breast that the mammogram may not have picked up. I want o be prepared for the consultation as the information about mastectomies is mind numbing or maybe I'm just numb.🤔

Surgery December 1 2020 Lumpectomy and oncoplastic surgery Dx 8/8/2018, IDC, Right, 2cm, Stage IIB, Grade 3, 0/3 nodes, ER+/PR+, HER2+ (IHC) Surgery 8/30/2018 Lumpectomy: Right; Lymph node removal: Sentinel Dx 5/14/2020, IDC, Right, 6cm+, Stage IIB, Grade 3, 0/2 nodes, ER+/PR+, HER2+ (IHC) Targeted Therapy 7/14/2020 Herceptin (trastuzumab) Chemotherapy 7/14/2020 Carboplatin (Paraplatin), Taxotere (docetaxel)
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May 17, 2020 03:14PM - edited Jun 1, 2020 03:42AM by jcp

iamloved, I will pray for no more involvement on all scans. I am sorry. You are in my prayers here on out. JCP

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May 17, 2020 03:52PM Beesie wrote:

Ah, I'm sorry to hear that.

Good luck with the scans... hoping this turns out to be a small localized recurrence that is easily treated.

“No power so effectually robs the mind of all its powers of acting and reasoning as fear.” Edmund Burke
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May 17, 2020 05:49PM ElaineTherese wrote:

Hi!

I'm sorry that you've had a recurrence and I hope that the Mayo scans show that it is localized. Might be time to research chemo and Herceptin. If I recall correctly, you chose not to have them the first time around. If you're still freaked out by chemo, maybe talk to your oncologist about Herceptin alone. ((Hugs))

DX IDC June 28, 2014, 5 cm., 1 node tested positive (fine needle biopsy); 0/20 after neoadjuvant chemo + ALND; Grade 3; ER+ PR+ HER2+ Neoadjuvant chemotherapy starting 7/23/14 ACX 4, Taxol X 12, Perjeta X 4; Herceptin: one year Chemotherapy 7/23/2014 AC Targeted Therapy 9/17/2014 Perjeta (pertuzumab) Targeted Therapy 9/17/2014 Herceptin (trastuzumab) Chemotherapy 9/17/2014 Taxol (paclitaxel) Surgery 1/12/2015 Lumpectomy: Right; Lymph node removal: Right, Underarm/Axillary Hormonal Therapy 2/25/2015 Aromasin (exemestane), Zoladex (goserelin) Radiation Therapy 3/9/2015 Breast, Lymph nodes
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May 17, 2020 07:22PM Iamloved wrote:

Thank you ElaineTheresa. I will look into the Herceptin alone. That was not an option the first time. I am not freaked about by Chemo but the risk factors outweighed the results for me for the 1st diagnosis. I plan to spend my 3 weeks researching different options. I do appreciate all advice and hugs!🤗

Surgery December 1 2020 Lumpectomy and oncoplastic surgery Dx 8/8/2018, IDC, Right, 2cm, Stage IIB, Grade 3, 0/3 nodes, ER+/PR+, HER2+ (IHC) Surgery 8/30/2018 Lumpectomy: Right; Lymph node removal: Sentinel Dx 5/14/2020, IDC, Right, 6cm+, Stage IIB, Grade 3, 0/2 nodes, ER+/PR+, HER2+ (IHC) Targeted Therapy 7/14/2020 Herceptin (trastuzumab) Chemotherapy 7/14/2020 Carboplatin (Paraplatin), Taxotere (docetaxel)
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May 17, 2020 07:39PM ElaineTherese wrote:

Iamloved,

It isn't orthodox to do Herceptin alone; you may have to shop around for an MO who will order that for you. I hope you find an MO who will be able to be responsive to your concerns about risk factors. As a fellow triple positive, I'm rooting for you!!!

DX IDC June 28, 2014, 5 cm., 1 node tested positive (fine needle biopsy); 0/20 after neoadjuvant chemo + ALND; Grade 3; ER+ PR+ HER2+ Neoadjuvant chemotherapy starting 7/23/14 ACX 4, Taxol X 12, Perjeta X 4; Herceptin: one year Chemotherapy 7/23/2014 AC Targeted Therapy 9/17/2014 Perjeta (pertuzumab) Targeted Therapy 9/17/2014 Herceptin (trastuzumab) Chemotherapy 9/17/2014 Taxol (paclitaxel) Surgery 1/12/2015 Lumpectomy: Right; Lymph node removal: Right, Underarm/Axillary Hormonal Therapy 2/25/2015 Aromasin (exemestane), Zoladex (goserelin) Radiation Therapy 3/9/2015 Breast, Lymph nodes
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Jun 1, 2020 03:40AM jcp wrote:

iamloved, I will pray for a miracle for you and if not then all good news from here on out. If there's anything I or we can do just let me know. Prayers, I know, is usually what I ask for. It will be ok. JCP

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Jun 2, 2020 06:51PM Iamloved wrote:

Thank you. Next week's pet scan I hope is boring and dull😁

Surgery December 1 2020 Lumpectomy and oncoplastic surgery Dx 8/8/2018, IDC, Right, 2cm, Stage IIB, Grade 3, 0/3 nodes, ER+/PR+, HER2+ (IHC) Surgery 8/30/2018 Lumpectomy: Right; Lymph node removal: Sentinel Dx 5/14/2020, IDC, Right, 6cm+, Stage IIB, Grade 3, 0/2 nodes, ER+/PR+, HER2+ (IHC) Targeted Therapy 7/14/2020 Herceptin (trastuzumab) Chemotherapy 7/14/2020 Carboplatin (Paraplatin), Taxotere (docetaxel)
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Jun 23, 2020 11:22AM KBeee wrote:

Hoping all came back normal on the PET scan. How are you doing now?

Karen. Dx 8/5/2013, IDC, Right, 1cm, Grade 2, 0/1 nodes, ER+/PR+, HER2- (IHC) Surgery 8/26/2013 Mastectomy: Left, Right Chemotherapy 9/20/2013 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 12/12/2013 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 1/23/2014 Reconstruction (left); Reconstruction (right) Surgery 1/29/2015 Lumpectomy: Right Dx 2/2/2015, IDC, Right, 1cm, Grade 2, 0/0 nodes, ER+/PR-, HER2- (FISH) Dx 2/25/2015, IDC, Right, 1cm, Grade 3, 0/13 nodes, ER+/PR-, HER2- (IHC) Surgery 2/25/2015 Lumpectomy: Right; Lymph node removal: Right, Sentinel, Underarm/Axillary; Prophylactic ovary removal Chemotherapy 3/31/2015 AC + T (Taxol) Radiation Therapy 8/25/2015 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy Femara (letrozole)
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Jun 23, 2020 06:26PM Iamloved wrote:

The pet scan came back all clear. I Have met with "the team" for treatment. Because Rochester MN is 7 hours from me I will only be going back there for my surgery. Going to a closer to home Breast cancer center for other treatments. I met with the oncologist yesterday but Hubby & I did not care for his attitude or his demeanor. Lacked any compassion. So I called the clinic today and asked for a new oncologist. So next week I will meet with her(happy they found me a female). My p,an is for surgery Herceptin alone after and hormonal therapy. My reasons are lengthy for saying no to TCHP in the neoadjuvant setting. Thanks for your concern. Feeling great except this darn lump😁

Surgery December 1 2020 Lumpectomy and oncoplastic surgery Dx 8/8/2018, IDC, Right, 2cm, Stage IIB, Grade 3, 0/3 nodes, ER+/PR+, HER2+ (IHC) Surgery 8/30/2018 Lumpectomy: Right; Lymph node removal: Sentinel Dx 5/14/2020, IDC, Right, 6cm+, Stage IIB, Grade 3, 0/2 nodes, ER+/PR+, HER2+ (IHC) Targeted Therapy 7/14/2020 Herceptin (trastuzumab) Chemotherapy 7/14/2020 Carboplatin (Paraplatin), Taxotere (docetaxel)
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Jun 25, 2020 09:17PM KBeee wrote:

glad you have a plan

Karen. Dx 8/5/2013, IDC, Right, 1cm, Grade 2, 0/1 nodes, ER+/PR+, HER2- (IHC) Surgery 8/26/2013 Mastectomy: Left, Right Chemotherapy 9/20/2013 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 12/12/2013 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 1/23/2014 Reconstruction (left); Reconstruction (right) Surgery 1/29/2015 Lumpectomy: Right Dx 2/2/2015, IDC, Right, 1cm, Grade 2, 0/0 nodes, ER+/PR-, HER2- (FISH) Dx 2/25/2015, IDC, Right, 1cm, Grade 3, 0/13 nodes, ER+/PR-, HER2- (IHC) Surgery 2/25/2015 Lumpectomy: Right; Lymph node removal: Right, Sentinel, Underarm/Axillary; Prophylactic ovary removal Chemotherapy 3/31/2015 AC + T (Taxol) Radiation Therapy 8/25/2015 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy Femara (letrozole)
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Jul 2, 2020 12:18AM Iamloved wrote:

Well I changed my plan AGAIN! I will be doing the neoadjuvant Tchp. Scared as help but decided after meeting with my 3rd Oncologist to do this treatment. I will get my port in and gave my first round the week of July 13th. Now to research all I need for minimizing side effects.

Surgery December 1 2020 Lumpectomy and oncoplastic surgery Dx 8/8/2018, IDC, Right, 2cm, Stage IIB, Grade 3, 0/3 nodes, ER+/PR+, HER2+ (IHC) Surgery 8/30/2018 Lumpectomy: Right; Lymph node removal: Sentinel Dx 5/14/2020, IDC, Right, 6cm+, Stage IIB, Grade 3, 0/2 nodes, ER+/PR+, HER2+ (IHC) Targeted Therapy 7/14/2020 Herceptin (trastuzumab) Chemotherapy 7/14/2020 Carboplatin (Paraplatin), Taxotere (docetaxel)
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Jul 2, 2020 12:02PM - edited Jul 2, 2020 12:03PM by MinusTwo

Iamloved - I'll dig out the chemo tips & forward.

Here you go.

https://community.breastcancer.org/forum/69/topics...


2/15/11 BMX-DCIS 2SNB clear-TEs; 9/15/11-410gummies; 3/20/13 recurrance-5.5cm,mets to lymphs, Stage IIIB IDC ER/PRneg,HER2+; TCH/Perjeta/Neulasta x6; ALND 9/24/13 1/18 nodes 4.5cm; AC chemo 10/30/13 x3; herceptin again; Rads Feb2014
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Jul 2, 2020 08:06PM KBeee wrote:

I definitely recommend joining the chemo group for the month you start. I did both times and still am very close to those gals. I have an extensive list of tips I compiles. You can pm me your email address nad I can send them Saturday. (Tomorrow I work a 24 hours fire station shift).

Karen. Dx 8/5/2013, IDC, Right, 1cm, Grade 2, 0/1 nodes, ER+/PR+, HER2- (IHC) Surgery 8/26/2013 Mastectomy: Left, Right Chemotherapy 9/20/2013 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 12/12/2013 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 1/23/2014 Reconstruction (left); Reconstruction (right) Surgery 1/29/2015 Lumpectomy: Right Dx 2/2/2015, IDC, Right, 1cm, Grade 2, 0/0 nodes, ER+/PR-, HER2- (FISH) Dx 2/25/2015, IDC, Right, 1cm, Grade 3, 0/13 nodes, ER+/PR-, HER2- (IHC) Surgery 2/25/2015 Lumpectomy: Right; Lymph node removal: Right, Sentinel, Underarm/Axillary; Prophylactic ovary removal Chemotherapy 3/31/2015 AC + T (Taxol) Radiation Therapy 8/25/2015 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy Femara (letrozole)

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