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Topic: Pain x 4 weeks

Forum: Not Diagnosed With a Recurrence or Metastases but Concerned —

Meet others concerned about developing a recurrence or metastases.

Posted on: Jul 22, 2020 07:46PM - edited Jul 22, 2020 07:55PM by PolkaDotPurse

PolkaDotPurse wrote:

Hi everyone -

99% of me knows I'm fine but the 1% that isn't sure brought me here. I've had lower back/nerve pain that's effecting my bladder and shooting nerve pain down my right arm for about 4 weeks. Had a bladder infection ruled out as that's what it feels like and have been seeing the chiropractor regularly. I do want to note that the nerve/bladder feeling has happened to me before years ago. But, I have also lost my appetite within the past few weeks which is not like me AT ALL. I attributed everything to sitting in a non-office seat while working from home and a touch of depression from all the crap going on in the world. It didn't occur to me that it could be something else until yesterday. I called my MO today and he wants to see me tomorrow. I'm just venting here as I don't want to alert my family unless there's something to alert them about. Everyone is so stressed with the virus, I don't want to add to it unnecessarily. Thanks for reading.


Dx 3/29/2016, IDC, Left, 1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2- Surgery 4/14/2016 Lumpectomy: Left Radiation Therapy 6/13/2016 Whole-breast Hormonal Therapy Femara (letrozole) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Jul 22, 2020 08:15PM MinusTwo wrote:

PolkaDot - good luck tomorrow. Yes, I defnitely would not tell anyone else at this point until you know for sure.

2/15/11 BMX-DCIS 2SNB clear-TEs; 9/15/11-410gummies; 3/20/13 recurrance-5.5cm,mets to lymphs, Stage IIIB IDC ER/PRneg,HER2+; TCH/Perjeta/Neulasta x6; ALND 9/24/13 1/18 nodes 4.5cm; AC chemo 10/30/13 x3; herceptin again; Rads Feb2014
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Jul 22, 2020 09:44PM GiGiL wrote:

PolkaDot best wishes for tomorrow. Hopefully it will be nothing to worry about. We are here to talk and bounce ideas off. These have been tough times for sure. None of us is feeling quite normal.

Dx 5/6/2011, IDC, 2cm, Stage IIA, Grade 3, 0/3 nodes, ER+/PR+, HER2-
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Jul 22, 2020 09:59PM RedemptiveSufferer wrote:

Hi, PDP! I noticed we have a near identical diagnosis, received the same year. I don’t have any sage advice but just wanted you to know I’ll be thinking of you and I hope you get a scan soon to help you determine what’s causing your pain and discomfort. I’ve had quite a bit of bone pain ever since my diagnosis, so I can understand your concern. Those “what if’s” like to hang around like a loyal dog.

Author of Joy Is Contagious...Cancer Isn't: 12 Women Share How Faith Shaped Their Breast Cancer Journey Dx 11/4/2016, ILC/IDC, Left, 1cm, Stage IA, Grade 2, 0/3 nodes, ER+/PR+, HER2- Surgery 12/6/2016 Mastectomy: Left; Reconstruction (left): Tissue expander placement Hormonal Therapy 2/19/2017 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 4/26/2017 Reconstruction (left): Saline implant
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Jul 22, 2020 11:11PM KBeee wrote:

Hoping they figure out a benign cause. keep us posted

Karen. Dx 8/5/2013, IDC, Right, 1cm, Grade 2, 0/1 nodes, ER+/PR+, HER2- (IHC) Surgery 8/26/2013 Mastectomy: Left, Right Chemotherapy 9/20/2013 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 12/12/2013 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 1/23/2014 Reconstruction (left); Reconstruction (right) Surgery 1/29/2015 Lumpectomy: Right Dx 2/2/2015, IDC, Right, 1cm, Grade 2, 0/0 nodes, ER+/PR-, HER2- (FISH) Dx 2/25/2015, IDC, Right, 1cm, Grade 3, 0/13 nodes, ER+/PR-, HER2- (IHC) Surgery 2/25/2015 Lumpectomy: Right; Lymph node removal: Right, Sentinel, Underarm/Axillary; Prophylactic ovary removal Chemotherapy 3/31/2015 AC + T (Taxol) Radiation Therapy 8/25/2015 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy Femara (letrozole)
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Jul 23, 2020 08:00AM PolkaDotPurse wrote:

Thank you all for the support. I really appreciate it. ♥️

Dx 3/29/2016, IDC, Left, 1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2- Surgery 4/14/2016 Lumpectomy: Left Radiation Therapy 6/13/2016 Whole-breast Hormonal Therapy Femara (letrozole) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Jul 23, 2020 03:14PM Rah2464 wrote:

Sending you hugs and hoping you simply have that same problem from before. I have had a couple of false alarms and the process is not fun at all, so stressful.

Dx 5/23/2018, IDC, Left, 1cm, Stage IA, Grade 2, 0/4 nodes, ER+/PR+, HER2- (IHC) Surgery 6/27/2018 Mastectomy: Left, Right; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Hormonal Therapy 7/27/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Jul 23, 2020 08:47PM PolkaDotPurse wrote:

Had my appointment and MO suspects symptoms are from a slipped disc vs a recurrence, but has ordered lab work and MRIs to be sure. I feel better after talking with him but that 1% will feel much better after I get the results back. Thanks again for your support.

Hugs all around. ♥️


Dx 3/29/2016, IDC, Left, 1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2- Surgery 4/14/2016 Lumpectomy: Left Radiation Therapy 6/13/2016 Whole-breast Hormonal Therapy Femara (letrozole) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Jul 23, 2020 10:32PM MinusTwo wrote:

PDP - continued good luck with the test results

2/15/11 BMX-DCIS 2SNB clear-TEs; 9/15/11-410gummies; 3/20/13 recurrance-5.5cm,mets to lymphs, Stage IIIB IDC ER/PRneg,HER2+; TCH/Perjeta/Neulasta x6; ALND 9/24/13 1/18 nodes 4.5cm; AC chemo 10/30/13 x3; herceptin again; Rads Feb2014
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Aug 20, 2020 06:00PM PolkaDotPurse wrote:

Update in case anyone does a search and this thread pops up (as I did when I was concerned). My brain and lumbar spine MRIs were clear of any malignancies and my lab work came back within normal limits. I do have a herniated disc that has likely been an issue for years but has been irritated, thus the nerve/bladder pain. I'll be pursuing PT to help.

I'm glad I called my MO although a part of me felt like I was overreacting/wasting his time but I know that 1% of me that was worried would've continued to nag at me. Long story short - if something is bugging you, get checked out. It could be something, it could be nothing, but you won't know unless you're seen by your physician.

Hugs 💕

Dx 3/29/2016, IDC, Left, 1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2- Surgery 4/14/2016 Lumpectomy: Left Radiation Therapy 6/13/2016 Whole-breast Hormonal Therapy Femara (letrozole) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Aug 20, 2020 08:11PM MinusTwo wrote:

PolkaDot - good news. Or rather - sorry for your pain but glad it's not cancer. Thanks for coming back & sharing your diagnosis. So many don't.

2/15/11 BMX-DCIS 2SNB clear-TEs; 9/15/11-410gummies; 3/20/13 recurrance-5.5cm,mets to lymphs, Stage IIIB IDC ER/PRneg,HER2+; TCH/Perjeta/Neulasta x6; ALND 9/24/13 1/18 nodes 4.5cm; AC chemo 10/30/13 x3; herceptin again; Rads Feb2014
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Aug 21, 2020 10:09AM TurboKitten88 wrote:

Im so happy its not cancer. but still sorry about the pain! i hope they can help you get that fixed up! Also thanks for coming back and updating! I know i dont "know" everyone on here but i always get sad and worry when a thread ends so suddenly. <3 Sending hugs

Dx 8/11/2017, IDC, Right, 2cm, Stage IIA, Grade 3, ER-/PR-, HER2- Chemotherapy 9/15/2017 AC + T (Taxol) Surgery 1/25/2018 Lumpectomy: Right; Lymph node removal: Sentinel Radiation Therapy 2/26/2018 Whole-breast: Breast
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Sep 2, 2020 10:29AM KBeee wrote:

Great news! Hoping you get relief from the pain.

Karen. Dx 8/5/2013, IDC, Right, 1cm, Grade 2, 0/1 nodes, ER+/PR+, HER2- (IHC) Surgery 8/26/2013 Mastectomy: Left, Right Chemotherapy 9/20/2013 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 12/12/2013 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 1/23/2014 Reconstruction (left); Reconstruction (right) Surgery 1/29/2015 Lumpectomy: Right Dx 2/2/2015, IDC, Right, 1cm, Grade 2, 0/0 nodes, ER+/PR-, HER2- (FISH) Dx 2/25/2015, IDC, Right, 1cm, Grade 3, 0/13 nodes, ER+/PR-, HER2- (IHC) Surgery 2/25/2015 Lumpectomy: Right; Lymph node removal: Right, Sentinel, Underarm/Axillary; Prophylactic ovary removal Chemotherapy 3/31/2015 AC + T (Taxol) Radiation Therapy 8/25/2015 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy Femara (letrozole)

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