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Topic: Swollen area in lymphedema arm

Forum: Not Diagnosed With a Recurrence or Metastases but Concerned —

Meet others concerned about developing a recurrence or metastases.

Posted on: Aug 10, 2020 07:56PM

Flo80 wrote:

Hi all it’s back again. I have lymphedema in my left can see side arm and still in process of getting treatment snd sleeve. Yesterday notice a lump like thing in my forearm and my whole arm hurts. Have appointment with oncologist tomorrow. My mind always thinks the worse

Dx 6/13/2019, DCIS/IDC, Left, 5cm, Grade 2, ER+/PR+
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Aug 10, 2020 08:33PM Shellsatthebeach wrote:

I had a painful lump in my arm which has slight lymphedema issues. It ended up being cellulitis. I didn’t have any scratches or even remember hurting that arm. I later think my cat may have put his claw through my arm at night. He sometimes walks on me. Do you know if you had any injuries to your arm?

Dx 3/2017, IDC, Left, 3cm, Stage IIIB, Grade 2, ER+, HER2- Surgery 8/28/2017 Lymph node removal; Mastectomy: Left Dx 9/15/2017, DCIS/IDC, Left, Stage IIIB, Grade 3, 6/10 nodes, ER+/PR+, HER2+ Targeted Therapy 9/24/2017 Herceptin (trastuzumab) Radiation Therapy 10/17/2017 Breast, Lymph nodes, Chest wall Chemotherapy AC + T (Taxotere) Targeted Therapy Perjeta (pertuzumab)
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Aug 10, 2020 08:36PM Flo80 wrote:

Hi there thank you so much. I had a mosquito but in that arm and it skid swollen before because of lymphedema. Have an appointment Tom to check. Thank you so much for sharing this

Dx 6/13/2019, DCIS/IDC, Left, 5cm, Grade 2, ER+/PR+
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Aug 18, 2020 09:35AM KBeee wrote:

What did the doc think???? Hoping it has resolved.

Karen. Dx 8/5/2013, IDC, Right, 1cm, Grade 2, 0/1 nodes, ER+/PR+, HER2- (IHC) Surgery 8/26/2013 Mastectomy: Left, Right Chemotherapy 9/20/2013 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 12/12/2013 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 1/23/2014 Reconstruction (left); Reconstruction (right) Surgery 1/29/2015 Lumpectomy: Right Dx 2/2/2015, IDC, Right, 1cm, Grade 2, 0/0 nodes, ER+/PR-, HER2- (FISH) Dx 2/25/2015, IDC, Right, 1cm, Grade 3, 0/13 nodes, ER+/PR-, HER2- (IHC) Surgery 2/25/2015 Lumpectomy: Right; Lymph node removal: Right, Sentinel, Underarm/Axillary; Prophylactic ovary removal Chemotherapy 3/31/2015 AC + T (Taxol) Radiation Therapy 8/25/2015 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy Femara (letrozole)
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Aug 18, 2020 10:04AM MinusTwo wrote:

Flo - you've posted with a lump in your groin, a pain in your face and now this swelling in your arm. It might make better sense to pick a thread and post all the on-going issues in one place instead of starting new threads all the time. We would be better able to follow the progression of your issues.

That said - since you already know you have LE, this question likely should be posted in the LE threads - not concerned about mets. Hope you saw your LEPT and didn't wait on the oncologist.

2/15/11 BMX-DCIS 2SNB clear-TEs; 9/15/11-410gummies; 3/20/13 recurrance-5.5cm,mets to lymphs, Stage IIIB IDC ER/PRneg,HER2+; TCH/Perjeta/Neulasta x6; ALND 9/24/13 1/18 nodes 4.5cm; AC chemo 10/30/13 x3; herceptin again; Rads Feb2014
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Sep 21, 2020 07:05PM Flo80 wrote:

Hi Minus Two sorry for replying late. I realized this. I have so ma by weird symptoms and now have pain under the rib of non cancer breast. It hurts when I press. Thank you as always for being there

Dx 6/13/2019, DCIS/IDC, Left, 5cm, Grade 2, ER+/PR+
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Sep 22, 2020 01:45AM - edited Sep 22, 2020 01:52AM by SandyAust

Hi Flo. I see you were diagnosed just over a year ago. It is common and understandable to be concerned about every odd pain or sensation that pops up, I am now sixteen years out. In my personal experience, and from observing on the boards, this worryreduces overtime. Basically, you eventually get on with living your life. When you are ER+ you will always be mindful of the risk of recurrence when serious symptoms occur, but life becomes more normal. I hope you don't recur. In the meantime, don't be too hard on yourself as a lot of people also worry about everything at first. Take care.

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Sep 22, 2020 02:57AM AliceBastable wrote:

Endometrial cancer 2010, basal cell multiples, breast cancer 2018, kidney cancer 2018. Cancer's a bitch, but I'm a bigger one with more practice. Dx 5/2018, ILC/IDC, Left, 2cm, Stage IA, Grade 2, 1/1 nodes, ER+/PR+, HER2- Surgery 7/11/2018 Lumpectomy: Left; Lymph node removal: Sentinel Surgery 8/8/2018 Radiation Therapy 10/29/2018 Whole-breast: Breast, Lymph nodes
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Sep 22, 2020 07:08AM Flo80 wrote:

Hi Sandydust thank you so much for replying and wishing you good health and happiness always. I agree and these aches and pains make me crazy. Now I have a pain in my ribs under the non cancer breast. I had an abdominal ct scan in July and was wondering if that shows lower chest area as well. I had a chest X-ray as well. When I press it hurts there

Dx 6/13/2019, DCIS/IDC, Left, 5cm, Grade 2, ER+/PR+
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Sep 22, 2020 07:09AM Flo80 wrote:

Hi Alice totally agree and try my best

Dx 6/13/2019, DCIS/IDC, Left, 5cm, Grade 2, ER+/PR+
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Sep 22, 2020 08:26AM SandyAust wrote:

Well, yes,it does mean you suffer twice (or needlessly) but just telling someone to stop worrying does not work. Everyone is different and everyone is entitled to kindness. I hope some of the more recently diagnosed ladies with a tendency to worry are comforted to know that it passes with time. I did not have a lot of time for worry as I had two four-year-olds to care for, but I do remember the passage of time helped. My oncologist also mentioned that ladies tended to notice things with their bodies more ini the initial stages

For me, because I was so young. It was hard to work out whether to plan for the long term or live entirely like life was short. Thankfully, I adjusted and I have been so fortunate to see my boys grow into young men.

I am having a biopsy on my mediastinal nodes on Thursday. I told my GP today, I expect the results to be normal. If they are not, I will adapt.

I have seen a lot on these boards over the years and I find kindness is key.

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