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Topic: Neck lump

Forum: Not Diagnosed With a Recurrence or Metastases but Concerned —

Meet others concerned about developing a recurrence or metastases.

Posted on: Sep 9, 2020 06:38AM

HeatherPsalm34-4 wrote:

Hello,

I am two+ years out from breast cancer, no recurrence but I obsess about it constantly. This morning while getting ready I felt a very small lump which feels like it is on a tendon on my neck...it is very small, pea sized??? Is it possibly just a swollen lymph node? Going to pcp tomorrow to get it checked. Is it possible it will just go away?

Dx 6/2018, IDC, Left, 3cm, Grade 2, 5/8 nodes, ER+/PR+, HER2- Surgery 8/2/2018 Lymph node removal: Left; Mastectomy: Left Chemotherapy 9/13/2018 AC + T (Taxol) Radiation Therapy Lymph nodes, Chest wall Hormonal Therapy
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Sep 9, 2020 10:46AM moth wrote:

You might have just found an actual normal lymph node. That's kind of what they feel like & they're always there. Hope your doc gives you the all clear asap
Seriously???? “Sometimes the future changes quickly and completely and we’re left with only the choice of what to do next." nevertellmetheodds2017.tumblr.... Dx 12/2017, IDC, Left, 1cm, Stage IA, Grade 3, 0/5 nodes, ER-/PR-, HER2- (IHC) Surgery 12/11/2017 Lumpectomy: Left; Lymph node removal: Sentinel Chemotherapy 2/13/2018 AC + T (Taxol) Radiation Therapy 8/12/2018 Whole-breast: Breast Dx 2/2020, IDC, Stage IV, metastasized to liver/lungs, Grade 3, ER-/PR-, HER2- Chemotherapy 3/17/2020 Taxol (paclitaxel) Immunotherapy 3/18/2020 Tecentriq (atezolizumab)
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Sep 9, 2020 02:21PM HeatherPsalm34-4 wrote:

Thanks so so much, Moth! I am so tired of freaking out over EVERY LITTLE thing! I pray that you’re right!

Dx 6/2018, IDC, Left, 3cm, Grade 2, 5/8 nodes, ER+/PR+, HER2- Surgery 8/2/2018 Lymph node removal: Left; Mastectomy: Left Chemotherapy 9/13/2018 AC + T (Taxol) Radiation Therapy Lymph nodes, Chest wall Hormonal Therapy
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Sep 10, 2020 08:41AM KBeee wrote:

It is most likely a lymph node doing its job. It's always good to be safe; glad you are getting it checked.

Karen. Dx 8/5/2013, IDC, Right, 1cm, Grade 2, 0/1 nodes, ER+/PR+, HER2- (IHC) Surgery 8/26/2013 Mastectomy: Left, Right Chemotherapy 9/20/2013 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 12/12/2013 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 1/23/2014 Reconstruction (left); Reconstruction (right) Surgery 1/29/2015 Lumpectomy: Right Dx 2/2/2015, IDC, Right, 1cm, Grade 2, 0/0 nodes, ER+/PR-, HER2- (FISH) Dx 2/25/2015, IDC, Right, 1cm, Grade 3, 0/13 nodes, ER+/PR-, HER2- (IHC) Surgery 2/25/2015 Lumpectomy: Right; Lymph node removal: Right, Sentinel, Underarm/Axillary; Prophylactic ovary removal Chemotherapy 3/31/2015 AC + T (Taxol) Radiation Therapy 8/25/2015 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy Femara (letrozole)
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Sep 10, 2020 09:02PM HeatherPsalm34-4 wrote:

well, went to my pcp and a neck ultrasound is ordered, hoping I can get in QUICKLY! She did say it felt small and soft, so I guess that’s good....and now the waiting game...

Dx 6/2018, IDC, Left, 3cm, Grade 2, 5/8 nodes, ER+/PR+, HER2- Surgery 8/2/2018 Lymph node removal: Left; Mastectomy: Left Chemotherapy 9/13/2018 AC + T (Taxol) Radiation Therapy Lymph nodes, Chest wall Hormonal Therapy
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Sep 14, 2020 04:55PM HeatherPsalm34-4 wrote:

Well, had my ultrasound today... I tried to squeeze info out of the tech, and it was a no go...she stammered around and said all she could tell me was she didn't find any others, she measured the one I showed her, and if the radiologist feels I need more tests they'll let me know...🤦🏻♀️ I should find out results tomorrow...of course now I’m reading into her reaction and mentioning if the radiologist feels I need more tests they’ll let me know....

Dx 6/2018, IDC, Left, 3cm, Grade 2, 5/8 nodes, ER+/PR+, HER2- Surgery 8/2/2018 Lymph node removal: Left; Mastectomy: Left Chemotherapy 9/13/2018 AC + T (Taxol) Radiation Therapy Lymph nodes, Chest wall Hormonal Therapy
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Sep 14, 2020 05:09PM MinusTwo wrote:

Heather - waiting is always the hardest. Try not to get the cart before the horse and go down a scary path when it's still only guess work. Hope the doc sends results soon.

2/15/11 BMX-DCIS 2SNB clear-TEs; 9/15/11-410gummies; 3/20/13 recurrance-5.5cm,mets to lymphs, Stage IIIB IDC ER/PRneg,HER2+; TCH/Perjeta/Neulasta x6; ALND 9/24/13 1/18 nodes 4.5cm; AC chemo 10/30/13 x3; herceptin again; Rads Feb2014
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Sep 14, 2020 08:25PM AliceBastable wrote:

Techs aren't supposed to give you information, and her "stammering around" was in response to you asking her to do something that is not allowed. Please don't read anything into it beyond that.

Endometrial cancer 2010, basal cell multiples, breast cancer 2018, kidney cancer 2018. Cancer's a bitch, but I'm a bigger one with more practice. Dx 5/2018, ILC/IDC, Left, 2cm, Stage IA, Grade 2, 1/1 nodes, ER+/PR+, HER2- Surgery 7/11/2018 Lumpectomy: Left; Lymph node removal: Sentinel Surgery 8/8/2018 Radiation Therapy 10/29/2018 Whole-breast: Breast, Lymph nodes
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Sep 15, 2020 07:54PM HeatherPsalm34-4 wrote:

well, got my ultrasound results...not good...cortical thickening and loss of fatty hila on swollen lymph nodes....masses hypoechoic....now likely having CT and biopsy....😢 Is there any hope these nodes aren’t cancer!?

Dx 6/2018, IDC, Left, 3cm, Grade 2, 5/8 nodes, ER+/PR+, HER2- Surgery 8/2/2018 Lymph node removal: Left; Mastectomy: Left Chemotherapy 9/13/2018 AC + T (Taxol) Radiation Therapy Lymph nodes, Chest wall Hormonal Therapy
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Sep 15, 2020 08:36PM MinusTwo wrote:

Yes Heather. Look to your name Psalm to assuage your fears. Please do keep us in the loop.

2/15/11 BMX-DCIS 2SNB clear-TEs; 9/15/11-410gummies; 3/20/13 recurrance-5.5cm,mets to lymphs, Stage IIIB IDC ER/PRneg,HER2+; TCH/Perjeta/Neulasta x6; ALND 9/24/13 1/18 nodes 4.5cm; AC chemo 10/30/13 x3; herceptin again; Rads Feb2014
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Sep 19, 2020 08:41PM pure0323 wrote:

HeatherPsalm34-4 I just wanted to stop by, I experienced enlarged neck lymph nodes at the beginning of the year. I had an ultrasound sound that led to a head, neck, and chest CT. The CT showed everything was good. I was a ball of anxiety. It was actually posts from some of the wonderful woman who have replied to you that helped me pull myself together. I’m over 9 years out and every year I have had some kind of scare. I have just accepted its part of my new normal. I wish you the best.

Dx 7/21/2011, IDC, Right, 1cm, Stage IA, Grade 1, 0/3 nodes, ER+/PR+, HER2- Surgery 8/10/2011 Mastectomy: Left, Right Chemotherapy 9/9/2011 Cytoxan (cyclophosphamide), Taxotere (docetaxel)
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Sep 20, 2020 11:22AM HeatherPsalm34-4 wrote:

PURE0323

I can’t thank you enough for posting! I am of course assuming the worst, imagining my husband being alone, my funeral, etc...you have given me hope. I’m assuming your US must have shown suspicious findings as well to warrant the CT! It gives me such HOPE that yours was nothing! My ct will be from neck to pelvis. I find out tomorrow when the scan is. Thank you too for all of you ladies who have commented and encouraged me. I get so excited when I get a notification that there is a message! I know God is in charge, and I thank Him for sending encouragement through you all!

Dx 6/2018, IDC, Left, 3cm, Grade 2, 5/8 nodes, ER+/PR+, HER2- Surgery 8/2/2018 Lymph node removal: Left; Mastectomy: Left Chemotherapy 9/13/2018 AC + T (Taxol) Radiation Therapy Lymph nodes, Chest wall Hormonal Therapy
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Sep 20, 2020 03:41PM pure0323 wrote:

At my ultrasound the tech even said,”You will be having a CT.” I came out there and almost threw up in the parking lot, my anxiety was so high. While I was waiting for my test I read through so many stories. One lady had a bad ultrasound, CT prompted a biopsy and then the biopsy was benign. Her story taught me that these test are not 100 percent. There is always hope no matter the outcome of these test. I see a physician assistant sometimes whose mother has been living with stage 4 breast cancer for 15 years, and she isn’t alone.

Dx 7/21/2011, IDC, Right, 1cm, Stage IA, Grade 1, 0/3 nodes, ER+/PR+, HER2- Surgery 8/10/2011 Mastectomy: Left, Right Chemotherapy 9/9/2011 Cytoxan (cyclophosphamide), Taxotere (docetaxel)
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Sep 22, 2020 06:51AM HeatherPsalm34-4 wrote:

well, ladies, CT scan neck to pelvis is tomorrow. I pray for good results! Oh how I pray it’s possible there isn’t cancer even though lymph nodes are lacking fatty hila and there is mild cortical thickening. I know God is in charge and I trust Him above all! Thanks for all of your support!

Dx 6/2018, IDC, Left, 3cm, Grade 2, 5/8 nodes, ER+/PR+, HER2- Surgery 8/2/2018 Lymph node removal: Left; Mastectomy: Left Chemotherapy 9/13/2018 AC + T (Taxol) Radiation Therapy Lymph nodes, Chest wall Hormonal Therapy
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Sep 22, 2020 08:42AM SandyAust wrote:

Heather, best wishes. I will be thinking of you.

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Sep 22, 2020 09:30PM edwards750 wrote:

Bless your heart Heather we all feel for you. Of course prayers are coming your way.

I had a lump appear on my neck and freaked out too. It turned out to be fatty tissue thank goodness. Hopefully yours will be nothing too.

Keep the faith and keep us posted.

Diane

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Sep 23, 2020 01:05PM VL22 wrote:

Thinking of you today Heather

Dx 5/5/2017, IDC, Right, <1cm, Stage IA, Grade 1, 0/2 nodes, ER+/PR+, HER2- Surgery 6/14/2017 Lumpectomy: Right; Lymph node removal: Sentinel Dx 6/23/2017, IDC, Right, 1cm, Stage IB, Grade 3, 1/2 nodes, ER-/PR-, HER2- Chemotherapy 8/10/2017 AC + T (Taxol) Radiation Therapy 1/10/2018 Whole-breast: Breast Hormonal Therapy 3/11/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Sep 23, 2020 02:17PM HeatherPsalm34-4 wrote:

Thank you so much! Scans are done, and the waiting begins! I’m so thankful for you all

Dx 6/2018, IDC, Left, 3cm, Grade 2, 5/8 nodes, ER+/PR+, HER2- Surgery 8/2/2018 Lymph node removal: Left; Mastectomy: Left Chemotherapy 9/13/2018 AC + T (Taxol) Radiation Therapy Lymph nodes, Chest wall Hormonal Therapy
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Sep 23, 2020 04:57PM pure0323 wrote:

Glad to hear your scan is done.

Dx 7/21/2011, IDC, Right, 1cm, Stage IA, Grade 1, 0/3 nodes, ER+/PR+, HER2- Surgery 8/10/2011 Mastectomy: Left, Right Chemotherapy 9/9/2011 Cytoxan (cyclophosphamide), Taxotere (docetaxel)
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Sep 23, 2020 05:27PM Rain88 wrote:

I'm thinking of you, Heather. I had an US of two small lumps on my neck last week and it's really hard waiting for results. I hope you will get all good findings. Heart

Dx 7/2019, IDC: Mucinous, Right, 1cm, Stage IA, Grade 1, 0/10 nodes, ER+/PR+, HER2- Radiation Therapy 11/27/2019 Whole-breast: Breast Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery Lumpectomy: Right
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Sep 23, 2020 09:51PM HeatherPsalm34-4 wrote:

Thank you, RAIN! How did your US results turn out? This message board connecting me to all of your encouragement is such a blessing!

Dx 6/2018, IDC, Left, 3cm, Grade 2, 5/8 nodes, ER+/PR+, HER2- Surgery 8/2/2018 Lymph node removal: Left; Mastectomy: Left Chemotherapy 9/13/2018 AC + T (Taxol) Radiation Therapy Lymph nodes, Chest wall Hormonal Therapy
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Sep 24, 2020 04:48PM Rain88 wrote:

Still waiting to get them... 😕

Dx 7/2019, IDC: Mucinous, Right, 1cm, Stage IA, Grade 1, 0/10 nodes, ER+/PR+, HER2- Radiation Therapy 11/27/2019 Whole-breast: Breast Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery Lumpectomy: Right
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Sep 24, 2020 06:05PM HeatherPsalm34-4 wrote:

I would say no news is good news! My results were suspicious and I had my results in two days!

Dx 6/2018, IDC, Left, 3cm, Grade 2, 5/8 nodes, ER+/PR+, HER2- Surgery 8/2/2018 Lymph node removal: Left; Mastectomy: Left Chemotherapy 9/13/2018 AC + T (Taxol) Radiation Therapy Lymph nodes, Chest wall Hormonal Therapy
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Sep 24, 2020 07:15PM Rain88 wrote:

The findings of the US: indeterminant. What is noted is the absence of preserved fatty hilum, which I understand is the mark of normal nodes. I don't know what will be next. I'm assuming a CT? I'm waiting to talk to my MO. Now I have an inconclusive bone scan and an indeterminant neck lump US. Neither could exclude malignancy. The waiting continues: another bone scan and most likely a CT. I am really scared, but holding hope for good results.

Dx 7/2019, IDC: Mucinous, Right, 1cm, Stage IA, Grade 1, 0/10 nodes, ER+/PR+, HER2- Radiation Therapy 11/27/2019 Whole-breast: Breast Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery Lumpectomy: Right
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Sep 24, 2020 08:11PM LillyIsHere wrote:

Heather, I still have a side of my neck swollen and a node since May this year. I had US and I was told that I got a new nodule in my thyroid, 1.6cm. I had the biopsy in July that came back benign. I had my MO and my PCP check my swollen side of the neck and they think there is nothing suspicious. So, don't borrow the worries. I wish you good news soon.

Dx 7/31/2019, ILC, Left, <1cm, Stage IIA, 2/5 nodes, ER+/PR-, HER2- Surgery 9/19/2019 Lymph node removal: Sentinel, Underarm/Axillary; Mastectomy: Left, Right; Prophylactic ovary removal; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Hormonal Therapy 12/1/2019 Femara (letrozole)
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Sep 24, 2020 09:27PM HeatherPsalm34-4 wrote:

Lilyishere, that’s great news that your node was benign! I anticipate a biopsy for mine. Still waiting for CT results...did your node have any cortical thickening or missing fatty hila? Those are two characteristics mine had via US.

Rain88, It IS SO SCARY! I’m right there with you! But indeterminate is better than definite malignant! There is hope for benign findings yet! I’m praying for no cancer for my results too! But oh man, scanxiety! I keep trusting God that no matter what the result He will carry me through. But I’m so thankful for the support and friendships on this site! Keep us posted! Try to hand God your worries and rest tonight!

Dx 6/2018, IDC, Left, 3cm, Grade 2, 5/8 nodes, ER+/PR+, HER2- Surgery 8/2/2018 Lymph node removal: Left; Mastectomy: Left Chemotherapy 9/13/2018 AC + T (Taxol) Radiation Therapy Lymph nodes, Chest wall Hormonal Therapy
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24 hours ago Danee78 wrote:

I hear you. I have a slightly enlarged lymph node in the front right side of my neck and have had a poor appetite. My doctor got an ultrasound done on it, and nothing showed up. It seems like things that would have been minor in the past are now pretty scary.

Dx 1/29/2020, IDC, Left, 1cm, Stage IA, Grade 2, 0/4 nodes, ER+/PR+, HER2- Surgery 2/25/2020 Mastectomy; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Hormonal Therapy 4/9/2020 Aromasin (exemestane)
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9 hours ago HeatherPsalm34-4 wrote:

Well, Ladies, Got a call from the Oncologist office that We are taking as answered prayers!!!

Liver, kidneys, pancreas, bones, and lungs are all good! PTL!! There is a tiny nodule that has been in my lung that has been there and is stable and unchanged that they are unworried about!

They are still unsure about my neck lymph nodes that are enlarged so are going to try for a pet scan, if not approved by insurance, they will do a biopsy of lymph nodes.

They are also scheduling an EGD scope of esophagus as there is thickening and inflammation, possible esophogitis, but they made no mention of any nodules or tumors.

Ive never had a PET scan, will it be just neck or whole body?

So more tests and waiting, but I am PRAISING THE LORD!!!

Dx 6/2018, IDC, Left, 3cm, Grade 2, 5/8 nodes, ER+/PR+, HER2- Surgery 8/2/2018 Lymph node removal: Left; Mastectomy: Left Chemotherapy 9/13/2018 AC + T (Taxol) Radiation Therapy Lymph nodes, Chest wall Hormonal Therapy
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8 hours ago HeatherPsalm34-4 wrote:

I found out it will be a full body Pet scan, listed on request for insurance approval as diagnostic for new symptoms....should I be worried?

Dx 6/2018, IDC, Left, 3cm, Grade 2, 5/8 nodes, ER+/PR+, HER2- Surgery 8/2/2018 Lymph node removal: Left; Mastectomy: Left Chemotherapy 9/13/2018 AC + T (Taxol) Radiation Therapy Lymph nodes, Chest wall Hormonal Therapy
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6 hours ago ElaineTherese wrote:

Heather,

PET scans are expensive, so your MO has to come up with a good reason to order one. I wouldn't read to much into the order. PET scans are much calmer than MRIs, so there's that. I've had three PET scans, and their biggest problem is that they can produce false positives. I had three PET scans show that *something* was going on in my left femoral neck (hip). However, that *something* never showed up in an MRI and a CT scan, so my MO concluded it was nothing. Only a biopsy can say for sure that *something* is cancer.

DX IDC June 28, 2014, 5 cm., 1 node tested positive (fine needle biopsy); 0/20 after neoadjuvant chemo + ALND; Grade 3; ER+ PR+ HER2+ Neoadjuvant chemotherapy starting 7/23/14 ACX 4, Taxol X 12, Perjeta X 4; Herceptin: one year Chemotherapy 7/23/2014 AC Targeted Therapy 9/17/2014 Perjeta (pertuzumab) Targeted Therapy 9/17/2014 Herceptin (trastuzumab) Chemotherapy 9/17/2014 Taxol (paclitaxel) Surgery 1/12/2015 Lumpectomy: Right; Lymph node removal: Right, Underarm/Axillary Hormonal Therapy 2/25/2015 Aromasin (exemestane), Zoladex (goserelin) Radiation Therapy 3/9/2015 Breast, Lymph nodes
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5 hours ago LillyIsHere wrote:

Heather, just checked the report from US and said: "appears spongiform and mildly hypoechoic with slightly ill-defined margins, and no definite associated echogenic foci.". Whatever this means. I googles some and got nervous but in the end biopsy showed benign.

I wish you good luck and please keep us posted.

Virtual hug.

Dx 7/31/2019, ILC, Left, <1cm, Stage IIA, 2/5 nodes, ER+/PR-, HER2- Surgery 9/19/2019 Lymph node removal: Sentinel, Underarm/Axillary; Mastectomy: Left, Right; Prophylactic ovary removal; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Hormonal Therapy 12/1/2019 Femara (letrozole)

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