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Nov 16, 2020 07:18AM
Sorry you are going through this Beeline. I hope your imaging gets scheduled ASAP and you get some answers.
I'm totally relating to your comment - "I go back and forth being sure I have mets and being sure I don't!"
I just finished Chemo (TC) in June and Rads in September this year, for a local recurrence. I was initially diagnosed in 2018 and had a mastectomy and recon on the right side for IDC/DCIS (see my signature for more info).
I had an acute onset low back pain in mid-august, where no pain meds touched it....ibuprofen, Tylenol or even tramadol that I had left over from my DIEP in 2018. The sharp, excruciating and breath taking pain in my lower back resolved after about 5 days. However, the pain didn't fully resolve and I continued to have a sore lower back, SI joints and bruised feeling in my tail bone. I started to see a Chiro September for active release, TENS and additional glute/ab strengthening exercises.
We both felt things (pain and movement) were initially getting better. However, since Mid-October, I've plateaued. Pain is still there, usually only when I move a certain way or sit too long. Although I can feel it at night and I'm not sleeping as well as usual, I wouldn't say its particularly worse overnight....I think part of the sleep issue is that I started Zoladex and Femara in mid-October as well. I was put in chemo-pause, but wonder if the meds are contributing to the sleeping issues more than the back pain.
Chiro sent me for spinal rads because he will usually see young(ish) and fit patients (I'm 45 and active in sports and fitness) get better and resolve by this time. I also started to see a physiotherapist and started massage therapy. No relief yet.
X-rays done and reported last week. Degenerative changes in line with OA in several parts of my spine (cervical, lower thoracic, SI joints, Low lumbar), but nothing "aggressive" seen. The thoracic site is a bit concerning to me as I started to have a new pain there in September (when I lean back and to the left there is a sharp pain beside my shoulder blade) and my bone scan in March didn't highlight anything in that area. Some of the other areas showed what likely are some of the degenerative changes.
I have a call with my MO today and will discuss further and request additional imaging, just to make sure there isn't anything sinister. I hope he doesn't resist....
Anyway - sorry for the long post and hijack. I just wanted to chime in and commiserate with your situation. This is such a sucky, horrible disease. Although I'm still fairly upbeat and feeling overall "OK", I'm tired of the emotional toll and the effects it causes not just on me, but by family and everyone else dealing with all these repeated scares or even just the weight of fear you carry with you.
Thinking of you and wishing you all the best.
Dx at 43 (2018) with multi-focal IDC (1.7cm largest) + microinvasive DCIS 7.5 cm. LVI + Positive Anterior Margin for DCIS. Oncotype Score = 14. Local Recurrence February 2020
9/2018, DCIS/IDC, Right, Stage IA, Grade 2, 0/5 nodes, ER+/PR+, HER2-
10/12/2018 Mastectomy: Right; Reconstruction (right): DIEP flap
1/1/2019 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
2/2020, IDC, Right, <1cm, Grade 2, ER+/PR+, HER2- (IHC)
Femara (letrozole), Zoladex (goserelin)
Whole-breast: Breast, Lymph nodes, Chest wall
Cytoxan (cyclophosphamide), Taxotere (docetaxel)