Join Us

We are 223,107 members in 83 forums discussing 162,829 topics.

Help with Abbreviations

Topic: Being asked to get an abdominal CT and I'm terrified. :(

Forum: Not Diagnosed With a Recurrence or Metastases but Concerned —

Meet others concerned about developing a recurrence or metastases.

Posted on: Jan 19, 2021 04:06PM

lexie2002 wrote:

I was diagnosed with IDC back in 2013. I've been doing well since then. I had lumpectomy, mastectomy, chemo (AC and Taxol) and 5 weeks of radiation. I've been having a dull ache in my right back sort of at my waist. I had a chest X-ray per request of my PC doc and it showed lungs ok but a healed fractured 7th rib? I did take a fall getting out of bed in the middle of the night I think back in August. Not sure if that's what caused the break. I just happened to have my yearly video visit January 11th with my Oncologist. When I mentioned this to her she suggested this abdominal CT. I am concerned about the radiation. I am also very scared to get it. I always think the worst these days. I have until now been staying pretty positive but I can't even imagine what the ache could be from?? I guess I'm reaching out because I don't really have anyone to reach out to about this. My husband is not much help and sometimes seems so cold when it comes to my diagnosis.

Any help from ladies in this special community would be so appreciated. I really have a feeling of despair

Lexie

Dx 4/2013, IDC, Right, 5cm, Stage IIIA, 1/16 nodes, ER+/PR+, HER2- Surgery 6/13/2013 Lumpectomy: Right; Lymph node removal: Right, Sentinel; Mastectomy: Right Chemotherapy 6/20/2013 AC + T (Taxol) Radiation Therapy 12/27/2013 Breast, Lymph nodes Hormonal Therapy 3/31/2014 Arimidex (anastrozole)
Log in to post a reply

Page 1 of 3 (90 results)

Posts 1 - 30 (90 total)

Log in to post a reply

Jan 19, 2021 04:56PM navy1305 wrote:

From the location, maybe your doctor needs to see your kidneys like to check for kidney stones or something. Did your doctor order the CT with or without contrast? Contrast is needed to get any useful info about the organs, but if they are just looking for kidney stones, you don't need contrast for that.

Log in to post a reply

Jan 19, 2021 05:07PM lexie2002 wrote:

First I want to say thank you for responding. She did mention that they would be injecting a dye. I know I should follow her advice but my fear is absolutely holding me back. Why would she order this test if she wasn't thinking something is wrong. :( I still haven't agreed.

Dx 4/2013, IDC, Right, 5cm, Stage IIIA, 1/16 nodes, ER+/PR+, HER2- Surgery 6/13/2013 Lumpectomy: Right; Lymph node removal: Right, Sentinel; Mastectomy: Right Chemotherapy 6/20/2013 AC + T (Taxol) Radiation Therapy 12/27/2013 Breast, Lymph nodes Hormonal Therapy 3/31/2014 Arimidex (anastrozole)
Log in to post a reply

Jan 19, 2021 05:32PM MinusTwo wrote:

lexie - wouldn't you rather go ahead than worry yourself to death? Don't guess that she's expecting worst. Look at it as a diagnostic procedure. Another tool to use to keep you at your healthiest.

2/15/11 BMX-DCIS 2SNB clear-TEs; 9/15/11-410gummies; 3/20/13 recurrance-5.5cm,mets to lymphs, Stage IIIB IDC ER/PRneg,HER2+; TCH/Perjeta/Neulasta x6; ALND 9/24/13 1/18 nodes 4.5cm; AC chemo 10/30/13 x3; herceptin again; Rads Feb2014
Log in to post a reply

Jan 19, 2021 05:33PM kathabus wrote:

Hi Lexie--Sorry for the situation. I just wanted to say....you will see over and over and over again on these posts that radiologists need to ask for biopsies if they suspect just a 2% chance of cancer. And once we tell a doctor a symptom....which we SHOULD....they are obligated....whether legally, morally, professionally....to be thorough. And that's probably what the dr is doing. He or she could be thinking that nothing is probably wrong....but gosh darn....we need to make sure. I mean, we have a history of breast cancer here. It's not appropriate to ignore that. Maybe some days, LOL....

It's obviously up to you whether you get the test or you don't. But as my radiation oncologist told me when I was going through a scary time.....you can't hide from the truth. And for whatever reason....that phrase helped me.

The scary time I went through was....I had to get a bone biopsy to rule out a metastatic diagnosis. It was a very, very difficult time in my life. But I am so glad that I did it because looking at it objectively....you need to know what's wrong to treat it....or you need to know it's benign so you can move on. I KNOW it's scary. It's so scary. I leaned on my girlfriends and sister during my time. I hope you have some friends who can help you through this! I personally would totally get that test to rule out anything wrong. Hugs....

Diagnosed at 43 Years Old, Oncotype DX 10 Dx 2/17/2020, IDC, Right, 2cm, Stage IB, Grade 2, 1/1 nodes, ER+/PR+, HER2- Surgery 3/23/2020 Lumpectomy; Lymph node removal Radiation Therapy 5/14/2020 Whole-breast: Breast, Lymph nodes, Chest wall Surgery 7/20/2020 Prophylactic ovary removal Hormonal Therapy 8/20/2020 Femara (letrozole)
Log in to post a reply

Jan 19, 2021 06:07PM moth wrote:

I will send thumbs up to your doctor for being proactive and doing appropriate diagnostics. A CT scan is indicated. It's a fast, simple procedure and knowledge is power. Once you know, you move on to whatever needs doing. It might turn out to be absolutely nothing. The ache could be from many benign conditions. The anticipatory worrying is awful. Just book it and get it over and done with.

Let us know when your appointment is so we can comisserate with you and wait with you for results!


I take weekends off

Initial dx at 50. Seriously?? “Sometimes the future changes quickly and completely and we’re left with only the choice of what to do next." blog: Never Tell Me the Odds

Dx 12/2017, IDC, Left, 1cm, Stage IA, Grade 3, 0/5 nodes, ER-/PR-, HER2- (IHC) Surgery 12/12/2017 Lumpectomy: Left; Lymph node removal: Sentinel Chemotherapy 2/14/2018 AC + T (Taxol) Radiation Therapy 8/13/2018 Whole-breast: Breast Dx 2/2020, IDC, Stage IV, metastasized to liver/lungs, Grade 3, ER-/PR-, HER2- Chemotherapy 3/18/2020 Taxol (paclitaxel) Immunotherapy 3/19/2020 Tecentriq (atezolizumab) Chemotherapy 11/26/2020 Abraxane (albumin-bound or nab-paclitaxel) Dx 12/9/2020, IDC, Right, Stage IV, metastasized to lungs, Grade 3, ER+/PR-, HER2- (IHC) Radiation Therapy 12/9/2020 External Hormonal Therapy 12/16/2020 Femara (letrozole) Dx 1/28/2021, IDC, Left, Stage IV, metastasized to bone Radiation Therapy 3/3/2021 External: Bone
Log in to post a reply

Jan 19, 2021 06:26PM 2019whatayear wrote:

It could be a ton of different things, and a CT scan is a simple non-invasive way to rule out a bunch of stuff and most importantly a return of cancer. Take heart like Moth said, it's a good thing your doc is recommending the scan--

I have so so so so much anxiety around tests one thing that helps me somewhat is to keep repeating to myself.

The CT scan is just a picture of what is going on inside my body and doesn't change any outcome. Make the call and schedule the scan, you can do it!

5/6/2019 IDC 2cm, micromet 1/9 nodes, BRCA2+, ER+, PR+, HER- BMX 6/2019, A/C & Taxol 2019, Radiation, BSO - preventative 2/2020, Letrozole 3/1/2020, Started Lynparza for 1 year preventative on 7/18/2021
Log in to post a reply

Jan 19, 2021 07:26PM lexie2002 wrote:

Thank You MinusTwo,

I know your right. I haven't really been able to sleep. I move thru my day like a zombie. Going thru this BC nightmare I think I have tried very hard to stay positive. I'm usually a very negative person but I've really been working on that. Being negative is no way to live. You are so sweet to reach out to me and I really want to thank you for that. I would love to get it done and get good news. I have to admit I've not been the best when it comes to eating, exercising etc. I do blame myself for not doing better. I've been especially bad since Covid. I pray I have a chance do do better.

Hugs

Dx 4/2013, IDC, Right, 5cm, Stage IIIA, 1/16 nodes, ER+/PR+, HER2- Surgery 6/13/2013 Lumpectomy: Right; Lymph node removal: Right, Sentinel; Mastectomy: Right Chemotherapy 6/20/2013 AC + T (Taxol) Radiation Therapy 12/27/2013 Breast, Lymph nodes Hormonal Therapy 3/31/2014 Arimidex (anastrozole)
Log in to post a reply

Jan 19, 2021 07:31PM AliceBastable wrote:

I have CT scans with contrast a couple times a year. sometimes abdomen, sometimes chest and pelvis, too. It's not all that much contrast to worry about. And remember, there's all kinds of things that can be happening with your body that have nothing to do with the breast cancer you had.

Endometrial cancer 2010, basal cell multiples, breast cancer 2018, kidney cancer 2018. Boring. Hope it stays that way. Dx 5/2018, ILC, Left, 2cm, Stage IA, Grade 1, 1/1 nodes, ER+/PR+, HER2- Surgery 7/10/2018 Lumpectomy: Left; Lymph node removal: Sentinel Surgery 8/7/2018 Radiation Therapy 10/28/2018 Whole-breast: Breast, Lymph nodes
Log in to post a reply

Jan 19, 2021 07:39PM lexie2002 wrote:

Thank You Kathabus, Your phrase you can't hide from the truth says alot. I just kept hoping this feeling in my back/waist would just go away but it hasn't. All of you ladies who have responded and advised me are really helping me to do what needs to be done. I want to move forward and then hopefully take a sigh of relief. Did your bone biopsy turn out ok?

Hugs,

Lexie

Dx 4/2013, IDC, Right, 5cm, Stage IIIA, 1/16 nodes, ER+/PR+, HER2- Surgery 6/13/2013 Lumpectomy: Right; Lymph node removal: Right, Sentinel; Mastectomy: Right Chemotherapy 6/20/2013 AC + T (Taxol) Radiation Therapy 12/27/2013 Breast, Lymph nodes Hormonal Therapy 3/31/2014 Arimidex (anastrozole)
Log in to post a reply

Jan 19, 2021 07:45PM lexie2002 wrote:

Thank you Moth. Just do it and get it over with. ( I know this should be simple for me but it's not.) I also know your right. I really appreciate your input. I will call tomorrow and make the appointment.

HUGS

Dx 4/2013, IDC, Right, 5cm, Stage IIIA, 1/16 nodes, ER+/PR+, HER2- Surgery 6/13/2013 Lumpectomy: Right; Lymph node removal: Right, Sentinel; Mastectomy: Right Chemotherapy 6/20/2013 AC + T (Taxol) Radiation Therapy 12/27/2013 Breast, Lymph nodes Hormonal Therapy 3/31/2014 Arimidex (anastrozole)
Log in to post a reply

Jan 19, 2021 07:54PM lexie2002 wrote:

AliceBastable, you have to have CT scans that often? Can I ask why. Have they ever found anything? Does the dye/ contrast make you feel weird? I know this might sound like a dumb question, I just reread it. Thank You so much for sharing with me.

Hugs

Dx 4/2013, IDC, Right, 5cm, Stage IIIA, 1/16 nodes, ER+/PR+, HER2- Surgery 6/13/2013 Lumpectomy: Right; Lymph node removal: Right, Sentinel; Mastectomy: Right Chemotherapy 6/20/2013 AC + T (Taxol) Radiation Therapy 12/27/2013 Breast, Lymph nodes Hormonal Therapy 3/31/2014 Arimidex (anastrozole)
Log in to post a reply

Jan 19, 2021 07:56PM kathabus wrote:

Yes! It was benign. I love all the responses you got tonight. Lots of support and wisdom. Keep in mind—Lots of people have aches and pains all over...especially as we age. If you never had breast cancer you’d just be annoyed that your back hurt. Let us know how you make out

Diagnosed at 43 Years Old, Oncotype DX 10 Dx 2/17/2020, IDC, Right, 2cm, Stage IB, Grade 2, 1/1 nodes, ER+/PR+, HER2- Surgery 3/23/2020 Lumpectomy; Lymph node removal Radiation Therapy 5/14/2020 Whole-breast: Breast, Lymph nodes, Chest wall Surgery 7/20/2020 Prophylactic ovary removal Hormonal Therapy 8/20/2020 Femara (letrozole)
Log in to post a reply

Jan 19, 2021 08:10PM lexie2002 wrote:

2019whatayear,

Just thinking about what they might find is hard for me right now. I know I do need to do this and can't ignore it. Like I said I kept hoping it would just go away on it's own. Again, all of you sweet gals who have taken the time to respond I really need to thank. The friends I have in my life at this time are happy and healthy and I feel like they don't want to hear it. i am thankful for having this site to reach out to women who would understand my fears etc.

Hugs and God bless you :)

Dx 4/2013, IDC, Right, 5cm, Stage IIIA, 1/16 nodes, ER+/PR+, HER2- Surgery 6/13/2013 Lumpectomy: Right; Lymph node removal: Right, Sentinel; Mastectomy: Right Chemotherapy 6/20/2013 AC + T (Taxol) Radiation Therapy 12/27/2013 Breast, Lymph nodes Hormonal Therapy 3/31/2014 Arimidex (anastrozole)
Log in to post a reply

Jan 20, 2021 12:08PM AliceBastable wrote:

lexie2002

I have CTs because I had kidney cancer the same year as breast cancer - it was found on a non-contrast chest CT the day before my lumpectomy. Since I was a smoker then, the doctor thought a CT would give a better look at my lungs. Surprise! There was a good-sized growth on my kidney, on the same side as the breast cancer. If it's one of the things you're worried about, I hope I can reassure you that I had NO symptoms with my 7 cm growth, as is the case with most people - and bilateral cancer is super rare. I've had back issues for years, and it's always been structural (a bad disc) or muscular.


Endometrial cancer 2010, basal cell multiples, breast cancer 2018, kidney cancer 2018. Boring. Hope it stays that way. Dx 5/2018, ILC, Left, 2cm, Stage IA, Grade 1, 1/1 nodes, ER+/PR+, HER2- Surgery 7/10/2018 Lumpectomy: Left; Lymph node removal: Sentinel Surgery 8/7/2018 Radiation Therapy 10/28/2018 Whole-breast: Breast, Lymph nodes
Log in to post a reply

Jan 20, 2021 04:25PM exbrnxgrl wrote:

lexie,

You’ve received a lot of good input. I can’t add much but wanted to say that I lived in Los Gatos for 20 years. I now live in the downtown San Jose area but I teach first grade at Alta Vista Elementary school. Take care.

Bilateral mx 9/7/11 with one step ns reconstruction. As of 11/21/11, 2cm met to upper left femur Dx 7/8/2011, IDC, Left, 4cm, Grade 1, 1/15 nodes, mets, ER+/PR+, HER2- Surgery 9/7/2011 Lymph node removal: Left; Mastectomy: Left, Right; Reconstruction (left); Reconstruction (right) Dx 11/2011, IDC, Left, 4cm, Stage IV, Grade 1, 1/15 nodes, mets, ER+/PR+, HER2- Hormonal Therapy 11/21/2011 Arimidex (anastrozole) Radiation Therapy 11/21/2011 Bone Hormonal Therapy 6/19/2014 Femara (letrozole) Hormonal Therapy Aromasin (exemestane)
Log in to post a reply

Jan 20, 2021 07:34PM MinusTwo wrote:

lexie - one of the best things I learned on this board - you don't have to be brave. You just have to show up. That you can do - but don't worry about smiling. You don't have to be positive either right now. Too many things to learn yet. But once you have treatment plans, I promise it gets easier.

2/15/11 BMX-DCIS 2SNB clear-TEs; 9/15/11-410gummies; 3/20/13 recurrance-5.5cm,mets to lymphs, Stage IIIB IDC ER/PRneg,HER2+; TCH/Perjeta/Neulasta x6; ALND 9/24/13 1/18 nodes 4.5cm; AC chemo 10/30/13 x3; herceptin again; Rads Feb2014
Log in to post a reply

Jan 20, 2021 10:23PM lexie2002 wrote:

AliceBastable,

Geez! Your now the fourth person that I know that kidney cancer was found while treating something else. I find that very lucky. Not the cancer but having found it sort of by accident as my other friends put it. I'm so glad your ok. Did they have to remove your kidney? You are so sweet to share your story. I think the way I'm not feeling about this site now, is that we aren't alone. It SUCKS big time that all of us have this in common but I know we need each other. I will keep you in my prayers. HUGS

Dx 4/2013, IDC, Right, 5cm, Stage IIIA, 1/16 nodes, ER+/PR+, HER2- Surgery 6/13/2013 Lumpectomy: Right; Lymph node removal: Right, Sentinel; Mastectomy: Right Chemotherapy 6/20/2013 AC + T (Taxol) Radiation Therapy 12/27/2013 Breast, Lymph nodes Hormonal Therapy 3/31/2014 Arimidex (anastrozole)
Log in to post a reply

Jan 20, 2021 10:41PM lexie2002 wrote:

UPDATE: To all the ladies who helped me reach a decision.....

I called my Oncologist and told her if at all possible I would like to see her. I wasn't comfortable with our last video visit. I didn't realize it was even an option to see my doc in person anymore. Anyway, I saw her today. ( she did tell me on the phone however) that even if she saw me she would still want to recommend the CT! :( I showed her where I was feeling uncomfortable and she did an exam. I got there early so I did my 6 month bloodwork before my appointment. She was glad I had done it. Between all of you ladies who shared your input with me and seeing my Oncologist today I made the appointment. It's January 26th at 4:45. The bad news is it's now going to be a chest, abdominal and head CT! Yikes, I didn't want to agree to that. I told her I was having some headaches and thought I had maybe a sinus headache that doesn't seem to be going away. I should have kept my big mouth shut. I do have head cold symptoms, phlegm and my ears are popping. Now I'm feeling it's overkill and maybe too much testing. I thought I was worried before, now I feel overwhelmed. :(

Sorry if it sounds like complaining I just didn't expect all of the additional screening.

HUGS

Dx 4/2013, IDC, Right, 5cm, Stage IIIA, 1/16 nodes, ER+/PR+, HER2- Surgery 6/13/2013 Lumpectomy: Right; Lymph node removal: Right, Sentinel; Mastectomy: Right Chemotherapy 6/20/2013 AC + T (Taxol) Radiation Therapy 12/27/2013 Breast, Lymph nodes Hormonal Therapy 3/31/2014 Arimidex (anastrozole)
Log in to post a reply

Jan 20, 2021 11:12PM MikaMika wrote:

lexie,

You have a really good MO. Many women have to insist on getting extra scans. Scans just show what is going in your body. They will not harm you since you get them rarely. Please, don't think about negative things! You did everything right mentioning all your symptoms. Sending you hugs and prayers! 💚




Dx at 38 Dx 8/2019, ILC, Stage IIA, Grade 2, ER+/PR+, HER2- Radiation Therapy Hormonal Therapy Arimidex (anastrozole)
Log in to post a reply

Jan 21, 2021 07:26AM lexie2002 wrote:

Thank you MikaMIika

I have read where women have to sometimes struggle to get what they want. :( Reading things like that always breaks my heart. I was just so surprised to now need 3 different Ct's! I'm still extremely nervous but if I didn't do this and something could have been caught early enough I couldn't forgive myself.

HUGS AND PRAYERS TO YOU TOO,

Thank You

Dx 4/2013, IDC, Right, 5cm, Stage IIIA, 1/16 nodes, ER+/PR+, HER2- Surgery 6/13/2013 Lumpectomy: Right; Lymph node removal: Right, Sentinel; Mastectomy: Right Chemotherapy 6/20/2013 AC + T (Taxol) Radiation Therapy 12/27/2013 Breast, Lymph nodes Hormonal Therapy 3/31/2014 Arimidex (anastrozole)
Log in to post a reply

Jan 21, 2021 07:40AM MindiG66 wrote:

Lexie- just popped over here and wanted to offer some encouragement! I'm glad you're dr is proactive. I hope your test shows nothing serious at all and your mind will be at peace. I think it's now normal for those of us who've heard those words and been on this journey to automatically assume the worst! I sure do get it!

I will say to you what I say to myself regularly....when you hear hoofbeats, think horse, not zebra! I hope that makes sense! Big hugs and I prayed for you to have peace in the waiting!

Hugs to you ~

Mindi

Dx 7/3/2003, IDC, Right, 2cm, Stage IIB, Grade 3, 2/13 nodes, ER-/PR-, HER2+ Dx 7/18/2020, IDC, Left, 2cm, Stage IIB, Grade 2, 1/3 nodes, ER+/PR-, HER2- Chemotherapy 10/8/2020 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 2/3/2021 Hormonal Therapy 4/1/2021 Femara (letrozole)
Log in to post a reply

Jan 21, 2021 07:46AM Beaverntx wrote:

lexie, in your pocket for the 26th. At least you only have to show up once to have multiple areas scanned! Hang in there. (((hugs)))

Diagnosed at age 77-- Oncotype 17, dealing with this bump in the road of life!!🎆 Dx 1/24/2018, IDC, Right, 2cm, Stage IB, Grade 3, 0/9 nodes, ER+/PR+, HER2- (IHC) Surgery 1/29/2018 Lumpectomy: Right; Lymph node removal: Right, Sentinel Dx 1/30/2018, DCIS, Right, <1cm, Stage 0 Radiation Therapy 3/10/2018 Whole-breast: Breast Surgery 6/14/2018 Prophylactic ovary removal Hormonal Therapy 6/18/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Log in to post a reply

Jan 21, 2021 07:52AM lexie2002 wrote:

Thank you MindiG66

Having women reaching out to me really helps. I just can't shake being scared. Thank you for your prayers. I believe in prayer.

HUGS

Dx 4/2013, IDC, Right, 5cm, Stage IIIA, 1/16 nodes, ER+/PR+, HER2- Surgery 6/13/2013 Lumpectomy: Right; Lymph node removal: Right, Sentinel; Mastectomy: Right Chemotherapy 6/20/2013 AC + T (Taxol) Radiation Therapy 12/27/2013 Breast, Lymph nodes Hormonal Therapy 3/31/2014 Arimidex (anastrozole)
Log in to post a reply

Jan 21, 2021 10:35AM lexie2002 wrote:

Dear Beaverntx

Your right about going once. I guess I should have asked her why the chest? The complaint of a headache caused her to want to do the head but the chest???? I guess I could email her and ask but that might cause more concern for me. ??? I'm trying to put it out of my mind today (which is sort of impossible) but I just long for a normal day with no concern for this stupid C!!!! I would love a glass of wine about now......... LOL

Hugs and thank you for your comment. :)

Dx 4/2013, IDC, Right, 5cm, Stage IIIA, 1/16 nodes, ER+/PR+, HER2- Surgery 6/13/2013 Lumpectomy: Right; Lymph node removal: Right, Sentinel; Mastectomy: Right Chemotherapy 6/20/2013 AC + T (Taxol) Radiation Therapy 12/27/2013 Breast, Lymph nodes Hormonal Therapy 3/31/2014 Arimidex (anastrozole)
Log in to post a reply

Jan 21, 2021 10:55AM moth wrote:

lexie, it's just standard diagnostics. I think from an MO's perspective, once you start investigating this you have to do a thorough job. So head, chest & abdo is standard of care IMO. The MO needs to rule things out. You have a good dr, you're in good hands (something to put in the gratitude journal if you keep one)

And for you it will feel like just 1 scan. They might reposition you for the head, but all of these are super super fast. The longest part for me is the waiting to get an IV started. Once you're in there, it's fast and you'll be out and on your way in like 5 minutes.

My CTs are IV only contrast (no oral contrast) and I just have to drink water before the test (but don't have to hold it - pee when you need to, It's just so the kidneys are nicely hydrated). Drink lots for 24h after the scan to keep flushing the contrast dye out.

&maybe you could think this through a bit or journal or meditate on it: what is the fear? (cause I'm guessing it's *not* the scan...it's what the scan might mean) and how have you overcome scary things before? And what gives you motivation to just keep putting one foot in front of the other? I really like what 2019whatayear wrote above "The CT scan is just a picture of what is going on inside my body and doesn't change any outcome" In a way this is just like being sent to a specialist for another look ...even though we rarely meet them the radiologist reading your scans is the specialist and it's almost like a virtual visit to which only your organs are invited :p


I take weekends off

Initial dx at 50. Seriously?? “Sometimes the future changes quickly and completely and we’re left with only the choice of what to do next." blog: Never Tell Me the Odds

Dx 12/2017, IDC, Left, 1cm, Stage IA, Grade 3, 0/5 nodes, ER-/PR-, HER2- (IHC) Surgery 12/12/2017 Lumpectomy: Left; Lymph node removal: Sentinel Chemotherapy 2/14/2018 AC + T (Taxol) Radiation Therapy 8/13/2018 Whole-breast: Breast Dx 2/2020, IDC, Stage IV, metastasized to liver/lungs, Grade 3, ER-/PR-, HER2- Chemotherapy 3/18/2020 Taxol (paclitaxel) Immunotherapy 3/19/2020 Tecentriq (atezolizumab) Chemotherapy 11/26/2020 Abraxane (albumin-bound or nab-paclitaxel) Dx 12/9/2020, IDC, Right, Stage IV, metastasized to lungs, Grade 3, ER+/PR-, HER2- (IHC) Radiation Therapy 12/9/2020 External Hormonal Therapy 12/16/2020 Femara (letrozole) Dx 1/28/2021, IDC, Left, Stage IV, metastasized to bone Radiation Therapy 3/3/2021 External: Bone
Log in to post a reply

Jan 21, 2021 11:09AM lexie2002 wrote:

Thank you Moth,

I asked her when it was just going to be the one scan how long it would take. She told me around 45 minutes. That seems like a long time. I was wondering how they would know if your allergic to the dye? I've heard you can be. I guess I should look into that. Thank you so much for taking time to write me. It means alot.

HUGS

Dx 4/2013, IDC, Right, 5cm, Stage IIIA, 1/16 nodes, ER+/PR+, HER2- Surgery 6/13/2013 Lumpectomy: Right; Lymph node removal: Right, Sentinel; Mastectomy: Right Chemotherapy 6/20/2013 AC + T (Taxol) Radiation Therapy 12/27/2013 Breast, Lymph nodes Hormonal Therapy 3/31/2014 Arimidex (anastrozole)
Log in to post a reply

Jan 21, 2021 11:23AM moth wrote:

I think you find out you're allergic to the dye same as any other allergy - it will occur. The IV running first is just saline and the actual dye is a small dose that runs very quickly. Even though the techs are in another room, they're watching you constantly and they can talk to you so if you feel odd, they will immediately take whatever steps needed. BTW, it's normal for the dye to make you feel warm and as if you need to pee (or did pee..lol. It's really a weird feeling but only lasts seconds).

You don't need to do anything now or look into it. Trust your team, trust the people; ime they really are well trained for this stuff :) put away google, go watch a nice show or go for a walk or go play a game or watch youtube craft videos or decide to take up a new hobby .... try to put this out of your mind for the next days. Hug

I take weekends off

Initial dx at 50. Seriously?? “Sometimes the future changes quickly and completely and we’re left with only the choice of what to do next." blog: Never Tell Me the Odds

Dx 12/2017, IDC, Left, 1cm, Stage IA, Grade 3, 0/5 nodes, ER-/PR-, HER2- (IHC) Surgery 12/12/2017 Lumpectomy: Left; Lymph node removal: Sentinel Chemotherapy 2/14/2018 AC + T (Taxol) Radiation Therapy 8/13/2018 Whole-breast: Breast Dx 2/2020, IDC, Stage IV, metastasized to liver/lungs, Grade 3, ER-/PR-, HER2- Chemotherapy 3/18/2020 Taxol (paclitaxel) Immunotherapy 3/19/2020 Tecentriq (atezolizumab) Chemotherapy 11/26/2020 Abraxane (albumin-bound or nab-paclitaxel) Dx 12/9/2020, IDC, Right, Stage IV, metastasized to lungs, Grade 3, ER+/PR-, HER2- (IHC) Radiation Therapy 12/9/2020 External Hormonal Therapy 12/16/2020 Femara (letrozole) Dx 1/28/2021, IDC, Left, Stage IV, metastasized to bone Radiation Therapy 3/3/2021 External: Bone
Log in to post a reply

Jan 21, 2021 01:22PM edj3 wrote:

If you are allergic to shellfish, you may be allergic to the contrast dye used in CTs.

I am the anomaly, I didn't get hives until the day after that CT so you can just pay attention to your skin and whether you itch like a madwoman.

I can still have the dye if it's necessary; I have to go through a drug protocol that includes a massive amount of Benadryl and someone else has to drive me.

Tried the tamoxifen, no thanks. Dx 4/9/2019, IDC, Left, <1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2- (IHC) Surgery 5/5/2019 Lumpectomy; Lymph node removal: Sentinel Dx 5/6/2019, LCIS, Left, <1cm, 0/1 nodes Radiation Therapy 6/2/2019 Whole-breast: Breast Hormonal Therapy 9/22/2019 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Log in to post a reply

Jan 21, 2021 02:01PM NancyHB wrote:

Hi lexie, I just had my chest and pelvic CT yesterday. The scans themselves take minutes, at most. First you’re scanned without contrast, then they inject the contrast and scan again. It takes me longer to get situated on the table than the actual scanning. And moth is right, the contrast will make you feel flush for a couple of minutes and as though you have to pee (or already did), but it’s over quickly. Drink lots of water after to clear the contrast out of your system.

With an abdominal CT they’ll want you to drink contrast “shake” about an hour before the procedure. The mocha has become my favorite flavor (it’s really not too bad). So you’ll arrive early for that. Altogether my appointments last about an hour and 20 minutes

"Be happy for this moment. This moment is your life." - Omar Khayyam Dx 11/22/2011, IDC, Left, 1cm, Grade 2, ER+/PR-, HER2- (FISH) Surgery 12/4/2011 Lumpectomy: Left; Lymph node removal: Sentinel Chemotherapy 1/18/2012 AC + T (Taxol) Radiation Therapy 6/11/2012 Whole-breast: Breast, Lymph nodes Dx 1/27/2016, IDC, Left, 1cm, Grade 3, 0/4 nodes, ER-/PR-, HER2- Surgery 2/14/2016 Lumpectomy; Lymph node removal: Left Chemotherapy 2/29/2016 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Surgery 7/20/2016 Mastectomy: Left; Reconstruction (left): DIEP flap Dx 1/31/2017, IDC, Stage IV, metastasized to bone
Log in to post a reply

Jan 21, 2021 04:26PM AliceBastable wrote:

I get abdominal scans each time. Sometimes they give me the drink, other times, not. The one at our facility tastes like Gatorade or diluted lemonade and is the same texture, not a fakeshake. It's a HUGE improvement over the vile stuff I had to drink back in 2008 for my first cancer.

Endometrial cancer 2010, basal cell multiples, breast cancer 2018, kidney cancer 2018. Boring. Hope it stays that way. Dx 5/2018, ILC, Left, 2cm, Stage IA, Grade 1, 1/1 nodes, ER+/PR+, HER2- Surgery 7/10/2018 Lumpectomy: Left; Lymph node removal: Sentinel Surgery 8/7/2018 Radiation Therapy 10/28/2018 Whole-breast: Breast, Lymph nodes

Page 1 of 3 (90 results)