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Topic: Possible recurrence - appreciate insights

Forum: Not Diagnosed With a Recurrence or Metastases but Concerned —

Meet others concerned about developing a recurrence or metastases.

Posted on: Feb 2, 2021 03:47AM

Teddy88 wrote:

Hi All -

I had tubular BC - small / 5mm - in 2014 and was treated with lumpectomy and radiation. Just went for an MRI today (this breast is active - and I have been biopsied FOUR times since initial diagnosis and all have been post-surgical or radiation changes and fat necrosis.) So my doctor does an MRI in Feb and mammo / ultrasound in August each year since its a peppy breast!

The report has come back with the below information. My surgeon is in surgery, and my ob/gyn offline in a snow storm here in the Northeast. If anyone has thoughts as to what this may mean as my heart beats out of my chest, once again, I would be so happy to hear from you. Also - what is a Birads 4 minus a letter mean, exactly? Thanks so much for listening! Love, Belle xo

IMPRESSION:

Right 12:00, 0.6 cm focal nonmass enhancement is suspicious for malignancy. As this is unlikely to be seen on MRI directed ultrasound, an MRI-guided biopsy is recommended.

Biopsy of the right breast is recommended.

BI-RADS 4: SUSPICIOUS

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Feb 2, 2021 05:09AM moth wrote:

BIRADS 4 is a more generic designation when a biopsy is recommended. According to a Cdn site explaining breast radiographic imaging "the positive predictive value of BIRADS 4 breast abnormalities on a mammogram is between 23% and 34%." So up to 77% turn out benign. https://breast-cancer.ca/4biads5/

Looks like you're back on the biopsy train again. It's good that you're being followed closely! It's better to know, kwim?

I take weekends off

Initial dx at 50. Seriously?? “Sometimes the future changes quickly and completely and we’re left with only the choice of what to do next." blog: Never Tell Me the Odds

Dx 12/2017, IDC, Left, 1cm, Stage IA, Grade 3, 0/5 nodes, ER-/PR-, HER2- (IHC) Surgery 12/12/2017 Lumpectomy: Left; Lymph node removal: Sentinel Chemotherapy 2/14/2018 AC + T (Taxol) Radiation Therapy 8/13/2018 Whole-breast: Breast Dx 2/2020, IDC, Stage IV, metastasized to liver/lungs, Grade 3, ER-/PR-, HER2- Chemotherapy 3/18/2020 Taxol (paclitaxel) Immunotherapy 3/19/2020 Tecentriq (atezolizumab) Chemotherapy 11/26/2020 Abraxane (albumin-bound or nab-paclitaxel) Dx 12/9/2020, IDC, Right, Stage IV, metastasized to lungs, Grade 3, ER+/PR-, HER2- (IHC) Radiation Therapy 12/9/2020 External Hormonal Therapy 12/16/2020 Femara (letrozole) Dx 1/28/2021, IDC, Left, Stage IV, metastasized to bone Radiation Therapy 3/3/2021 External: Bone
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Feb 2, 2021 05:39AM Teddy88 wrote:

Thanks so much, Moth! You are totally right, and I appreciate your taking the time to reply. It's much. much better to know. Love, Belle xo

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Feb 2, 2021 05:59AM Rebalilly wrote:

Most of my yearly mammograms ended with Birads4 and led to ultrasounds and were always benign. My last one was labeled Birads1 and I insisted on an ultrasound and it was cancer. I do not put much into the labeling of the Birads.

Dx 5/18/2020, DCIS/IDC, Left, 1cm, Stage IA, Grade 2, 0/3 nodes, ER+/PR+, HER2- (FISH) Surgery 6/2/2020 Lumpectomy: Left Hormonal Therapy 8/4/2020 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Targeted Therapy Radiation Therapy
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Feb 2, 2021 07:06AM LivinLife wrote:

Sorry you find yourself here Teddy! Birads 4 runs the full gamut... the letter beside the Birads 4 would have helped determine percentage of risk even if that is an expert estimate... estimate not being the best word to use... I've had several call backs (Birads 4) with biopsies in my time... All on the right breast came back benign... The left came back DCIS this past August.... The vast majority of callbacks and biopsies though come back benign.

I had a large area of non mass enhancement when undergoing MRI for the DCIS... that area ended up being (upon surgery pathology) a lot of benign and precancerous stuff. The latter would have led to biopsy after biopsy over time had I not had a BMX. Sounds like you've already been through the frequent callbacks for biopsies so this could be what has been going on for you. Biopsies get such small, tiny really, areas so it's hard to say what else is there (non-mass enhancement). My MRI could not tell what the non-mass enhancement was made up of - it took surgery to tell. Your upcoming biopsy will help tell your story. Please keep us posted on developments....

with expansive comedo necrosis & weak ER/PR Dx 7/2020, DCIS, Left, 2cm, Stage 0, Grade 3, 0/1 nodes, ER+/PR+ Surgery 8/31/2020 Mastectomy: Left; Prophylactic mastectomy: Right
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Feb 2, 2021 01:14PM Teddy88 wrote:

Thanks Rebalilly! Good on you for advocating for yourself, and hope you are feeling well. Good lesson for all of us to advocate and speak up. Thanks again.

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Feb 2, 2021 01:16PM Teddy88 wrote:

Thanks so much, LivinLife! You gave me good things to consider and I appreciate it enormously. Keep you posted! Love, Belle x

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Feb 2, 2021 10:30PM ctmbsikia wrote:

I had 1 Birad 4 (no letter) last year. It was, as you, post surgerical changes and fat necrosis. So, a 4 is essentially ruling out it's not cancer. Good luck with biopsy. You've had many, it's so frustrating, yet when it's all good news, you're still waiting for something to go wrong. That's how I feel. I just scored a 3-again on last mammo and MRI. Going for a mammo in April, and depending on that score, my BS gave me the option to just take it out. I very well may.

Dx 12/14/2017, DCIS/IDC, Left, 4cm, Stage IIB, Grade 2, 1/2 nodes, ER+/PR+, HER2- Dx 1/16/2018, LCIS, Right Surgery 1/31/2018 Lumpectomy: Left; Lymph node removal: Sentinel Radiation Therapy 4/11/2018 Whole-breast: Breast Hormonal Therapy 6/25/2018 Arimidex (anastrozole)
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Feb 2, 2021 11:00PM Teddy88 wrote:

Hi Ctmbsikia -

Thanks for your reply - I can tell you know exactly how I feel. Even when the news is good, you wait for the other shoe to drop. Would you mind letting me know how you make out in April? I will be following, and hope that it's good news - whatever way you define it for you :) Great to meet you. Love, Belle xx

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Feb 3, 2021 12:06AM Sunshine99 wrote:

Teddy88, just wanted to chime in here. These are scary times - there is always that "what if?" thought that lurks in the back of our minds. I love how we can share our experiences and validate each other here on this site. None of that "Oh, don't worry. I'm sure it's nothing and you'll be fine!" (Really??? Are you a MD? Did you read my scans?)

Do keep us posted. I'm going to add this to my "Favorites" so that I can follow your progress.

All the very best to you!

Carol

Cancer has progressed to my bones. I pray that it never enters my soul. Dx 11/2/2007, IDC, 3cm, Stage IIA, 0/3 nodes, ER+/PR+, HER2- Dx 3/26/2020, ILC/IDC, Stage IV, metastasized to bone, ER+/PR-, HER2- (FISH) Hormonal Therapy 4/22/2020 Arimidex (anastrozole) Radiation Therapy 5/5/2020 External: Bone Radiation Therapy 5/12/2020 External: Bone Targeted Therapy 6/10/2020 Ibrance (palbociclib)
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Feb 3, 2021 01:51AM Teddy88 wrote:

Thanks so much, Carol! You totally get it, and you are right - this is a great place to be understood. Thanks for following, and I will be sure to post as I wind my way through :) Love, Belle x

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Feb 13, 2021 04:18AM Teddy88 wrote:

Hi Everyone: Quick update. I had the MRI-guided biopsy (plus the related mammo to make sure clips were placed correctly.) I will know next week what is going on - but wanted to share this note you will understand. One of the nurses in the room came and patted my back while the doctor was doing the actual biopsy. After going in and out of the machine - it was really nice to have someone acknowledge that this is not a whole lot of fun (even with an ativan!) and be so warm and human to me. I loved her for it!

Have a great, long weekend, do something sweet for yourself on Valentine's Day, and I will be back next week.

Love,

Belle xoxoxo

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Feb 13, 2021 05:44AM AliceBastable wrote:

Teddy88, when I was getting hooked up in the OR for a surgery and feeling a bit overwhelmed (it was the first time I hadn't been knocked out before they started all that), one of the nurses who I thought had seemed so grim and businesslike finished what he was doing, then came to the other side and just held my hand until I went under. It was SO comforting.

Best of luck on your results.

Endometrial cancer 2010, basal cell multiples, breast cancer 2018, kidney cancer 2018. Boring. Hope it stays that way. Dx 5/2018, ILC, Left, 2cm, Stage IA, Grade 1, 1/1 nodes, ER+/PR+, HER2- Surgery 7/10/2018 Lumpectomy: Left; Lymph node removal: Sentinel Surgery 8/7/2018 Radiation Therapy 10/28/2018 Whole-breast: Breast, Lymph nodes
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Feb 13, 2021 05:47AM Sunshine99 wrote:

Teddy, I'm so glad you had a caring nurse. I remember a nurse gently touching me before a procedure. It was so comforting.

Cancer has progressed to my bones. I pray that it never enters my soul. Dx 11/2/2007, IDC, 3cm, Stage IIA, 0/3 nodes, ER+/PR+, HER2- Dx 3/26/2020, ILC/IDC, Stage IV, metastasized to bone, ER+/PR-, HER2- (FISH) Hormonal Therapy 4/22/2020 Arimidex (anastrozole) Radiation Therapy 5/5/2020 External: Bone Radiation Therapy 5/12/2020 External: Bone Targeted Therapy 6/10/2020 Ibrance (palbociclib)
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Feb 13, 2021 06:10AM LivinLife wrote:

So glad you had a caring and human experience!!! Try to enjoy your weekend!

with expansive comedo necrosis & weak ER/PR Dx 7/2020, DCIS, Left, 2cm, Stage 0, Grade 3, 0/1 nodes, ER+/PR+ Surgery 8/31/2020 Mastectomy: Left; Prophylactic mastectomy: Right
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Feb 17, 2021 04:58AM Teddy88 wrote:

Hi Everyone - I just heard back from the doctor and its another case of fat necrosis. The anxiety is offset only by your kindness, understanding and good words of advice - especially when I find it hard to talk to well-meaning family and friends who haven’t been through it and have no idea what it feels like to cope with the situation. We will be doing an MRI in August, so I will bend your ears again. Much love, and thanks a million times over, Belle xxoo

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Feb 17, 2021 05:04AM Beesie wrote:

That's great news! Congratulations!

See you in August, hopefully for good news again.



Dx 9/15/2005 Right, 7cm+, DCIS-Mi, Stage IA, Gr 3, 0/3 nodes, ER+/PR- ** Dx 01/16/2019 Left, 8mm, IDC, Stage IA, Gr 2, 0/3 nodes, ER+/PR-, HER2- (FISH) ** Surgery 11/30/2005 MX Right, 03/06/2019 MX Left ** Hormonal Therapy 05/2019 Letrozole
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Feb 17, 2021 07:04AM Teddy88 wrote:

Thank you, Beesie! Very much appreciated 😇😇

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Feb 17, 2021 07:32PM grainne wrote:

Thank goodness, Teddy. What a relief.

grainne Dx 2/1/2016, DCIS/IDC: Tubular, Left, 1cm, Stage IA, Grade 1, 0/3 nodes, ER+/PR+, HER2- Hormonal Therapy 4/15/2016 Arimidex (anastrozole), Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Feb 18, 2021 03:41AM Sunshine99 wrote:

I’m so glad to hear the news, Teddy. And I’m glad you found comfort here.

We’ll “see” you in August.

🤗

Cati

Cancer has progressed to my bones. I pray that it never enters my soul. Dx 11/2/2007, IDC, 3cm, Stage IIA, 0/3 nodes, ER+/PR+, HER2- Dx 3/26/2020, ILC/IDC, Stage IV, metastasized to bone, ER+/PR-, HER2- (FISH) Hormonal Therapy 4/22/2020 Arimidex (anastrozole) Radiation Therapy 5/5/2020 External: Bone Radiation Therapy 5/12/2020 External: Bone Targeted Therapy 6/10/2020 Ibrance (palbociclib)
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Feb 18, 2021 03:50AM 2019whatayear wrote:

So happy to hear your good news Teddy! Enjoy your spring!

5/6/2019 IDC 2cm, micromet 1/9 nodes, BRCA2+, ER+, PR+, HER- BMX 6/2019, A/C & Taxol 2019, Radiation, BSO - preventative 2/2020, Letrozole 3/1/2020, Started Lynparza for 1 year preventative on 7/18/2021
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Mar 21, 2021 07:37AM Nutfarmer wrote:

teddy, so happy to hear of the good results... happy spring

Dx 7/5/2016, DCIS/ILC/IDC, Left, Stage IA, 0/0 nodes, ER+/PR+, HER2- Surgery 8/19/2016 Mastectomy: Left, Right Chemotherapy 10/11/2016 Surgery Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement

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