Join Us

We are 223,107 members in 83 forums discussing 162,829 topics.

Help with Abbreviations

Topic: At what point is a headache concerning?

Forum: Not Diagnosed With a Recurrence or Metastases but Concerned —

Meet others concerned about developing a recurrence or metastases.

Posted on: Mar 27, 2021 09:14AM

YesIamaDragon wrote:

I am now at almost 3 weeks with a headache. Not like my typical migraines, this goes all around my head. It sometimes gets worse after exercise, but not always. I have no fever, neck stiffness, nausea (beyond what is kind of baseline since finishing chemo). My vision is a little blurry but that has already been diagnosed as blepharitis from the Kadcyla and hasn't changed recently, since the headache started.

My oncology NP doesn't think it is anything to be concerned about and referred me to my PCP, but I haven't seen her since my cancer treatment started, and am scheduled for a routine visit in 3 weeks. I left a message for the oncologist but I haven't heard back yet.

Thoughts? At times I panic, and at other times I tell myself I am being silly.

Dx 6/2019, IDC, Right, 2cm, Grade 2, ER+/PR+, HER2+ Hormonal Therapy Arimidex (anastrozole) Radiation Therapy Targeted Therapy Kadcyla (T-DM1, ado-trastuzumab) Surgery Chemotherapy Carboplatin (Paraplatin), Taxotere (docetaxel) Targeted Therapy Perjeta (pertuzumab) Targeted Therapy Herceptin (trastuzumab)
Log in to post a reply

Page 1 of 1 (10 results)

Posts 1 - 10 (10 total)

Log in to post a reply

Mar 27, 2021 10:32AM wallycat wrote:

You certainly need to get to the bottom of it for the mere fact that living with a headache is unpleasant. Headaches can be caused by simple things like allergies, stress (when I grit/grind my teeth, I often get a tension headache), sleeping funny, sinus congestion and many times, high blood pressure. My sister had horrible headaches for months and was finally dx with hypertension.

But.....you know your body and you know how you normally feel and if this is concerning enough, I would push for a scan to rule things out, if for nothing else than for peace of mind.

Best to you.

Dx 4/07 1 month before turning 50; ILC 1.8cm, ER+/PR+, HER2 neg., Stage 1, Grade 2, 0/5 nodes. Onco score 20, Bilateral Mast., tamoxifen 3-1/2 years, arimidex-completed 4/20/2012
Log in to post a reply

Mar 27, 2021 11:57AM 2019whatayear wrote:

It could be a ton of things and the big majority of the time it is. I would push for that scan to rule cancer out.

xoxo

5/6/2019 IDC 2cm, micromet 1/9 nodes, BRCA2+, ER+, PR+, HER- BMX 6/2019, A/C & Taxol 2019, Radiation, BSO - preventative 2/2020, Letrozole 3/1/2020, Started Lynparza for 1 year preventative on 7/18/2021
Log in to post a reply

Mar 27, 2021 01:55PM flashlight wrote:

I would call your PCP and ask if you could get in sooner. Was your B/P okay when you saw the NP? Have you had any labs done recently? Have you been drinking a lot of red wine?

Dx 11/15/2018, IDC, Left, 1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR-, HER2- Dx DCIS, Left, <1cm, Stage 0, Grade 1, 0/1 nodes Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy Whole-breast Surgery Lumpectomy: Left
Log in to post a reply

Mar 27, 2021 02:42PM Melbo wrote:

my MO had me get a brain MRI after three weeks of lightheadedness, so it would seem reasonable to get a brain MRI after three weeks of a headache. In both cases brain Mets are only a tiny possibility, but ifyour insurance will pay for it, it seems worth ruling it out so you can focus on other causes.

Diagnosed right before my 42nd birthday. One husband, two dogs, one cat and no kids. Dx 7/16/2020, IDC, Left, 2cm, Stage IIA, Grade 3, 1/7 nodes, ER-/PR-, HER2+ Targeted Therapy 8/7/2020 Herceptin (trastuzumab) Targeted Therapy 8/7/2020 Perjeta (pertuzumab) Chemotherapy 8/7/2020 Carboplatin (Paraplatin), Taxotere (docetaxel) Surgery 12/20/2020 Lumpectomy: Left; Lymph node removal: Sentinel; Reconstruction (left); Reconstruction (right) Radiation Therapy 1/31/2021 Whole-breast: Breast, Lymph nodes
Log in to post a reply

Mar 27, 2021 02:49PM LivinLife wrote:

The other posed helpful ideas and questions for sure. I would only ask if you're hydrated enough too.... I agree you know your body and if this is not normal for you then it's understandable you're on alert and concerned. I too would suggest seeing if you can get into PCP sooner though if not possible message onco and PCP again with an update on your ongoing headache and concern..... Do you have access to an urgent care? They would be limited in what they can offer really though just an idea if your run a zero with PCP and onc....

with expansive comedo necrosis & weak ER/PR Dx 7/2020, DCIS, Left, 2cm, Stage 0, Grade 3, 0/1 nodes, ER+/PR+ Surgery 8/31/2020 Mastectomy: Left; Prophylactic mastectomy: Right
Log in to post a reply

Mar 27, 2021 03:00PM wallycat wrote:

And COVID. Headaches are common...have you been tested? This may be your only symptom.

Dx 4/07 1 month before turning 50; ILC 1.8cm, ER+/PR+, HER2 neg., Stage 1, Grade 2, 0/5 nodes. Onco score 20, Bilateral Mast., tamoxifen 3-1/2 years, arimidex-completed 4/20/2012
Log in to post a reply

Mar 27, 2021 03:22PM YesIamaDragon wrote:

Thank you all, I am just afraid of panicking about nothing. I did message again.

I did have COVID a year ago, and the headache was horrible. This is a little like that but not as bad. I am fully vaccinated, and have no other symptoms.

I have been really pushing liquids, and am pretty sure I am not dehydrated. I do have a lot of muscle tension in my neck, though, so am hoping that is it.

My blood pressure runs low, and that hasn't changed, either. I don't drink anything, and I had been avoiding chocolate (!) in case that might be a trigger but it didn't seem to make a difference so I just had some :)

I will also try adding antihistamine back to my meds, as the snow is melting fast here, so even though there isn't any pollen yet, there are a lot of old leaves and such being revealed.

Dx 6/2019, IDC, Right, 2cm, Grade 2, ER+/PR+, HER2+ Hormonal Therapy Arimidex (anastrozole) Radiation Therapy Targeted Therapy Kadcyla (T-DM1, ado-trastuzumab) Surgery Chemotherapy Carboplatin (Paraplatin), Taxotere (docetaxel) Targeted Therapy Perjeta (pertuzumab) Targeted Therapy Herceptin (trastuzumab)
Log in to post a reply

Mar 30, 2021 04:50PM YesIamaDragon wrote:

So I decided to leave the anastrazole out for one day. May be just a coincidence, but the headache went away! And hasn't come back even though I started it right back up.

I heard from my MO (who I hadn't heard from earlier because she was out with her own medical issues) who doesn't think the headache is concerning for mets.

Dx 6/2019, IDC, Right, 2cm, Grade 2, ER+/PR+, HER2+ Hormonal Therapy Arimidex (anastrozole) Radiation Therapy Targeted Therapy Kadcyla (T-DM1, ado-trastuzumab) Surgery Chemotherapy Carboplatin (Paraplatin), Taxotere (docetaxel) Targeted Therapy Perjeta (pertuzumab) Targeted Therapy Herceptin (trastuzumab)
Log in to post a reply

Mar 30, 2021 08:09PM Nutfarmer wrote:

I had a headache for several weeks and my oncologist ordered a brain MRI. Everything was ok but I was happy she ordered it.

Happy your headache went away. Hoping it stays that way.


Dx 7/5/2016, DCIS/ILC/IDC, Left, Stage IA, 0/0 nodes, ER+/PR+, HER2- Surgery 8/18/2016 Mastectomy: Left, Right Chemotherapy 10/10/2016 Surgery Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement
Log in to post a reply

Mar 30, 2021 10:07PM 2019whatayear wrote:

I hope you stay headache free!!

5/6/2019 IDC 2cm, micromet 1/9 nodes, BRCA2+, ER+, PR+, HER- BMX 6/2019, A/C & Taxol 2019, Radiation, BSO - preventative 2/2020, Letrozole 3/1/2020, Started Lynparza for 1 year preventative on 7/18/2021

Page 1 of 1 (10 results)