I was diagnosed with DCIS in December 2019. Luckily we caught it then, as it was very large and aggressive, but (obviously) early stage. I did not test positive for genetic markers, but do have a strong family history of early breast cancer and other markers (like the grade, my age, the size) that made doctors treat me as a unique/possibly higher risk case.
I had both mastectomies in 2020 as well as phases 1 & 2 of DIEP flap. It's been more than 6 months since phase 2 but I've had this spot on my rib, opposite side from my cancer, several inches below armpit, that started having a distinct ache maybe a couple months ago/a few weeks? It reminded me of the lipo pain, but a little higher than I had that. It came and went, felt like a deep, aching soreness, like touching a bad bruise or swollen lymph node.
I really only became aware of it in the past week, when it's amped up to being more constant. It's worse at night and worse with activity, but I can't find any yoga stretch that offers relief (I was hoping it was muscular).
Since it reminded me of the lipo pain, I reached out to my reconstruction nurse first, as I didn't know where to start/didn't have to see a MO very much due to not needing further treatment as of last year. After asking lots of details about the pain, she told me I needed to get in with my MO "urgently," which of course my fear brain is latching onto. I really anticipated (or hoped, I guess) that this would be brushed off or explained away by my phase two surgery last fall.
This is my second recurrence scare. The first came over December, when I developed a knot in my skin on my cancerous breast, near the closest margins I had (<1mm). I was worried with that one, but not this worried. I saw my breast surgeon and she did an ultrasound in-office and said she felt sure it was edema from the trauma of surgery, I was mostly relieved, but have had a slight lingering fear since my original cancer could not be seen on initial ultrasounds, and was only caught because a cautious radiologist ordered an x-ray when my ultrasound was clear. The knot is still there.
I mostly wanted to vent to people who get the fear, I guess. I sobbed in bed last night in a way I hadn't in quite a while. I'm not OK. Thankfully, I'll see the MO Tuesday and hopefully be put at ease once again.
12/30/2019, DCIS, Left, 6cm+, Stage 0, Grade 3, ER+/PR+
1/30/2020 Lymph node removal: Sentinel; Mastectomy: Left
6/4/2020 Prophylactic mastectomy: Right; Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap
9/24/2020 Reconstruction (left): Fat grafting, Nipple reconstruction; Reconstruction (right): Fat grafting
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