Sep 17, 2022 01:19PM - edited Sep 17, 2022 01:32PM by aprilgirl1

Jo-Jo2018, has your MO taken a new biopsy, especially of any of the new tumors to see if the er/pr/her2 status has changed? I am hoping so and that is why you are starting the new treatment in 2 weeks. If you haven't had a recent biopsy I would request one. I would also see if they can send the biopsy for evaluation for any mutations - even if you had that early on I have read that cancer can acquire new mutations to work around the chemotherapy and render it useless. I am not an oncologist but it seems like your cancer or some of your cancer is not responding to ER+ treatment. I have read that some people have a mix of tumor types: some that are ER+ others that along with others that are triple negative.

Has your oncologist discussed Keytruda? I have read about Keytruda for triple negative breast cancer and is immunotherapy.

Sending you strength and love. Let's find something that gets rid of your tumors.

Sep 20, 2022 09:52AM - edited Sep 20, 2022 01:29PM by aprilgirl1

Hi Jo-jo2018, not to be a pest but please send your oncologist or their team a message,don't wait for the next appt unless it was yesterday;) I don't know when your next appt is but if they will take a biopsy that will take time to schedule and come back. The time while we wait for answers is so exhausting and terrifying. Let us know how you are doing, ok?

Mar 17, 2023 07:21AM cowgal wrote:

Jo-jo2018 - I had been wondering how you were doing. I am sorry to hear that you are going to have to change treatments. I hope the Halaven works for you for a long long long time and with manageable side effects. Moth's passing and the passing of some others does hit hard. I do think that sometimes we need to take a break from here periodically. In our stage 4 world it is also normal to worry about someone in the group when they haven't posted in a while because we automatically think that they may be struggling or even worse.