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Upset at myself
So I was just diagnosed with stage 4. When I turned 40 I want to get a mammogram because the skin was weird and never made appointment. Then I turned 41 got a mammogram and BOOM it’s in my bones which what the heck!! Maybe I’m naive but I had no clue that could happen on top of that it not being cureable. I’m having a hard…
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DCIS recurrence 4 years out from IDC
Hello all, I love all of you but really never wanted to revisit these boards!!! However, I need some sanity and most of you know the anxiety, worry and sick feeling in the pit of your stomach with a diagnosis - let alone a recurrence. Jan 2020 - diagnosed with IDC ER, PR+, HER2- Grade 2 - KI67<5% - 2 tumors and one lymph…
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The wait is agonizing
Hi all. My whole body and brain is so anxious, and I know so many of you understand. I found out 3 weeks ago that I have another recurrence, so this is my third diagnosis. You would think since I've already been through this initial stage twice now I would roll with it better, but it's so so hard to wait without knowing…
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Any local recurrence (within few yrs) early stage despite AI?
I am curious whether there are many local recurrences of early stage BC even though a person has followed all treatment recommendations (lumpectomy or mastectomy, and endocrine therapy (aromatase inhibitor, etc). I opted not to do the AI as was told that rad therapy was most important and AI would only add 3% protection,…
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Looking to connect with other young ladies with MBC
Hello I’m new here, I’m 33 Diagnosed in 2022 stage 3 DIC, 5/19 axillary lymph node involved, ER+, HER -. I did 5months chemo, double mastectomy, radiation. I’m now on verzenio and anastrozole. I fell well so far. On my recent routine blood work my ca 27-29 goes up from 26 to 44 Unfortunately Scans show multifocal bone…
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Just diagnosed with bone Mets terrified. Please help
I everyone. I have been gone from the boards for some time. I was diagnose with stage 2 breast cancer in 2013. Last week had a stomachache went to ER they did abdominal scan. Everything fine but found lesion on pelvis. completely unrelated to why I went to ER. After additional scans came back consistent with metastasis.…
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Feeling a little overwhelmed, just told the cancer is back in my breast and has spread
Hi everyone, Whew..feeling emotional. Just learned my right breast has a large mass again, it has spread to the surface of the skin of that breast, and there two spots on the neck/cervical spine area. My head is spinning. I was originally diagnosed with invasive ductal carcinoma a year ago. Went through neoadjuvent chemo…
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Recently diagnosed with metastatic recurrence seeking insight
Well, after ten years, I was diagnosed with bone mets in March. I had unbelievable pain in my hip and was incorrectly diagnosed with bursitis. Fast forward six months and with some persistence in requesting scans, they discovered that my femur was fractured and I had been walking on it for at least six months then they…
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Tiny recurrence after mastectomy and radiation -- whats next?
Hi all. I had a left mastectomy 3 years ago followed by radiation due to close margins (<1mm) on the front, outer side, and back. I had very small breasts with three small IDC tumors in the left side and a scattering of DCIS, so I think close margins were unavoidable. I've been on tamoxifen for 2.5 years, starting as soon…
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Recurrence after nearly 6 years
Just processing this new diagnosis. Five and a half years out from mastectomy, Had Stage I lobular as well as a small ductal tumor in right breast. Lump in armpit, took me seemingly ages to get a biopsy, which I had yesterday. Lobular cancer again. On some level I knew it wasn't the "scar tissue" people kept telling me it…
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It's back. Need help and hope.
So the thing I've been frightened would happen for 12 years happened. Recurrence. I'm too afraid to look at my PET right now (every nerve in my body is telling me NO, so I will honor that, since I'm a quivering, heart pounding mess at present, medical PTSD on full red alert, catastrophic thinking roaring at supersonic…
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Enlarged axillary lymph nodes suggestive of BC recurrence found UPDATE - it's cancer again
Hi, y'all — I guess the diagnosis is not official yet but it seems to be a foregone conclusion. I am almost 9 years out from left breast cancer diagnosis. Did the mastectomies, 9 weeks of Taxol (all I could tolerate); did 18 Herceptin treatments; 4 months of Arimidex; 3 years of Exemestane; 8 months of Tamoxifen —- all…
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Kisqali
Anyone taking Kisqali for Advanced Stage Metastatic Cancer. If so how how long did it take for you to know if it was working for you? I have Mets to my liver and spine, likely in lungs too. I just want to feel better.
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I am so mad
I hate being here but here I am. Diagnosed stage IV to liver (20+ lesions), lung, spine, pelvis, skull (so I am not long for this world). I have no symptoms. It was caught during a routine MRI for my ongoing bulging disk issues. I have had other radiology over the past 7 months and there was nothing in these places. I had…
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Recurrence after 12 years (even with BMX)
I was diagnosed and treated for ILC Stage 2b 12 years ago. Had BMX and took Tamox and AI for about 6 years. I was told 1-2% chance of recurrence in chest wall, etc. Low and behold, a lump under my arm on original BC side. Biopsy confirmed not a lymph node but ILC tumor. Surgeon planning to remove tumor and potentially do…
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Oncologist webinar for patients about ESR1...
I came across this and thought it might be helpful to some as it has a Q&A with an oncologist and is just for patients. It is about ESR1 mutations and what treatments are available that target it. Here is the info: https://us02web.zoom.us/webinar/register/3716946173479/WN_I7tieDjBTzmi7n67dP3Nwg
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Anyone have a Recurrence in Mastectomy breast?
Has anyone had a recurrence of breast cancer after a mastectomy? Many of us are finding areas of concern, in the form of a lump, after having a mastectomy. I had two lumps in my left mastectomy breast with DIEP reconstruction, but after being tested twice with US, at 6 month interval, they were diagnosed as fat necrosis.…
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Mets to Liver
I have recently been diagnosed to mets to my liver. I am scared and have problems eating
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Unilateral vs Bilateral Mastectomy and Recovery
Hi, I was diagnosed in June of 2017 at age 42 with DCIS in my right breast. It was high grade and estrogen and progesterone negative. I do not have a history of breast cancer in my family or the BRCA genes. I had a lumpectomy and 7 weeks of radiation. I was just diagnosed last month with a local recurrence. I’ve met with…
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Clavicle lymph nodes and axilla after DCIS 9 years ago
Back in October I felt a lump above my clavicle, after a biopsy and MRI I was told DCIS from 9 years ago has spread to Supraclavicular and axilla and pec region. There was a 1 % of this happening after the lumpectomy and 30 rounds of radiation 9 years ago. I just finished 4 rounds of Adriamycin and 4 rounds of Taxol. The…
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Reoccurrence following reconstruction with implants
October is Breast Cancer Awareness month and cancer decided to make me acutely aware of what month it is. I received my biopsy results last night. Original diagnosed 6/3/2016, now 10/13/2022. It has been a while since I had my implants checked. My oncologist called and asked me to make an appt. Had to wait almost 3 months…
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Tomorrows the Day
Tomorrow I find out how bad this is. I already know it's bad by the level of pain I'm having and how quickly it's moving. I know for sure there's a LOT of bone mets. It started in one rib, now the other side, my hip joint, multiple other areas. I am SO angry. I'm waiting for the damn to burst, because mostly I've been numb…
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Failed SLN mapping prior to surgery - whats next?
Hello! Today prior to my lumpectomy, I underwent lymphoscintigraphy to locate the sentinel nodes for a SNB. Unfortunately, most likely due to my previous mastectomy in the same breast, the procedure failed to identify a drainage pattern to a nodal basin. As a result, no nodes were removed. Wondering if anyone else has…
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Radiation Side Effects?
Hi Ladies! I was recently diagnosed with a recurrence and am having a lumpectomy in less than 2 wks. The current plan is to have 6 wks of radiation treatments following surgery/recovery. I'm not overly concerned; however my tumor is on the left side, right next to my sternum. I can't help but to wonder, what if the…
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Reoccurrence after bilateral mastectomy
In June 2020, I was diagnosed with hormone negative, her2+ IDC breast cancer. I received TCHP before a lumpectomy, followed by radiation and 12 cycles of Herceptin. In August, 2021 I was considered in remission. Then in January 2022, I was diagnosed with IDC, triple negative, inflammatory breast cancer. I had chemotherapy…
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recurrence after mastectomy
I was diagnosed with a stage 2 hormone receptor positive tumor in Feburary 2020. I had a right side mastectomy and was supposed to take tamoxifen to prevent cancer in the other breast. I started taking it but stopped because I was afraid of the side effects and that I would have to switch from Fluoxetine to another…
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Daughter BC Mets Ovaries- Help
Help My step daughters BC has now been found in her ovaries. She meets with her MO this Friday. What should we be asking! She had a lumpectomy, 3 years later a bilateral mastectomy, ovary removed last week and Monday they called to say BC metastasized. Ugh. Thank you Yall have helped me over the years
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IDC in dermis — what stage does that mean?
Hi everyone—I'm posting on behalf of my wife. She recently had a recurrence of IDC in two places. The first tumor was not actually a recurrence but thought to be a residual from tissue not taken during her single mx. That first tumor had a mix of DCIS and IDC so our onc explained that it still is contained within the Brest…
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Staging tests being done tomorrow:(
A little over a week ago I went to my breast surgeon to have a lump checked under my arm. Same side as my previous cancer 7 years ago. After ultrasound and immediate biopsy it came back positive for IDC. ER+ PR- Her2 undetermined. The grade is 3 though which is why I am so nervous. I have a CT scan of chest abdomen and…
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Lymphoma
hello.. I am a 9 1/2 year breast cancer survivor. After an MRI, pet scan, liver biopsy (inconclusive) endoscopy, CT of abdomen I am going to have an endoscopic ultrasound biopsy of some swollen lymph nodes near my liver area. The uptake SUV was 7.2 in this area and my oncologist is concerned that it may be lymphoma. Still…