All Topics → Forum: Just Diagnosed With a Recurrence or Metastasis → Topic: Ovarian Cancer mets from BC?
Meet others who are just facing the diagnosis of a recurrence of breast cancer or metastatic (advanced) disease. You are NOT alone.
Posted on: Feb 2, 2011 04:12PM
Posts 1 - 25 (25 total)
Feb 3, 2011 02:38PM havehope wrote:
Thank you ladies for your answers.
Mar 11, 2011 07:04PM , edited Mar 11, 2011 07:05PM by bestock
dearest havehope, I had stage 4 ovarian cancer. I am a 7 yr survivor!!!
I then because of BRCA 1 genetic mutation got dxed with breast cancer in 06 and had lumpectomy recurred in 08 and them had bilateral mascetomy and reconstruction.
Please keep the faith. I would love to communicate with you all the great events that happened to me and I AM STILL HERE.Your cancer most likely is not mets, it is a different cancer completely, have you found out if it was mets??? .
i agree with Mamaof3bugs
I have fought the good fight,I have finished the race, I have kept the faith.~ 2 Timothy 4:7
Mar 15, 2011 05:14PM J_Jackson wrote:
Havehope, did you have any symptoms? I'm worried about this myself. I've always had ovarian cysts but now I've missed a period twice now, have chloasma on my face, and pelvic pain. I was just diagnosed with mets in lungs and skeleton about a month after all this started to happen so I worry it is all related. Just wondering about your symptoms and how you went about discovering it? Best to you and you're in my prayers,
May 11, 2011 04:14AM sunny80 wrote:
I have just finished my treatments of stage IIA BC 7 months ago and yesterday during the routine control, they said they found a solid cyst dia 2.3cm and did a blood test, am now waiting for the result and am just so worried, can not imagine if there really is somthing wrong again this time and imagine all the hard times which was just 7 months ago.
Just realized its been quite sometimes since your post. I hope you are well and lets pray for the best for all of us.
May 24, 2011 07:23PM , edited May 24, 2011 07:24PM by havehope
Sorry, I have not been here for a while. It is new primary ovca. Today I found out I am BRCA 1+. i started chemo in March and I am due for my 4 sessions out of 6. I am doing IV/IP Taxol/Cisplatin. It is a very hard chemo, after the second session I wanted to give up.
I had no ovca symptoms. I found out because I needed a follow up for a kidney stone that I had in Aug 2010. Back in August I had a clean pelvic US. In Jan there were already 2 tumors in my ovaries and one on omentum so I am stage 3B.
The genetic counselor told me today that there is no cure and most likely it will come back, but because I am BRCA1+ they know how to target the chemo and he said that I need to look at this like a chronic disease and I will live a long time. He said he is promising me decades not years. I hope he is right, but I don't have too much hope left. I am not sure I can live my life always in chemo.
May 24, 2011 10:26PM , edited May 24, 2011 10:26PM by bestock
I hadOVCA first. then 2 bouts with BC.(bilateral in 2008) I am brca positive too-BRCA1
Please do not lose hope. I had stage IV Ovarian and mets all throughout my abdomonal cavity, on my liver, and my omentum and lymph system throughout my body, including behind my sternum and under my arms That was sept 03..I am here and healthy Praise the Lord.I did not have any recurrances!, do you have a good gyno-oncologist? I had a very aggressive dr. and had an awful debulking surgery to get as much as possible and 18 chemos. I had carboplatin and paxitaxol...I will be praying for you..lets stay in touch if you would like.
Jun 6, 2011 04:56PM kaydub wrote:
I am waiting on results of blood work for Ovarain cancer. I have a 7 1/2 cm mass on my right ovary. Did ultrasound and MRI. Was diagnosed with IDC triple negative breast cancer 4-13-10, done 4 rounds of chemo and 33 radiation treatments.
I am really scared about the results. Regardless of results, I will need a complete hysterectomy. I am 56 years old and have been in menopause for 4 years.
This is going to be a long week to wait for results. I'm trying to stay busy at work and home but it has just taken over my mind. It's hard to think about anything else. I'm trying to stay positive but the negativity still sneaks in.
God bless all of you, prayers for complete health for all of us.
Jun 7, 2011 11:58AM gfbaker wrote:
This has me nervous too. Next week they hack out one or both of my ovaries, right one has a 6.5 cm cyst with a small solid mass in it. Since I've already had cancer we are debating pulling out both. I'm only 41 so I guess menopause isn't too far off anyways. Of course it could be benign, which is what I hope for, but been down this road before, so...
Good Luck to the rest of you, wishing for benign for all.
Jun 17, 2011 03:50PM gfbaker wrote:
I had my surgery, and just got the call from the docs office that all is benign! Yeah, some endrometriosis, but who really cares about that? I hope for good results for everyone else.
Jul 15, 2011 04:57PM bestock wrote:
I hope your test for ovarian cencer is negative, but if positive there are several of us that have survived both. I had ovca first stage 4 dx in2003, and two times BC, 2006, 2008, bilateral and reconstruction. I am cancer free. Keep trusting the Lord and know that if needed we can at least help you in answering questions and being there. In addition, I am BRCA 1 pos.
Feb 14, 2012 06:11AM barbiecorn wrote:
May I ask what is the test that is done to find out if you have Ovarian, uterius or cervical cancer?- I just had BMX on 2/1 and have not had a pap test in 3 years. Any advice would be appreciated.
Mar 14, 2012 08:42PM SAMayoFL wrote:
I don't know about uterine or cervical cancer but the blood test for ovarian cancer is the CA125. I am sure someone who knows about the others will come along and answer soon.
Mar 14, 2012 09:42PM , edited Mar 14, 2012 09:43PM by Ruby-
Barbiecorn, I would suggest that you see a gyno. I know our oncos don't tell us this, but ask the gyno for both a pelvic ultrasound and a transvaginal ultrasound (I think that's what it's called) and these should be done at least once a year if not twice. If you are on Tamox, it is very important that you follow up with the gyn as there is a risk for endometrial cancer, a small one, but nonetheless. As well, a pap test for cervical cancer. I'm on Tamox and my gyno likes to follow up with pap tests, the last one was a bit scary as endometrial cells were found on the test, so here goes a biopsy again. I insist on having both ultrasounds mentioned above, even though he says it's not necessary
Kind blessings to everyone
Aug 17, 2012 01:40PM LoriKnous wrote:Hello ladies, I see the post here are few and far between so I guess I'll just give it a shot. I was trying to look up the relationship between my 2007 diagnosis of BC and now finding it has mets to my ovary and fused my bladder to it. Acities drained from my abdomen and lung also. They say it is the original BC and not ovarian. I keep hearing of Mets BC to the liver, bones, and brain. I did have the BRACA1 BRACA2 test and it was negative. I can't seem to find anyone that has mets to the organs like this. I feel so lost on all this, any ideas or info would be greatly appreciated. Thank you
Nov 11, 2012 08:23PM SAMayoFL wrote:
Hey Lori, I don't know if you will come back to this post or not but I was given the same news this week. BC mets to the ovaries, uterus and peritoneal. There is a mass that has partially blocked my right ureter and they are worried about my right kidney. They put a stint in on Thursday. How are you doing now? What treatment did they prescribe for you?
Thanks for any information you can give.
Nov 12, 2012 01:10AM LoriKnous wrote:
Wow, I wondered if I would ever find anyone in a boat similar to mine. I do follow any thread I post on by saving them to my favorites. I am ER/PR neg and her2+. I did have A/C like you and then I had Taxol and Herceptin in '07. My newest finding was in March of 2012. This time I had Taxol again and they added Carboplatin. I also was put back on Herceptiin. This will be an infusion x3 weeks until it stops working. They also added a new drug (Perjeta) that works in conjunction with Herceptin. They also added Zomeda every 6 weeks for probible bone mets. My "mass" is on the left side and they also placed a stint in my L uriter. I have finished the chemo meds and feel pretty good. I have diareah/constip from the meds that I am on but I guess it's livable. No worse than always having to go potty all the time because of the mass involving my bladder. I have seen a surgeon but, he says this would be to invasive for me. If it gets to be life/death then they will take my ovary and bladder out. I will have my first scans since the chemo in mid Dec. This will tell us if the cancer has begun to grow again or if the Herc/Perj are doing what they are suposed to do. I can only hope.
Nov 12, 2012 08:53PM SAMayoFL wrote:
Hey Lori, I got my pathology report back today. They took both ovaries and tubes. Both were fully involved. The pelvic washing was also positive for malignancy. I have an appointment to have my port put back in on Thursday and see the local oncologist Thursday afternoon. Emotionally, I am a wreck. I didn't see this coming. I am having panic attacks that lead to total meltdown. Are you working? I went to school for seven years to earn a masters degree. I graduated in May, 2010 and was diagnosed in September, 2010. I finished chemo in March, 2011 and started working at a school in August, 2011. I am not finished chasing my dream. I have so much left to do and so many memories to make with my grandchildren. Please, please give me something to hang on to for hope. I am SO MAD. I am not thinking clearly.
Did you go to M. D. Anderson or another cancer clinic or are you getting treatment through an oncologist? Any help you can give as to what my best chances are will help me tremendously.
Thank you for listening.
Nov 14, 2012 10:08AM LoriKnous wrote:
You do sound as lost and angry as I am. This whole mess was tossed in my lap so fast that I paniced i'm sure. I was in the process of finding insurance and new Drs. when all of this started. The ins people directed me to the "Ohio high risk pool" better known as Obama Care. This wasn't going to be "affordable" for me until I paid off my car in 5 months so I began seeing Drs and paying out of pocket. Once the Urologist said my bioposy showed that my original BC had come back and it was mets I just fell into the, "let's do what has to be done mode". I worked through my first fight 5 years ago and I know how difficult it got over time. Fourteen months to be exact. Since I am still in food service and wasn't sure how I was going to pay for the medical treatment, I did go on disability. I say this, if you feel you can work. By all means DO IT! I am finished with the hard stuff and am waiting to see if my scans in Dec. show progression or if the Herc/Perj are doing their jobs. After that I will check into how much I can work and still keep my medical. It just sucks that it works that way.
You talked about a "pelvic washing". I'm not sure what that is but, I'm thinking maybe you had Acities fluid in the abdomen. I did have this and also they found cells in it. I had 2 1/2 liters of this fluid drained from my abdomen/lungs.
I am waiting (patiently) for grandkids. I had always wanted to live to be 100, never thinking about leaving before that. My onco said he felt he could get me through 2 years but, after that all bets are off. WOW, that felt like a knife to the heart. I keep hearing on here about people who live for 5, 7, 10 years and even more than that. Do you go to a support group? We have an awesome place up here called "The Victory Center". I wish everyone had a place like this. I found that a support group is a great place to talk to people who are going through similar things. No road is the same but, we do share and learn a lot from each other.
I began looking at this as "i'm dying of cancer". I have since decided that "I will LIVE with cancer", just like those who LIVE with other life threatning illnesses. I will do what ever it takes to be here for as long as I can. DON'T YOU EVER STOP CHASING YOUR DREAMS!!!
Nov 17, 2012 07:43PM SAMayoFL wrote:
Hey Lori, I am curious. Do you have ovarian cancer or do you have breast cancer metastasis? M. D. Anderson has ordered the pathology slides from my original diagnosis in 2010 and the slides from last week. Apparently, BC does not metastisize often in the ovaries. Now I am wondering if you have a new primary in the ovaries or mets from BC.
Not having insurance must really be hard. How are you feeling?
Nov 22, 2012 04:40PM LoriKnous wrote:
Don't feel bad, this whole thing confussed me. After a few days of pathology checking, they say it is BC mets. My Onc told me 5 yrs ago that there was no need for me to have a historectomy. My chances of this type of cancer going to the female organs was only 2-4%. Now with this presentation of METS he said it was a 1% chance, go figure that's my luck. As far as I understand my L ovary and my bladder are fused together, so I really don't know for sure just where it started.
I had to go the disability route, so I do have ins now.
Scans in mid Dec so we'll see if there has been any progression since the chemo stopped. If there is none then we know that the Herceptin/Perjeta combo is working for me. Seems like it's just a waiting game for the scan..........the result...............the scans.................the results. At least i'm here to wait! I think when I get results on those test i'll see about going back to some part time work.
I just wonder, is this a way for me to sit back and examine my life and say.............what do I want to do? All my life it's been about the kids or work or everyone else, and I always gave up anything I wanted or needed.
Wow, I think I just kept rambling what ever came out of my thoughts. Maybe it's time for me to listen! hmmm?
Hope everyone had a wonderfull Thanksgiving, full of family and fun!!!