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Jun 12, 2014 03:26PM
don't know where all you are in treatment. Just found this thread. Mine came back 3 yrs ago all in Neck nodes. To many to count. Clavicle, and sub, all,around my scm muscles, and all around my jugular . I also became hormone refractory, so no hormone targeted treatment for me. The cancer uses it as food and it grows faster. Have it both sides and under both arms. Been on many chemos in 3 years, they don't last that long, about 4 months. But this last one, havalen , I have been on since December 13 th. We r doing the happy dance. In dec, it had traveled to lung, rib and spine. My last test a couple of weeks ago, only showed cancer in 1 node in my jaw area, but smaller this time than in dec. and the se on this chemo are no big deal for me. So having said all that, I have been living the high life since December !
I haven't had radiation, cause it was explained to me that it would cause so much damage. I would need a feeding tube,and I wouldn't be able to talk. It sounds like, when we run out of chemo choices, radiation would be the only thing left to do. I would have to talk to my husband and daughter about that and come to a comfy decision for all us. Right now I would say I would decline rads. But when you r presented with it at the time, who knows what I would choose.
But right now I am traveling, playing tennis, entertaining for friends, did a marathon and a half walk, and many more fun things...sooo we can get a break occasionally on a specific drug. And when that happens, we have to grab the gusto and live the good life. I hope you all get to experience that during these difficult times. Hugs
Hope you are all doing well :)
Live and love fully
3/2001, IDC, Stage IV, Grade 3, 40/5 nodes, ER+/PR-, HER2-
3/11/2001 Lymph node removal: Left, Sentinel; Mastectomy: Left, Right
3/29/2002 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Doxil (doxorubicin), Fluorouracil (5-fluorouracil, 5-FU, Adrucil), Gemzar (gemcitabine), Halaven (eribulin), Methotrexate (Amethopterin, Mexate, Folex), Taxol (paclitaxel), Taxotere (docetaxel), Xeloda (capecitabine)