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Jun 17, 2017 10:57AM
Liz I'm in your pocket as you wait for the results of your scan. Try not to worry (easier said then done). I also had a scan after second chemo treatment. Dr wants to see how the tumor is responding to the chemo treatment. Your always in my thoughts and prayers! Hang in there.
To all the new ladies I had some catching up to do reading the posts. Stay positive! I can't stress that enough. Worrying and stressing yourselves out is not good. Stress is bad when you have cancer. I'm praying for all of you. Your all in my thoughts every day...
As for me I've been busy here. My cousin had a fund raiser for me on the 10th. I had a really good time. Alot of people are doing fundraisers for me to help with the bills. My next fundraiser is July 3. I can't believe how blessed I am to have such wonderful and caring family and friends in my life! As far as driving after arm amputation it's a job. I had to take a driving class that lasted about 30 minutes and cost $350. Glad i passed after that expense lol...I had to get my oncologist to fill out a paper for driving which i have to send to DMV. I picked up paper from Dr. today so will mail monday. DMV will then tell me what to do next. I inquired about getting my car modified to drive and that costs $2225. My next issue is my medical insurance. I called insurance to see if the cost of my car being modified would be covered. Insurance said i was cancelled that i don't have insurance with them. The Cleveland clinic is going to pay my cobra for me so I called the financial adviser and he said the bill was mailed Wednesday so i will call insurance next week to see if I'm in the system. On top of all that i got a letter yesterday about my home delivery of prescriptions that said they are no longer my provider. I sure hope cobra gets payment soon cause i have prescriptions i need filled. Always something...gotta love the system! I've been going to therapy for the phantom pain. Pain has eased up some. I have to play this game on my phone that shows hands and i have to pick if it is a left or right hand. Afterwards I start hurting. Therapist says that it is normal cause the brain is learning to accept that the arm isn't there and that it's going to be ok. I try to stay busy so that I'm not aware of the phantom pain but as soon as i sit down or try to sleep i'm aware of the pain. It is so strange to have your hand feel three times as big as a basketball....Tomorrow is my moms birthday so i will be spending the day with mom and dad. Sunday of course is fathers day. Had a post op appointment with orthopedic surgeon. Orthopedic is really impressed with healing and progress. I go for ct scan on the 23rd. My oncologist said i will get a ct scan every 3 months and see him every 3 months also. A few weeks ago i planted 55 flowers! I just try to stay busy. Also had a girls day visiting the wineries. Ok this is getting too long for you to read. I will post more tomorrow.
Your all in my thoughts and prayers! Love to all!
6/7/2013, IDC: Cribriform, Left, 3cm, Stage IIA, Grade 2, 0/6 nodes, ER-/PR-, HER2-
7/9/2013 Lymph node removal: Sentinel; Mastectomy: Left; Reconstruction (left): Nipple reconstruction, Tissue expander placement
9/12/2013 AC + T (Taxol)
9/30/2016, IDC: Cribriform, Left, 6cm+, Stage IV, metastasized to other, ER-/PR-, HER2-
1/8/2017 Carboplatin (Paraplatin)
1/9/2017 Whole-breast: Breast, Lymph nodes, Chest wall
3/19/2017 Lymph node removal: Underarm/Axillary
4/12/2018, IDC: Cribriform, Right, 3cm, Stage IV, metastasized to lungs, 0/6 nodes, ER-/PR-, HER2- (IHC)