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Jul 23, 2017 09:19AM
Liz - how are you - I have caught up a bit with your symptoms by following you on another thread - hopefully side effects should settle once off Taxol 😊 Check in when you can.
Claire - enjoy every bit of it!
I love champagne !
I have a feeling Abraxane will kick ass on your return - I know there are a few things playing on your mind and you are one super strong lady - have you made a decision on the port and where it goes it in?? I still have mine ( it will probably go out when I am ready to take my spants fond breast off) - and you can see it because although it is low chest placement the surgeon cannulated the Internal Jugular Vein rather then the subclavian ( less chance of a pneumothorax but you can spot a fine line in the neck) - I hated absolute detested the thought of it ...with a double vengeance. And the silly thing played up on my first chemo so they had to go peripheral, then image the port then it was fine and miraculously worked for the rest. I am a whimp ( ode to Liz) I found the peripheral infusion of adriamycin horrid and I have good veins. The cubical vein pick lines or similar work well but I am not certain they are less conspicuous - at least on the tool kits we have here...
Pat - SadiesS 😊
I read the Ibrance thread in the context of the Pallas trial ...- hmmm - so happy your catheter is coming out!!
Bugger on the sclerotic lesions - am I wildly naive to want them to be healing mets?? You live in such a wonderful part of the world - I wish you feeling less tired and more energetic and getting lots of outdoor time. I told Liz we had a winter holiday ( although I had just got back to work..). I noticed the direct flights Air Canada to Vancouver from Brisbane - and we went up - it was great!!
( as an aside - Pat your non narcotic/opioid pain (ie apart from the narcotics - endone, OxyContin, Targin ) options should include - I have listed a common drug from each one of the major classes I can think of without adding paracetamol and anti-inflammatories which are not always tolerated because of GI side effects, lipid profile and renal function
Palexia ( tapentadol)
Catapress ( clonidine)
Tramadol ( if you can tolerate it)
Amitrytilline 10 mg nocte
Ketamine lozenges 50 mg
They all have side effects - some of these affects mood, anxiety, can cause low blood pressure.
It is why IMO - you need a personal pain physician once you start getting pain from cancer - the aim being off opioid ( oxycodone, morphine type drugs for as long as possible). Certainly there's is work suggesting morphine like drugs may be immunosuppressive. I like the marijuana suggestion!!!! - I believe it should be legalised for medical purposes.)
I will be honest - I love my work - but given the last year, I find myself less able to take care of myself during long days, even for something as simple as staying hydrated. It is a tricky juggle, and I am trying to find ways to reduce my hours but remain in touch. I am ok for energy mostly, I just do not bounce back with the same speed after a tough day. I also find that there are other things I enjoy doing...if only someone would take over my bills...
Finally the ever so clever Z has a thread on cfDNA as a diagnostic. I am following.
I hug you my virtual friends
Here to walks, and gardens, and champagne and Mozart on Sunday mornings
8/5/2016, DCIS/IDC, Left, 4cm, Stage IIB, Grade 2, 1/13 nodes, ER+/PR+, HER2-
8/11/2016 Lymph node removal: Underarm/Axillary; Mastectomy: Left; Prophylactic ovary removal
9/11/2016 AC + T (Taxol)
2/21/2017 External: Lymph nodes, Chest wall