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Topic: Shadow in chest is recurrence

Forum: Just Diagnosed With a Recurrence or Metastasis —

Meet others who are just facing the diagnosis of a recurrence of breast cancer or metastatic (advanced) disease. You are NOT alone.

Posted on: Mar 8, 2017 10:32AM

jackboo09 wrote:

Hi

I am due to have a CT scan biopsy of a 29mm shadow in chest tomorrow. Having been told 50/50 chance, they have said this morning that it is highly likely to be Mets and not operable.

I have 3 teenagers and a fully supportive family. Positives: small mass and no evidence yet of other mets although I haven't had a full bone scan yet just the neck to pelvis area CT.

consultant talked about new treatment options from 6 years ago when I was dx with IDC with node involvement and 2cm breast lump. She said not curable and their aim was to get me back to living my life and said years. Is this just what they tell you.

I am hours on only from this news. Crying a lot. Can anyone add any positives.


Liz ( jack boo)

Stage 2b Her 2 + Est + one pos node Age 40 Dx 2/27/2011, IDC, 2cm, Stage IIB, Grade 3, ER+, HER2+
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Aug 3, 2017 02:02AM Wildplaces wrote:

Dear dear Liz

Belated Happy happy Birthday!!!!🙂🎂🎂🎂🎂, ok maybe only half the sugar, some fruit and...🍒🍒🍒

The sea bass - yummmm, love it!!! So glad you got out - and I am sure you are looking forward to some adult time with your husband - the teenagers will be fine.

(I have had a crazy 48 hours - some work issues - but will post again soon.)

You are never far from my thoughts

Hugs to All,

Ioana ✨✨✨🍷😌

Dx 8/5/2016, DCIS/IDC, Left, 4cm, Stage IIB, Grade 2, 1/13 nodes, ER+/PR+, HER2- Surgery 8/12/2016 Mastectomy: Left; Prophylactic ovary removal Chemotherapy 9/11/2016 AC + T (Taxol) Radiation Therapy 2/20/2017 External: Lymph nodes, Chest wall Hormonal Therapy Arimidex (anastrozole)
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Aug 3, 2017 02:09AM Wildplaces wrote:


Dx 8/5/2016, DCIS/IDC, Left, 4cm, Stage IIB, Grade 2, 1/13 nodes, ER+/PR+, HER2- Surgery 8/12/2016 Mastectomy: Left; Prophylactic ovary removal Chemotherapy 9/11/2016 AC + T (Taxol) Radiation Therapy 2/20/2017 External: Lymph nodes, Chest wall Hormonal Therapy Arimidex (anastrozole)
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Aug 3, 2017 02:52AM Wildplaces wrote:

and SadiesS,

Here is the link

https://www.pfizer.com/files/news/IBRANCE_Backgrou...

Go to page 3 - haematological abnormalities.

...have followed the Ibrance thread for a while now - around Dec last year - maybe Jan, Zarovka was having trouble with her WCC and was borderline for dropping her dose - she twisted her supplements - I think Coriolus ( but you need to check with exactly what, by whom, and why..,!!) and her WCC bounced solid above 1 - worth a PM to her, there were several posts about it. And yes I have that sort of memory ....🙄

She subsequently did go down to 100 mg but according to the posts it was a strategic decision not a WCC driven one.

And yes anaemia can cause shortness of breath particular when the drop is acute - ie not over months where you adjust by modifying other physiological parameters.

That menu sounds divine - I can eat caviar by the spoonful - ohhh wicked and wonderful indeed!


Dx 8/5/2016, DCIS/IDC, Left, 4cm, Stage IIB, Grade 2, 1/13 nodes, ER+/PR+, HER2- Surgery 8/12/2016 Mastectomy: Left; Prophylactic ovary removal Chemotherapy 9/11/2016 AC + T (Taxol) Radiation Therapy 2/20/2017 External: Lymph nodes, Chest wall Hormonal Therapy Arimidex (anastrozole)
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Aug 3, 2017 09:21PM Sadiesservant wrote:

Long day today. Lots of hurry up and wait but did have the tap so we will see if this reveals the nature of this bug, assuming I do have an infection. Apparently I have a lot of small loculations - respirologist likened it to Swiss cheese where the catheter had been placed. While it looked okay on CT, the ultrasound indicated my body's response to the drainage irritation was to develop adhesions like septa. I've been put on some heavy duty (2) antibiotics for the next week until I hear back from the respirologist. In the meantime he had four views of a chest x-ray taken and plans to consult with my MO and surgeon to decide what to do next. He appears to be leaning towards a thoroscopy- I need to reasearch what this entails and what the outcome will be as I understand there could be complications given my cancer diagnosis.

As to the blood, my WCC is fine, rebounding every time after my initial dose reduction to 100 mg. What I don't understand is the steadily declining RBC count and associated drop in hemoglobin. It never recovers during my off week of Ibrance and, in fact, has continued to decline even with 2 1/2 weeks off. Claire has indicated she had a dramatic drop in hemoglobin her second round of Ibrance but not this steady decline. A transfusion helped in her case. Perhaps my blood is waving the white flag and I need some new stuff? Another mystery to discuss with my oncologist. Good thing he's patient.

Bad news is I am definitely tea total for the next little while. Alcohol and one of the antibiotics do not mix! So much for a caipirinha in this hot weather...

Dx 4/2001, IDC, Right, 1cm, Stage IIA, Grade 3, 1/10 nodes, ER+ Surgery 5/10/2001 Lumpectomy: Right; Lymph node removal: Right, Sentinel, Underarm/Axillary Chemotherapy 6/7/2001 CEF Radiation Therapy 12/17/2001 Whole-breast: Breast Hormonal Therapy 12/20/2001 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy 1/2/2007 Femara (letrozole) Hormonal Therapy 10/21/2007 Arimidex (anastrozole) Dx 1/3/2017, IDC, Right, Stage IV, metastasized to lungs, ER+/PR+, HER2- Chemotherapy 1/27/2017 Taxol (paclitaxel) Hormonal Therapy 3/29/2017 Arimidex (anastrozole) Targeted Therapy 4/20/2017 Ibrance (palbociclib)
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Aug 4, 2017 03:54AM - edited Aug 4, 2017 09:05AM by Wildplaces

Hi SadiesS,

I will tell you what I know - but it will be full of generalities - not specific to your case.

A thoracoscop involves looking inside the chest ie thorax, with a videoscope.

There are many reasons for such a procedure, but you GOT IT, not to be lightly taken.

Among the most common ones related to above adhesions ( loculated may also be used to describe it)

- tissue for diagnosis

- to surgically get the two layers of pleura (visceral and parietal ) to close - this is called a pleurodesis.

You can also perform lung surgery with the aid of a videoscope - and it would then be VATS ( video assisted thoracic surgery)

It involves a general anaesthetic, a double lumen tube ( not small - for ventilation) and hemodynamic monitoring - intra-arterial line. You need good post operative pain management and physiotherapy for optimal lung recovery.

PM me if you have any specific questions?

As to the RBC - ie your dropping hemoglobin, they have a longer life span - thus slower turn over then white cells.

Unless there is a nondrug related reason for your anaemia - you could ask your patient MO - whether it would be worth doing serum iron studies, and also looking at the full blood count - is this a microcytic or macrocyclic anaemia you are battling? ( ohh ...he will love you for that!) 😊🌷

Dx 8/5/2016, DCIS/IDC, Left, 4cm, Stage IIB, Grade 2, 1/13 nodes, ER+/PR+, HER2- Surgery 8/12/2016 Mastectomy: Left; Prophylactic ovary removal Chemotherapy 9/11/2016 AC + T (Taxol) Radiation Therapy 2/20/2017 External: Lymph nodes, Chest wall Hormonal Therapy Arimidex (anastrozole)
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Aug 4, 2017 03:57AM Wildplaces wrote:

Hi Liz,

I am assuming you are trying to recover from the onslaught of all the drugs.

Always thinking of you!!

( I am often slow - superblooming slow in some thinking processes - but you know I am wondering what colour was that blazer??)

Hugs galore,

Ioana 😊🌷🌷

Dx 8/5/2016, DCIS/IDC, Left, 4cm, Stage IIB, Grade 2, 1/13 nodes, ER+/PR+, HER2- Surgery 8/12/2016 Mastectomy: Left; Prophylactic ovary removal Chemotherapy 9/11/2016 AC + T (Taxol) Radiation Therapy 2/20/2017 External: Lymph nodes, Chest wall Hormonal Therapy Arimidex (anastrozole)
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Aug 4, 2017 08:18AM jackboo09 wrote:

Hi Ioana

I hope this post finds you well. I continue on a positive path to recovery. I still have moments when I experience fatigue and some residual GI issues now and again. However I am feeling stronger everyday.

My last Taxotere tx was 29 June. I have my second HP in a week's time. I am now on monthly Falsodex injections and yesterday started Letrozole, after an incompetent 10 day delay on the part of my local med centre!

I did look st the SE's for the AI but then I've adopted the wait and see approach. I could begin to stress over what could happen, but for now I will deal with it as each SE occurs ( and if they occur)

I could use some advice though about supplements to minimise bone loss. Should I be taking cod liver oil etc? The flashes are increasing now but I take a deep breath! Occasionally my sleep is affected though....😡

This is me with some make up on and my best wig. Last night was yet another belated birthday meal with good friends. This is the best I have looked and felt in months.

The blazer is mighty fine. Navy blue with a fancy lining. Will send a photo shortly.

Pat: will PM you this eve.

Hi Claire, how's things? I haven't jumped on Ibtance thread so occasionally out of synch with updates.

Happy weekend guys x

L x

Stage 2b Her 2 + Est + one pos node Age 40 Dx 2/27/2011, IDC, 2cm, Stage IIB, Grade 3, ER+, HER2+
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Aug 4, 2017 10:16AM Bright55 wrote:

hi liz lookin good dear heart big huggs for birthday

I had bone density scan after one year of letrozole no change

Have been taking calcium with vitamin d so bloods are excellent in normal range

Seems that some people strart out with osteophenia or even osteoporis and letr I zole can have a very damaging effect so that have to have extra therapy for this

All best bright


Dx 2011, DCIS, Right, <1cm, Stage 0, Grade 2, 0/2 nodes, ER+/PR+, HER2- Dx 2016, Right, 2cm, Stage IV, metastasized to lungs, ER+/PR+, HER2- Hormonal Therapy Femara (letrozole) Surgery Mastectomy: Right
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Aug 4, 2017 11:09AM jackboo09 wrote:

Hi Bright

Thank you for your kind words.

Think I will look into supplements at my local health store this weekend. I appreciate your thoughts on this as I start the hormone therapy.

Liz

Stage 2b Her 2 + Est + one pos node Age 40 Dx 2/27/2011, IDC, 2cm, Stage IIB, Grade 3, ER+, HER2+
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Aug 4, 2017 01:11PM lalady1 wrote:

Liz - Sorry I have been tied up with new onc and appointments after returning from Paris. Here is a pic of Monet's beloved gardens at Giverny where he lived for 43 years. Amazing. I think you look great in your wig and love your twinkling eyes. If you ever have problems with bone density; Xgeva (given in a shot) is a much better choice than Zometa (given IV), and less bad SE's like osteonecrosis or ONJ. I will be on IV chemo for 3 mos (no port), onc will scan after 12 weeks to see how I am doing. I plan to work from home for 3 months or so, then hoping to move to an oral chemo like Xeloda, and return to the office part time. I am still in your pocket, albeit smaller as I have lost another 7 pounds. I loved my first class air to Heathrow on BA - worth the splurge. My sister came up and had champagne with me along with part of my dinner and breakfast - as my suite was easily big enough to serve 2! Ioana - always lovely to hear from you my Aussie sister, ditto Pat my sweet CN friend. We are such a good support team for each other. Liz - you rallied us and we are not leaving. Much love on this sunny, hot, humid CA day.

Surgery 1/30/2013 Mastectomy: Left; Reconstruction (left): Tissue expander placement Chemotherapy 2/25/2013 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 9/9/2013 Breast, Lymph nodes Hormonal Therapy 1/7/2016 Arimidex (anastrozole), Faslodex (fulvestrant) Targeted Therapy 1/7/2016 Ibrance (palbociclib) Targeted Therapy 5/17/2017 Afinitor (everolimus) Dx IDC, Left, Grade 3, 1/1 nodes, ER+/PR+, HER2-
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Aug 4, 2017 05:51PM Sadiesservant wrote:

Looking good Liz! As to supplements, I currently take calcium but probably need to do a better job of proactively ensuring that my bones stay healthy. It is one area where I appear to be lucky. I was heavy for many years and as a result have very strong bones. But now that I will likely be on an AI for an indefinite period I need to take more care.

So glad to hear that you are feeling stronger.

Claire, lovely to have you back on the Forum although I am sure you would prefer to still be in Paris! I've really appreciated the information/advice you have provided while I sort through my latest lung/blood issues. Not happy to hear that you are losing weight. Is your oncologist concerned? I have always found it interesting how different we all are. So many struggle with weight gain and yet, you and I seem to be more inclined to lose. I lost more than 10 pounds in about 2 months between first symptoms and diagnosis and, while I seem to have stabilized, need to force myself to eat to keep the pounds on. Probably not enough wind consumption..

As always Ioana, thank you for sharing your knowledge. I'm trying not to jump the gun as we are still waiting for the tests to come back but must admit that I am not overly thrilled with the notion of that procedure. Bit too invasive given the limited benefit. Seems to me forging ahead with my current treatment in the hopes that it dries up the remaining loculated fluid makes more sense. But we shall see...

Hope all of you have a lovely weekend in all our various time zones. It's a holiday in Canada on Monday so I have an extra day to recover before the onslaught begins again.

Cheers. Pat


Dx 4/2001, IDC, Right, 1cm, Stage IIA, Grade 3, 1/10 nodes, ER+ Surgery 5/10/2001 Lumpectomy: Right; Lymph node removal: Right, Sentinel, Underarm/Axillary Chemotherapy 6/7/2001 CEF Radiation Therapy 12/17/2001 Whole-breast: Breast Hormonal Therapy 12/20/2001 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy 1/2/2007 Femara (letrozole) Hormonal Therapy 10/21/2007 Arimidex (anastrozole) Dx 1/3/2017, IDC, Right, Stage IV, metastasized to lungs, ER+/PR+, HER2- Chemotherapy 1/27/2017 Taxol (paclitaxel) Hormonal Therapy 3/29/2017 Arimidex (anastrozole) Targeted Therapy 4/20/2017 Ibrance (palbociclib)
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Aug 6, 2017 04:44AM Wildplaces wrote:

Hello Liz,

You look great - nothing like a good meal shared with friends!!

This is a link to a great post by bestbird

https://community.breastcancer.org/forum/8/topics/...

I am not suggesting you should take all of them - but it is an informed glimpse into the wonderful world of integrative oncology. I have not seen someone yet - I wanted to wait until all the poisons were truly out of my system but it's the next step in my plan of staying well.

Claire has already mentioned the big guns of bone preservation.

There is some work showing that denumosab ( Prolia) maybe be protective, even in the absence of documented bone mets.

For the simple things

- bone density scan - so you know where you start

- Vit D support ( I use 5000units daily and get it from an American site called iherb)

- calcium supp ( you can either go daily or a higher dose ten days a month and a break)

- weight bearing exercises - walking and a set of simple 1.5kg weights for a set of upper arm repetitions can fit into any schedule, plus Z posted yoga poses

- if you walk regularly worth going to a physio/sport centre and getting your running shoes fitted to your gait - eg flat feet need arch support etc - our guys are called 'active feet' - go figure!!

😊🌷

Claire - a little while back you mentioned silk blankets - I looked them up as it sounded divine - any particular brand ?? Did you order it online? I have to say the US does much better on product choice.

On that loss of weight - I am sure you got this... protein drinks ...I say that partially because a visit to a nutritionist is my to do list.

Thank you for the photos - the gardens are astounding - you can almost see the man at his art!!

I have this little motto when I think of you 'when only the best will do!'😊

Ioana 🌷

Dx 8/5/2016, DCIS/IDC, Left, 4cm, Stage IIB, Grade 2, 1/13 nodes, ER+/PR+, HER2- Surgery 8/12/2016 Mastectomy: Left; Prophylactic ovary removal Chemotherapy 9/11/2016 AC + T (Taxol) Radiation Therapy 2/20/2017 External: Lymph nodes, Chest wall Hormonal Therapy Arimidex (anastrozole)
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Aug 6, 2017 02:44PM jackboo09 wrote:

Hi Ioana

Thanks for that nutritional information. I am going to discuss with York on Thur. I doubt they will be much help though as I've never been given any dietary advice.

Not sleeping well since I started Letrozole. I miss having days ( and nights) when I realise I haven't thought about bc.

Saw my nephew and his girlfriend today. Young couple just starting out. My treatment wasn't really discussed but few people realise that I'll always be in treatment. Hmmm .......


L x

Stage 2b Her 2 + Est + one pos node Age 40 Dx 2/27/2011, IDC, 2cm, Stage IIB, Grade 3, ER+, HER2+
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Aug 6, 2017 02:49PM jackboo09 wrote:

Claire,

Wonderful photo and wow what a holiday!

The BA flight too- jealous. I'm planning something special for my 50th. You guys can help me with the itinerary.

I'm with you as you embark on this next treatment. Claire.The plan to work from home sounds wise.

X

Stage 2b Her 2 + Est + one pos node Age 40 Dx 2/27/2011, IDC, 2cm, Stage IIB, Grade 3, ER+, HER2+
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Aug 7, 2017 08:24PM Sadiesservant wrote:

Hi Ioana,

I need to seek your advice yet again as it appears that I have traded one problem for another. My condition is much improved thanks to the antibiotics. While I am not 100%, still coughing and SOB going up hills, I am able to function again, walking Sadie at almost my usual pace. At least I was able to function again. I now have severe nausea, I believe from the Metronidazole. I feel horrific with gut pain and nausea to the point that vomiting would be a relief. (Not there yet.)

I am taking the pills with food, drinking plenty of fluid (possibly too much as I keep hoping it will settle my stomach - it doesn't), taking a probiotic and eating natural yogurt when I can (recognizing that dairy interacts with the Cipro). I don't know what more to do. Any suggestions?

The respirologist prescribed one week with a three week repeat if necessary. I assume this will depend on the results of the culture but the thought of another three weeks of this gut is pretty daunting. If it's not one thing it's something else! Sigh...

Dx 4/2001, IDC, Right, 1cm, Stage IIA, Grade 3, 1/10 nodes, ER+ Surgery 5/10/2001 Lumpectomy: Right; Lymph node removal: Right, Sentinel, Underarm/Axillary Chemotherapy 6/7/2001 CEF Radiation Therapy 12/17/2001 Whole-breast: Breast Hormonal Therapy 12/20/2001 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy 1/2/2007 Femara (letrozole) Hormonal Therapy 10/21/2007 Arimidex (anastrozole) Dx 1/3/2017, IDC, Right, Stage IV, metastasized to lungs, ER+/PR+, HER2- Chemotherapy 1/27/2017 Taxol (paclitaxel) Hormonal Therapy 3/29/2017 Arimidex (anastrozole) Targeted Therapy 4/20/2017 Ibrance (palbociclib)
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Aug 8, 2017 12:17AM Wildplaces wrote:

Will pm you - although I am not sure I have much wisdom to add.

😊

Dx 8/5/2016, DCIS/IDC, Left, 4cm, Stage IIB, Grade 2, 1/13 nodes, ER+/PR+, HER2- Surgery 8/12/2016 Mastectomy: Left; Prophylactic ovary removal Chemotherapy 9/11/2016 AC + T (Taxol) Radiation Therapy 2/20/2017 External: Lymph nodes, Chest wall Hormonal Therapy Arimidex (anastrozole)
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Aug 9, 2017 06:53PM - edited Aug 9, 2017 06:55PM by Wildplaces

hi Liz,

The following study relates to an older post of ours referring to nonsupportive relationships - hey les call them destructive.

https://academic.oup.com/aje/article/157/5/415/766...@fimnet.fi

It basically states that the risk of breast cancer is twice ( the hazard ratio is double) in women who have had a divorce (in fact hubby dying is less of a risk then the breakdown). It is a prospective cohort study of 10,000 women published in the American Journal of Epidemiology. It might have to do with ones capacity to resolve/end death whereas the other being a continuous cause of stress but that is my simple speculation... still data is data. So 'let it go' on a number of fronts (relationships included but more importantly for me present little stuff) is my new motto.

SadiesS - Absolutely GO to the September champagne! WOW wow wow

Are you really back at work? Should you be? Can you offload some responsibility for much needed head space??

I ask because unless I am very lazy and very disorganised I have to tell you these days I need ( or just am aware of that need) a lot more time for myself.

I am undergoing some self imposed puppy training. The puppy is me. I used to make a quick list of to do for the day while having my coffee. It is now green tea and that is ok. I split the list into urgent/ and important ( the urgent being the stuff that makes the world run/ the important being the stuff I need to do for me) and I refuse to focus on the urgent until much about the important gets sorted. Like lots of women I have a job, a child, two parents and a house. - not to mention the chooks - wish me luck.

To both of you Hope that today brings answers.

Lalady1 never far from my thoughts. Hopefully Abraxane treats you gently. 😊🌷

Dx 8/5/2016, DCIS/IDC, Left, 4cm, Stage IIB, Grade 2, 1/13 nodes, ER+/PR+, HER2- Surgery 8/12/2016 Mastectomy: Left; Prophylactic ovary removal Chemotherapy 9/11/2016 AC + T (Taxol) Radiation Therapy 2/20/2017 External: Lymph nodes, Chest wall Hormonal Therapy Arimidex (anastrozole)
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Aug 9, 2017 09:33PM Sadiesservant wrote:

Sooo.... that jerk I went out with for awhile is responsible? Good to know. 😉

Yes I am back at work and no, probably shouldn't be. It's a bit of conundrum. I want to work but my job is stupidly stressful. Quitting to take a more reasonable job would be committing economic suicide. I would lose a high salary, gold-plated extended health, disability benefits and it will impact my pension. Yet I don't feel I am ready to go on full time LTD (and would also feel pretty uncomfortable as I can work, at least for the present). So, for the present, I keep working when I can (thankfully not a physical job) but figuring out how to create that healing space is never far from my mind. Still deliberating...

Hope the next round of HP is kind to you Liz. And Claire, also thinking of you, hoping all is well.

Pat


Dx 4/2001, IDC, Right, 1cm, Stage IIA, Grade 3, 1/10 nodes, ER+ Surgery 5/10/2001 Lumpectomy: Right; Lymph node removal: Right, Sentinel, Underarm/Axillary Chemotherapy 6/7/2001 CEF Radiation Therapy 12/17/2001 Whole-breast: Breast Hormonal Therapy 12/20/2001 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy 1/2/2007 Femara (letrozole) Hormonal Therapy 10/21/2007 Arimidex (anastrozole) Dx 1/3/2017, IDC, Right, Stage IV, metastasized to lungs, ER+/PR+, HER2- Chemotherapy 1/27/2017 Taxol (paclitaxel) Hormonal Therapy 3/29/2017 Arimidex (anastrozole) Targeted Therapy 4/20/2017 Ibrance (palbociclib)
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Aug 12, 2017 08:22AM Wildplaces wrote:

SadiesS how are you traveling? DiV will still chuckle at that one - but this is a few pages back in the thread.

Fever? Shortness of breath? Walks?

I know Liz is away - enjoy.😊🍷

I have a new hen and found a good home for my roosters.

I have a day off on Monday - I will walk and read to my heart's content.

Dx 8/5/2016, DCIS/IDC, Left, 4cm, Stage IIB, Grade 2, 1/13 nodes, ER+/PR+, HER2- Surgery 8/12/2016 Mastectomy: Left; Prophylactic ovary removal Chemotherapy 9/11/2016 AC + T (Taxol) Radiation Therapy 2/20/2017 External: Lymph nodes, Chest wall Hormonal Therapy Arimidex (anastrozole)
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Aug 12, 2017 08:35AM - edited Aug 12, 2017 08:35AM by Wildplaces

this is something I have looked into as part of handling work stress - it is the only thing that I know that is able to change physiological parameters such as blood pressure and heart rate in reponse to stress.

http://www.med.navy.mil/sites/nmcphc/Documents/hea...


So what I am trying to say that in response to stress your heart rate and blood pressure go up, pupils dilate, you get sweaty, tremor and so on - the higher the stress the greater the response. Although we experience less 'high stress' in daily life, it is continuous in nature. Deep breathing such as described above is the only thing that allows you to consciously control that physiology.

The army uses it all the time but instead of calling Yoga ( which I expect it's where it's started conceptually) yep too touchy feelyso the boys, they call it combat or tactical breathing.

Here is a link with an overview of the physiology

http://goflightmedicine.com/on-combat/

🙂🍷( ahhh breath, long sip of a great Pinot, breath again - well you all get the idea!

Dx 8/5/2016, DCIS/IDC, Left, 4cm, Stage IIB, Grade 2, 1/13 nodes, ER+/PR+, HER2- Surgery 8/12/2016 Mastectomy: Left; Prophylactic ovary removal Chemotherapy 9/11/2016 AC + T (Taxol) Radiation Therapy 2/20/2017 External: Lymph nodes, Chest wall Hormonal Therapy Arimidex (anastrozole)
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Aug 12, 2017 09:32AM - edited Aug 12, 2017 09:34AM by Sadiesservant

Hi Ioana,

Things improved with the antibiotics so walkies with Sadie are better. No fevers at this point.

I spoke to the respirologist yesterday and he reiterated that I'm a bit of a challenge. Nothing grew from the culture but then he only took a sample from the largest pool of liquid in my lung. Interestingly no malignant cells either. But the thing is, my pleural cavity is a mess now. Lots of adhesions and small pockets of loculated fluid 10-30 mL in size. Which one had the infection? Hard to know. Apparently he consulted with my surgeon and in his words "he groaned". Not a good sign - he doesn't want to have to go in to clean it up. So, I think I am stuck with some SOB due to the adhesions and fluid (hopefully this will continue to dry up). I also believe I am still dealing with the hemoglobin issue. Next blood work scheduled for next week so will know better. My MO is away until the 21st so if it is seriously low I will need to connect with someone else at the Cancer Agency.

I studied mindfulness meditation at one point but found it hard to make space for it in my busy life. It's a high priority now among other changes I need to make. I'm reading Radical Remission at the moment, trying to wrap my head around the proposed dietary changes. I do eat a lot of veg but the prospect ofno meat, no dairy, no sugar (aka. no wine)? This is a tall order.

Glad to know the chickens got sorted. Enjoy your day off!

Dx 4/2001, IDC, Right, 1cm, Stage IIA, Grade 3, 1/10 nodes, ER+ Surgery 5/10/2001 Lumpectomy: Right; Lymph node removal: Right, Sentinel, Underarm/Axillary Chemotherapy 6/7/2001 CEF Radiation Therapy 12/17/2001 Whole-breast: Breast Hormonal Therapy 12/20/2001 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy 1/2/2007 Femara (letrozole) Hormonal Therapy 10/21/2007 Arimidex (anastrozole) Dx 1/3/2017, IDC, Right, Stage IV, metastasized to lungs, ER+/PR+, HER2- Chemotherapy 1/27/2017 Taxol (paclitaxel) Hormonal Therapy 3/29/2017 Arimidex (anastrozole) Targeted Therapy 4/20/2017 Ibrance (palbociclib)
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Aug 12, 2017 07:54PM Wildplaces wrote:

😊 GREAT news on finding no malignant cells in that specimen!!!!

And sounds like you found a wise surgeon - love them when they don't jump in, when all symptoms are improving. A wait and see approach is supersensible. You may still need a pleurodesis at some distant point but it will be a lot easier if Mother Nature cleaned up a lot first or it may resolve actually enough for good function.

SadiesS there is another explanation but without films ( ie knowing how big was the effusion and associated loculations ) I am speculating. Now that you are stable you can ask - I am assuming the effusion was considerable in size. Sometimes these catheter irritate the pleura and the pleura bleeds - forms a hematoma - fancy word for a large bruise/clot - risk higher in the face of impaired platelet function you would have on Ibrance. When this clot/bruise reabsorbs - it can form adhesions and the process of reabsorption can give you fevers - plus sometimes the clot itself can get infected. Depending on the size of it - it can explain your anaemia - the lab picture of the anaemia will be microcytic ( blood loss or iron depletion) or in chronic illness - mixed ( sometimes chronic illness patients have a Vit B deficiency as well). It will be interesting to see how your blood picture behaves now this is improving.

Dx 8/5/2016, DCIS/IDC, Left, 4cm, Stage IIB, Grade 2, 1/13 nodes, ER+/PR+, HER2- Surgery 8/12/2016 Mastectomy: Left; Prophylactic ovary removal Chemotherapy 9/11/2016 AC + T (Taxol) Radiation Therapy 2/20/2017 External: Lymph nodes, Chest wall Hormonal Therapy Arimidex (anastrozole)
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Aug 12, 2017 08:10PM Wildplaces wrote:

Liz and SadiesS

I put that inspire counting to four, hold for four and exhale for four up because it is the only technique we know off that actually improves physiology - in the face of stress.

The army and the rescue medical forces use it not to combat "stress" per se - the problem when you are stressed past a heart rate of 120 ( there are lab studies on this) you start getting a tremor and as your pupils dilate your vision is impaired - and you can see skills sets such how shooting or intubating someone on a field would be impaired. So they do the "tactical breathing" to control heart rate ( noradrenaline , cortisol etc) and thus not have the hand tremor, improve vision.

(PS above 160-170bpm the boys get really wired and loss of bowel and bladder function happens😨)

Radical Remission is the next book on my list.

I was just talking to Liz about this - I am reading Anitcancer: a new way of life David SS - and it has some good concepts.

For my part I can not give up/ wish to give up cheese, yoghurt, wine and the occasional red meat but I can certainly work a lot more organic vegetables and green tea in my life, add some turmeric and shallots to my salad dressings - heck take the time to make the salad dressing like I used to in Paris.

Roosters found a home - came back from that farm with one hen!😊🌷

We are trying to plant corn, carrots, potatoes and kale - they should not be too hard to harvest - famous last words!

Dx 8/5/2016, DCIS/IDC, Left, 4cm, Stage IIB, Grade 2, 1/13 nodes, ER+/PR+, HER2- Surgery 8/12/2016 Mastectomy: Left; Prophylactic ovary removal Chemotherapy 9/11/2016 AC + T (Taxol) Radiation Therapy 2/20/2017 External: Lymph nodes, Chest wall Hormonal Therapy Arimidex (anastrozole)
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Aug 12, 2017 09:17PM Sadiesservant wrote:

Hi. Interestingly thoughts. The respirologist also mentioned that the immune response to the adhesions could be causing fevers. My effusion was quite large (almost three litres) and, while there was no sign of blood for most of the draining, the last few drains were quite sangiuneous (totally did not get the spelling right on this).

I also can't imagine being that rigorous but there are a few things I can easily improve, particularly staying away from sugar and processed foods (although I don't eat much in the way of processed good). I also want to experiment more with smoothies and can try to eat more raw veg rather than steamed. Green tea is not an option either Ibrance... go figure.

Smiling about the vegetable patch. Nothing ever goes as planned. Here, the darn deer would get the crop before I did. Last year rats managed to decimate my tomatoes and this year they ate the only two Cox's Orange Pippins on my trees. (Cold winter led to poor pollination.)

That book is on my list as well. Let me know what you think.

Dx 4/2001, IDC, Right, 1cm, Stage IIA, Grade 3, 1/10 nodes, ER+ Surgery 5/10/2001 Lumpectomy: Right; Lymph node removal: Right, Sentinel, Underarm/Axillary Chemotherapy 6/7/2001 CEF Radiation Therapy 12/17/2001 Whole-breast: Breast Hormonal Therapy 12/20/2001 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy 1/2/2007 Femara (letrozole) Hormonal Therapy 10/21/2007 Arimidex (anastrozole) Dx 1/3/2017, IDC, Right, Stage IV, metastasized to lungs, ER+/PR+, HER2- Chemotherapy 1/27/2017 Taxol (paclitaxel) Hormonal Therapy 3/29/2017 Arimidex (anastrozole) Targeted Therapy 4/20/2017 Ibrance (palbociclib)

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