We are 211,213 members in 82 forums discussing 151,373 topics.

Help with Abbreviations

Topic: Shadow in chest is recurrence

Forum: Just Diagnosed With a Recurrence or Metastasis —

Meet others who are just facing the diagnosis of a recurrence of breast cancer or metastatic (advanced) disease. You are NOT alone.

Posted on: Mar 8, 2017 10:32AM

jackboo09 wrote:

Hi

I am due to have a CT scan biopsy of a 29mm shadow in chest tomorrow. Having been told 50/50 chance, they have said this morning that it is highly likely to be Mets and not operable.

I have 3 teenagers and a fully supportive family. Positives: small mass and no evidence yet of other mets although I haven't had a full bone scan yet just the neck to pelvis area CT.

consultant talked about new treatment options from 6 years ago when I was dx with IDC with node involvement and 2cm breast lump. She said not curable and their aim was to get me back to living my life and said years. Is this just what they tell you.

I am hours on only from this news. Crying a lot. Can anyone add any positives.


Liz ( jack boo)

Stage 2b Her 2 + Est + one pos node Age 40 Dx 3/15/2017, IDC, 2cm, Stage IV, metastasized to other, Grade 3, ER+, HER2+
Log in to post a reply

Page 41 of 41 (1,217 results)

Posts 1201 - 1217 (1,217 total)

Log in to post a reply

Aug 30, 2018 09:38AM Jojobird wrote:

Marian, I hope the ganglion block provides you some much-needed relief. Please do keep us posted.

I've had a rough few weeks. After my last infusion (which was my final one), I developed debilitating fatigue, and the steroids had me shaking with anxiety. Over the weekend I had several brief, short-lived and fierce fevers which led me to call the doctor but turned out to be some weird side effect that I just passed through. My sciatica has made it near impossible to walk, and so I've been bedridden. My shoulder nerve pain comes and goes. The onc prescribed opioids, which I plan to use only in emergencies, as the ibuprofen and ice seem to give some relief. But it's been hard not to fall into a funk. I've put on a few pounds because I can't exercise, and my crankiness is alienating my family. Not the person or place I want to be.

I've got a CT scan coming next Wednesday and so we wait.

I know I'll bounce back from this funk. But chronic pain impacts everything: mobility, mood, exercise, all of it.

Wishing you all a good day. XO


My blog: pinkstinks.blog/ Dx 3/2016, IDC, Right, 6cm+, Stage IIIC, Grade 3, 21/21 nodes, ER-/PR-, HER2- Dx 4/2018, IDC, Right, 5cm, Stage IIB, Grade 3, ER-/PR-, HER2- Chemotherapy 4/27/2018 Taxotere (docetaxel), Xeloda (capecitabine) Chemotherapy AC + T (Taxol) Surgery Lymph node removal: Underarm/Axillary; Mastectomy: Right Radiation Therapy Whole-breast: Breast, Lymph nodes
Log in to post a reply

Aug 31, 2018 02:43PM Sadiesservant wrote:

Hi Jojo,

I'm sorry to hear that you are going through so much at the moment and wish there was something I could say to make it better. My one piece of advice is to not be a martyr with regards to the pain meds. I understand the concerns regarding opioids but, as you point out, chronic pain is debilitating. It makes it so hard to stay positive when you can't escape it. I do get the hesitance - I've been taking a mild opioid (also using it judiciously) for my hip pain. Now that I have backed off use of it following radiation to my hip I find that it was also controlling abdominal/side pain. Surprise!

As to the sciatica, what about radiation? I had a terrible bout of sciatica last year which we attributed to my lumbar mets. One zap and the relief was almost instant. It was incredible.

I do hope things improve for you soon. Sending positive thoughts for some relief.

Pat

Dx 4/2001, IDC, Right, 1cm, Stage IIA, Grade 3, 1/10 nodes, ER+ Surgery 5/11/2001 Lumpectomy: Right; Lymph node removal: Right, Sentinel, Underarm/Axillary Chemotherapy 6/7/2001 CEF Radiation Therapy 12/17/2001 Whole-breast: Breast Hormonal Therapy 12/20/2001 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy 1/2/2007 Femara (letrozole) Hormonal Therapy 10/22/2007 Arimidex (anastrozole) Dx 1/3/2017, IDC, Right, Stage IV, metastasized to bone/lungs, ER+/PR+, HER2- Chemotherapy 1/27/2017 Taxol (paclitaxel) Hormonal Therapy 3/29/2017 Arimidex (anastrozole) Targeted Therapy 4/20/2017 Ibrance (palbociclib) Dx 10/12/2017, IDC, Right, Stage IV, metastasized to other Chemotherapy 10/21/2017 Xeloda (capecitabine) Hormonal Therapy 1/19/2018 Faslodex (fulvestrant)
Log in to post a reply

Aug 31, 2018 07:13PM marianelizabeth wrote:

Jojo, thanks for thinking of me but I think you are having a rougher time than me. sounds like you need some time with one of us, meaning a breast cancer buddy who understands. It can be very difficult with our significant others. wiFI going as we arte leaving the dock.

breastcancereh.blogspot.ca Dx 7/27/2012, IDC, ER+/PR+, HER2- Surgery 9/7/2012 Lumpectomy: Right; Lymph node removal: Right, Sentinel Dx 9/21/2012, IDC, 3cm, Stage IIIA, Grade 3, 7/14 nodes, ER+/PR+, HER2- Chemotherapy 10/15/2012 AC + T (Taxol) Surgery 3/5/2013 Lymph node removal: Right, Underarm/Axillary; Mastectomy: Right; Reconstruction (right): Tissue expander placement Hormonal Therapy 4/29/2013 Arimidex (anastrozole) Radiation Therapy 5/7/2013 Breast, Lymph nodes Surgery 12/6/2013 Reconstruction (left); Reconstruction (right) Surgery 12/12/2016 Reconstruction (right): Fat grafting, Silicone implant Surgery 6/26/2017 Reconstruction (right) Dx 8/22/2017, IDC, Right, 4cm, Stage IV, metastasized to other, 7/14 nodes, ER+/PR+, HER2- (IHC) Radiation Therapy 9/8/2017 Dx Dx DCIS
Log in to post a reply

Sep 6, 2018 09:43AM Jojobird wrote:

Pat and Marian,

Thank you for the kind words. I'm still in a lot of pain but the sciatica has abated and now it's mostly the nerve on my shoulder that's radiating pain down my arm. I had a CT scan yesterday and am waiting for results. Will keep you posted.

Wishing you both healing and strength.

Jojo

My blog: pinkstinks.blog/ Dx 3/2016, IDC, Right, 6cm+, Stage IIIC, Grade 3, 21/21 nodes, ER-/PR-, HER2- Dx 4/2018, IDC, Right, 5cm, Stage IIB, Grade 3, ER-/PR-, HER2- Chemotherapy 4/27/2018 Taxotere (docetaxel), Xeloda (capecitabine) Chemotherapy AC + T (Taxol) Surgery Lymph node removal: Underarm/Axillary; Mastectomy: Right Radiation Therapy Whole-breast: Breast, Lymph nodes
Log in to post a reply

Sep 7, 2018 11:41AM JoE777 wrote:

hey Liz, it is true there are more treatment options to manage the disease. My onc continues to speak of years for me because I'm responding well to my meds. You can see my DX below. I was in a wheelchair in May and now I can walk and am about to take a 5 hour trip to my family in Louisiana. Hold on, please let us know how things develop. Hugs and Peace.
Dx 2/2012, IDC, Left, 2cm, Stage IIA, metastasized to bone, Grade 1, 0/1 nodes, ER+/PR+, HER2- Surgery 4/3/2012 Lumpectomy: Left; Lymph node removal: Sentinel Dx 2/2018, IDC, Stage IV, metastasized to bone/lungs, Grade 1, ER+/PR+, HER2- Targeted Therapy Kisqali Hormonal Therapy Femara (letrozole) Chemotherapy Other Radiation Therapy External: Bone Hormonal Therapy Aromasin (exemestane), Femara (letrozole) Radiation Therapy Whole-breast: Breast, Lymph nodes
Log in to post a reply

Sep 9, 2018 10:41AM Jojobird wrote:

I have some unfortunate news.

The CT scan results came in. Despite Taxotere and Xeloda both, my tumor has nearly doubled in size. Three new lesions on my lung are "suspect for metastases." I'm in shock and grief, and we meet with the doctor Monday to find out what my next options are. But this tumor is growing *quickly* and I'm afraid time is running out.

I'm so, so sad, and angry, and scared. My husband and friends have been rocks for me, and I'm so grateful.

I'm also in a lot of shoulder pain, probably because the tumor is hitting a nerve. My sciatic nerve is also giving me hell. I'm on painkillers daily, and I don't know if I'll ever run or hike again? Maybe that's just my doomsday mind.

It's a sad day, can't sugarcoat it.

Love out.

Jojo

My blog: pinkstinks.blog/ Dx 3/2016, IDC, Right, 6cm+, Stage IIIC, Grade 3, 21/21 nodes, ER-/PR-, HER2- Dx 4/2018, IDC, Right, 5cm, Stage IIB, Grade 3, ER-/PR-, HER2- Chemotherapy 4/27/2018 Taxotere (docetaxel), Xeloda (capecitabine) Chemotherapy AC + T (Taxol) Surgery Lymph node removal: Underarm/Axillary; Mastectomy: Right Radiation Therapy Whole-breast: Breast, Lymph nodes
Log in to post a reply

Sep 9, 2018 12:43PM Sadiesservant wrote:

Jojo,

I’m so sorry to here this. I can only imagine how frightening it is for you. But surely there are other treatments they can try? I’m not up to speed on triple negative but is this not the BC that responds better to immunotherapy? Please don’t give up hope.

First order of business is to get your pain under control. Can they use radiation? It’s so hard when we are hurting.

I wish there was more I could say. Just know I am thinking of you and sending a virtual hug your way.

Pat.


Dx 4/2001, IDC, Right, 1cm, Stage IIA, Grade 3, 1/10 nodes, ER+ Surgery 5/11/2001 Lumpectomy: Right; Lymph node removal: Right, Sentinel, Underarm/Axillary Chemotherapy 6/7/2001 CEF Radiation Therapy 12/17/2001 Whole-breast: Breast Hormonal Therapy 12/20/2001 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy 1/2/2007 Femara (letrozole) Hormonal Therapy 10/22/2007 Arimidex (anastrozole) Dx 1/3/2017, IDC, Right, Stage IV, metastasized to bone/lungs, ER+/PR+, HER2- Chemotherapy 1/27/2017 Taxol (paclitaxel) Hormonal Therapy 3/29/2017 Arimidex (anastrozole) Targeted Therapy 4/20/2017 Ibrance (palbociclib) Dx 10/12/2017, IDC, Right, Stage IV, metastasized to other Chemotherapy 10/21/2017 Xeloda (capecitabine) Hormonal Therapy 1/19/2018 Faslodex (fulvestrant)
Log in to post a reply

Sep 9, 2018 03:32PM jackboo09 wrote:

Hi Jojobird

I’m very sorry to hear this news. I hope you come back and report that there is a new plan on Monday and that your pain can be controlled.

Liz x


Stage 2b Her 2 + Est + one pos node Age 40 Dx 3/15/2017, IDC, 2cm, Stage IV, metastasized to other, Grade 3, ER+, HER2+
Log in to post a reply

Sep 9, 2018 07:12PM marianelizabeth wrote:

Jojo, i am sure you are losing sleep waiting for tomorrow and the pain can't help. I am a lot of drugs, mainly methadone with hydromorphone for breakthrough. If it is nerve pain I know how difficult it is to control. I had what is called a stellate ganglion nerve block nearly two weeks ago and because nothing up to that point had helped my neuroovascular pain I was doubtful but it has helped a lot so you might mention that. An anesthetist who also does nerve blocks as a specialty did mine.

I honestly cannot remember when I posted here last but my tumour is also growing fast along with hotspots on my sternum and fifth and sixth ribs. I am now on Xeloda too and have done two cycle. I saw on a recent report that I will be having another MRI as well as a full bone scan and chest CT. Since these where all done in June I have to wonder what is going on.

I am a lot older than you so when I whine about no more trekking, I think of you and how much more important it is for you to be hiking again.

Please keep us posted tomorrow and know that I am thinking of you.

Marian

breastcancereh.blogspot.ca Dx 7/27/2012, IDC, ER+/PR+, HER2- Surgery 9/7/2012 Lumpectomy: Right; Lymph node removal: Right, Sentinel Dx 9/21/2012, IDC, 3cm, Stage IIIA, Grade 3, 7/14 nodes, ER+/PR+, HER2- Chemotherapy 10/15/2012 AC + T (Taxol) Surgery 3/5/2013 Lymph node removal: Right, Underarm/Axillary; Mastectomy: Right; Reconstruction (right): Tissue expander placement Hormonal Therapy 4/29/2013 Arimidex (anastrozole) Radiation Therapy 5/7/2013 Breast, Lymph nodes Surgery 12/6/2013 Reconstruction (left); Reconstruction (right) Surgery 12/12/2016 Reconstruction (right): Fat grafting, Silicone implant Surgery 6/26/2017 Reconstruction (right) Dx 8/22/2017, IDC, Right, 4cm, Stage IV, metastasized to other, 7/14 nodes, ER+/PR+, HER2- (IHC) Radiation Therapy 9/8/2017 Dx Dx DCIS
Log in to post a reply

Sep 11, 2018 11:51AM jackboo09 wrote:

Thinking of you Jojobird and Marian. You have both been in my thoughts today.

L x

Stage 2b Her 2 + Est + one pos node Age 40 Dx 3/15/2017, IDC, 2cm, Stage IV, metastasized to other, Grade 3, ER+, HER2+
Log in to post a reply

Sep 11, 2018 05:21PM marianelizabeth wrote:

We have not heard from Diane for quite awhile. Are any of you in closer contact~~i.e. Facebook?

breastcancereh.blogspot.ca Dx 7/27/2012, IDC, ER+/PR+, HER2- Surgery 9/7/2012 Lumpectomy: Right; Lymph node removal: Right, Sentinel Dx 9/21/2012, IDC, 3cm, Stage IIIA, Grade 3, 7/14 nodes, ER+/PR+, HER2- Chemotherapy 10/15/2012 AC + T (Taxol) Surgery 3/5/2013 Lymph node removal: Right, Underarm/Axillary; Mastectomy: Right; Reconstruction (right): Tissue expander placement Hormonal Therapy 4/29/2013 Arimidex (anastrozole) Radiation Therapy 5/7/2013 Breast, Lymph nodes Surgery 12/6/2013 Reconstruction (left); Reconstruction (right) Surgery 12/12/2016 Reconstruction (right): Fat grafting, Silicone implant Surgery 6/26/2017 Reconstruction (right) Dx 8/22/2017, IDC, Right, 4cm, Stage IV, metastasized to other, 7/14 nodes, ER+/PR+, HER2- (IHC) Radiation Therapy 9/8/2017 Dx Dx DCIS
Log in to post a reply

Sep 11, 2018 09:19PM Sadiesservant wrote:

No unfortunately. Also worried but maybe she is just enjoying the view of her garden from her new deck. Hope so.

We’re thinking of you Di. Please check in when you can

Dx 4/2001, IDC, Right, 1cm, Stage IIA, Grade 3, 1/10 nodes, ER+ Surgery 5/11/2001 Lumpectomy: Right; Lymph node removal: Right, Sentinel, Underarm/Axillary Chemotherapy 6/7/2001 CEF Radiation Therapy 12/17/2001 Whole-breast: Breast Hormonal Therapy 12/20/2001 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy 1/2/2007 Femara (letrozole) Hormonal Therapy 10/22/2007 Arimidex (anastrozole) Dx 1/3/2017, IDC, Right, Stage IV, metastasized to bone/lungs, ER+/PR+, HER2- Chemotherapy 1/27/2017 Taxol (paclitaxel) Hormonal Therapy 3/29/2017 Arimidex (anastrozole) Targeted Therapy 4/20/2017 Ibrance (palbociclib) Dx 10/12/2017, IDC, Right, Stage IV, metastasized to other Chemotherapy 10/21/2017 Xeloda (capecitabine) Hormonal Therapy 1/19/2018 Faslodex (fulvestrant)
Log in to post a reply

Sep 12, 2018 01:33AM jackboo09 wrote:

Di, chime in when you can. We are all thinking of you.

Liz

Stage 2b Her 2 + Est + one pos node Age 40 Dx 3/15/2017, IDC, 2cm, Stage IV, metastasized to other, Grade 3, ER+, HER2+
Log in to post a reply

Sep 13, 2018 09:56AM Jojobird wrote:

Thank you all for the support. And I am sending Di good thoughts and hope she is well.

More limbo, ladies. I meet with a surgeon next week to discuss that option. Two more scans to go as well. Also on the table is more chemotherapy, possibly immunotherapy. In the meantime I feel like I have a golfball under my arm, am on painkillers, and just started taking CBD. Hard to stay upbeat.

Doc said I should start doing any traveling that I want now, which sounds ominous, but I also appreciate the heads up.

Will try to walk today for a mile or so. To think that last month I was running 5-10k and hiking in the mountains. Now I’m glad to hobble around the block.

But: I am here. My daughter and husband are ok. There is coffee, this board, a small garden to tend. I’ll take it.


Love out.

My blog: pinkstinks.blog/ Dx 3/2016, IDC, Right, 6cm+, Stage IIIC, Grade 3, 21/21 nodes, ER-/PR-, HER2- Dx 4/2018, IDC, Right, 5cm, Stage IIB, Grade 3, ER-/PR-, HER2- Chemotherapy 4/27/2018 Taxotere (docetaxel), Xeloda (capecitabine) Chemotherapy AC + T (Taxol) Surgery Lymph node removal: Underarm/Axillary; Mastectomy: Right Radiation Therapy Whole-breast: Breast, Lymph nodes
Log in to post a reply

Sep 13, 2018 07:26PM Sadiesservant wrote:

Hi Jojo,

Hopefully they will get you on a plan soon and you will once again feel you are moving forward. The limbo phases are just plain torture.

I also struggle with how quickly things can change for us. While I enjoy work, I always worry about the what if’s and will I regret not chucking in the job to enjoy my life more. No matter how much I appreciate being engaged and productive, it does take time away from having fun and creating memories. For that reason I appreciate the honesty of your MO. To date, mine has not been so forthcoming (recognizing I am not experiencingwhat you are). Ioana and I have spoken about this a couple of times and they really just don’t know but I do hope mine will signal when I might want to focus on me.

Take good care of yourself. Pat.

Dx 4/2001, IDC, Right, 1cm, Stage IIA, Grade 3, 1/10 nodes, ER+ Surgery 5/11/2001 Lumpectomy: Right; Lymph node removal: Right, Sentinel, Underarm/Axillary Chemotherapy 6/7/2001 CEF Radiation Therapy 12/17/2001 Whole-breast: Breast Hormonal Therapy 12/20/2001 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy 1/2/2007 Femara (letrozole) Hormonal Therapy 10/22/2007 Arimidex (anastrozole) Dx 1/3/2017, IDC, Right, Stage IV, metastasized to bone/lungs, ER+/PR+, HER2- Chemotherapy 1/27/2017 Taxol (paclitaxel) Hormonal Therapy 3/29/2017 Arimidex (anastrozole) Targeted Therapy 4/20/2017 Ibrance (palbociclib) Dx 10/12/2017, IDC, Right, Stage IV, metastasized to other Chemotherapy 10/21/2017 Xeloda (capecitabine) Hormonal Therapy 1/19/2018 Faslodex (fulvestrant)
Log in to post a reply

Sep 14, 2018 10:42AM jackboo09 wrote:

Dear Jojobird

I am on a train from York to my home town, having just had a treatment. Have thought of you everyday since your post. So very glad to hear that there are further plans to tackle this progression.

You sound like you have a rock solid support system and a beautiful garden in which to escape.

I hope your medical team can find some effective treatment for your pain.

Much love,

Liz x

Stage 2b Her 2 + Est + one pos node Age 40 Dx 3/15/2017, IDC, 2cm, Stage IV, metastasized to other, Grade 3, ER+, HER2+
Log in to post a reply

Sep 16, 2018 11:22AM Jojobird wrote:

Liz, Pat, and everyone else,

Thank you so much for the kind words and support. It's been a very difficult time. We're having to decide between treatment options and right now are just weighing what those might be.

In the meantime, the tumor under my arm continues to grow into the nerves and is causing a lot of pain, and it makes it difficult for me to stand, or write, or walk, for more than a few minutes at a time due to the nerve pressure. Opioids help. I've also started CBD oil to deal with some of the anxiety and pain.

We'll decide this week on our plan and then move forward. I'll post later. In the meantime, it's just pain management and getting through each day. I miss health. I miss living pain-free. I hate cancer.

Love out,

Jojo

My blog: pinkstinks.blog/ Dx 3/2016, IDC, Right, 6cm+, Stage IIIC, Grade 3, 21/21 nodes, ER-/PR-, HER2- Dx 4/2018, IDC, Right, 5cm, Stage IIB, Grade 3, ER-/PR-, HER2- Chemotherapy 4/27/2018 Taxotere (docetaxel), Xeloda (capecitabine) Chemotherapy AC + T (Taxol) Surgery Lymph node removal: Underarm/Axillary; Mastectomy: Right Radiation Therapy Whole-breast: Breast, Lymph nodes

Page 41 of 41 (1,217 results)