Meet others who are just facing the diagnosis of a recurrence of breast cancer or metastatic (advanced) disease. You are NOT alone.
Posted on: Mar 8, 2017 08:32AM
I am due to have a CT scan biopsy of a 29mm shadow in chest tomorrow. Having been told 50/50 chance, they have said this morning that it is highly likely to be Mets and not operable.
I have 3 teenagers and a fully supportive family. Positives: small mass and no evidence yet of other mets although I haven't had a full bone scan yet just the neck to pelvis area CT.
consultant talked about new treatment options from 6 years ago when I was dx with IDC with node involvement and 2cm breast lump. She said not curable and their aim was to get me back to living my life and said years. Is this just what they tell you.
I am hours on only from this news. Crying a lot. Can anyone add any positives.
Liz ( jack boo)
Posts 1231 - 1240 (1,240 total)
Oct 7, 2018 07:30AM Wildplaces wrote:
JoJo - hoping that surgery went well for you - let us know when you can.
Oct 7, 2018 01:59PM DiV wrote:
Jojo-you are in my thoughts and prayers.
Insurance finally approved mri. Had mri on 27th. Mri shows inflammation in my lower back spinal cord. Have a small new mass at T-1. Will get another mri in a few months. I don't know how much more my nerves can take. All the stress the last few months is starting to take it's toll on me.
Hugs to all Diane
Oct 7, 2018 03:05PM - edited Oct 7, 2018 05:28PM by JoE777
why the wait a few months? Is it because they would treat the disease differently than you're treated now
Oct 7, 2018 09:45PM - edited Oct 7, 2018 11:54PM by Wildplaces
Hold steady - this is a bump - it's a rough one and I am probably not the one to best tell you about it given I am early stage but it's a bump. You have had a very tough couple of years and you have put in a superhuman effort - cut yourself some slack - it's ok to wabble a little. Di it''s a small lesion, if it shows up on MRI repeat - it's not liver or brain so hold on to that.
What treatment are you on,for now? How is your phantom limb pain? Did you have the MRI because you had back pain or was it part of a work up? Interesting it did not light up on your recent PET or am I wrong?
Oct 7, 2018 10:04PM Sadiesservant wrote:
Di. Ioana is right. It’s a bump and I know you will get through this (although I do get the frayed nerves - I’m in scan mode myself with a bone scan on Tuesday and an enhanced CT on the 17th - it just never gets easier). I’m taking deep breaths for you.
Jojo, I hope the surgery went well. Check in when you can.
Hugs to all. Pat
Oct 8, 2018 11:38AM marianelizabeth wrote:
Hi JoE777! Have not met you yet and I see we were diagnosed in the same year originally, 2012. I think Diane said she was having an MRI in a few months because she just had one on the 27th.
JoJo, let us know when you can, how the surgery went.
Looks as though lots of scans for several us. I had a full bone scan and CT chest/abdomen with contrast recently and nothing untoward. We have put off the MRI until after we return from our Danube River trip plus extra Budapest and Berlin Oct. 26 to Nov. 14. We have AirBnB for 3 days in Budapest and 3 days in Berlin at the end with two of our friends for the whole trip. Excited because for all of it I will be able to stay back and relax when I need to.
I have one of the common side effects of Xeloda~~hand and foot syndrome and my feet are red and one has white areas which peel off. I am soaking and applying Gehwiol cream 3 times a day. My MO says we will decrease my chemo for the trip in hopes of that slowing the foot problem.
Liz I understand that feeling of realizing how wonderful those precious times are.
Thanksgiving here and my daughter came over from Vancouver for 24 hours to have breakfast with us and our son and partner who drove down from Nanaimo for the weekend with us. Mary is moving to Victoria soon to be with her partner so I feel truly blessed. We are going north next week to help our nursing school move into his little starter home in Terrace that we are helping him finance. Happy that we are able to help with an early inheritance for his home. Hope to do the same for our other two over the next few years.
Rainy day but looking out to seeing loads of birds feeding at our two feeders.
Love to you all,
Oct 8, 2018 11:54AM jackboo09 wrote:
I agree with Ioana and Pat over the bump but I do feel your frayed nerves. I hate this side of things. I just feel for you: not sure what else to say.
Marian- enjoy Budapest. I really admire you living your life around the cancer crap.
Jojobird- I am thinking of you. Hope you are on the way to recovery.
To everyone- love and hugs.
Oct 8, 2018 06:09PM Jojobird wrote:
Thank you for all the kind wishes. I'm up and puttering about the house today. Doc took out part of a rib and part of my latissmus dorsi muscle in order to remove the 5 cm tumor, but he said he got it all. I'm struggling with pain and mobility but was able to walk around the block today - a milestone for sure. Heavy duty antibiotics and meds in order to manage pain and lower infection risk, I have two drains that come out next week.
One day at a time. Am binge watching The Office and Orange is the New Black, sleeping/resting a lot, and trying not to look at these huge scars on my body.
Love to all. Will post next week.
Oct 9, 2018 02:54PM Wildplaces wrote:
This is from Lulubee on xeloda - which she took for 3 years.
I love the practical stuff lulubee posts. Xeloda thread p167 midway