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Oct 18, 2020 12:43AM
Just a quick update. Met with my RO and she’s recommending a series of five daily treatments of the mets at the base of my skull and top of my c-spine. Surprisingly, she does not recommend zapping the mets on my right occipital bone - I think the potential for collateral damage is high. Planning CT will likely take place sometime next week and then radiation starts about three days later. (I had to laugh. She said she could do something quick or could take a fancier approach to planning which will provide a more accurate, directed beam. Um.... I’m good with fancy. Rather avoid a shot gun approach!)
I have to admit that I am nervous. The list of potential side effects is dauntingly long and a bit scary. There are a whole host of potential “short term” impacts that can last for a couple of months including a sore throat (couple of weeks), pain flare for a few days, fluid in my ears, sinus drainage which requires irrigation, hair loss (possibly permanent) and fatigue to the point that apparently I might nod off in the middle of a meeting if I’m not actively engaged. That should prove interesting. The most worrisome to me is potential reduction in my short term memory capabilities as there is no way to avoid radiating the brain to some extent. She does feel my age and concerted effort to use my brain (mind puzzles here we go) is in my favour.
So, there we are. Sometimes it all seems surreal to be in a place to have to make decisions about such impactful treatments. On the one hand, things seem to be holding steady but on the other hand there is clearly something going on with my skull mets. Things are quickly going downhill again now that the steroid is reduced in dosage. Pretty sure things will be back to where I was at a few weeks ago so not sure I really have a choice. Let’s hope that daunting list is just speculation.
Wish me luck!
4/2001, IDC, Right, 1cm, Stage IIA, Grade 3, 1/10 nodes, ER+
5/10/2001 Lumpectomy: Right; Lymph node removal: Right, Sentinel, Underarm/Axillary
12/17/2001 Whole-breast: Breast
12/20/2001 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
1/2/2007 Femara (letrozole)
10/22/2007 Arimidex (anastrozole)
1/3/2017, IDC, Right, Stage IV, metastasized to bone/lungs, ER+/PR+, HER2-
1/27/2017 Taxol (paclitaxel)
3/28/2017 Arimidex (anastrozole)
4/20/2017 Ibrance (palbociclib)
10/12/2017, IDC, Right, Stage IV, metastasized to other
10/20/2017 Xeloda (capecitabine)
11/15/2017 External: Bone
1/18/2018 Faslodex (fulvestrant)
8/2/2018 External: Bone
11/5/2018 External: Bone