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Topic: Local Recurrence Chime In

Forum: Just Diagnosed With a Recurrence or Metastasis —

Meet others who are just facing the diagnosis of a recurrence of breast cancer or metastatic (advanced) disease. You are NOT alone.

Posted on: Oct 20, 2017 06:21AM

Christmascarol wrote:

Hi Ladies,

I have been diagnosed with a local recurrence, after mastectomy. Looking around the site to try to connect with others who have had this happen to them, either after mastectomy or lumpectomy. I see there are some of us out there but we are scattered about the site. I thought I would try to start a current thread to try to get us together


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Posts 91 - 118 (118 total)

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Sep 26, 2018 12:02PM 7of9 wrote:

Sunshine - thanks for the reminder! My ultrasound tech wasn't a tech - it was a doctor. I've noticed that's all I get anymore since diagnosed originally. Very stoic but seemed confident she looked hard in area of concern and didn't see anything to warrant follow up. I'd imagine that now I've had 4 good ultrasounds - no one is slacking. Why we just can't take the good news and skip through the daisies is beyond sad! Thanks for the reminder to chin up. My son was 2 1/2 when I was diagnosed. He's over 9 now and I basically just got as clean of a bill of health as I can get! :)

If you're going through hell, keep on going. You might get out before the devil even knows you're there. Dx 1/18/2012, IDC, Left, 2cm, Stage IIB, Grade 2, 0/2 nodes, ER+/PR+, HER2- Surgery 6/1/2012 Lymph node removal: Left; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 11/1/2012 Reconstruction (left); Reconstruction (right) Dx 12/23/2015, IDC, Left, 2cm, Grade 2, 10/14 nodes, ER+/PR+, HER2- Surgery 1/19/2016 Lymph node removal: Left, Underarm/Axillary Surgery 1/19/2016 Prophylactic ovary removal Radiation Therapy 2/11/2016 Whole-breast: Breast, Lymph nodes, Chest wall Chemotherapy 4/1/2016 Taxotere (docetaxel) Hormonal Therapy Arimidex (anastrozole)
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Sep 27, 2018 10:15AM - edited Sep 27, 2018 10:17AM by KBeee

Jarkwright05, I had chemo after my local recurrence because my oncotype which was 16 the first time, came back very high the second time.

AMica, It must be frustrating to be classified as stage IV...adn scary...but the good news is that if it took that long to come back, it is VERY slow growing, and hormonal therapy will likely slow or halt its spread for a long time.

Karen. Dx 8/5/2013, IDC, Right, 1cm, Grade 2, 0/1 nodes, ER+/PR+, HER2- (IHC) Surgery 8/25/2013 Mastectomy: Left, Right Chemotherapy 9/19/2013 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 12/11/2013 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 1/22/2014 Reconstruction (left); Reconstruction (right) Surgery 1/28/2015 Lumpectomy: Right Dx 2/2/2015, IDC, Right, 1cm, Grade 2, 0/0 nodes, ER+/PR-, HER2- (FISH) Surgery 2/24/2015 Lumpectomy: Right; Lymph node removal: Right, Sentinel, Underarm/Axillary; Prophylactic ovary removal Dx 2/25/2015, IDC, Right, 1cm, Grade 3, 0/13 nodes, ER+/PR-, HER2- (IHC) Chemotherapy 3/30/2015 AC + T (Taxol) Radiation Therapy 8/24/2015 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy Femara (letrozole)
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Jan 10, 2019 07:27PM Ailurophile wrote:

After my entire Holidays was ruined for me and my family, going through scans and biopsy, finally I got the news yesterday. My cancer is back in soft tissue under my collar bone. Ct of abdomin and pelvic is clear though. At first they thought something is in my liver but after more scans it came out clear. blood test was normal too. Prior to diagnosis I had extremely dry and itchy skin on my entire body for a month which makes me feel maybe something is wrong with my liver anyway. I had a double mastectomy at the age of 36, no family history in 3 generations! I was stage 2A no lymph node involved.Her negative, Tumor was 2.2 cm .I was on tamaxifen for 5 years(I was suppose to get off the hook on jan 31). New tumor is also hormone receptor, its 2.6 and probably wont be able to know if it's in my lymph or not before doing a pet scan.I recently had this new test that can tell if you take benefits from having tamaxifen and my results were negative. Any word of wisdom regarding oophorectomy rather than new hormonal therapy, to have better chances to fight? I talked to my MO over the phone and she said hormonal therapy is the only thing she thinks she wants to do! No chemo! No radiation! No surgery! does that make sense at all? I need to buy more time because I have a 10 years old with Auto immune problems who really needs me due to special diet she has to have.please give me any advice that you can.

Anyone here knows about the benefit of CAR T CELL therapy? City of hope has a clinical trial.

Thank you all


Dx 7/2013, IDC, 2cm, Stage IIA, Grade 3, 0/3 nodes, ER+/PR+, HER2- Surgery 9/17/2013 Mastectomy: Left, Right Surgery 2/25/2014 Reconstruction (left); Reconstruction (right) Chemotherapy Cytoxan (cyclophosphamide), Taxotere (docetaxel)
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Jan 11, 2019 02:25AM jackboo09 wrote:

Hi ladies

I just found this thread and have found it interesting in terms of the discussion about staging and stage 3 or 4.

I had a loco regional recurrence to an internal mammary LN with mediastinum invasion. The leading cancer specialist at the Royal Marsden, London recorded this 2.9cm tumour as loco regional. No other distant areas of cancer. However my onco treats me as stage 4.

I have now been NEAD for 10 months and in March will be 2 years out from a stage 4 dx.

My primary cancer occurred 6 years before this recurring cancer. In 2011 I had a intra mammary LN positive so I do think this round has spread through the chest LNs.

Would welcome anybody’s opinion on this.


Liz

Stage 2b Her 2 + Est + one pos node Age 40 Dx 3/15/2017, IDC, 2cm, Stage IV, metastasized to other, Grade 3, ER+, HER2+
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Jan 11, 2019 10:26AM KBeee wrote:

You absolutely need to get multiple opinions. You will need to switch from Tamoxifen to an AI, so you'll need injections to shut down your ovaries, or just have them removed. I would want justification for the no surgery, radiation , or chemo. Honestly, I would not be comfortable with that treatment plan. My recurrence was under the edge of the pec muscle, and another tumor in original place. MO at May told me radiation and AI was all that was necessary (I did have surgery). He would not do oncotype. I got another opinion, did oncotype, and found it to be very high, so we did chemo. I was so glad I got multiple opinions. My gut told me I needed chemo, and the testing confirmed it.


Keep us posted. Sorry you're dealing with this.

Karen. Dx 8/5/2013, IDC, Right, 1cm, Grade 2, 0/1 nodes, ER+/PR+, HER2- (IHC) Surgery 8/25/2013 Mastectomy: Left, Right Chemotherapy 9/19/2013 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 12/11/2013 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 1/22/2014 Reconstruction (left); Reconstruction (right) Surgery 1/28/2015 Lumpectomy: Right Dx 2/2/2015, IDC, Right, 1cm, Grade 2, 0/0 nodes, ER+/PR-, HER2- (FISH) Surgery 2/24/2015 Lumpectomy: Right; Lymph node removal: Right, Sentinel, Underarm/Axillary; Prophylactic ovary removal Dx 2/25/2015, IDC, Right, 1cm, Grade 3, 0/13 nodes, ER+/PR-, HER2- (IHC) Chemotherapy 3/30/2015 AC + T (Taxol) Radiation Therapy 8/24/2015 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy Femara (letrozole)
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Jan 11, 2019 06:55PM jackboo09 wrote:

Hi Kbee

Thanks for your post. I am currently on a treatment plan, but it has been postponed recently while my neuropathy is assessed.

Here is what I am on: Herceptin and Perjeta every 3 weeks. Goseril injections to shut down by ovaries every month and a daily Al ( Letrozole) I also had 4 Taxotere when I reoccurred but could not tolerate the 6 that I was due to have.

So all in all I have had quite an aggressive regime.

The Marsden in London was my second opinion. The THP regime is the recommended standard of care after the Cleopatra trial showed a survival benefit of adding in Perjeta.

I am ‘happy’ to have had the above in the sense that I am confident that it is the right treatment. I just wonder about the whole loco regional stage thing.

Liz

Stage 2b Her 2 + Est + one pos node Age 40 Dx 3/15/2017, IDC, 2cm, Stage IV, metastasized to other, Grade 3, ER+, HER2+
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Jan 11, 2019 09:00PM KBeee wrote:

It does sound like you've been on an aggressive regimen. I follow your posts, and didn't even realize it was you who asked the question (chemo brain). I have seen that staged multiple ways. Most people I know who had it staged as stage 4, had the recurrence on the opposite side. Those who were 3C had it on the same side. Those who had it recur around the clavicle or neck and were stage 3C were all told they were being treated as stage 4 though, as far as treatment and monitoring for life ("all" in this case means 2 people I know locally). I'm so glad you're NEAD. And hope it continues to be NEAD...forever!

Karen. Dx 8/5/2013, IDC, Right, 1cm, Grade 2, 0/1 nodes, ER+/PR+, HER2- (IHC) Surgery 8/25/2013 Mastectomy: Left, Right Chemotherapy 9/19/2013 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 12/11/2013 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 1/22/2014 Reconstruction (left); Reconstruction (right) Surgery 1/28/2015 Lumpectomy: Right Dx 2/2/2015, IDC, Right, 1cm, Grade 2, 0/0 nodes, ER+/PR-, HER2- (FISH) Surgery 2/24/2015 Lumpectomy: Right; Lymph node removal: Right, Sentinel, Underarm/Axillary; Prophylactic ovary removal Dx 2/25/2015, IDC, Right, 1cm, Grade 3, 0/13 nodes, ER+/PR-, HER2- (IHC) Chemotherapy 3/30/2015 AC + T (Taxol) Radiation Therapy 8/24/2015 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy Femara (letrozole)
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Jan 12, 2019 09:14AM Ailurophile wrote:

Hi Kbeee

Thanks for your reply! Here is the new plan for me. surgery if possible and rads on entire chest.removing ovaries and new hormonal therapy.still no chemo though. My new tumor nuclear grade is 2, the original was3, I asked for oncotype and was told it's for original cancer not recurrence. My tumor is 95 percent hormone receptor

Dx 7/2013, IDC, 2cm, Stage IIA, Grade 3, 0/3 nodes, ER+/PR+, HER2- Surgery 9/17/2013 Mastectomy: Left, Right Surgery 2/25/2014 Reconstruction (left); Reconstruction (right) Chemotherapy Cytoxan (cyclophosphamide), Taxotere (docetaxel)
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Jan 13, 2019 12:40PM bevin wrote:

HI Aluirophile- I am sorry for your recurrence. Can you tell me how they found it in the soft tissues and what did it feel like that prompted you to go get checked.

Age 45, Oncotype 11, Primary Tumor 2.1 cm, smaller satellite tumor nearby Dx 8/8/2010, IDC, 2cm, Stage II, Grade 3, 0/5 nodes, ER+/PR+, HER2- Surgery 8/10/2010 Lumpectomy: Right; Lymph node removal: Right, Sentinel Radiation Therapy 10/10/2010 Breast
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Jan 13, 2019 02:40PM Toni_S wrote:

I was diagnosed with Stage 1 lobular cancer in 2011, lumpectomy, radiation, no chemo because low onco score. Five years of Arimidex. An axillary lymph node recurrence was found “accidentally” in December 2018 on a CT scan of the chest for pneumonia. Radiologist noted an enlarged lymph node that upon subsequent biopsy tested positive for lobular cancer. Abdominal, chest, and pelvic CT scans are clear, waiting for bone scan results and breast MRI results. I am deeply depressed by what I find on the web, most studies offer little reason for optimism.

I will be seeing my MO tomorrow. I feel lost, depressed, and really bummed. Looking to find some reason for hope among the stories of women here. I admire all of you for your resilience.

Axillary dissection is scheduled for the 24th. One foot in front of the other, I will get through this

Dx 4/20/2011, ILC, 1cm, Stage IA, Grade 2, 0/3 nodes, ER+/PR+, HER2-
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Jan 13, 2019 04:18PM KBeee wrote:

Ailurophile, I would definitely seek a second opinion. Oncotype is designed for original tumors, but it can be used in recurrences. There just is not as much data. My MO was not sure insurance would cover it, but mine did. Mayo originally told me there was no need for chemo either, and that the AI would suffice, but thankfully, my local MO looked further. Different MOs have different ideas.


Toni, Sorry you are dealing with this. Recurrences are so much harder mentally than dealing with it the first time. Stay off of Google. Generalizations do not take into account individual circumstances. It sounds like your recurrence was found early. Hoping it has not spread and can be dealt with via surgery and changing hormonal blockers.

Karen. Dx 8/5/2013, IDC, Right, 1cm, Grade 2, 0/1 nodes, ER+/PR+, HER2- (IHC) Surgery 8/25/2013 Mastectomy: Left, Right Chemotherapy 9/19/2013 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 12/11/2013 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 1/22/2014 Reconstruction (left); Reconstruction (right) Surgery 1/28/2015 Lumpectomy: Right Dx 2/2/2015, IDC, Right, 1cm, Grade 2, 0/0 nodes, ER+/PR-, HER2- (FISH) Surgery 2/24/2015 Lumpectomy: Right; Lymph node removal: Right, Sentinel, Underarm/Axillary; Prophylactic ovary removal Dx 2/25/2015, IDC, Right, 1cm, Grade 3, 0/13 nodes, ER+/PR-, HER2- (IHC) Chemotherapy 3/30/2015 AC + T (Taxol) Radiation Therapy 8/24/2015 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy Femara (letrozole)
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Jan 14, 2019 09:38AM Ailurophile wrote:

Hi bevin

I found it myself due to pain. It is hard and attached and feels like a hazelnuts. I went to my Mo and her nurse visited me and wanted me to check back with my family doctor, because she thought it's a simple ripped tissue and will be gone in a month or so. I came home waited another week while I was sure it's not that simple. I also had a very bad pain in my shoulder every couple of months that was going all the way to my arm and was told it's a pinched nerve. So putting it all together I knew....

Went back to her office and this time I met my Oncologist not the nurse, she touched it and immediately ordered a CT of infraclavicular area. Ct result suggested highly suspicious to malignancy, biopsy came after and Bam back!

In my recent visit she said we might never know if it's the soft tissue or the lymph even though ct called it soft tissue.

Dx 7/2013, IDC, 2cm, Stage IIA, Grade 3, 0/3 nodes, ER+/PR+, HER2- Surgery 9/17/2013 Mastectomy: Left, Right Surgery 2/25/2014 Reconstruction (left); Reconstruction (right) Chemotherapy Cytoxan (cyclophosphamide), Taxotere (docetaxel)
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Jan 14, 2019 09:43AM Ailurophile wrote:

kBeee I will definitely check with another Mo. I will post an update

Dx 7/2013, IDC, 2cm, Stage IIA, Grade 3, 0/3 nodes, ER+/PR+, HER2- Surgery 9/17/2013 Mastectomy: Left, Right Surgery 2/25/2014 Reconstruction (left); Reconstruction (right) Chemotherapy Cytoxan (cyclophosphamide), Taxotere (docetaxel)
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Jan 15, 2019 05:06PM Christmascarol wrote:

Aulurophile and Toni,

So sorry to that you are joining our group. It is a lonely place as there are so few of us. Kbeee has once again provided some very good advice. A big shout out to her for being there for so many of us. Just know you are not alone. I know it helped me. I am always so happy when I check in and find so many of us still Ned. Hang in there. Xo

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Jan 15, 2019 05:49PM - edited Jan 15, 2019 09:44PM by Astrid

I'm sorry to read of your recurrences too. Hopefully the node recurrence can be taken out and that's the end of it. Is it possible that this node was simply missed in original dx and just kept growing?

I think there is also some new data on axilla nodes not necessarily causing spread?

I had 1st recurrence 1 year out from double mx and both arms had axilla clearance in 1st surgery.

Original dx

1 pos. Node left side and..2 tumours in left breast found..IDC. chemo only. Some years of aromasin.

Er+ PR + Her -

1st recurrence, my surgeon thought it was a micro met missed and not recurrence(probably)

Had wide excision and rads. Same pathology result as original dx. No further problems until

2012 ...9 years after 1st recurrence.

Right breast..this time ILC. yep..different pathology and this time ER - PR + Her2 -.

Wide excision and rads.

No further problems😀

I write hoping to give some hope. My cancer started in 2002

I have only had local recurrences...tons of treatment and ops.plus chronic side effect management.

And I agree with KBee about the difficulty emotionally.

You feel like you relate more to stage 3 and 4 people even if you have local recurrences.

I needed a lot of counselling post 3rd dx. It helped a bit.

Wishing you many many years of ned or chronic disease management, but no further spread.

Much love, empathy amd cyber hugs to all.



2002:IDC, double mast & double axilla clearance, chemo. 2003: recurrence left mast.IDC. rads. 2011:reconstruction 2012: recurrence right mast side ILC. rads. Left arm LE since 2003. Right arm LE dx 2016 LE left chest wall & mast.site dx late 2016.
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Jan 15, 2019 06:02PM Astrid wrote:

just want to add that whether they call it a recurrence or new primary...it is still mentally and emotionally a 'recurrence' experience.

2002:IDC, double mast & double axilla clearance, chemo. 2003: recurrence left mast.IDC. rads. 2011:reconstruction 2012: recurrence right mast side ILC. rads. Left arm LE since 2003. Right arm LE dx 2016 LE left chest wall & mast.site dx late 2016.
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Jan 15, 2019 08:51PM Ailurophile wrote:

Christmascarol. Thanks for your heartwarming message. I do not feel alone any more.I remember when I was diagnosed, for the first time I even didn't want to take a look at recurrence related communities, because I was so scared of that.I said it wont be me, with early stage and no lymph involved. I thought I will be a forever survivor....

Astrid, your story gives me hope to fight again! Thank you for sharing and thanks for being such a positive person.

KBeee. Thank you one more time for giving us the newbies as much useful infos as you can!

Toni. I feel your pain and pray for all of us. Let's try to fight this one more time.

Dx 7/2013, IDC, 2cm, Stage IIA, Grade 3, 0/3 nodes, ER+/PR+, HER2- Surgery 9/17/2013 Mastectomy: Left, Right Surgery 2/25/2014 Reconstruction (left); Reconstruction (right) Chemotherapy Cytoxan (cyclophosphamide), Taxotere (docetaxel)
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Jan 16, 2019 09:57AM Christmascarol wrote:

Astrid,

You have been through so much, and are still dealing with ongoing side effects,yet here you are trying to help others. I sure do hope that none of us ever have to deal with this again. Thank you so much for sharing your story and giving the gift of hope. Xo

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Jan 16, 2019 03:43PM Toni_S wrote:

Many thanks for your response. you are an inspiration! Three recurrences is a lot to deal with. So glad you are doing well, I hope to follow your example. All my scans are clear so dealing with isolated local recurrence only. Surgery next Friday and then on to chemo. I am feeling so much better staying off of google. It’s not useful with so many conflicting articles, and certainly not helpful

Dx 4/20/2011, ILC, 1cm, Stage IA, Grade 2, 0/3 nodes, ER+/PR+, HER2-
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Jan 16, 2019 08:29PM bevin wrote:

Ailurophile, thank you for sharing how you found the lumps and what they felt like. Praying all goes well for you and I am sorry you're facing this.

Bevin

Age 45, Oncotype 11, Primary Tumor 2.1 cm, smaller satellite tumor nearby Dx 8/8/2010, IDC, 2cm, Stage II, Grade 3, 0/5 nodes, ER+/PR+, HER2- Surgery 8/10/2010 Lumpectomy: Right; Lymph node removal: Right, Sentinel Radiation Therapy 10/10/2010 Breast
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Jan 17, 2019 09:43PM - edited Jan 18, 2019 05:21PM by Astrid

That is rough news Ailurophile. Let'a hope it will be the last of it.

Thinking of you too Toni. One day at a time eh?

Christmas Carol, back atcha!Heart

Dear KBee.. I was so sorry to read of your current anxieties. I totally get that. Please let us know how your appt goes(or if you already had it!)Hug

Oops edit: KBee I just realised you were writing of your appt im March 2018! You have probably had another appt since then.😀so I am glad you are still doing well.

2002:IDC, double mast & double axilla clearance, chemo. 2003: recurrence left mast.IDC. rads. 2011:reconstruction 2012: recurrence right mast side ILC. rads. Left arm LE since 2003. Right arm LE dx 2016 LE left chest wall & mast.site dx late 2016.
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Jan 18, 2019 06:44PM Ailurophile wrote:

Hi everyone

I am totally devastated because my SO. Thinks my tumor is not surgically removable. It's a cluster of lymphs on the corner of the lung next to a main artery that takes blood to the lung.its also 2cm deep under a muscle. She suggested seeing Radiation Oncologist to shrink it as much as possible to prevent it from moving to other organs.I will have a pet on Monday. Keep me in your prayers....

Do you know anyone who got result from rads, without surgery?

Dx 7/2013, IDC, 2cm, Stage IIA, Grade 3, 0/3 nodes, ER+/PR+, HER2- Surgery 9/17/2013 Mastectomy: Left, Right Surgery 2/25/2014 Reconstruction (left); Reconstruction (right) Chemotherapy Cytoxan (cyclophosphamide), Taxotere (docetaxel)
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Jan 18, 2019 07:41PM - edited 18 hours ago by Astrid

oh no Ailurophile.

Of course, I will hold you close in my prayers.Hug

My first thought is to get a second opinion with a highly recommended surgeon at a top cancer hospital if you haven't already.

Do you have a trusted oncologist you can discuss this with also?

Gather as much info as you can until you feel ok with the next steps.

We are all here for you and wishing you fortitude, courage and calm for whatever you face next. Gentle cyber hug.


2002:IDC, double mast & double axilla clearance, chemo. 2003: recurrence left mast.IDC. rads. 2011:reconstruction 2012: recurrence right mast side ILC. rads. Left arm LE since 2003. Right arm LE dx 2016 LE left chest wall & mast.site dx late 2016.
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23 hours ago KBeee wrote:

I agree with Astrid. Your SO may not feel comfortable resecting it, but a surgeon at a major cancer hospital may.

Karen. Dx 8/5/2013, IDC, Right, 1cm, Grade 2, 0/1 nodes, ER+/PR+, HER2- (IHC) Surgery 8/25/2013 Mastectomy: Left, Right Chemotherapy 9/19/2013 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 12/11/2013 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 1/22/2014 Reconstruction (left); Reconstruction (right) Surgery 1/28/2015 Lumpectomy: Right Dx 2/2/2015, IDC, Right, 1cm, Grade 2, 0/0 nodes, ER+/PR-, HER2- (FISH) Surgery 2/24/2015 Lumpectomy: Right; Lymph node removal: Right, Sentinel, Underarm/Axillary; Prophylactic ovary removal Dx 2/25/2015, IDC, Right, 1cm, Grade 3, 0/13 nodes, ER+/PR-, HER2- (IHC) Chemotherapy 3/30/2015 AC + T (Taxol) Radiation Therapy 8/24/2015 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy Femara (letrozole)
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12 hours ago - edited 12 hours ago by buttonsmachine

Ailurophile, I just wanted to echo what KBeee and Astrid said. Sometimes getting to another specialized center makes all the difference when our cases become more complicated. Here is the NCI cancer center locator, it's a good resource: https://www.cancer.gov/research/nci-role/cancer-centers

I'm sorry you're dealing with this, I hope you can find some answers soon. Hugs and best wishes for your PET scan.

Initial diagnosis at 32 years old. Chest wall resection 18 months later due to skin metastasis, probably from needle seeding during initial biopsy. Skin graft from right thigh! Dx 8/2016, IDC, Right, Stage IA, Grade 3, 0/2 nodes, ER+/PR+, HER2- Surgery 10/1/2016 Lumpectomy: Right; Lymph node removal: Sentinel Chemotherapy 11/1/2016 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 2/1/2017 Whole-breast Hormonal Therapy 5/1/2017 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Dx 9/2017, IDC, Right, Grade 3, 2/5 nodes, ER+/PR+, HER2- Surgery 11/1/2017 Lymph node removal: Sentinel; Mastectomy: Right; Reconstruction (right): Tissue expander placement Chemotherapy 12/27/2017 AC Dx 1/2018, IDC, Right, Grade 3, 0/5 nodes, ER+/PR+, HER2- Surgery 5/1/2018 Lymph node removal: Right; Mastectomy Radiation Therapy 5/10/2018 External: Lymph nodes, Chest wall Hormonal Therapy 7/1/2018 Zoladex (goserelin) Chemotherapy 7/1/2018 Xeloda (capecitabine) Hormonal Therapy 1/15/2019 Aromasin (exemestane)
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10 hours ago Ailurophile wrote:

Thank you so much my dear BC sisters,

I will follow the link and hopefully will find something more promising. I will do a PET tomorrow and I just want to be positive about my results....

Dx 7/2013, IDC, 2cm, Stage IIA, Grade 3, 0/3 nodes, ER+/PR+, HER2- Surgery 9/17/2013 Mastectomy: Left, Right Surgery 2/25/2014 Reconstruction (left); Reconstruction (right) Chemotherapy Cytoxan (cyclophosphamide), Taxotere (docetaxel)
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9 hours ago Astrid wrote:

so do we!

Hoping for very good reults with the PET.Hug

2002:IDC, double mast & double axilla clearance, chemo. 2003: recurrence left mast.IDC. rads. 2011:reconstruction 2012: recurrence right mast side ILC. rads. Left arm LE since 2003. Right arm LE dx 2016 LE left chest wall & mast.site dx late 2016.
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8 hours ago mellee wrote:

Ailurophile, I see you're in Irvine. The doctors I've seen at the UC Irvine Chao Family Comprehensive Cancer Center are fantastic. Definitely recommend it for a second opinion.

2.3 cm tumor (Grade 1, Luminal A). 100% ER+, 97% PR+, Her2-, Ki67 6%. Mammaprint: Low risk Dx 10/6/2016, IDC, Right, 2cm, Stage IIB, Grade 1, 2/32 nodes, ER+/PR+, HER2- Surgery 11/7/2016 Lymph node removal: Sentinel, Underarm/Axillary; Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Hormonal Therapy 2/2/2017 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 6/7/2017 Reconstruction (right): Silicone implant Dx 12/8/2018, IDC, Right, Grade 1, ER+/PR+ Surgery 1/10/2019

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