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Jun 16, 2018 03:25AM
Weimlover, I'm HR+ not TN, but I had TWO local recurrences, and have no sign of distant mets yet. I only say this to try to help you: now that your case is more complicated, please get an opinion from a university teaching hospital or NCI designated cancer hospital. I did, and I ended up transferring my care there. It made all the difference - I can't stress that enough. The reality is that not all doctors and facilities are equal.
Give yourself the best doctors you can find. There are ways, even if you're low on money. There are need-based programs out there. Most big cancer hospitals will have social workers, and they know how to get you connected with the care you need. Best wishes to you and please keep us posted.
Initial diagnosis at 32 years old. Chest wall resection 18 months later due to skin metastasis, probably from needle seeding during initial biopsy. Skin graft from right thigh!
8/2016, IDC, Right, Stage IA, Grade 3, 0/2 nodes, ER+/PR+, HER2-
9/30/2016 Lumpectomy: Right; Lymph node removal: Sentinel
10/31/2016 Cytoxan (cyclophosphamide), Taxotere (docetaxel)
4/30/2017 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
9/2017, IDC, Right, Grade 3, 2/5 nodes, ER+/PR+, HER2-
10/31/2017 Lymph node removal: Sentinel; Mastectomy: Right; Reconstruction (right): Tissue expander placement
1/2018, IDC, Right, Grade 3, 0/5 nodes, ER+/PR+, HER2-
4/30/2018 Lymph node removal: Right; Mastectomy
5/9/2018 External: Lymph nodes, Chest wall
6/30/2018 Zoladex (goserelin)
6/30/2018 Xeloda (capecitabine)
1/14/2019 Aromasin (exemestane)