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Topic: Now a 17 year survivor of Stage 4 MBC de novo!!!

Forum: Just Diagnosed With a Recurrence or Metastasis —

Meet others who are just facing the diagnosis of a recurrence of breast cancer or metastatic (advanced) disease. You are NOT alone.

Posted on: Dec 22, 2018 04:09PM - edited Jan 27, 2019 10:46PM by Denny123

Denny123 wrote:

December 16 was the beginning of my 17th year!  I have been on chemo for 16 3/4 years, currently NED, and on Herceptin and Xeloda for maintenance.

Original liver mets, then 8 years ago I presented with chest node mets.  I was on Kadcyla for 4 years, but am unable to add that to my treatment history shown below.

Denise


Dx 12/14/2002, IDC, Both breasts, 5cm, Stage IV, metastasized to liver/other, Grade 3, 4/40 nodes, mets, ER+/PR+, HER2+ Surgery 2/20/2003 Lymph node removal: Left, Right; Mastectomy: Left, Right; Reconstruction (left): Latissimus dorsi flap; Reconstruction (right): Latissimus dorsi flap Chemotherapy 3/31/2003 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Gemzar (gemcitabine), Taxotere (docetaxel), Xeloda (capecitabine) Radiation Therapy 10/10/2003 Breast, Lymph nodes Targeted Therapy 1/30/2004 Herceptin (trastuzumab) Hormonal Therapy 7/5/2011 Faslodex (fulvestrant) Targeted Therapy Herceptin (trastuzumab) Targeted Therapy
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Dec 22, 2018 06:05PM grainne wrote:

How fantastic it is for all of us to hear that! Congratulations.

grainne Dx 2/1/2016, DCIS/IDC: Tubular, Left, 1cm, Stage IA, Grade 1, 0/3 nodes, ER+/PR+, HER2- Hormonal Therapy 4/15/2016 Arimidex (anastrozole), Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Dec 22, 2018 07:23PM dorimak wrote:

Thank you for sharing.That is awesome not just for you but for the rest of us! Have a blessed Christmas and here’s to many more years of health and happiness.

Dx 10/2001, IDC, Right, 2cm, Stage IIA, Grade 2, 0/1 nodes, ER+/PR+, HER2- Dx 10/2005, IDC, Right, 2cm, Stage IIIB, Grade 2, ER+/PR+, HER2- Dx 1/2016, IDC, Stage IV, metastasized to lungs/other, Grade 2, ER+/PR+, HER2- Hormonal Therapy 4/1/2016 Femara (letrozole) Targeted Therapy 4/1/2016 Ibrance (palbociclib) Hormonal Therapy 4/1/2018 Faslodex (fulvestrant) Hormonal Therapy 11/1/2018 Aromasin (exemestane) Targeted Therapy 11/1/2018 Afinitor (everolimus) Dx 1/2019, Stage IV, metastasized to brain/lungs/other, Grade 2, ER+/PR+, HER2- Surgery Mastectomy: Right Surgery Lumpectomy: Right Radiation Therapy Chemotherapy AC Radiation Therapy External: Brain
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Dec 22, 2018 07:33PM ksusan wrote:

Congrats!

Mutant uprising quashed. Dx 1/2015, IDC, Right, Stage IIA, 1/1 nodes, ER+/PR+, HER2- Dx 1/2015, DCIS, Left, Stage 0, Grade 3, 0/2 nodes Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery Lymph node removal: Sentinel; Mastectomy: Left, Right Radiation Therapy Whole-breast Chemotherapy Cytoxan (cyclophosphamide), Taxotere (docetaxel)
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Jan 23, 2019 10:24AM Erkipper wrote:

Hi there Congratulation!!!! I was just diagnosed with a recurrence and saw your post that you were on Kadcyla, then you wrote " was on Kadcyla for 4 years, but that doesn't seem to be an option for my tx" What does that mean? They just started my on Kadcyla. Thanks for any info

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Jan 23, 2019 10:34AM Denny123 wrote:

I was on Kadcyla until it stopped working.  There is no set time.  Good luck!

Dx 12/14/2002, IDC, Both breasts, 5cm, Stage IV, metastasized to liver/other, Grade 3, 4/40 nodes, mets, ER+/PR+, HER2+ Surgery 2/20/2003 Lymph node removal: Left, Right; Mastectomy: Left, Right; Reconstruction (left): Latissimus dorsi flap; Reconstruction (right): Latissimus dorsi flap Chemotherapy 3/31/2003 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Gemzar (gemcitabine), Taxotere (docetaxel), Xeloda (capecitabine) Radiation Therapy 10/10/2003 Breast, Lymph nodes Targeted Therapy 1/30/2004 Herceptin (trastuzumab) Hormonal Therapy 7/5/2011 Faslodex (fulvestrant) Targeted Therapy Herceptin (trastuzumab) Targeted Therapy
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Jan 23, 2019 02:39PM MichelleAnn wrote:

Congratulations, that made my heart smile.

I was just diagnosed with breast mets on dec 31 2018, after being diagnosed with BC Jan 2018...

had 1/7 brain tumors removed with surgery on jan 7 and will begin radiation to remove the other 6 squatters at the month.

My husband and I have four wonderful children (13, 9, 7 and 4) I am determined to not have this ruin the plans I have to be around for them.

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Jan 23, 2019 03:20PM Moderators wrote:

Denny123, thank you for posting this!

We welcome you warmly Erkipper and MichelleAnn. We are sorry you had to join, but glad you found us.

Sending you All gentle hugs Medicating

To send a Private Message to the Mods: community.breastcancer.org/mem...
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Jan 23, 2019 04:03PM illimae wrote:

Yay! I love these posts, congrats!🎉

Diagnosed at 41 Stage IV De Novo Dx 11/16/2016, IDC, Left, 5cm, Stage IV, metastasized to bone, Grade 3, 3/13 nodes, ER+/PR-, HER2+ (IHC) Chemotherapy 1/1/2017 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 1/1/2017 Herceptin (trastuzumab) Targeted Therapy 1/1/2017 Perjeta (pertuzumab) Surgery 6/26/2017 Lumpectomy: Left; Lymph node removal: Underarm/Axillary Radiation Therapy 8/10/2017 Breast, Lymph nodes Dx 10/5/2017, IDC, Left, 5cm, Stage IV, metastasized to brain, Grade 3, 3/13 nodes, ER+, HER2+ (IHC) Radiation Therapy 10/19/2017 External: Brain Radiation Therapy 4/18/2018 External: Brain Radiation Therapy 5/22/2019 External: Brain Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Jan 23, 2019 05:14PM nbnotes wrote:

Congrats! At 6 1/2 years in with de novo liver mets, this makes me smile & have hope!

Nancy --- mets to liver -- "Don't count the days, make the days count" Muhammed Ali Dx 7/17/2012, IDC, 1cm, ER+/PR- Dx 8/23/2012, IDC, 1cm, Stage IA, Grade 3, 0/3 nodes, ER+/PR+, HER2- Surgery 8/23/2012 Mastectomy: Left, Right Dx 10/9/2012, 5cm, Stage IV, mets Chemotherapy 10/9/2012 AC Hormonal Therapy 2/13/2013 Arimidex (anastrozole) Hormonal Therapy 1/10/2017 Faslodex (fulvestrant) Targeted Therapy 1/12/2017 Ibrance (palbociclib) Hormonal Therapy 11/8/2017 Aromasin (exemestane) Targeted Therapy 11/11/2017 Afinitor (everolimus) Chemotherapy 8/22/2018 Xeloda (capecitabine) Radiation Therapy 4/25/2019 Radiation Therapy 9/2/2019 External: Liver Chemotherapy 9/17/2019 Gemzar (gemcitabine)
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Jan 27, 2019 07:37AM dorimak wrote:

congratulations Denny123 on such a significant milestone! May you continue to celebrate for decades.

MichelleAnn are you having whole brain radiation or stereotactic treatment of the remaining spots

Dx 10/2001, IDC, Right, 2cm, Stage IIA, Grade 2, 0/1 nodes, ER+/PR+, HER2- Dx 10/2005, IDC, Right, 2cm, Stage IIIB, Grade 2, ER+/PR+, HER2- Dx 1/2016, IDC, Stage IV, metastasized to lungs/other, Grade 2, ER+/PR+, HER2- Hormonal Therapy 4/1/2016 Femara (letrozole) Targeted Therapy 4/1/2016 Ibrance (palbociclib) Hormonal Therapy 4/1/2018 Faslodex (fulvestrant) Hormonal Therapy 11/1/2018 Aromasin (exemestane) Targeted Therapy 11/1/2018 Afinitor (everolimus) Dx 1/2019, Stage IV, metastasized to brain/lungs/other, Grade 2, ER+/PR+, HER2- Surgery Mastectomy: Right Surgery Lumpectomy: Right Radiation Therapy Chemotherapy AC Radiation Therapy External: Brain
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Jan 27, 2019 05:50PM nowaldron wrote:

Wow, that is great! I am so happy for you. I am coming up on three years and have heard of women living for a long time with HER2+ on Herceptin. That is just such great news. I am wishing you another 17 years or more! 

Best,

Nancy

Dx 2/5/2016, IDC: Medullary, Left, 4cm, Stage IV, metastasized to bone/liver, ER+/PR-, HER2+ (FISH) Radiation Therapy 2/7/2016 External: Breast, Chest wall, Bone Targeted Therapy 2/18/2016 Herceptin (trastuzumab) Chemotherapy 2/18/2016 Taxol (paclitaxel) Targeted Therapy 2/18/2016 Perjeta (pertuzumab) Hormonal Therapy 9/15/2016 Femara (letrozole)
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Jan 27, 2019 06:36PM gailmary wrote:

congratulations Denise. That is great for you and so encouraging for the rest of us.

I am a little confused tho. You have been on chemo for almost 17 yrs? Do you mean always a chemo through an IV? Or even referring to the faslodex you were on as a chemo? Any of the others just a chemo pill? Ive been fortunate in that i havent had IV chemo yet. My dr left me thinking once i have IV chemo the hormonal therapy wouldnt help anymore

Some of what I'm reading here makes me think that chemo can "reset" the cancer to respond again to previously used drugs. Since I am not there yet dr thinks its a waste of breath discussing it cause I "may never need it". But understanding it all is very helpful.

Thanks

Dx 11/25/2008, IDC, Left, 2cm, Stage IIA, Grade 1, 2/12 nodes, ER+/PR+, HER2- (IHC) Dx 4/13/2017, Stage IV, metastasized to bone Radiation Therapy Hormonal Therapy Faslodex (fulvestrant), Femara (letrozole)
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Jan 27, 2019 07:11PM Kanga_Roo wrote:

So thrilled you are sharing your amazing milestone with us Denny! These happy posts keep us all going and give us hope for a brighter future! Heart

Dx 1/24/2018, IDC, Left, 5cm, Stage IV, metastasized to liver, ER+/PR+, HER2- (IHC) Hormonal Therapy 2/11/2018 Femara (letrozole) Targeted Therapy 2/15/2018 Kisqali
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Jan 27, 2019 10:41PM - edited Jan 27, 2019 10:42PM by Denny123

MichelleAnn-Many prayers for you!

Gailmary- All of my chemo has been IV and I also refer to Herceptin IV as a chemo which kept me in my first remission for 6 years.  I am now on Xeloda pills but also the Herceptin IV.

When I was on Faslodex, I was also on Herceptin and later Kadcyla.  Unfortunately, I am unable to indicate Kadcyla IV in my treatments and was on that for almost 4 years.

The Femara that you are on may very well be enough for you, thanks to the newer treatments.  I am way past that ability.

Dx 12/14/2002, IDC, Both breasts, 5cm, Stage IV, metastasized to liver/other, Grade 3, 4/40 nodes, mets, ER+/PR+, HER2+ Surgery 2/20/2003 Lymph node removal: Left, Right; Mastectomy: Left, Right; Reconstruction (left): Latissimus dorsi flap; Reconstruction (right): Latissimus dorsi flap Chemotherapy 3/31/2003 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Gemzar (gemcitabine), Taxotere (docetaxel), Xeloda (capecitabine) Radiation Therapy 10/10/2003 Breast, Lymph nodes Targeted Therapy 1/30/2004 Herceptin (trastuzumab) Hormonal Therapy 7/5/2011 Faslodex (fulvestrant) Targeted Therapy Herceptin (trastuzumab) Targeted Therapy
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Jan 27, 2019 10:48PM - edited Jan 27, 2019 10:48PM by Denny123

Erkipper--I changed my original post.  In my treatment history seen below, I can't type in Kadcyla to show that I had it.

Dx 12/14/2002, IDC, Both breasts, 5cm, Stage IV, metastasized to liver/other, Grade 3, 4/40 nodes, mets, ER+/PR+, HER2+ Surgery 2/20/2003 Lymph node removal: Left, Right; Mastectomy: Left, Right; Reconstruction (left): Latissimus dorsi flap; Reconstruction (right): Latissimus dorsi flap Chemotherapy 3/31/2003 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Gemzar (gemcitabine), Taxotere (docetaxel), Xeloda (capecitabine) Radiation Therapy 10/10/2003 Breast, Lymph nodes Targeted Therapy 1/30/2004 Herceptin (trastuzumab) Hormonal Therapy 7/5/2011 Faslodex (fulvestrant) Targeted Therapy Herceptin (trastuzumab) Targeted Therapy
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Feb 19, 2019 08:45AM casax wrote:

Hi Denny, It is so great to know your story. It's very encouraging!

Diagnose ER-/PR-/HER2+ Stage III 4.8cm 09/13/2017 Chemo TCHP 01/25/2018 Radiotherapy 04/24/2018 Surgery
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Nov 10, 2019 05:13PM momdoc3 wrote:

you are a warrior and an inspiration!! Would you please share any tips to your long survival? I was diagnosed in 2015 and just recently diagnosed MBC in October. Any words or encouragement would be great. Wishing you continued success

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Nov 10, 2019 06:08PM Denny123 wrote:

Momdoc3-- In a month, on Dec 16, that will be the beginning of my 18th year of being a survivor! I am still on Xeloda and Heceptin...22 months now and still NED. I have another CT scan in 3 days, though.

I don't drink alcohol, even though a lot of ladies say that it is okay. But the stats show that it is not good for us. I don't take any stupid supplemental "miracle cures" that are touted. I am horrified that women actually believe that dog ringworm medicine can cure BC! I take only the vitamins and normal supplements that have been approved by my specialty pharmacist.

I have a semi-healthy diet since, in all of these years, I have found that our diets can't really cure us either. Chemo is what we need. Sugar does NOT feed cancer, but we can have it in moderation.

I have no idea why I am still here, and my doctors don't either. Faith and chemo, I guess.

Good luck! What kind of chemos will you be on?

Dx 12/14/2002, IDC, Both breasts, 5cm, Stage IV, metastasized to liver/other, Grade 3, 4/40 nodes, mets, ER+/PR+, HER2+ Surgery 2/20/2003 Lymph node removal: Left, Right; Mastectomy: Left, Right; Reconstruction (left): Latissimus dorsi flap; Reconstruction (right): Latissimus dorsi flap Chemotherapy 3/31/2003 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Gemzar (gemcitabine), Taxotere (docetaxel), Xeloda (capecitabine) Radiation Therapy 10/10/2003 Breast, Lymph nodes Targeted Therapy 1/30/2004 Herceptin (trastuzumab) Hormonal Therapy 7/5/2011 Faslodex (fulvestrant) Targeted Therapy Herceptin (trastuzumab) Targeted Therapy
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Nov 10, 2019 06:24PM Olma61 wrote:

Thank you for sharing with us, I love hearing from the long term survivors and hoping to be as fortunate myself. Much love and continued success with your treament!

10/30/2017 Xgeva for bone mets 5/31/2018 Taxol finished! "If one just keeps on walking, everything will be all right” - Kierkegaard Dx 8/3/2017, IDC, Right, 2cm, Stage IV, metastasized to bone, Grade 2, ER+/PR+, HER2+ (IHC) Targeted Therapy 10/28/2017 Perjeta (pertuzumab) Targeted Therapy 10/28/2017 Herceptin (trastuzumab) Chemotherapy 10/30/2017 Taxol (paclitaxel) Hormonal Therapy 5/14/2018 Arimidex (anastrozole) Radiation Therapy 5/30/2019 External: Bone
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Nov 10, 2019 06:34PM Denny123 wrote:

Olma61...thanks! on Dec 16, I will start a new thread for the 18th year! Woo hoo!

Dx 12/14/2002, IDC, Both breasts, 5cm, Stage IV, metastasized to liver/other, Grade 3, 4/40 nodes, mets, ER+/PR+, HER2+ Surgery 2/20/2003 Lymph node removal: Left, Right; Mastectomy: Left, Right; Reconstruction (left): Latissimus dorsi flap; Reconstruction (right): Latissimus dorsi flap Chemotherapy 3/31/2003 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Gemzar (gemcitabine), Taxotere (docetaxel), Xeloda (capecitabine) Radiation Therapy 10/10/2003 Breast, Lymph nodes Targeted Therapy 1/30/2004 Herceptin (trastuzumab) Hormonal Therapy 7/5/2011 Faslodex (fulvestrant) Targeted Therapy Herceptin (trastuzumab) Targeted Therapy
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Nov 10, 2019 09:54PM Imagine wrote:

Wow 18 years, this is so encouraging to see!!!!I am 12 years out from early stage and now am facing MBC. Lung and chest areas. I am on the COC protocol and my MO said it won’t hurt so I thought i would try to see if it helps.

I believe that Chemo and the treatments they have are our best bets. Not sure about the COC, but am taking Vit D and Turmeric supplements and baby aspirin. I believe my diet is good mostly vegetables and fruits, Whole grains, once in awhile fish and some chicken. Not had surgery for biopsy yet as they are doing a Pet Scan next week to see if it is in a easier place to biopsy, if not scheduled 6Dec for wedge section to get to the nodes in lung.

I seem to cry a lot and still am in disbelief about all of this..


Karen Dx 7/7/2007, IDC, Right, 2cm, Stage IIA, Grade 2, 0/9 nodes, ER+/PR+, HER2- Radiation Therapy 8/7/2007 Chemotherapy 9/7/2007 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Dx 11/1/2019, IDC, Right, Stage IV, metastasized to lungs/other, ER+/PR+, HER2- (IHC) Hormonal Therapy Faslodex (fulvestrant) Surgery Lumpectomy: Right Targeted Therapy Ibrance (palbociclib)
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Nov 10, 2019 10:05PM Denny123 wrote:

Please check with your specialty pharmacist to make sure that the Turmeric is okay. I have always heard that it negates the efficacy of chemos.

I was taking it before my dx, but quit when I read all of the research articles.

My onc won't allow me to take baby aspirin, either.

In 2004, my liver was so full of large tumors that I only had about a year to live, but a clinical trial of Gemzar (which was new then) and Herceptin cleared out my liver in only 9 months.

So all I have to do is remember how scared I was back then.


Dx 12/14/2002, IDC, Both breasts, 5cm, Stage IV, metastasized to liver/other, Grade 3, 4/40 nodes, mets, ER+/PR+, HER2+ Surgery 2/20/2003 Lymph node removal: Left, Right; Mastectomy: Left, Right; Reconstruction (left): Latissimus dorsi flap; Reconstruction (right): Latissimus dorsi flap Chemotherapy 3/31/2003 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Gemzar (gemcitabine), Taxotere (docetaxel), Xeloda (capecitabine) Radiation Therapy 10/10/2003 Breast, Lymph nodes Targeted Therapy 1/30/2004 Herceptin (trastuzumab) Hormonal Therapy 7/5/2011 Faslodex (fulvestrant) Targeted Therapy Herceptin (trastuzumab) Targeted Therapy
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Jan 16, 2020 12:54PM dlittkemann wrote:

so needed hear that. Thank you.

Dx 4/2018, DCIS/IDC, Right, 6cm+, Stage IIIB, ER-/PR-, HER2- Dx 4/2018, DCIS/IDC, Right, 6cm+, Stage IIIB, ER-/PR-, HER2- Chemotherapy 6/25/2018 Radiation Therapy 1/20/2019 Whole-breast: Breast, Lymph nodes, Chest wall Surgery Lumpectomy: Right; Lymph node removal: Underarm/Axillary; Mastectomy: Left, Right
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Jan 16, 2020 05:55PM Denny123 wrote:

Thanks! This is an old thread. I just posted that I am now an 18 year survivor! Still NED and on Xeloda and Herceptin

Dx 12/14/2002, IDC, Both breasts, 5cm, Stage IV, metastasized to liver/other, Grade 3, 4/40 nodes, mets, ER+/PR+, HER2+ Surgery 2/20/2003 Lymph node removal: Left, Right; Mastectomy: Left, Right; Reconstruction (left): Latissimus dorsi flap; Reconstruction (right): Latissimus dorsi flap Chemotherapy 3/31/2003 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Gemzar (gemcitabine), Taxotere (docetaxel), Xeloda (capecitabine) Radiation Therapy 10/10/2003 Breast, Lymph nodes Targeted Therapy 1/30/2004 Herceptin (trastuzumab) Hormonal Therapy 7/5/2011 Faslodex (fulvestrant) Targeted Therapy Herceptin (trastuzumab) Targeted Therapy
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Jan 16, 2020 06:15PM ajminn3 wrote:

I really needed to see this post. I just was diagnosed triple positive this afternoon (stage 2). It’s inspiring to see positive results from others who have walked this path. I’m inspired by your strength and courage. It makes me feel so hopeful in a dark time

Dx 12/2019, DCIS, Left, 6cm+, Stage 0, Grade 2 Dx 1/2020, IDC, Left, <1cm, Stage IIA, 1/3 nodes, ER+/PR+, HER2+ Hormonal Therapy Aromasin (exemestane), Zoladex (goserelin) Surgery Lymph node removal: Sentinel; Mastectomy: Left, Right; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Targeted Therapy Perjeta (pertuzumab) Targeted Therapy Herceptin (trastuzumab) Chemotherapy Carboplatin (Paraplatin), Taxotere (docetaxel) Radiation Therapy Whole-breast: Breast, Lymph nodes, Chest wall
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Jan 16, 2020 10:41PM Denny123 wrote:

Stage 2 is great!

Dx 12/14/2002, IDC, Both breasts, 5cm, Stage IV, metastasized to liver/other, Grade 3, 4/40 nodes, mets, ER+/PR+, HER2+ Surgery 2/20/2003 Lymph node removal: Left, Right; Mastectomy: Left, Right; Reconstruction (left): Latissimus dorsi flap; Reconstruction (right): Latissimus dorsi flap Chemotherapy 3/31/2003 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Gemzar (gemcitabine), Taxotere (docetaxel), Xeloda (capecitabine) Radiation Therapy 10/10/2003 Breast, Lymph nodes Targeted Therapy 1/30/2004 Herceptin (trastuzumab) Hormonal Therapy 7/5/2011 Faslodex (fulvestrant) Targeted Therapy Herceptin (trastuzumab) Targeted Therapy
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Jan 20, 2020 02:00PM KBeee wrote:

Thanks for the awesome update!

Karen. Dx 8/5/2013, IDC, Right, 1cm, Grade 2, 0/1 nodes, ER+/PR+, HER2- (IHC) Surgery 8/26/2013 Mastectomy: Left, Right Chemotherapy 9/20/2013 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 12/12/2013 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 1/23/2014 Reconstruction (left); Reconstruction (right) Surgery 1/29/2015 Lumpectomy: Right Dx 2/2/2015, IDC, Right, 1cm, Grade 2, 0/0 nodes, ER+/PR-, HER2- (FISH) Dx 2/25/2015, IDC, Right, 1cm, Grade 3, 0/13 nodes, ER+/PR-, HER2- (IHC) Surgery 2/25/2015 Lumpectomy: Right; Lymph node removal: Right, Sentinel, Underarm/Axillary; Prophylactic ovary removal Chemotherapy 3/31/2015 AC + T (Taxol) Radiation Therapy 8/25/2015 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy Femara (letrozole)
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Feb 14, 2020 01:03PM HopeandGratitude wrote:

Thank you for sharing your story, celebrating this milestone, and offering words of encouragement. Of course we won't all get there, but we will try and continue with our meds and prayers and hopes and liv our lives the best we can despite this crazy disease. I was diagnosed with Stage IV MBC one year ago (after 16 years of being cancer free, followed by loco-regional recurrence which hung on to become mbc) with liver mets, have had great response on Verzenio, but live in a bit of fear that the other shoe will drop. Trying to stay in the present, keep a watchful eye, and be prepared with next plan of attack. I know my days are "numbered" as they are for everyone, but I pray I can watch these milestones come and go as well. Just don't feel it's quite my time to pack it in yet.

Dx 3/1/2002, ILC, Left, 6cm+, Stage IIIB, Grade 3, 0/14 nodes, ER+/PR+, HER2- (FISH) Chemotherapy 3/27/2002 CEF Chemotherapy 6/4/2002 AT Surgery 8/28/2002 Mastectomy: Left; Reconstruction (left): Free TRAM flap, Nipple reconstruction, Nipple tattoo Radiation Therapy 10/15/2002 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy 1/4/2003 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Dx 1/12/2018, IDC, Left, 2cm, Stage IIIB, Grade 3, 1/1 nodes, ER+/PR+, HER2- (FISH) Surgery 2/14/2018 Lumpectomy: Left; Lymph node removal: Left Chemotherapy 4/3/2018 CMF Chemotherapy 8/5/2018 Taxol (paclitaxel) Radiation Therapy 10/9/2018 External: Breast, Lymph nodes, Chest wall Dx 3/13/2019, IDC, 1cm, Stage IV, metastasized to liver, Grade 3, ER+/PR-, HER2- (FISH) Hormonal Therapy 3/13/2019 Femara (letrozole) Targeted Therapy 3/24/2019 Ibrance (palbociclib) Targeted Therapy 10/24/2019 Verzenio
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Feb 14, 2020 02:15PM Denny123 wrote:

Good Luck Hope! Actually, this is an old thread. I started a new one in Dec saying that I am now an 18 year survivor! NED so far for 2 years. But getting a CT scan tomorrow...Ugh.

Dx 12/14/2002, IDC, Both breasts, 5cm, Stage IV, metastasized to liver/other, Grade 3, 4/40 nodes, mets, ER+/PR+, HER2+ Surgery 2/20/2003 Lymph node removal: Left, Right; Mastectomy: Left, Right; Reconstruction (left): Latissimus dorsi flap; Reconstruction (right): Latissimus dorsi flap Chemotherapy 3/31/2003 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Gemzar (gemcitabine), Taxotere (docetaxel), Xeloda (capecitabine) Radiation Therapy 10/10/2003 Breast, Lymph nodes Targeted Therapy 1/30/2004 Herceptin (trastuzumab) Hormonal Therapy 7/5/2011 Faslodex (fulvestrant) Targeted Therapy Herceptin (trastuzumab) Targeted Therapy

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