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Apr 29, 2019 03:45PM
So your situation is almost identical to mine. When mine returned, it came back right where the original tumor was. My MO (ex-MO) had previously blown me off and called me a worrier, BS sent me to PS...not because he did not take me seriously, but because he thought it was likely scar tissue. PS was 99% sure it was scar tissue. My very strong gut told me that it was cancer, so I asked him to be sure. He scheduled an excisional biopsy for that week. I got the call a few days later, form his nurse, that it was in fact a return of the cancer. Long story here about how I addressed it because our situations are so similar.
PS called BS and BS told him to have me come in that day. BS's nurse was supposed to schedule this, but instead, she decided his schedule was too full, and scheduled me 10 days from then. I had already ditched my MO and was seeing someone (since it was every 6 months) at a major medical clinic a couple hours away. I called them and they saw me a couple days later. I consulted with MO, RO, and BS there, and the information was very valuable. I liked them all except the MO, who very much minimized it.
Once I saw BS, he found out what his nurse did, apologized profusely (she retired a month later). I had to decide whether to do surgery locally or go a couple hours away. Ultimately, I decided for my PS and BS team to do it because they knew exactly where it was. PS came in very early that morning and marked me all up. He pointed out everything to BS. BS did the surgery. Since mine was between my pec muscle and my skin, they took out a chunk of the pec muscle, but did not have to change out the implant. PS was there in case they did, and had both implants and expanders on hand. They made sure they had clear margins. They also tried for sentinel node. This is not usually done with recurrences because there is often altered lymphatic flow, and they can be hard to find. Clinic I consulted with is doing research on it and recommended it...said they find it 50% of the time. My surgeon spoke to her and agreed to try. While they could not find the sentinel node, when he reached in manually, he felt what felt like a hard node and removed it. It looked like a hard node, and came back positive for cancer. 13 more were removed and were negative. Further pathology revealed it was in fact a second tumor in the soft tissue, not a node. Nevertheless, they got clear margins and burned it to hell with radiation. PET scan was clear. My new local MO did oncotype at my request, and it came back quite high, (which my gut said it would) so I did chemo again. Fast forward to today. To the best of my knowledge I am cancer free.
I am sorry you are dealing with this, and that your provides blew it off for so long. It sucks how hard we have to advocate for ourselves. I don't think that's the case with most other cancers.
PM me with ANY questions. You CAN do this!!!
8/5/2013, IDC, Right, 1cm, Grade 2, 0/1 nodes, ER+/PR+, HER2- (IHC)
8/26/2013 Mastectomy: Left, Right
9/20/2013 Cytoxan (cyclophosphamide), Taxotere (docetaxel)
12/12/2013 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
1/23/2014 Reconstruction (left); Reconstruction (right)
1/29/2015 Lumpectomy: Right
2/2/2015, IDC, Right, 1cm, Grade 2, 0/0 nodes, ER+/PR-, HER2- (FISH)
2/25/2015, IDC, Right, 1cm, Grade 3, 0/13 nodes, ER+/PR-, HER2- (IHC)
2/25/2015 Lumpectomy: Right; Lymph node removal: Right, Sentinel, Underarm/Axillary; Prophylactic ovary removal
3/31/2015 AC + T (Taxol)
8/25/2015 Whole-breast: Breast, Lymph nodes, Chest wall