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Jul 6, 2019 09:45AM
I do have a lymphedema sleeve. I wear it when I run and it's hot, which is when it swells the most. I also wear it if I am doing a lot of yard work. I should probably wear it more than I do.
I do like to run, though I use the word run loosely. If it is faster than a walk, I call it a run, so it's pretty slow!!!!! The picture that's my profile picture was taken at the Rock n Roll half marathon in Vegas. I met some of my October 2013 chemo gals out there in 2014 and 2015 and ran it. I walked and/or ran every day through chemo, including a local half marathon. I trained to walk/run it. I ran 2 miles then walked a mile, ran a mile, walked a mile, ran a mile. I was able to do that through the whole thing, though if I had to walk the whole thing, I would have been fine with that too. I had a couple friends that did it with me, and also were the ones I walked or ran with most days. My daily walks were my sanity savers. They helped me as much mentally as physically during treatment.
The times when I developed lymphedema it was either in the hand only or the hand and lower arm. I saw a lymphemeda therapist and dutifully wrapped it in bandages all day every day for a few weeks until it eased, and then I wore my sleeve daily for another month or 2. Since starting with the PT (I go every 3 weeks) it has not returned. The PT also helps with scar tissue. My first time, I had BMX and reconstruction. The second time they did radiation, and the reconstructed breast was literally rock hard as a result. The PT has helped with the scar tissue.
Feel free to ask any questions!
8/5/2013, IDC, Right, 1cm, Grade 2, 0/1 nodes, ER+/PR+, HER2- (IHC)
8/25/2013 Mastectomy: Left, Right
9/19/2013 Cytoxan (cyclophosphamide), Taxotere (docetaxel)
12/11/2013 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
1/22/2014 Reconstruction (left); Reconstruction (right)
1/28/2015 Lumpectomy: Right
2/2/2015, IDC, Right, 1cm, Grade 2, 0/0 nodes, ER+/PR-, HER2- (FISH)
2/24/2015 Lumpectomy: Right; Lymph node removal: Right, Sentinel, Underarm/Axillary; Prophylactic ovary removal
2/25/2015, IDC, Right, 1cm, Grade 3, 0/13 nodes, ER+/PR-, HER2- (IHC)
3/30/2015 AC + T (Taxol)
8/24/2015 Whole-breast: Breast, Lymph nodes, Chest wall