Join Us

We are 216,722 members in 84 forums discussing 160,163 topics.

Help with Abbreviations

Topic: No chemo for recurrence?

Forum: Just Diagnosed With a Recurrence or Metastasis —

Meet others who are just facing the diagnosis of a recurrence of breast cancer or metastatic (advanced) disease. You are NOT alone.

Posted on: Feb 20, 2020 08:16PM

NTS wrote:

I'm newly diagnosed with a recurrence. I was previously diagnosed June 2017 with ER+ Her2+ Invasive stage 2A, roughly 4 CM and 1 sentinel node involved. I had neoadjuvant TCHP, 2 lumpectomies (1st one didn't have clear margins), followed by radiation. I have been having twice a year mammos & u/s, and once a year MRIs since.

It has just been confirmed that I have IDC, but it’s only showing about 3-4 mm, in the same spot as before. My breast surgeon said “you’ve already had the chemo and radiation, I think what you need now is completion mastectomy.”

I was feeling very optimistic about this, but I’m beginning to wonder if I am going to need chemo again. All I know right now is that it’s grade 2, which it was before. I’ve been on tamoxifen for 2 years. I don’t see my oncologist until 3 weeks after surgery.

I’m just wondering if anyone had a small recurrence of IDC and didn’t require more chemo? I know it would be more likely with DCIS, but since this is invasive, I would think chemo is going to be recommended. I don’t really know what to think, and I’m just trying not to panic now.

Dx 6/2017, IDC, Left, 3cm, Stage IIB, Grade 2, 1/7 nodes, ER+/PR-, HER2+ Radiation Therapy Whole-breast Chemotherapy Taxotere (docetaxel) Chemotherapy Carboplatin (Paraplatin), Taxotere (docetaxel) Targeted Therapy Perjeta (pertuzumab) Targeted Therapy Herceptin (trastuzumab) Surgery Lumpectomy; Lymph node removal: Sentinel, Underarm/Axillary Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Log in to post a reply

Page 1 of 1 (4 results)

Posts 1 - 4 (4 total)

Log in to post a reply

Feb 21, 2020 11:46AM Spookiesmom wrote:

Not sure that’s your surgeons call. I had recurrence in nodes on other side after bmx. Surgery to get them out and rads. Then started on ibrance letrozole. Might want a second opinion, or talk to MO.

Reoccurrence 3-19. Dx IDC, Stage IIIA, Grade 3
Log in to post a reply

Feb 21, 2020 01:53PM NTS wrote:

I know it will ultimately be my medical oncologist’s call. What I’m asking is if anyone here JUST required surgery and that’s it. Trying to find hope in others’ experiences. I know every bc is different. Just want to know there have been people that only needed surgery for their recurrence, even though it was IDC. Thanks.

Dx 6/2017, IDC, Left, 3cm, Stage IIB, Grade 2, 1/7 nodes, ER+/PR-, HER2+ Radiation Therapy Whole-breast Chemotherapy Taxotere (docetaxel) Chemotherapy Carboplatin (Paraplatin), Taxotere (docetaxel) Targeted Therapy Perjeta (pertuzumab) Targeted Therapy Herceptin (trastuzumab) Surgery Lumpectomy; Lymph node removal: Sentinel, Underarm/Axillary Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Log in to post a reply

Feb 22, 2020 01:37PM MinusTwo wrote:

NTS - yes, it's clear what you are asking BUT you need to see the oncologist NOW and discuss what he thinks. Please remember that surgeons cut - that's what they are trained to do. Since you are HER2+, it's possible you should have more treatment BEFORE surgery.

I had no chemo the first time but yes chemo the 2nd time. Both times I let the oncologist make the decision before any action. I would not have been comfortable w/o throwing everything I could find at a recurrence so it hopefully didn't happen a 3rd time. I've been NED for years this time.

2/15/11 BMX-DCIS 2SNB clear-TEs; 9/15/11-410gummies; 3/20/13 recurrance-5.5cm,mets to lymphs, Stage IIIB IDC ER/PRneg,HER2+; TCH/Perjeta/Neulasta x6; ALND 9/24/13 1/18 nodes 4.5cm; AC chemo 10/30/13 x3; herceptin again; Rads Feb2014
Log in to post a reply

Feb 22, 2020 05:45PM NTS wrote:

My oncologist is already aware of the recurrence and requested I make an appointment to see her three weeks after my surgery

Dx 6/2017, IDC, Left, 3cm, Stage IIB, Grade 2, 1/7 nodes, ER+/PR-, HER2+ Radiation Therapy Whole-breast Chemotherapy Taxotere (docetaxel) Chemotherapy Carboplatin (Paraplatin), Taxotere (docetaxel) Targeted Therapy Perjeta (pertuzumab) Targeted Therapy Herceptin (trastuzumab) Surgery Lumpectomy; Lymph node removal: Sentinel, Underarm/Axillary Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)

Page 1 of 1 (4 results)