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Topic: Mestatic Breaast Cancer Diagnosis

Forum: Just Diagnosed With a Recurrence or Metastasis —

Meet others who are just facing the diagnosis of a recurrence of breast cancer or metastatic (advanced) disease. You are NOT alone.

Posted on: Apr 9, 2020 08:33PM

Tammyfhall wrote:

Hi my name is Tammy, and have just been diagnosed with metastic breast cancer, just wanting to no if there is anyone out there like me, as I'm told this is a rare cancer

My symptoms are sore lower back, pins and needles threw my legs , toes, fingers arms and body. I have limited walking mobility and use a frame as my balance isn't very good at the moment.

I have started chemo and have it once a week, my side affects are mild headaches, and rash, is there anything or anyone out there to talk so as I'm very sad and usually cry a lot, that's every day,

would like to think there is someone out there like me.


Kind Regards Tammy

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Apr 9, 2020 09:04PM moth wrote:

Hi Tammy, sorry you find yourself here but it is a great support community.

there is an entire subforum for metastatic breast cancer https://community.breastcancer.org/forum/8 - you may want to join us there.

are your mets to the bone? there are threads specific to bone mets. You can complete your profile more & tell us about your specific diagnosis - hormone markers & the type of chemo you're on & then connect with people going through the same path.

Are you de novo metastatic? There are others here with a de novo diagnosis.

hang in there, read through the forums and talk to us :)


Initial dx at 50. Seriously???? “Sometimes the future changes quickly and completely and we’re left with only the choice of what to do next." blog: nevertellmetheodds2017.tumblr.... Dx 12/2017, IDC, Left, 1cm, Stage IA, Grade 3, 0/5 nodes, ER-/PR-, HER2- (IHC) Surgery 12/12/2017 Lumpectomy: Left; Lymph node removal: Sentinel Chemotherapy 2/14/2018 AC + T (Taxol) Radiation Therapy 8/13/2018 Whole-breast: Breast Dx 2/2020, IDC, Stage IV, metastasized to liver/lungs, Grade 3, ER-/PR-, HER2- Chemotherapy 3/18/2020 Taxol (paclitaxel) Immunotherapy 3/18/2020 Tecentriq (atezolizumab)
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May 4, 2020 03:31PM KBeee wrote:

Sorry you are dealing with this. I agree with the forum recommendation above. You'll find a lot of answers there.

Karen. Dx 8/5/2013, IDC, Right, 1cm, Grade 2, 0/1 nodes, ER+/PR+, HER2- (IHC) Surgery 8/26/2013 Mastectomy: Left, Right Chemotherapy 9/20/2013 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 12/12/2013 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 1/23/2014 Reconstruction (left); Reconstruction (right) Surgery 1/29/2015 Lumpectomy: Right Dx 2/2/2015, IDC, Right, 1cm, Grade 2, 0/0 nodes, ER+/PR-, HER2- (FISH) Dx 2/25/2015, IDC, Right, 1cm, Grade 3, 0/13 nodes, ER+/PR-, HER2- (IHC) Surgery 2/25/2015 Lumpectomy: Right; Lymph node removal: Right, Sentinel, Underarm/Axillary; Prophylactic ovary removal Chemotherapy 3/31/2015 AC + T (Taxol) Radiation Therapy 8/25/2015 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy Femara (letrozole)
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May 4, 2020 04:42PM illimae wrote:

I was diagnosed stage IV from the start too. Everything is difficult and crazy at first but it does tend to level out and get better on a daily basis. You’re bound to find calm and happiness again, it just takes time.

Diagnosed at 41 Stage IV De Novo Dx 11/16/2016, IDC, Left, 5cm, Stage IV, metastasized to bone, Grade 3, 3/13 nodes, ER+/PR-, HER2+ (IHC) Chemotherapy 1/2/2017 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 1/2/2017 Herceptin (trastuzumab) Targeted Therapy 1/2/2017 Perjeta (pertuzumab) Surgery 6/26/2017 Lumpectomy: Left; Lymph node removal: Underarm/Axillary Radiation Therapy 8/10/2017 Breast, Lymph nodes Dx 10/5/2017, IDC, Left, 5cm, Stage IV, metastasized to brain, Grade 3, 3/13 nodes, ER+, HER2+ (IHC) Radiation Therapy 10/20/2017 External: Brain Radiation Therapy 4/18/2018 External: Brain Radiation Therapy 5/23/2019 External: Brain Surgery 1/22/2020 Radiation Therapy 2/17/2020 External: Brain Radiation Therapy 7/20/2020 External: Bone Targeted Therapy Tukysa (tucatinib) Chemotherapy Xeloda (capecitabine) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)

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