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Jun 6, 2020 12:08PM
I had my first met 2 1/2 years out from original diagnosis -- that was in 2006 and it was a single site metastasis to my cervix. Then I was put on letrozole (chemo had thrown me into menopause in 2004) and stayed on that until May 2019. (Talk about putting BC out of your mind for years!) In May 2018, my CA27-29 started creeping up -- first into the 50s, then into the 90s, then up to 180 -- that took about 7 mos. My MO and a consulting MO who I talked to said that something was probably "brewing." I research and researched about TMs, and saw the comments here about how some docs don't do them, some ignore them, some people don't have elevated TMs, etc. The one thing that stuck with me, and I'm sorry to tell you this, was that if they are over 100, then it is highly likely that it's metastasis. In May 2019, I had a CT and a nuclear bone scan. The CT showed a shadow in my liver. The subsequent MRI showed some spots in my liver. The largest was biopsied and it was the same cancer as in 2003. And the story began again.
I think you are going to have to take a deep breath and assume that there is something going on in your body. I know that's not comforting, and that's why I hesitated to write this, but if you assume that, and prepare for that, and if you are that one person for whom it's not true, that might better help you figure out next steps. What I discovered after a lot of reading is that there are many new treatments available for BC, and some people are getting a lot of years out of just one treatment before they move on to the next.
Good luck. Please do not hesitate to PM me if I can be of any further help.
11/2003, ILC, Left, Stage IIIC, ER+/PR+, HER2-
6/2006, ILC, Stage IV, metastasized to other, ER+
5/2019, ILC, Stage IV, metastasized to liver, ER+/PR+, HER2-
8/1/2019 Ibrance (palbociclib)
Lymph node removal: Left, Sentinel; Mastectomy: Left, Right; Reconstruction (left): Pedicled TRAM flap; Reconstruction (right): Pedicled TRAM flap
Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Lymph node removal; Mastectomy; Reconstruction (left): Pedicled TRAM flap; Reconstruction (right): Pedicled TRAM flap