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Topic: Help TNBC sisters, recurrence !

Forum: Just Diagnosed With a Recurrence or Metastasis —

Meet others who are just facing the diagnosis of a recurrence of breast cancer or metastatic (advanced) disease. You are NOT alone.

Posted on: Jun 9, 2020 07:07AM

cookie54 wrote:

Hi Ladies, I had TNBC Stage 1 in 2016 and I am now dealing with a recurrence! I had b/l mastectomy and chemo A/C , now have a mass in my chest wall and axilla area. Had a PET today and and having axilla biopsy next week. Oh also something questionable on my adrenal, will have MRI to r/o mets. Is there anyone out there who has had a similar experience with post mastectomy chest wall or axilla recurrence? If so, how was it treated? I'm scared to death!

Dx 8/15/2016, IDC, Right, <1cm, Stage IA, Grade 3, 0/1 nodes, ER-/PR-, HER2- Surgery 9/13/2016 Mastectomy; Reconstruction (left): Saline implant; Reconstruction (right): Saline implant Dx 6/2020, IDC, Right, Stage IIIC, Grade 3, ER-/PR-, HER2- Chemotherapy 6/28/2020 Carboplatin (Paraplatin), Gemzar (gemcitabine)
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Jun 9, 2020 10:12AM smc123 wrote:

Cookie54, I am so sorry about your recurrence. I know this is all so scary and unfair. The only thing I can offer is a friend of mine, also TNBC, after 7 years of NED discovered mets to her bones. It has been treatable and three years later she is still stable. I hope someone else can give you more information about your particular recurrence.

Dx 2/1/2016, IDC, Left, Grade 3, ER-/PR-, HER2- Chemotherapy 2/23/2016 AC + T (Taxol) Surgery 8/1/2016 Lymph node removal: Underarm/Axillary; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Radiation Therapy 10/4/2016 Breast, Lymph nodes Surgery 4/3/2017 Reconstruction (left): Saline implant; Reconstruction (right): Saline implant
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Jun 9, 2020 03:07PM cookie54 wrote:

Thank you for your encouragement. I'm glad to hear she is still stable.

Dx 8/15/2016, IDC, Right, <1cm, Stage IA, Grade 3, 0/1 nodes, ER-/PR-, HER2- Surgery 9/13/2016 Mastectomy; Reconstruction (left): Saline implant; Reconstruction (right): Saline implant Dx 6/2020, IDC, Right, Stage IIIC, Grade 3, ER-/PR-, HER2- Chemotherapy 6/28/2020 Carboplatin (Paraplatin), Gemzar (gemcitabine)
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Jun 9, 2020 06:06PM - edited Jul 26, 2020 09:44PM by TectonicShift

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Jun 9, 2020 08:40PM cookie54 wrote:

Thanks,that's great news!! Thanks for your blessing and words of wisdom.

Dx 8/15/2016, IDC, Right, <1cm, Stage IA, Grade 3, 0/1 nodes, ER-/PR-, HER2- Surgery 9/13/2016 Mastectomy; Reconstruction (left): Saline implant; Reconstruction (right): Saline implant Dx 6/2020, IDC, Right, Stage IIIC, Grade 3, ER-/PR-, HER2- Chemotherapy 6/28/2020 Carboplatin (Paraplatin), Gemzar (gemcitabine)
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Jun 9, 2020 09:22PM romashka wrote:

cookie54 - I'm glad you're here reaching out to the good folks on this site. I don't have any helpful information for you but I wanted to give you a hug.

PALB2 Dx 8/22/2017, IDC, Left, 2cm, Stage IIA, Grade 2, 0/3 nodes, ER-/PR-, HER2- Surgery 10/11/2017 Mastectomy: Left, Right
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Jun 9, 2020 09:31PM cookie54 wrote:

Awww thx, so appreciate it! I have been a fan of this site since 2016, the support is wonderful! I am blessed to have lots of support from family and friends.But this time around I felt it would be a help to join the group of people who have been there! I think I will feel a little better after my mri if there are no mets in the abdomen.


Dx 8/15/2016, IDC, Right, <1cm, Stage IA, Grade 3, 0/1 nodes, ER-/PR-, HER2- Surgery 9/13/2016 Mastectomy; Reconstruction (left): Saline implant; Reconstruction (right): Saline implant Dx 6/2020, IDC, Right, Stage IIIC, Grade 3, ER-/PR-, HER2- Chemotherapy 6/28/2020 Carboplatin (Paraplatin), Gemzar (gemcitabine)
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Jun 28, 2020 04:59PM KBeee wrote:

I am sorry you're dealing with the recirrence. When is your MRI? I hope all comes back okay!

Karen. Dx 8/5/2013, IDC, Right, 1cm, Grade 2, 0/1 nodes, ER+/PR+, HER2- (IHC) Surgery 8/26/2013 Mastectomy: Left, Right Chemotherapy 9/20/2013 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 12/12/2013 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 1/23/2014 Reconstruction (left); Reconstruction (right) Surgery 1/29/2015 Lumpectomy: Right Dx 2/2/2015, IDC, Right, 1cm, Grade 2, 0/0 nodes, ER+/PR-, HER2- (FISH) Dx 2/25/2015, IDC, Right, 1cm, Grade 3, 0/13 nodes, ER+/PR-, HER2- (IHC) Surgery 2/25/2015 Lumpectomy: Right; Lymph node removal: Right, Sentinel, Underarm/Axillary; Prophylactic ovary removal Chemotherapy 3/31/2015 AC + T (Taxol) Radiation Therapy 8/25/2015 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy Femara (letrozole)
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Jun 28, 2020 06:12PM cookie54 wrote:

Thank God no mets to abdomen! So it is a loco/regional recurrence in chest wall and axilla with nodes. Starting gem/carbo and Keytruda tomorrow. Surgery and rad tx to follow in a couple months. Praying I get a good response with chemo and immuno tx with minimal side effects. As I have always said this journey is not for the weak.Every person on here has had to take this journey and are all amazing strong women! God bless all. Thanks for your well wishes.



Dx 8/15/2016, IDC, Right, <1cm, Stage IA, Grade 3, 0/1 nodes, ER-/PR-, HER2- Surgery 9/13/2016 Mastectomy; Reconstruction (left): Saline implant; Reconstruction (right): Saline implant Dx 6/2020, IDC, Right, Stage IIIC, Grade 3, ER-/PR-, HER2- Chemotherapy 6/28/2020 Carboplatin (Paraplatin), Gemzar (gemcitabine)

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