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Topic: Scared

Forum: Just Diagnosed With a Recurrence or Metastasis —

Meet others who are just facing the diagnosis of a recurrence of breast cancer or metastatic (advanced) disease. You are NOT alone.

Posted on: Jun 15, 2020 10:35AM - edited Jun 15, 2020 10:35AM by Nextyear

Nextyear wrote:

I didn't think I'd be back, and yet.... it hit me today. I'm just restarting the cancer treadmill and, at least today, I'm scared or sad or maybe just emotional.

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Jun 15, 2020 11:23AM Elderberry wrote:

Nextyear: I am so very sorry to have you return to this world. You will find gentle, caring support from your sisters here.

De Novo - this isn't a "brave battle" - it is a "furious struggle" Dx 3/6/2019, IDC, Left, 5cm, Stage IV, metastasized to liver, HER2+ Targeted Therapy Herceptin (trastuzumab) Chemotherapy Taxol (paclitaxel) Targeted Therapy Perjeta (pertuzumab)
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Jun 15, 2020 11:24AM Spookiesmom wrote:

Probably all the above. It’s normal. Like the first time around, once you have a plan, it gets easier. And it’s not an instant death sentence. There are many here who are doing well several years after second dx.

Hang in here, let us know what’s going on.

Reoccurrence 3-19. Dx IDC, Stage IIIA, Grade 3
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Jun 15, 2020 05:22PM - edited Jun 15, 2020 05:24PM by Nextyear

Elderberry-Thank you, that means the world!

Spookiesmom- You’re right. Tomorrow I will be sensible and begin planning again.

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Jun 22, 2020 08:58PM cookie54 wrote:

Nextyear I am sorry to hear you are back on the treadmill and so am I. I have been on an emotional roller coaster for the past two weeks. I have a recurrence in my axilla and chest wall . I feel like the second time around has been more difficult for me. It's ok to feel sad and scared, I am too. We have to tell ourselves we did it before and we will do it again! Give yourself time to accept it and you will feel better once you have a plan. I just got my plan and I am starting to feel less sad and more determined. Just take things one step at a time, I know you will feel better and you will conquer this!

Dx 8/15/2016, IDC, Right, <1cm, Stage IA, Grade 3, 0/1 nodes, ER-/PR-, HER2- Surgery 9/14/2016 Mastectomy; Reconstruction (left): Saline implant; Reconstruction (right): Saline implant Dx 6/2020, IDC, Right, Stage IIIC, Grade 3, ER-/PR-, HER2- Chemotherapy 6/29/2020 Carboplatin (Paraplatin), Gemzar (gemcitabine)
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Jun 23, 2020 03:01AM Nextyear wrote:

cookie54- I’m so sorry that you have to revisit the hell that is cancer, but you give me hope. Sending hugs and good thoughts.

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Jun 26, 2020 07:07AM KelliSuze wrote:

Hi ladies,

I'm feeling all the same emotions you are. I was almost 3 years out and then had an MRI that caught a spot. So I just received the call from my doctor yesterday about this recurrence right near my lumpectomy surgery spot.

I go next week to speak to the surgeon, oncologist and a plastic surgeon for a plan.

My thoughts are with all of you.

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Jun 26, 2020 09:53AM Nextyear wrote:

KelliSuze-

My thoughts are with you. Good luck with whatever plan you come up with. It sucks but at least it’s a start to handle things, at least that’s what I’m telling myself. Hugs.

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Jun 28, 2020 03:58PM KBeee wrote:

KelleSuze and Nextyear, I am sorry you're dealing with recurrences. Are these local recurrences? We're all here for you.

Karen. Dx 8/5/2013, IDC, Right, 1cm, Grade 2, 0/1 nodes, ER+/PR+, HER2- (IHC) Surgery 8/26/2013 Mastectomy: Left, Right Chemotherapy 9/20/2013 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 12/12/2013 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 1/23/2014 Reconstruction (left); Reconstruction (right) Surgery 1/29/2015 Lumpectomy: Right Dx 2/2/2015, IDC, Right, 1cm, Grade 2, 0/0 nodes, ER+/PR-, HER2- (FISH) Dx 2/25/2015, IDC, Right, 1cm, Grade 3, 0/13 nodes, ER+/PR-, HER2- (IHC) Surgery 2/25/2015 Lumpectomy: Right; Lymph node removal: Right, Sentinel, Underarm/Axillary; Prophylactic ovary removal Chemotherapy 3/31/2015 AC + T (Taxol) Radiation Therapy 8/25/2015 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy Femara (letrozole)
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Jun 28, 2020 04:59PM cookie54 wrote:

KelliSuze, I am also sorry to hear you to have to deal with this again! Glad to hear your plan is coming together to expedite treatment. Sending big hugs you way.

Dx 8/15/2016, IDC, Right, <1cm, Stage IA, Grade 3, 0/1 nodes, ER-/PR-, HER2- Surgery 9/14/2016 Mastectomy; Reconstruction (left): Saline implant; Reconstruction (right): Saline implant Dx 6/2020, IDC, Right, Stage IIIC, Grade 3, ER-/PR-, HER2- Chemotherapy 6/29/2020 Carboplatin (Paraplatin), Gemzar (gemcitabine)
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Jul 7, 2020 11:14AM ReneeR2010 wrote:

Hi Cookie54

I too have just been diagnosed again in neck collar bone lymph nodes and chest wall lymph nodes in lungs I believe she said I just got my treatment plan but not started yet

Ibrance and Faslodex

So scared

This was my 10 years and got this news

I have got to get up and moving I just want to slee

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Jul 19, 2020 07:37PM LKinKC wrote:

Hi fellow Fighters. I am in the same situation as all of you unfortunately. Its been 21/2 years since my BC diagnosis and only one year from last Herceptin infusion. I was feeling myself again. Then I go for my 6 month check up and they found an abnormal axillary lymph node and the biopsied it. Now waiting on results. Also did a Pet Scan found 2 probabl metastatic spots. One on lung one one liver. Not sure what to think. My emtions are all over the place.
Dx 12/26/2017, IDC, Right, 5cm, Stage IIA, Grade 2, ER-/PR-, HER2+ (IHC) Targeted Therapy 1/23/2018 Perjeta (pertuzumab) Chemotherapy 1/23/2018 Carboplatin (Paraplatin), Taxotere (docetaxel) Targeted Therapy 1/23/2018 Herceptin (trastuzumab) Surgery 6/25/2018 Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Dx 7/15/2020, IDC, Right, 2cm, Stage IV, metastasized to liver/lungs/other, Grade 2, 0/5 nodes, ER-/PR-, HER2+ (FISH)
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Jul 20, 2020 05:03PM Partyoffive wrote:




Nextyear:

I’m so sorry you find your self back here-when I was diagnosed I was scared,sad and angry. I’ve been stage 4 for over 7 years with many many bone mets. I was on tamoxifen for the first 61/2 years and recently switched to ibrance. Take it day by day and allow yourself to feel the emotions you are feeling-it’s a lot to deal with. Good luck

Kristin

Dx 6/2013, IDC, 5cm, Stage IV, 9/21 nodes, mets, ER+/PR+, HER2- Surgery 6/16/2013 Lymph node removal: Right; Mastectomy: Right; Reconstruction (right): Tissue expander placement Hormonal Therapy 6/24/2013
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Jul 22, 2020 10:20PM KBeee wrote:

ReneeR, I am sorry you are dealing with this news. Hoping you have a plan in place soon. Do be sure to check out threads on the stage IV forum

Karen. Dx 8/5/2013, IDC, Right, 1cm, Grade 2, 0/1 nodes, ER+/PR+, HER2- (IHC) Surgery 8/26/2013 Mastectomy: Left, Right Chemotherapy 9/20/2013 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 12/12/2013 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 1/23/2014 Reconstruction (left); Reconstruction (right) Surgery 1/29/2015 Lumpectomy: Right Dx 2/2/2015, IDC, Right, 1cm, Grade 2, 0/0 nodes, ER+/PR-, HER2- (FISH) Dx 2/25/2015, IDC, Right, 1cm, Grade 3, 0/13 nodes, ER+/PR-, HER2- (IHC) Surgery 2/25/2015 Lumpectomy: Right; Lymph node removal: Right, Sentinel, Underarm/Axillary; Prophylactic ovary removal Chemotherapy 3/31/2015 AC + T (Taxol) Radiation Therapy 8/25/2015 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy Femara (letrozole)

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