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Aug 27, 2020 02:47PM
This happened to me. I had a local recurrence in the skin only, after a skin sparing mastectomy. I would not exactly say it is rare, but maybe not common either. There are several of us on these boards who have had this.
My recurrence in the skin was three years ago for me. What I learned, is that the problem with a local recurrence in the skin is that can spread quickly, and become out of control. It is very dangerous for this reason. ("Skin metastasis" can be local only, but is also seen in people who have distant metastatic disease - these are two very different situations from a treatment perspective though.)
Not all doctors and cancer centers are adequately equipped to deal with a local recurrence in the skin. If you need to consult with another team at another center, don't hesitate.
Treatment-wise, some people have a large "lumpectomy" on their mastectomy. I had more involvement, and had a chest wall resection and a skin graft. It was rough, but the cancer has not returned in my skin again. Radiation, and a change in hormone therapy may also be on the table.
Feel free to PM me if you want to. I'm sorry you're in this situation.
Diagnosed at 32. Local recurrences in skin one year later due to needle seeding at initial biopsy. Now dealing with MBC.
8/2016, IDC, Right, Stage IA, Grade 3, 0/2 nodes, ER+/PR+, HER2-
10/2017, IDC, Right, Grade 3, 2/12 nodes, ER+/PR+, HER2-
8/2020, IDC, Stage IV, metastasized to bone/other, Grade 3, ER+/PR+, HER2-