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Topic: Almost 10 years IDC free ...now Recurrence of ILC

Forum: Just Diagnosed With a Recurrence or Metastasis —

Meet others who are just facing the diagnosis of a recurrence of breast cancer or metastatic (advanced) disease. You are NOT alone.

Posted on: Aug 23, 2020 06:31AM - edited Aug 23, 2020 06:33AM by amyedb59

amyedb59 wrote:

Hello All

This sucks as you all know too well but I guess it's time to put my big girl pants on and accept this new reality . I had a axilla biopsy positive for ILC . I have enlarged lymph nodes at collarbone and some tailbone mild pain .

First diagnosis I was 50 now I am 60:.

I am going for a bone scan tomorrow and then Tuesday to see my oncologist for results and planning .

I was timid about going off Arimidex after 8 years on that and Tamoxifen . I tolerated them both very well. Oncologist said no more benefit staying on it ,,,,ugh now I am Wondering if staying on it would have prevented this ,,,just thinking out loud to you all .

Thank You so much !

Dx 8/23/2010, IDC, Right, 2cm, Stage IIA, Grade 2, 0/1 nodes, ER+/PR+, HER2- Chemotherapy 12/1/2010 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 3/30/2011 Hormonal Therapy 5/15/2011 Liquid tamoxifen (Soltamox), Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy 5/14/2014 Arimidex (anastrozole) Dx 8/15/2020, ILC, Right, Stage IIIB, Grade 2, ER-/PR-, HER2- (FISH) Surgery
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Aug 23, 2020 05:09PM Georgia1 wrote:

Ugh, I'm so sorry. I don't have any medical knowledge to share but I would say it's better to look forward than backward. We all made the best decisions we could, based on what doctors knew at the time, so we shouldn't waste energy on regret. Please let us know how you are doing and as someone who's had cancer twice I wish you the best. You can beat this thing.

Cancer touched my breast so I kicked its ass. Dx 9/3/2017, ILC/IDC, Right, <1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2- Dx 10/10/2017, LCIS, Right, 0/1 nodes Surgery 10/10/2017 Lumpectomy; Lymph node removal: Right, Sentinel Radiation Therapy 11/27/2017 Whole-breast: Breast Hormonal Therapy 1/2/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Aug 24, 2020 07:28AM Moderators wrote:

Dear amyedb59 - Welcome to the BCO Community. We are so sorry that you had to join us for this reason, but glad you found us!

We know that you'll get tons of support and understanding here, so please stay connected and keep us posted on how you're doing. As you can already see, we have many, many wonderful and inspirational members who post regularly about their experiences living with metastatic breast cancer and we're sure it can be really helpful for you as you start your new treatment plan.

Best wishes, and good luck with tests results!

The Mods

To send a Private Message to the Mods: community.breastcancer.org/mem...
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Aug 28, 2020 09:10PM amyedb59 wrote:

Thank you Georgia1 and Mods ! I have a stage III triple negative ILC . Nothing found on the bone scan or the CT scan,,,,,,, Hooray !!!

Will be starting with chemo followed by surgery. See the breast surgeon on Tuesday and start chemo on Friday. They are not sure whether it is a new primary breast cancer or a recurrence of my previous breast cancer which was IDC .

Guess I will check out some forums for that now ! Thanks again !

amyedb59

Dx 8/23/2010, IDC, Right, 2cm, Stage IIA, Grade 2, 0/1 nodes, ER+/PR+, HER2- Chemotherapy 12/1/2010 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 3/30/2011 Hormonal Therapy 5/15/2011 Liquid tamoxifen (Soltamox), Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy 5/14/2014 Arimidex (anastrozole) Dx 8/15/2020, ILC, Right, Stage IIIB, Grade 2, ER-/PR-, HER2- (FISH) Surgery
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Sep 2, 2020 10:41AM KBeee wrote:

I'm sorry you are facing a recurrence. I definitely recommend jumping on the chemo forum for the month you start. Those groups were my sanity savers during chemo!

Karen. Dx 8/5/2013, IDC, Right, 1cm, Grade 2, 0/1 nodes, ER+/PR+, HER2- (IHC) Surgery 8/25/2013 Mastectomy: Left, Right Chemotherapy 9/19/2013 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 12/11/2013 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 1/22/2014 Reconstruction (left); Reconstruction (right) Surgery 1/28/2015 Lumpectomy: Right Dx 2/2/2015, IDC, Right, 1cm, Grade 2, 0/0 nodes, ER+/PR-, HER2- (FISH) Surgery 2/24/2015 Lumpectomy: Right; Lymph node removal: Right, Sentinel, Underarm/Axillary; Prophylactic ovary removal Dx 2/25/2015, IDC, Right, 1cm, Grade 3, 0/13 nodes, ER+/PR-, HER2- (IHC) Chemotherapy 3/30/2015 AC + T (Taxol) Radiation Therapy 8/24/2015 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy Femara (letrozole)

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