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Topic: Axillary node Recurrence

Forum: Just Diagnosed With a Recurrence or Metastasis —

Meet others who are just facing the diagnosis of a recurrence of breast cancer or metastatic (advanced) disease. You are NOT alone.

Posted on: Aug 31, 2020 10:15PM

juliechris wrote:

Hi all. I’m only 2 years out from original diagnosis (DMX, chemo, Anastrazole, ovaries out). and I have a recurrence in an axillary node. I had pain, it lit up on a PET, and biopsy confirmed. Originally it was high ER/PR, this time it’s weakly ER and no PR. And it is grade 1 instead of 3. Which I guess means it won’t be as responsive to chemo. But surgery and radiation for sure. I started to research and saw some horrible stats for survival after an early local recurrence like this, especially if it becomes negative PR. I stopped looking because I got scared, which isn’t like me. Now tomorrow I meet with my surgeon, and I feel unprepared. Has anyone had an early local recurrence -especially in the nodes who can give me advice? Should I ask for another oncotype? Should I ask to get Foundation One cdx testing done? How often should I get scanned now going forward? I’m so sad and overwhelmed. :(

DX at age of 47 Dx 4/19/2018, IDC, Left, 3cm, Stage IIA, Grade 3, 0/3 nodes, ER+/PR+, HER2- Surgery 5/8/2018 Mastectomy: Left; Prophylactic mastectomy: Right
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Sep 1, 2020 10:48AM MinusTwo wrote:

I had a BMX in 2011 with everything clear so no other treatment. Exactly two years later in 2013, I had a swollen spot by my collar bone. Yup - local recurrence. I was originally ER/PR negative & that stayed the same, but now I was also HER+. 6 rounds of TCHP chemo first with no pCR. Axillary node dissection surgery with clean margins. AC chemo just to make sure everything is mopped up. Rads & then Herceptin for a year.

I'm 7 years down the road from the recurrence - healthy & can pretty much do everything I used to do. I had scans after final treatment and a year later to make sure there was nothing still there. I insisted on a PET/CT before they took my port out after 3 years - nothing there. Really docs don't much like to scan for recurrence w/o symptoms. Because I have the Allergan textured implant (even though I am having no problems and I love them) the radiologist did a breast MRI at 5 years and is willing to do an ultrasound every two years.

Because I was ER/PR negative, and it was some time ago, I can't speak about oncotype or Foundation One. I'm sure someone else will chime in. Hopefully it's contained to the one node or just the local area. Wishing you the best.

2/15/11 BMX-DCIS 2SNB clear-TEs; 9/15/11-410gummies; 3/20/13 recurrance-5.5cm,mets to lymphs, Stage IIIB IDC ER/PRneg,HER2+; TCH/Perjeta/Neulasta x6; ALND 9/24/13 1/18 nodes 4.5cm; AC chemo 10/30/13 x3; herceptin again; Rads Feb2014
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Sep 2, 2020 09:43AM KBeee wrote:

I was PR positive the first time and PR negative the second (which occurred about 18 months from original diagnosis). I convinced my doc to do the oncotype (first doc refused saying chemo would be no help). Oncotype was 40, so chemo it was. I'm 5 years out from that now.

Karen. Dx 8/5/2013, IDC, Right, 1cm, Grade 2, 0/1 nodes, ER+/PR+, HER2- (IHC) Surgery 8/25/2013 Mastectomy: Left, Right Chemotherapy 9/19/2013 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 12/11/2013 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 1/22/2014 Reconstruction (left); Reconstruction (right) Surgery 1/28/2015 Lumpectomy: Right Dx 2/2/2015, IDC, Right, 1cm, Grade 2, 0/0 nodes, ER+/PR-, HER2- (FISH) Surgery 2/24/2015 Lumpectomy: Right; Lymph node removal: Right, Sentinel, Underarm/Axillary; Prophylactic ovary removal Dx 2/25/2015, IDC, Right, 1cm, Grade 3, 0/13 nodes, ER+/PR-, HER2- (IHC) Chemotherapy 3/30/2015 AC + T (Taxol) Radiation Therapy 8/24/2015 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy Femara (letrozole)
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Sep 2, 2020 10:14AM Spookiesmom wrote:

7 years later after bmx, showed up on other side. Surgery and rads. Now on ibrance letrozole, will be on that forever, unless progression. No mention of IV chemo. Scans if symptoms.

Reoccurrence 3-19. Dx IDC, Stage IIIA, Grade 3
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Sep 2, 2020 11:24AM juliechris wrote:

Thank you all for sharing your experience! I just found out that the needle biopsy had no lymph tissue, so it’s a 1 cm cancerous lesion in the area of the lymph nodes but not in them. The plan is to remove it along with an undetermined number of lymph nodes and then do chemo again and radiation.

They said it might have been there when they did the original surgery 2 years ago. But since no scans were done we wouldn’t have known? But the pathology is now negative PR and weak ER, does that mean as it grew, it changed and got smarter?

I am in Wisconsin, but am thinking about taking out some retirement account money and going to Sloan Kettering to get a second opinion on treatment. Here they’re saying we are going to treat it like triple negative now, even though it’s 20-33 % ER positive and low grade. And my surgeon says she doesn’t actually think it’s low grade. Which is also confusing.


DX at age of 47 Dx 4/19/2018, IDC, Left, 3cm, Stage IIA, Grade 3, 0/3 nodes, ER+/PR+, HER2- Surgery 5/8/2018 Mastectomy: Left; Prophylactic mastectomy: Right
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Sep 2, 2020 04:38PM MinusTwo wrote:

Did they test for HER2? My recurrence 2 years after BMX actually showed up as HER2+ and that changes the treatment parameters & give you more options. It wouldn't be a bad idea to get a second opinion.

2/15/11 BMX-DCIS 2SNB clear-TEs; 9/15/11-410gummies; 3/20/13 recurrance-5.5cm,mets to lymphs, Stage IIIB IDC ER/PRneg,HER2+; TCH/Perjeta/Neulasta x6; ALND 9/24/13 1/18 nodes 4.5cm; AC chemo 10/30/13 x3; herceptin again; Rads Feb2014
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Sep 2, 2020 05:27PM juliechris wrote:

They said it’s HER2 negative. But who knows, maybe the surgery tissue will have more info. I had my records sent to Sloan K in NY today! I am relieved that they’re in network for my insurance. Thank you for your input!! <

DX at age of 47 Dx 4/19/2018, IDC, Left, 3cm, Stage IIA, Grade 3, 0/3 nodes, ER+/PR+, HER2- Surgery 5/8/2018 Mastectomy: Left; Prophylactic mastectomy: Right
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Sep 2, 2020 10:22PM MinusTwo wrote:

Please do check back and let us know about the second opinion.

2/15/11 BMX-DCIS 2SNB clear-TEs; 9/15/11-410gummies; 3/20/13 recurrance-5.5cm,mets to lymphs, Stage IIIB IDC ER/PRneg,HER2+; TCH/Perjeta/Neulasta x6; ALND 9/24/13 1/18 nodes 4.5cm; AC chemo 10/30/13 x3; herceptin again; Rads Feb2014
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Sep 10, 2020 08:46AM KBeee wrote:

Sloan K is probably good, Mayo is good, UW Madison is good... any university based system is good, so don't hesitate to get multiple opinions. By treating it like it is triple negative, I think they mean that they are hitting it with aggressive chemo. Since it is ER positive, you should likely expect anti-hormonals to follow. Keep us posted.

Karen. Dx 8/5/2013, IDC, Right, 1cm, Grade 2, 0/1 nodes, ER+/PR+, HER2- (IHC) Surgery 8/25/2013 Mastectomy: Left, Right Chemotherapy 9/19/2013 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 12/11/2013 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 1/22/2014 Reconstruction (left); Reconstruction (right) Surgery 1/28/2015 Lumpectomy: Right Dx 2/2/2015, IDC, Right, 1cm, Grade 2, 0/0 nodes, ER+/PR-, HER2- (FISH) Surgery 2/24/2015 Lumpectomy: Right; Lymph node removal: Right, Sentinel, Underarm/Axillary; Prophylactic ovary removal Dx 2/25/2015, IDC, Right, 1cm, Grade 3, 0/13 nodes, ER+/PR-, HER2- (IHC) Chemotherapy 3/30/2015 AC + T (Taxol) Radiation Therapy 8/24/2015 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy Femara (letrozole)

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