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Topic: Stage IV but unclear diagnosis

Forum: Just Diagnosed With a Recurrence or Metastasis —

Meet others who are just facing the diagnosis of a recurrence of breast cancer or metastatic (advanced) disease. You are NOT alone.

Posted on: Dec 19, 2020 08:35AM - edited Dec 19, 2020 08:36AM by phet7178

phet7178 wrote:

I was holding off posting here for a while despite knowing I was stage IV for nearly a month or so now, while my doctors did all the tests to finalise the diagnosis. But when a biopsy came back inconclusive yesterday I lost it and would love to turn to this forum for help.

Basically my story is: Stage II IDC ER+ and PR+ last year, no node involvement and no LVI. May this year I had a chest CT for an unrelated issue and it picked up a small nodule (I posted on the 'Worried!' forum then). My doctor was absolute insistent that it was nothing, that the radiologist looked and said it was a non-suspicious intrapulmonary node, but if I really wanted we could rescan in 6 months for reassurance. I said yes please. Six months comes around and they scan me and tell me: the nodule has grown, there is now another one, plus a cluster of enlarged lymph nodes. So yes, we do think you have recurrent breast cancer.

Queue panic on my part and the inevitable PET scan (everything 'markedly avid' with huge max SUV like 17) but luckily seemingly no other spread. My oncologist says that because it's in my lung and nowhere else, they do need to biopsy to check the (unlikely) possibility that it is a primary lung cancer. But she thinks most likely recurrent breast and starts to line up treatment to put me on abemaciclib and fulvestrant (on the basis that I relapsed while on letrozole).

The final part is the EBUS TBNA biopsy of the enlarged mediastinal nodes, to check that it is breast cancer and also the receptors. that was super unpleasant but I thought at least when it was done we would have confirmation and could start treatment. In fact I was booked in to have my first fulvestrant shots and get my abemaciclib tablets next Tuesday so we start before Christmas.

Yesterday my oncologist calls. the EBUS results have come back inconclusive. The can't say if it is breast of lung or colon or what - in fact it doesn't test positive for any specific cancer but it *is* cancer. WTF. The official wording I believe was 'Nonspecific tumour of unknown primary' on the pathology report. It did say that the cells were ER-, and it also tested negative for certain definitive markers of lung cancer.

So now we need to do another biopsy, likely of the tumour in my lung. But it's 6 days before Christmas in the middle of a pandemic so good luck. My oncologist says it will be discussed at the MDT on Wednesday and that behind the scenes she's trying to find other pathologists who she thinks have a better background in breast specific to look at it.

I hate being in limbo. We know I have cancer aggressively growing in my chest. I'm angry their stupid EBUS interpreters cannot work it out. From my, admittedly non-medical, perspective, the obvious suggestion is that my strongly ER cancer has lost its receptors (hence progressing on letrozole) and become TNBC, or at best Her2+ (though I was Her2- before). I don't understand why that does not seem to be being tested for and I also why my oncologist is not suggesting that as the most likely possibility. If I have mutated to TNBC, I am anxious to start aggressive treatment asap.

Not sure if I'm asking any questions, just looking to see if anyone has had a similar experience or has thoughts on what I could be facing

love to all

Dx 3/7/2019, IDC, Left, 4cm, Stage IIA, Grade 3, ER+/PR+, HER2- Chemotherapy 3/22/2019 Cytoxan (cyclophosphamide), Ellence (epirubicin), Taxotere (docetaxel)
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Dec 19, 2020 09:26AM Moderators wrote:

Hi phet,

We don't have any answers for you, but we just wanted to let you know we're so sorry for what you're going through. It's certainly frustrating and scary to not have any clarity around what's going on and no clear path forward. So, we're sending lots of love to you and hope that you'll know what's going on soon.

Please keep us posted -- we're all here for you!

--The Mods

To send a Private Message to the Mods: community.breastcancer.org/mem...
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Dec 19, 2020 01:56PM KMom57 wrote:

Phet, I wish I knew something to say or had advice to give. I’m not that experienced, but I wanted to tell you I am thinking of you.

Dx 10/2019, ILC, Left, 2cm, Stage IIIA, Grade 2, 8/11 nodes, ER+/PR+, HER2- Hormonal Therapy 11/6/2019 Femara (letrozole) Surgery 2/15/2020 Prophylactic ovary removal Surgery 5/18/2020 Lymph node removal: Left; Mastectomy: Left; Prophylactic mastectomy: Right Chemotherapy 7/31/2020 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy Breast, Lymph nodes, Chest wall Hormonal Therapy Femara (letrozole)
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Dec 19, 2020 01:59PM - edited Dec 19, 2020 02:04PM by KMom57

This Post was deleted by KMom57.
Dx 10/2019, ILC, Left, 2cm, Stage IIIA, Grade 2, 8/11 nodes, ER+/PR+, HER2- Hormonal Therapy 11/6/2019 Femara (letrozole) Surgery 2/15/2020 Prophylactic ovary removal Surgery 5/18/2020 Lymph node removal: Left; Mastectomy: Left; Prophylactic mastectomy: Right Chemotherapy 7/31/2020 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy Breast, Lymph nodes, Chest wall Hormonal Therapy Femara (letrozole)
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Dec 19, 2020 02:06PM KMom57 wrote:

Accidentally deleted a post trying to edit...could you get a second opinion?

Dx 10/2019, ILC, Left, 2cm, Stage IIIA, Grade 2, 8/11 nodes, ER+/PR+, HER2- Hormonal Therapy 11/6/2019 Femara (letrozole) Surgery 2/15/2020 Prophylactic ovary removal Surgery 5/18/2020 Lymph node removal: Left; Mastectomy: Left; Prophylactic mastectomy: Right Chemotherapy 7/31/2020 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy Breast, Lymph nodes, Chest wall Hormonal Therapy Femara (letrozole)
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Dec 19, 2020 02:58PM moth wrote:

phet, how very frustrating it is. I agree getting several pathologists to look at it would help. I hope you can get your lung biopsy soon. My hospital is not really easing up for winter holidays. I think they have more staffing problems in summer than Dec. Hopefully same for you..though covid is complicating everything everywhere.

I've had ongoing controversy about hormone markers and had a lung biopsy which didn't give us any viable cells to examine. It's frustrating when we're missing pieces to make decisions. The thing is, I have heard of people developing another primary. I think there was someone here who developed lung cancer after her breast ca. Treatments are different so really, it's in your best interest to get a firm diagnosis. Hang in there. I hope you can get your lung biopsy soon and the pathologists can finally figure out what is going on.

Initial dx at 50. Seriously???? “Sometimes the future changes quickly and completely and we’re left with only the choice of what to do next." blog: nevertellmetheodds2017.tumblr.... Dx 12/2017, IDC, Left, 1cm, Stage IA, Grade 3, 0/5 nodes, ER-/PR-, HER2- (IHC) Surgery 12/12/2017 Lumpectomy: Left; Lymph node removal: Sentinel Chemotherapy 2/14/2018 AC + T (Taxol) Radiation Therapy 8/13/2018 Whole-breast: Breast Dx 2/2020, IDC, Stage IV, metastasized to liver/lungs, Grade 3, ER-/PR-, HER2- Chemotherapy 3/18/2020 Taxol (paclitaxel) Immunotherapy 3/19/2020 Tecentriq (atezolizumab) Chemotherapy 11/26/2020 Abraxane (albumin-bound or nab-paclitaxel) Dx 12/10/2020, IDC, Right, Stage IV, metastasized to lungs, Grade 3, ER+/PR-, HER2- (IHC) Radiation Therapy 12/10/2020 External Hormonal Therapy 12/16/2020 Femara (letrozole)
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Dec 19, 2020 03:50PM LivinLife wrote:

Hi phet! Just want to offer support like the others! I too hope you can undergo that biopsy very soon in hopes that will help you and your docs know what you're dealing with. The unknowns just add to anxiety and frustration as you conveyed... I'm glad you finally posted! A month is a long time to hold onto this kind of information. I hope you have family and good friend support too. That in conjunction with this site would be ideal! Please keep us updated, ok?

Dx 7/2020, DCIS, Left, 1cm, Stage 0, Grade 3, 0/1 nodes, ER+/PR+ Surgery 8/31/2020 Mastectomy: Left; Prophylactic mastectomy: Right
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Dec 19, 2020 05:00PM 2019whatayear wrote:

Posting in support. I would say it can't hurt to make sure you oncologist knows your frustration and if there is anything that can be done to get you in for the biopsy ASAP because that's some info you really need to have the best treatment plan.

hugs

5/6/2019 IDC 2cm, micromet 1/9 nodes, BRCA2+, ER+, PR+, HER- BMX 6/2019, A/C & Taxol 2019, Radiation, BSO - preventative 2/2020, Letrozole 3/1/2020
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Dec 19, 2020 08:43PM - edited Dec 19, 2020 08:43PM by ShetlandPony

Phet, since things have gotten complicated, I think it would be a good idea to get a second opinion on the pathology (and hopefully the biopsy) from the best cancer center you can access. You need a place with really expert and experienced pathologists and interventional radiologists. Are you in the U.S. and what state? PM if you would rather, and I will point you in the direction of some good options. If not in the U.S. maybe another member can give you a lead.

2011 Stage I ILC 1.5cm grade1 ITCs sn Lumpectomy,radiation,tamoxifen. 2014 Stage IV ILC mets breast,liver. TaxolNEAD. Ibrance+letrozole 2yrs. Fas+afinitor nope. XelodaNEAD 2yrs. Eribulin,Doxil nope. SUMMIT FaslodexHerceptinNeratinib for Her2mut NEAD
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Dec 19, 2020 10:49PM - edited Dec 19, 2020 10:50PM by aprilgirl1

Phet - i agree with Moth, Shetland and the others and hope you can get a lung biopsy soon. On 10/31/19 I had a biopsy of my left superclavical lymph node that was enlarged . That biopsy was inconclusive as they didn't get "enough" of a sample. Of course, I had to wait a few days for those inconclusive results and then a few more days before they could do another biopsy. I also had mediastinal nodes enlarged but they chose to rebiopsy the superclavical as it was easier to reach. That waiting was really awful . Like Moth said my cancer center is not closed for the holidays. If I remember correctly they said it showed it was cancer but not if it was breast cancer . 2nd biopsy confirmed it was breast cancer and the hormone receptors etc. Please keep us posted on your situation and know we are here for you

recurrence in lymph nodes (superclavicle/mediastinal)"You can do it like it's a great weight on you, or you can do it like it's part of the dance." Ram Dass Dx 11/7/2008, IDC, Left, 1cm, Stage IB, Grade 2, 0/3 nodes, ER+/PR+, HER2- Dx 11/13/2019, IDC, Left, Stage IV, metastasized to other, ER+/PR+, HER2-
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Dec 20, 2020 06:32AM phet7178 wrote:

Thank you everyone for your supportive messages, they really mean a lot to me. I agree I need to be more assertive with my team about getting this sorted for me ASAP. Unfortunately (perhaps) I’m in the UK - the NHS is a slow machine at the best of times let alone in the midst of COVID. I’m actually from Australia, and one of the ways I push my oncologist is to repeatedly tell her ‘this wouldn’t be happening back home!’ And try to shame her into speeding things up for me. Not sure if that’s the most effective way 😬 Regardless, I’m going to email her and tell her I need her to get second opinions on the pathology samples (which she did already suggest) and also push the lung MDT to get me in for a biopsy before the new year. Looking at the calendar, I want to be in treatment by the first week in January at the latest (even that feels unbearably slow since we first learned of the new tumours).

One fortunate thing is that my oncologist had already sent my blood off for a Foundation One liquid biopsy. Because I was node negative and no LVI my oncologist already thought we needed to get a better genetic picture of what was going on. The results of that are due back this week so ironically we’ll have them before we officially know what cancer I have. Perhaps they will shed more light (not sure if a Foundation One can actually diagnose what type of cancer though).

In terms of second opinion - yes I’m absolutely planning to do that though it’s a bit complicated in the NHS system. My plan was, once I knew what type of MBC I had, to identify the top researcher on that who is also in practice and book a second opinion with them, to advise on the best treatment and possible trials. I’m currently at the Churchill Hospital in Oxford and can easily get to London for appointments or trials so I am assuming that’s where I’ll go. But this whole uncertainty is slowing everything down - not sure how one transfers diagnostics from one hospital to another within the NHS.

I’m strengthened by all your support and encouragement to be more assertive. I’m going to email my oncologist with my request for pathology second opinions, an ultimatum re timing of the biopsy, and insist on some treatment by first week in Jan. And hope Foundation One saves the day

Dx 3/7/2019, IDC, Left, 4cm, Stage IIA, Grade 3, ER+/PR+, HER2- Chemotherapy 3/22/2019 Cytoxan (cyclophosphamide), Ellence (epirubicin), Taxotere (docetaxel)
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Dec 22, 2020 11:00PM berries wrote:

How are you doing? Can I ask how much your nodule grew from when you first found it to 6 months after? I am in your corner and going through something similar now. Wish you the best!

Dx 8/6/2019, DCIS/IDC, Left, 5cm, Stage IB, Grade 1, 4/4 nodes, ER+/PR+, HER2- Surgery 9/18/2019 Mastectomy: Left; Reconstruction (right) Chemotherapy 10/24/2019 AC + T (Taxol) Surgery 2/17/2020 Reconstruction (left): Silicone implant Radiation Therapy 3/31/2020 Whole-breast: Breast, Lymph nodes Chemotherapy 4/29/2020 Xeloda (capecitabine) Hormonal Therapy 5/7/2020 Arimidex (anastrozole)
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Dec 23, 2020 06:25AM phet7178 wrote:

hey there berries - mine grew from 0.9cm to 2.8cm a new one (1cm) emerged and my mediastinal nodes enlarged. The Pet scan SUV was crazy, like 18! So mine are growing rapidly. Hence why I’m so anxious to get a plan :(

Dx 3/7/2019, IDC, Left, 4cm, Stage IIA, Grade 3, ER+/PR+, HER2- Chemotherapy 3/22/2019 Cytoxan (cyclophosphamide), Ellence (epirubicin), Taxotere (docetaxel)
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Dec 23, 2020 11:37AM berries wrote:

Well, I am thinking of you and praying you are able to get a second opinion and/or a plan in place as soon as possible. I know it is easy to panic, but hope you are able to enjoy the Holidays as much as possible and move forward very soon.

My story is a bit different in that a 6-month follow up CT and bone scan to look again at some bone abnormalities picked up a few tiny (4-6mm) nodules in my lungs that might be inflammation, fibrotic or something more sinister. A few weeks later (last Friday), I had a PET and the other nodules were considered atelectasis, except for one that was 6mm and has an SUV of 3.2, so my MO wants to biopsy ASAP, but thinks it could be inflammatory or scaring, like the others. Like you, I believe knowledge is power, however, I am terrified of a biopsy and confronting this again - I just finished active treatment this April and just want to relax from worry and fear for a little while.

Hugs to you.

Dx 8/6/2019, DCIS/IDC, Left, 5cm, Stage IB, Grade 1, 4/4 nodes, ER+/PR+, HER2- Surgery 9/18/2019 Mastectomy: Left; Reconstruction (right) Chemotherapy 10/24/2019 AC + T (Taxol) Surgery 2/17/2020 Reconstruction (left): Silicone implant Radiation Therapy 3/31/2020 Whole-breast: Breast, Lymph nodes Chemotherapy 4/29/2020 Xeloda (capecitabine) Hormonal Therapy 5/7/2020 Arimidex (anastrozole)
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Dec 23, 2020 12:42PM phet7178 wrote:

Hi all - an update from me. The Lung MDT met and decided no use biopsying again despite this one being inconclusive as it was able to prove it's not lung cancer and thus must be breast metastatic. I mean, I guess so...Breast MDT decided that again, even though the mediastinal node biopsy was inconclusive, the finding that it was ER- and PR- was correct, so they are now testing Her2. But we expect that to come back negative as it was before. Everything points to it being TNBC. So 18 months ago I was treated for early stage ER+ (8/8) PR+ (8/8) breast cancer with no nodes and no LVI. And here I am with TNBC mets rapidly growing in my chest. I just don't understand to be honest.

I'm glad I had already thought of this possibility and started looking into clinical trials. I've asked to be referred to the clinical trials team at St. Bartholemew's hospital in London, which runs a lot of TNBC trials. There I assume they will also test my PDL-1 and AR receptors (so another biopsy...) I still have a Foundation 1 liquid biopsy report coming in and am praying that gives us something actionable. Trying to get my head around everything.

If anyone has any tips for TNBC trials (in general - they don't need to be in the UK, I'm keen to know what's out there) or is on one let me know. I read somewhere that cancer that switches from ER+ to ER- often responds to immunotherapy? Here Trodelvy isn't approved yet but I'm still counting it on a possible list of treatments as I'd be hoping compassionate use would be an option if it came to that. I guess there are a lot of trials/chemos to try before then. Oooof.

Thanks everyone for your thoughts <3

Dx 3/7/2019, IDC, Left, 4cm, Stage IIA, Grade 3, ER+/PR+, HER2- Chemotherapy 3/22/2019 Cytoxan (cyclophosphamide), Ellence (epirubicin), Taxotere (docetaxel)
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Dec 23, 2020 01:00PM moth wrote:

Hi phet, I made a list of all the metastatic TNBC treatments. It's the 4th post down on page 93 of the Stage IV TN thread. I'm going to try to link you directly to that page.

https://community.breastcancer.org/forum/8/topics/...

If anything new comes up, I try to add it on so I think it's pretty much correct.

There are 3 immunotherapy options and Trodelvy is the newest on the block. I hope you can get into some trial. Definitely helps to do it straight away as many trials will not take pts who have already gone through other treatments. Last spring we delayed starting treatment to get me into a trial & at the time it was nerve wracking as it delayed us by about 6 weeks of no treatment while doing additional scans etc and waiting for the trial coordinators to approve my entry and then to randomize me. My MO was sweating bullets watching my liver values climb but it ended up being a good decision as I've had a good run on atezolizumab.

Initial dx at 50. Seriously???? “Sometimes the future changes quickly and completely and we’re left with only the choice of what to do next." blog: nevertellmetheodds2017.tumblr.... Dx 12/2017, IDC, Left, 1cm, Stage IA, Grade 3, 0/5 nodes, ER-/PR-, HER2- (IHC) Surgery 12/12/2017 Lumpectomy: Left; Lymph node removal: Sentinel Chemotherapy 2/14/2018 AC + T (Taxol) Radiation Therapy 8/13/2018 Whole-breast: Breast Dx 2/2020, IDC, Stage IV, metastasized to liver/lungs, Grade 3, ER-/PR-, HER2- Chemotherapy 3/18/2020 Taxol (paclitaxel) Immunotherapy 3/19/2020 Tecentriq (atezolizumab) Chemotherapy 11/26/2020 Abraxane (albumin-bound or nab-paclitaxel) Dx 12/10/2020, IDC, Right, Stage IV, metastasized to lungs, Grade 3, ER+/PR-, HER2- (IHC) Radiation Therapy 12/10/2020 External Hormonal Therapy 12/16/2020 Femara (letrozole)
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Dec 23, 2020 01:57PM phet7178 wrote:

Thank you moth! This is very helpful. Have you had luck with immunotherapy?

Dx 3/7/2019, IDC, Left, 4cm, Stage IIA, Grade 3, ER+/PR+, HER2- Chemotherapy 3/22/2019 Cytoxan (cyclophosphamide), Ellence (epirubicin), Taxotere (docetaxel)
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Dec 23, 2020 02:10PM moth wrote:

Yes, it's worked for me since I started treatment in March 2020. My lung met woke up in November but even that overall technically wasn't progression because my liver tumors were continuing to shrink so overall tumor volume was still within 'stable'. My TMs were up a bit in Dec but that could have been the lung met. I'll have a CT sometime in January and we'll see how things look now. For TN, it's really hard to find things that work any length of time so I think this has been a success.

Initial dx at 50. Seriously???? “Sometimes the future changes quickly and completely and we’re left with only the choice of what to do next." blog: nevertellmetheodds2017.tumblr.... Dx 12/2017, IDC, Left, 1cm, Stage IA, Grade 3, 0/5 nodes, ER-/PR-, HER2- (IHC) Surgery 12/12/2017 Lumpectomy: Left; Lymph node removal: Sentinel Chemotherapy 2/14/2018 AC + T (Taxol) Radiation Therapy 8/13/2018 Whole-breast: Breast Dx 2/2020, IDC, Stage IV, metastasized to liver/lungs, Grade 3, ER-/PR-, HER2- Chemotherapy 3/18/2020 Taxol (paclitaxel) Immunotherapy 3/19/2020 Tecentriq (atezolizumab) Chemotherapy 11/26/2020 Abraxane (albumin-bound or nab-paclitaxel) Dx 12/10/2020, IDC, Right, Stage IV, metastasized to lungs, Grade 3, ER+/PR-, HER2- (IHC) Radiation Therapy 12/10/2020 External Hormonal Therapy 12/16/2020 Femara (letrozole)
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Dec 29, 2020 01:05AM - edited Dec 29, 2020 01:07AM by ShetlandPony

I looked at your list, moth. Very concise and useful. If you want to cross check, remember Bestbird's guide to mbc. Posted by Bestbird:

“If you want to learn about approved therapies, helpful hints, cutting edge research and more, you are welcome to read my book, "The Insider's Guide to Metastatic Breast Cancer" which is also available as a complimentary .pdf. For information, please visit https;//www.insidersguidembc.com/about


2011 Stage I ILC 1.5cm grade1 ITCs sn Lumpectomy,radiation,tamoxifen. 2014 Stage IV ILC mets breast,liver. TaxolNEAD. Ibrance+letrozole 2yrs. Fas+afinitor nope. XelodaNEAD 2yrs. Eribulin,Doxil nope. SUMMIT FaslodexHerceptinNeratinib for Her2mut NEAD
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Dec 29, 2020 08:30AM phet7178 wrote:

Thank you ShetlandPony also for this tip, I will check the guide out! I definitely need all the help I can get navigating this strange new world

Dx 3/7/2019, IDC, Left, 4cm, Stage IIA, Grade 3, ER+/PR+, HER2- Chemotherapy 3/22/2019 Cytoxan (cyclophosphamide), Ellence (epirubicin), Taxotere (docetaxel)
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Dec 29, 2020 05:01PM - edited Dec 30, 2020 06:26PM by Astrid

Hi phet,

Just wanted to send support to you. Really horrible that you are dealing with this. I wish you were here in Melbourne and attending Peter Mac Cancer Centre. I can tell you, as I am interning in Clinical Spiritual Care there, that immunotherapy is having fantastic results with some cancers. I hope Triple Neg will be one of them. No doubt with the global community your team will find the best trials and tx for you.

Melbourne Australia sends love. Xx

"You cannot step into the same river twice, for other waters are continually flowing on." Heraclitus Dx 6/2002, IDC, Both breasts, 1cm, Stage IIB, Grade 2, 1/7 nodes, ER+/PR+, HER2- (FISH) Dx 7/2003, IDC, Left, 1cm, Stage IIB, Grade 2, ER+/PR+, HER2- (FISH) Dx 6/2012, ILC, Right, 1cm, Stage IIB, Grade 2, ER+/PR-, HER2- (IHC) Radiation Therapy Whole-breast: Breast, Chest wall Chemotherapy AC Surgery Lymph node removal: Left, Right, Underarm/Axillary; Mastectomy: Left, Right
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Dec 30, 2020 08:46AM phet7178 wrote:

Thank you Astrid! I would love to be in Melbourne now - I was meant to be home for Christmas but Covid + a secondary breast cancer diagnosis ruined that! I'll send you a private message about Peter Mac as that's one of the places I'm looking at organising a teleconsult to discuss what my options would be back in Australia x

Dx 3/7/2019, IDC, Left, 4cm, Stage IIA, Grade 3, ER+/PR+, HER2- Chemotherapy 3/22/2019 Cytoxan (cyclophosphamide), Ellence (epirubicin), Taxotere (docetaxel)
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Dec 30, 2020 06:56PM Astrid wrote:

That's great phet.

Have sent you some links.

Smile

"You cannot step into the same river twice, for other waters are continually flowing on." Heraclitus Dx 6/2002, IDC, Both breasts, 1cm, Stage IIB, Grade 2, 1/7 nodes, ER+/PR+, HER2- (FISH) Dx 7/2003, IDC, Left, 1cm, Stage IIB, Grade 2, ER+/PR+, HER2- (FISH) Dx 6/2012, ILC, Right, 1cm, Stage IIB, Grade 2, ER+/PR-, HER2- (IHC) Radiation Therapy Whole-breast: Breast, Chest wall Chemotherapy AC Surgery Lymph node removal: Left, Right, Underarm/Axillary; Mastectomy: Left, Right
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Dec 30, 2020 07:16PM Arc66 wrote:

hi Phet,


Not sure what is happening with cancer trials ireland but Eibhlin Mulroe is the ceo. No harm in dropping her an email. Take care and wishing you lots of good luck.

eibhlin.mulroe@cancertrials.ie

Dx 3/11/2015, IDC, Left, Stage IV, metastasized to bone/lungs, ER+, HER2+ (FISH)
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Dec 30, 2020 07:46PM jennyjo20 wrote:

Hi Phet, I hope the results of the Foundation One test prove useful. I'm not as familiar with their testing protocol as I am with Caris Life Science (a different company that provides Tumor Profiling). They have recently added a panel that compares the pathology of your tumor to 20 distinct tumor types in their data base and can predict what the primary is, as well as list your tumor's specific mutations and therapies that are likely to work. I don't know if that would prove useful, but perhaps it is something you can ask your oncology team about. I hope you get some answers soon and are able to find a successful treatment plant.

Diagnosed at 42 - Oncotype 24; CHEK2 mutation Dx 2/2020, IDC, Right, 1cm, Stage IIA, Grade 2, 1/5 nodes, ER+/PR+, HER2- (FISH) Surgery 3/18/2020 Lumpectomy: Right; Lymph node removal: Sentinel Chemotherapy 4/17/2020 Abraxane (albumin-bound or nab-paclitaxel), Cytoxan (cyclophosphamide) Hormonal Therapy 7/7/2020 Arimidex (anastrozole), Zoladex (goserelin) Radiation Therapy 7/13/2020 Whole-breast: Breast, Lymph nodes Hormonal Therapy 8/17/2020 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)

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