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Topic: 9 years NED and now an incidental finding

Forum: Just Diagnosed With a Recurrence or Metastasis —

Meet others who are just facing the diagnosis of a recurrence of breast cancer or metastatic (advanced) disease. You are NOT alone.

Posted on: Sep 22, 2021 03:12PM

Susiell wrote:

Hi all,

I never thought I'd be back on these forums, but here I am. Had a benign thymoma removed two weeks ago, and a lymph node was removed along with the tumor (the lymph node was encapsulated with the tumor). Node came up positive for breast cancer. Interestingly, it's not a mammary lymph node, so technically it's a metastases. Just had chest, abdomen and pelvic ct with contrast, and a bone scan. Had a chest ct with contrast three weeks ago, in advance of this surgery, and that study saw nothing. This node was less than 1 cm so wouldn't show up on ct. As you can imagine, I am freaking out. Will be seeing my oncologist next week to go over scans. Scared as sh*t.

Dx 7/3/2012, IDC, 6cm+, Grade 2, 0/1 nodes, ER+/PR+, HER2- Dx 7/30/2012, IDC, 2cm, Grade 2, 0/1 nodes, ER+/PR+, HER2- Hormonal Therapy 8/24/2012 Hormonal Therapy 10/4/2013 Arimidex (anastrozole)
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Sep 22, 2021 07:32PM aprilgirl1 wrote:

Susiell,

I am sorry and I do understand how overwhelming this is. It is fantastic that they have found nothing else. Please do a search on ogliometastic breast cancer. Ogliometastic disease has better survival statistics. The fact that this was surgically removed is also a good thing. Keep us posted on what treatment your oncologist recommends and hang in there.

recurrence in lymph nodes (superclavicle/mediastinal)"You can do it like it's a great weight on you, or you can do it like it's part of the dance." Ram Dass Dx 11/7/2008, IDC, Left, 1cm, Stage IB, Grade 2, 0/3 nodes, ER+/PR+, HER2- Dx 11/13/2019, IDC, Left, Stage IV, metastasized to other, ER+/PR+, HER2- Surgery Lumpectomy: Left Hormonal Therapy Femara (letrozole) Chemotherapy CMF Radiation Therapy Whole-breast: Breast Hormonal Therapy Faslodex (fulvestrant) Targeted Therapy Ibrance (palbociclib)
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Sep 22, 2021 07:50PM 7of9 wrote:

9 yrs too...hang in there Susie! Hope it was just some slow growing dormant shit that they got all of it. Have you been on Arimidex this whole time? I swear my salivary stone is not a salivary stone and this crap is always lurking. Kick it back in the corner where it can sleep for another 30 yrs. God bless and prayers.

If you're going through hell, keep on going. You might get out before the devil even knows you're there. Dx 1/18/2012, IDC, Left, 2cm, Stage IIB, Grade 2, 0/2 nodes, ER+/PR+, HER2- Surgery 5/31/2012 Lymph node removal: Left; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 10/31/2012 Reconstruction (left); Reconstruction (right) Dx 12/23/2015, IDC, Left, 2cm, Grade 2, 10/14 nodes, ER+/PR+, HER2- Surgery 1/18/2016 Lymph node removal: Left, Underarm/Axillary Surgery 1/18/2016 Prophylactic ovary removal Radiation Therapy 2/10/2016 Whole-breast: Breast, Lymph nodes, Chest wall Chemotherapy 3/31/2016 Taxotere (docetaxel) Hormonal Therapy Arimidex (anastrozole)
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Sep 22, 2021 08:45PM Susiell wrote:

No, stopped the arimidex after 5 years (and 1 year of tamoxifen). I am indeed hoping it was a small slow growing thing that somehow got missed. Always wondered how they know that they got all of the breast tissue when they do the mx!

Dx 7/3/2012, IDC, 6cm+, Grade 2, 0/1 nodes, ER+/PR+, HER2- Dx 7/30/2012, IDC, 2cm, Grade 2, 0/1 nodes, ER+/PR+, HER2- Hormonal Therapy 8/24/2012 Hormonal Therapy 10/4/2013 Arimidex (anastrozole)
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Sep 22, 2021 08:46PM Susiell wrote:

Well, we'll see what the new scans say, but I'm holding onto the fact that this was near the original tumor site, and was very small, and was removed. I'll keep you all posted. Thanks for the support!

Dx 7/3/2012, IDC, 6cm+, Grade 2, 0/1 nodes, ER+/PR+, HER2- Dx 7/30/2012, IDC, 2cm, Grade 2, 0/1 nodes, ER+/PR+, HER2- Hormonal Therapy 8/24/2012 Hormonal Therapy 10/4/2013 Arimidex (anastrozole)
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Sep 22, 2021 10:14PM Cowgirl13 wrote:

Susiell, I'm thinking good thoughts for you.

Be the kind of woman that when your feet hit the floor each morning the Devil says: 'Oh crap! She's up! Dx 5/28/2009, IDC, Left, 2cm, Stage IIA, Grade 3, 0/4 nodes, ER+/PR+, HER2+ Surgery 6/16/2009 Chemotherapy 8/2/2009 Carboplatin (Paraplatin), Taxotere (docetaxel) Radiation Therapy 12/21/2009 Hormonal Therapy 2/22/2010 Arimidex (anastrozole)

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