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Topic: 14 years after TNBC I'm facing possible liver mets

Forum: Just Diagnosed With a Recurrence or Metastasis —

Meet others who are just facing the diagnosis of a recurrence of breast cancer or metastatic (advanced) disease. You are NOT alone.

Posted on: Oct 4, 2021 10:22AM

Melonda wrote:

14 years ago I had triple negative medullary carcinoma, you can see from my signature everything I had. Last week we thought I had gallbladder issues or kidney stones, had a CT and the radiology report was horrifying when I read it. They found a very large mass on my liver with suspected lymph node involvement and a few other small masses. I'm BRCA1+ and have done *everything* I can to eliminate risk - I had a bilateral ooph and it's also why I had a bilateral mastectomy.

I'm in a lot of pain - which is why I was originally doing the scans - and waiting for my biopsy but am freaking out. I had JUST finally gone back to an oncologist this summer, I had skipped it the last few years because I had been fine and bloodwork was good. I just can't believe I'm not even 40 and I could have mets after already having had breast cancer 14 years ago. I'm so overwhelmed and just freaked out.

DX 7/6/07 @ age 25 - Medullary Carcinoma/Triple Negative/BRCA1+/ Bilateral Mast/ Recon failed/ DIEP @ NOLA 2010-Success!
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Oct 4, 2021 01:50PM LW422 wrote:

So sorry you find yourself back here, Melonda and hopefully your stay will be brief. (Fingers crossed for a negative biopsy result.) Blessings to you.

Dx 1/20/2021, IDC/IBC, Right, <1cm, Stage IIIC, Grade 3, 0/32 nodes, ER-/PR+, HER2- Chemotherapy 2/7/2021 AC + T (Taxol) Surgery 8/23/2021 Lymph node removal: Right; Mastectomy: Right Radiation Therapy 10/4/2021
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Oct 4, 2021 02:06PM moth wrote:

Hi, I'm sorry you're dealig with this. Do you know yet when the biopsy will be? let us know how it goes. I know it's a stressful time. hang in there

I take weekends off

Initial dx at 50. Seriously?? “Sometimes the future changes quickly and completely and we’re left with only the choice of what to do next." blog: Never Tell Me the Odds

Dx 12/2017, IDC, Left, 1cm, Stage IA, Grade 3, 0/5 nodes, ER-/PR-, HER2- (IHC) Surgery 12/12/2017 Lumpectomy: Left; Lymph node removal: Sentinel Chemotherapy 2/14/2018 AC + T (Taxol) Radiation Therapy 8/13/2018 Whole-breast: Breast Dx 2/2020, IDC, Stage IV, metastasized to liver/lungs, Grade 3, ER-/PR-, HER2- Chemotherapy 3/18/2020 Taxol (paclitaxel) Immunotherapy 3/19/2020 Tecentriq (atezolizumab) Chemotherapy 11/26/2020 Abraxane (albumin-bound or nab-paclitaxel) Dx 12/9/2020, IDC, Right, Stage IV, metastasized to lungs, Grade 3, ER+/PR-, HER2- (IHC) Radiation Therapy 12/9/2020 External Hormonal Therapy 12/16/2020 Femara (letrozole) Dx 1/28/2021, IDC, Left, Stage IV, metastasized to bone Radiation Therapy 3/3/2021 External: Bone
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Oct 4, 2021 02:13PM Serendipity09 wrote:

Melonda - I'm so sorry you find yourself here and going through this! Hoping/Praying that your biopsy results come back negative! <3

Dx 3/2020, IDC, Right, 4cm, Stage IIB, Grade 3, 1/4 nodes, ER-/PR-, HER2- (IHC) Chemotherapy 3/31/2020 AC + T (Taxol) Surgery 9/16/2020 Lymph node removal; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 11/3/2020 Xeloda (capecitabine) Dx 7/2021, Right, 2cm, Grade 3, ER-/PR-, HER2- Surgery 7/9/2021 Reconstruction (left); Reconstruction (right) Radiation Therapy Whole-breast: Breast, Lymph nodes, Chest wall Chemotherapy Carboplatin (Paraplatin)
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Oct 4, 2021 02:32PM Melonda wrote:

I've been waiting for news from my bazillion calls/doctors. My biopsy is confirmed for Thursday at my local hospital, my oncologist is at The James in columbus, which is further away from me and they couldn't get me in for another week, but the pain is pretty bad and I couldn't wait that long. So the slides will be sent there to read. In the meantime I also have 2 CTs and a bone scan locally. I can't remember how long biopsy results take to get in?

But they're all acting like it's definitively mets due to the radiology report and I'm just exhausted at even the idea of all of this and I am overwhelmed at the idea of facing treatment again and knowing it would literally be neverending. It feels cruel to even hold out hope that it would be anything else.

DX 7/6/07 @ age 25 - Medullary Carcinoma/Triple Negative/BRCA1+/ Bilateral Mast/ Recon failed/ DIEP @ NOLA 2010-Success!
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Oct 6, 2021 07:50PM Sunshine99 wrote:

Melonda, I'm so sorry. I do hope you get answers soon and if it is, in fact mets, you are able to get a treatment plan in place ASAP.

Carol

Cancer has progressed to my bones. I pray that it never enters my soul. Dx 11/2/2007, IDC, 3cm, Stage IIA, 0/3 nodes, ER+/PR+, HER2- Dx 3/26/2020, ILC/IDC, Stage IV, metastasized to bone, ER+/PR-, HER2- (FISH) Hormonal Therapy 4/22/2020 Arimidex (anastrozole) Radiation Therapy 5/5/2020 External: Bone Radiation Therapy 5/12/2020 External: Bone Targeted Therapy 6/10/2020 Ibrance (palbociclib)
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Oct 7, 2021 03:22PM 2019whatayear wrote:

I hope the biospy goes well today

5/6/2019 IDC 2cm, micromet 1/9 nodes, BRCA2+, ER+, PR+, HER- BMX 6/2019, A/C & Taxol 2019, Radiation, BSO - preventative 2/2020, Letrozole 3/1/2020, Started Lynparza for 1 year preventative on 7/18/2021
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Oct 8, 2021 09:39AM Melonda wrote:

Biopsy was super painful yesterday but it's over thankfully. All scans are in and shows no cancer anywhere else but the liver. Now I'm not sure if it's a new primary or mets but holding my breath for the results.

DX 7/6/07 @ age 25 - Medullary Carcinoma/Triple Negative/BRCA1+/ Bilateral Mast/ Recon failed/ DIEP @ NOLA 2010-Success!
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Oct 8, 2021 05:16PM moth wrote:

I hope you find out what it is soon; the waiting really sucks.

I take weekends off

Initial dx at 50. Seriously?? “Sometimes the future changes quickly and completely and we’re left with only the choice of what to do next." blog: Never Tell Me the Odds

Dx 12/2017, IDC, Left, 1cm, Stage IA, Grade 3, 0/5 nodes, ER-/PR-, HER2- (IHC) Surgery 12/12/2017 Lumpectomy: Left; Lymph node removal: Sentinel Chemotherapy 2/14/2018 AC + T (Taxol) Radiation Therapy 8/13/2018 Whole-breast: Breast Dx 2/2020, IDC, Stage IV, metastasized to liver/lungs, Grade 3, ER-/PR-, HER2- Chemotherapy 3/18/2020 Taxol (paclitaxel) Immunotherapy 3/19/2020 Tecentriq (atezolizumab) Chemotherapy 11/26/2020 Abraxane (albumin-bound or nab-paclitaxel) Dx 12/9/2020, IDC, Right, Stage IV, metastasized to lungs, Grade 3, ER+/PR-, HER2- (IHC) Radiation Therapy 12/9/2020 External Hormonal Therapy 12/16/2020 Femara (letrozole) Dx 1/28/2021, IDC, Left, Stage IV, metastasized to bone Radiation Therapy 3/3/2021 External: Bone
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Oct 10, 2021 09:48PM edwards750 wrote:

OMG 14 years later? BC the gift that keeps on giving. Ugh. We are all praying it’s something other than liver Mets. You are so young.

Keep the faith and keep us posted.

Diane

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Oct 11, 2021 03:25PM mightlybird01 wrote:

Melonda, so sorry you have to worry. It is my understanding that TNBC usually does not come back after such a long time. This would be much more likely a new primary. Maybe, hopefully!, it is nothing of too much concern. I keep fingers crossed for you.

Dx 4/12/2019, IDC/IDC: Medullary, Right, 2cm, Stage IIA, Grade 3, 0/3 nodes, ER-/PR-, HER2- (FISH) Chemotherapy 5/22/2019 AC + T (Taxol) Surgery 11/8/2019 Mastectomy: Right
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Oct 13, 2021 06:57PM Melonda wrote:

Results are in. Liver mets. We're devastated.

DX 7/6/07 @ age 25 - Medullary Carcinoma/Triple Negative/BRCA1+/ Bilateral Mast/ Recon failed/ DIEP @ NOLA 2010-Success!
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Oct 13, 2021 07:34PM Serendipity09 wrote:

Melonda, I'm so sorry! Keeping you in my thoughts and prayers! {Hugs}

Dx 3/2020, IDC, Right, 4cm, Stage IIB, Grade 3, 1/4 nodes, ER-/PR-, HER2- (IHC) Chemotherapy 3/31/2020 AC + T (Taxol) Surgery 9/16/2020 Lymph node removal; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 11/3/2020 Xeloda (capecitabine) Dx 7/2021, Right, 2cm, Grade 3, ER-/PR-, HER2- Surgery 7/9/2021 Reconstruction (left); Reconstruction (right) Radiation Therapy Whole-breast: Breast, Lymph nodes, Chest wall Chemotherapy Carboplatin (Paraplatin)
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Oct 13, 2021 08:38PM moth wrote:

Melonda, sorry to hear this sucky news.

When you're ready, we have a liver mets thread https://community.breastcancer.org/forum/8/topics/...

also, if it's still triple neg, we have a stage 4 thread. https://community.breastcancer.org/forum/8/topics/... & I've made a list of mTNBC treatments here in this post https://community.breastcancer.org/forum/8/topics/... I think you'll want PD-L1 testing on your sample to see if you qualify for immunotherapy (pembrolizumab/Keytruda + chemo)

sending hugs

I take weekends off

Initial dx at 50. Seriously?? “Sometimes the future changes quickly and completely and we’re left with only the choice of what to do next." blog: Never Tell Me the Odds

Dx 12/2017, IDC, Left, 1cm, Stage IA, Grade 3, 0/5 nodes, ER-/PR-, HER2- (IHC) Surgery 12/12/2017 Lumpectomy: Left; Lymph node removal: Sentinel Chemotherapy 2/14/2018 AC + T (Taxol) Radiation Therapy 8/13/2018 Whole-breast: Breast Dx 2/2020, IDC, Stage IV, metastasized to liver/lungs, Grade 3, ER-/PR-, HER2- Chemotherapy 3/18/2020 Taxol (paclitaxel) Immunotherapy 3/19/2020 Tecentriq (atezolizumab) Chemotherapy 11/26/2020 Abraxane (albumin-bound or nab-paclitaxel) Dx 12/9/2020, IDC, Right, Stage IV, metastasized to lungs, Grade 3, ER+/PR-, HER2- (IHC) Radiation Therapy 12/9/2020 External Hormonal Therapy 12/16/2020 Femara (letrozole) Dx 1/28/2021, IDC, Left, Stage IV, metastasized to bone Radiation Therapy 3/3/2021 External: Bone
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Oct 13, 2021 08:44PM Sunshine99 wrote:

Melonda, I'm so sorry to hear of your new diagnosis. I think you'll find comfort here and on the other threads, like moth was suggesting.

All the best to you,

Carol

Cancer has progressed to my bones. I pray that it never enters my soul. Dx 11/2/2007, IDC, 3cm, Stage IIA, 0/3 nodes, ER+/PR+, HER2- Dx 3/26/2020, ILC/IDC, Stage IV, metastasized to bone, ER+/PR-, HER2- (FISH) Hormonal Therapy 4/22/2020 Arimidex (anastrozole) Radiation Therapy 5/5/2020 External: Bone Radiation Therapy 5/12/2020 External: Bone Targeted Therapy 6/10/2020 Ibrance (palbociclib)
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Oct 14, 2021 09:11AM Melonda wrote:

Thank you moth for those extremely helpful threads. I'm trying my hardest to not do a ton of research (which is my natural mode when I'm facing an illness) until I get my full pathology results and see the Oncologist for my treatment plan.

There was a fuckup at my hospital which I'm also trying my hardest to let go and not be furious about which delayed the pathology by a week. Luckily I'm going to The James, a major cancer center, and not the one that fucked it up. I'm just extremely anxious to get started at this point, I'm still in a lot of pain and want to start so that it shrinks and hopefully the pain reduces.

DX 7/6/07 @ age 25 - Medullary Carcinoma/Triple Negative/BRCA1+/ Bilateral Mast/ Recon failed/ DIEP @ NOLA 2010-Success!
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Oct 14, 2021 10:23AM mightlybird01 wrote:

Hi Melonda, I am also very sorry for the news. I am hoping for your treatment plan soon. The silver lining with the BRCA1 mutation, as was recently discussed in this group, is that it responds very well to chemo, which is hopefully the case for you and those mets melt to nothing.

Dx 4/12/2019, IDC/IDC: Medullary, Right, 2cm, Stage IIA, Grade 3, 0/3 nodes, ER-/PR-, HER2- (FISH) Chemotherapy 5/22/2019 AC + T (Taxol) Surgery 11/8/2019 Mastectomy: Right
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Oct 14, 2021 10:32AM mightlybird01 wrote:

meant to add, that if it is still TN, the amazing moth has done all the research for you, so you don't have to spend your time doing it yourself.

Dx 4/12/2019, IDC/IDC: Medullary, Right, 2cm, Stage IIA, Grade 3, 0/3 nodes, ER-/PR-, HER2- (FISH) Chemotherapy 5/22/2019 AC + T (Taxol) Surgery 11/8/2019 Mastectomy: Right

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