Topic: 22 Year DCIS Survivor-Just diagnosed with IDC

Forum: Just Diagnosed With a Recurrence or Metastasis — Meet others who are just facing the diagnosis of a recurrence of breast cancer or metastatic (advanced) disease. You are NOT alone.

Posted on: May 13, 2022 05:11PM - edited May 22, 2022 07:30PM by bluegirl27

Posted on: May 13, 2022 05:11PM - edited May 22, 2022 07:30PM by bluegirl27

bluegirl27 wrote:

***Uodate*** I saw breast surgeon and oncologist Tuesday. Clinical stage is 1A which is great although I realize this could change. I'm going for genetic testing next week, waiting for MRI on both breasts, then surgery in mid June. Right now, I have to have mastectomy on left breast as I cannot have radiation again. I may or may not need chemo depending if lymph nodes positive then definitely, if lymph nodes negative then will depend on Oncotype. Then 5 to 10 years of AI. If my genetic testing comes back positive then double mastectomy or if anything else shows on MRI. Been an exhausting week,telling a few more people. I'm an only parent to an amazing teenage daughter who happens to have Down syndrome and work full time, but luckily I work from home.


Well, here I go for round 2. Found out I have Invasive Ductal Carcinoma Grade 2, ER 3+, Pr 3+, HER 2 neg, Ki67 is 20%, P63 negative, Ecad positive

Already got a call from surgeon and go next week.

Surgery 6/2/2000 Lumpectomy Radiation Therapy Whole breast: Breast, Chest wall
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May 19, 2022 12:56AM hlya wrote:

hi, bluegirl27: Just hang in there! Beat it again.

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May 22, 2022 07:31PM - edited May 22, 2022 07:31PM by bluegirl27

I posted an update in my main post.

Surgery 6/2/2000 Lumpectomy Radiation Therapy Whole breast: Breast, Chest wall
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May 23, 2022 08:25AM cathy67 wrote:

bluegirl27,

Definitely I pray for node negative for you, however if 1 to 3 positive nodes, you are still eligible for oncotype dx to determine chemo benefit. Please look at oncotype website, they already got trial data, and insurance will cover, and I think nccn guideline also includes. If I were you, I would ask that question and I asked that question in year 2019, it turned out super low score, totally changed chemo planning.

I am sorry to hear, after 22 years, radiation still cannot re-do.

Always think of you.

Cathy


Oncotype 6, Dx 08/06/2019, IDC, Right, 2.1 cm, Grade2, 1/1 nodes,ER+/PR+, HER2- Surgery 9/10/2019 Lumpectomy; Lumpectomy (Right); Lymph node removal Hormonal Therapy 11/20/2019 Arimidex (anastrozole) Radiation Therapy 11/27/2019 Whole breast: Breast, Lymph nodes

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