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Topic: Feeling "fooled"...

Forum: Stage I Breast Cancer — Meet other members with a Stage I breast cancer diagnosis to share information and support.

Posted on: Jan 12, 2012 02:58PM, edited Apr 6, 2012 06:34AM by Faye33

Faye33 wrote:

Any other early stagers feel the medical world down played the seriousness of their diagnosis in the beginning?

I left my staging appt. after my surgery elated with a stage 1 diagnosis because they got "all" the cancer. I got the impression I was essentially cured.

Now the more I read, and the tendency my doctors seem to have to do testing to rule out a recurrence seem to tell me early stage isn't as positive a diagnosis as everyone made it sound in the beginning.

Anyone else feel they were a little misguided in the beginning?

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Posts 31 - 60 (199 total)

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Jan 17, 2012 09:13AM , edited Jan 17, 2012 09:14AM by Denise2730

I understand all of this. I assumed having a DMX would "cure" me. Then I have my first appt. with the oncologist who tells me because I had one positive lymph node that they will start chemo. I almost fell out of my chair! He also wanted me to do hormone blockers and when I refused both, tried to talk me into radiation. What he was planning on radiating is anyone's guess and even my new oncologist was surprised.

So I went from thinking "okay the DMX will take care of it, I'll get the boob job I've wanted for a couple of years now and everything will be fine". Boy either I was delusional or ignorant.

I started the Femara the end of November and quit taking it 2 weeks ago. The pain wasn't worth it. IMO it's all a crapshoot anyway. There are women out there who do everything their doctors want them to do and still succumb to this shitty disease and then there are others who survive despite doing nothing.

A year ago my biggest concern was trying to make ends meet after being widowed. Now every day I live with the cancer lurking in the background ready to rear its ugly head without notice. PLUS I have to have my reconstruction redone so I'm in a very unhappy place right now.

Where's the effin cure!!!!

Denise

DMX 8/11/11 - TE's put in. Exchange date was December 16th. Hate them and had them redone by a different PS in June, 2012. They look so much better. Still waiting for nips & areolas. Dx 4/29/2011, ILC, 1cm, Stage IIA, Grade 2, 1/7 nodes, ER+, HER2-
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Jan 17, 2012 02:56PM VLS248 wrote:

I feel very confused I been fighting breast cancer since 2009 had both removed went through chemo had to take herceptin I am HER2 progressive and I just found out the day before XMAS that I have heart disease had heart surgery last week of december. my onc called said he do not want to be my doctor anymore I feel like while I was treated with herceptin they should have checked my heart more closely. my blood pressure was very high each time I went to clinic for treatment. I am scared and confused about my health and noone is giving me any answers.

Dx 5/5/2009, , Stage IIB, mets, ER-/PR-
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Jan 19, 2012 09:25PM lsilang wrote:

Happy 2012.. I thought I have moved on with my life after my MX in June 2011 with no treatments, but I was wrong.  After less than 6 months,  they found a tumor in the same area, local recurrence.  I always had the thought that cancer comes back, but not this soon.  Next week, I'm going under the knife again, followed by radiation therapy.

All the oncologist could tell me is she is surprised how a well behaving cancer with good PX could come back this soon.  My case was presented in a Multi-Disciplinary meeting. Good luck to all of us here..I wish you all the strength to fight our foe.

I

lsilang Dx 5/27/2011, IDC, 1cm, Stage I, Grade 2, 0/3 nodes, ER+/PR+, HER2-
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Jan 20, 2012 04:47AM dancetrancer wrote:

lsilang, I am so sorry to hear about your recurrence. Frown  Uggh.  Wishing you well with the surgery and rads.  What a long, tough road this can all be.   Wishing you strength as you forge ahead! 
Cold caps work! coldcapphotos.shutterfly.com/p... TCH: 4/10 - 6/13/12; 33 rads; BMX w/fat grafting; DX: 7/29/11 @ age 43: Stage 1A on L (3 mm IDC w/ 6 cm DCIS, Gr 2 ER/PR+, HER2+) 0/3 nodes; Stage 0 on R (2 mm DCIS); see bio.
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Jan 20, 2012 05:00AM JoanQuilts wrote:

There are no guarantees in life.  Which means that no doctor can guarantee that your cancer will not come back, because there is always the chance of recurrence.  That said, MOST early stage breast cancers DO NOT recur.  It is definitely better to catch it early than to catch it "late" for the vast majority of women.  However, there will always be a small percentage of women whose early stage cancer will continue to plague them.  If we could say with certainly that cancer could be cured for ALL women, there would be no need for this message board.

At my first diagnosis in 1992 (Stage 1, no nodes, lumpect. rads and chemo) I was a complete wreck, curled up into a little ball for about 2 years. About 15 years after my 1st diagnosis, I completely stopped worrying about that particular cancer coming back and barely gave a thought to my upcoming mammograms and clinical breast exams.  And although I was diagnosed with a new primary last month (19 years after the original), I remain convinced that I was "cured" of the first and that my body simply has the tendency to produce breast cancers (despite my negative BRCA status), much as others might have a tendency towards developing moles on their skin or thinning hair.

Diagnosed 10/92, lumpectomy, CMF. Diagnosed with second primary 12/11 (19 years later!). . BMX with TEs to implants; 6 rounds of TC. Dx 12/6/2011, IDC, <1cm, Stage I, Grade 3, 0/0 nodes, ER-/PR-, HER2- Surgery 1/5/2012 Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 2/5/2012 Cytoxan (cyclophosphamide), Taxotere (docetaxel)
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Jan 20, 2012 10:45AM , edited Jan 20, 2012 10:45AM by peggy_j

lsilang, I'm so sorry to hear about your recurrence and the fact that it happened so soon. It doesn't seem fair. This whole thing feels like such a crapshoot. I'll be thinking of you next week when you have your surgery and sending good vibes. We're with you on this.

Dx 2/2011, IDC, <1cm, Stage IA, Grade 1, 0/3 nodes, ER+/PR+, HER2-
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Jan 20, 2012 11:49AM ILBoysMom wrote:

I think it's all about living a "new normal."  I don't think that the thoughts will ever leave.  That's why I am moving forward with having my port removed rather than waiting longer now that treatment is over.  Otherwise, how long do you leave it in and just wait?  I am so tired of people telling me that "you are lucky they caught it early because now it's over".  It's always going to be in my mind everytime something hurts from now on.

Dx 4/13/2011, IDC, 1cm, Stage IIA, 1/8 nodes, ER+/PR+, HER2+
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Jan 20, 2012 12:03PM Mandalala wrote:

I got my diagnosis in September 2011, and since I heard the report from surgery – no cancer in the sentinel node and clear margins – I consider myself cured. But nobody told me that any treatment would guarantee no breast cancer again ever. On the contrary, they said what the risks were. But I know, from similar situations earlier in life, how easy it is to take anything positive as a lifetime guarantee ... not saying that's what you did, but that's what once made me feel as fooled as you do now. 
Dx 9/13/2011, IDC, 1cm, Stage I, Grade 1, 0/1 nodes, ER+/PR+, HER2-
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Jan 20, 2012 12:59PM Artemis wrote:

No, I don't feel fooled because I've never believed for one minute that my cancer could be cured.  Sent into remission?  Yes.  For how long?  Who knows.

I'm not being all negative and thinking that it'll definitely come back. I figure either it will or it won't.  

I do get a bit ticked off when some people act as if it's no big deal.  I blame the Pink Ribbon crap for that.  "Oh, you caught it early HOORAY!  Let's wear silly pink shirts and go for a run through pink ballons rah rah rah!!"

I also blame celebrities who go on all the talk shows and say they're cured.  Wanda Sykes said that her BMX meant that she had 100% chance of not getting BC again.  Christina Applegate said she is 100% cancer free.  Either these ladies have doctors who are misleading them, or they don't understand the risks, or they are flatout lying themselves.  

Eh.  I'm sorry if I sound harsh.  I'm in a ratty sort of mood today.

DD ACx4, Tx4. BMX 6/1/2009. Tamoxifen: 2009-. Rads 28/28. Herceptin 18/18 Dx 1/6/2009, IDC, 5cm, Stage IIB, Grade 3, 1/2 nodes, ER+/PR+, HER2+ Hormonal Therapy 6/15/2009 Targeted Therapy Herceptin (trastuzumab) Radiation Therapy Chemotherapy AC + T (Taxol)
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Jan 21, 2012 12:08PM , edited Jan 21, 2012 12:09PM by jenlee

Upon diagnosis, I consulted with 4 surgeons and they all said something to the effect of, "you'll be at your child's graduations."  They must say that to everyone.  Or at least to the ones like me who seem like such basket cases.  I must say though, the oncologists have been a bit more solemn.

Jenifer, completed TAC x 8 on 4/24/2012. Lumpectomy on 5/23/2012. BMX & immediate DIEH stage 1 on 6/5/2012 NOLA; stage 2 surgery 10/4/12 NOLA. Tamoxifen since 6/2012. Switched to Arimidex 9/2013. Dx 10/20/2011, IDC, 4cm, Stage IIA, Grade 2, 0/1 nodes, ER+/PR+, HER2-
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Jan 21, 2012 01:53PM Mandalala wrote:

Artemis – Yes, there is always a risk of having bc again, just like there is a risk of catching the flu again, or meningitis, or whatever (I am not comparing the seriousness of one illness to another here). But why would it be wrong to consider oneself cured from cancer, just because it might come back?
Dx 9/13/2011, IDC, 1cm, Stage I, Grade 1, 0/1 nodes, ER+/PR+, HER2-
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Jan 21, 2012 02:06PM , edited Jan 21, 2012 02:26PM by bedo

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Jan 21, 2012 02:44PM Artemis wrote:

Mandalala ~ For me, I think that thinking I was cured would give me a false sense of security.  I'm sure it comes from my grandfather's colon cancer; he was supposedly "cured", and within a year it came roaring back and killed him.  I truly felt "fooled" then.  

So, no, there's nothing wrong with considering oneself cured.  It just doesn't work for me.   

Artemis 

DD ACx4, Tx4. BMX 6/1/2009. Tamoxifen: 2009-. Rads 28/28. Herceptin 18/18 Dx 1/6/2009, IDC, 5cm, Stage IIB, Grade 3, 1/2 nodes, ER+/PR+, HER2+ Hormonal Therapy 6/15/2009 Targeted Therapy Herceptin (trastuzumab) Radiation Therapy Chemotherapy AC + T (Taxol)
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Jan 21, 2012 02:50PM wildrumara wrote:

I enjoyed reading the posts on this particular forum..........I often feel like a lot of you do.   My attitude since my diagnosis (August 2011) has not been "why me", but "why not me".......this is life, and some of us, unfortuntely, have a predisposition to produce cancer cells.  I'm also disturbed by the "beautification" of breast cancer.....such a farce, but I suppose it does bring awareness.   

Deep down I always knew that I would probably get cancer (strong family history on my mom's side), but I never thought I would be diagnosed at 42.....62 maybe, but not 42!!  Most of my family, including my mom was over the age of 60, except for an aunt who was diagnosed in her late 50s from breast CA.  I am the youngest ever to be diagnosed.   That part sucks.  My beautiful family has to suffer along with me.....I have three kids, 13, 11 and 9.  I remind myself daily that I'm not raising any "sissys" by them going through this with me....this will make them resilent for whatever curveballs lie ahead of them in life.....they will be ready to deal with adversity.  I can only hope and pray that I will be there to hold their hand during those times......if you have faith, you have to believe that God has a plan for all of us and that is what keeps me going!

Aug 2011, dx wth IDC Stage 2, oncotype 25, neoadjuvant chemotTC X 6, BMX with reconstruction, Tamoxifen March 2012, April 2014, two small mets discovered on liver. Arimidex, May 2014 Liver wedge resection. June 2014 SBRT of second liver lesion. Dx 8/23/2011, IDC, 2cm, Stage IIA, Grade 2, 2/20 nodes, ER+/PR+, HER2- Chemotherapy 9/29/2011 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Surgery 2/28/2012 Hormonal Therapy 3/26/2012 Dx 4/2014, IDC, Stage IV, mets, ER+/PR+, HER2- Hormonal Therapy 5/7/2014 Arimidex (anastrozole)
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Jan 21, 2012 03:55PM rozem wrote:

hello

i found this topic interesting aswell

I just finished most of my treatments - still have to do rads

what drives me crazy is that friends and family want me to "get on with it", "get this behind you" as soon as I am done treatment.   I think the general perception is that all you have to do is be the good patient - have your surgeries, chemos, rads, hormone therapies and you are cured -do everything they tell you to do and move on. 

little do they know that we ALL regardless of stage fear the beast and no one can ever really say that we are "cured"

FEC-DH, LUMP, 25 RADS, TAMOX, BMSX with LD flap (worst surgery ever) Dx 8/2011, IDC, 2cm, Stage IIA, Grade 3, 0/2 nodes, ER+/PR+, HER2+
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Jan 21, 2012 03:55PM isa wrote:

wow! That's my story too. I was prepared to get bc one day, but not those days when my kid is only 3 years and a half old and me not yet 34. Crying doesn't help. I must believe that those 90 procents of no recurence will be my case too. God help us all.

Dx 12/4/2011, IDC, 1cm, Stage IB, Grade 2, 0/6 nodes, ER+/PR+, HER2-
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Jan 21, 2012 04:01PM bgail84 wrote:

I don't consider myself cured either. My family is another story. They don't talk about BC and act like all is well. I feel it will come back someday. Like you guys I just don't know when or where. So I will do what my doctors tell me, try to live healthy and hope for the best. That is all any of us have anyway no matter what the disease is.

surgery -11/03/11. No chemo, oncotype score 12 with 8% recurrence rate. 25rads,5boosts. Dx 10/27/2011, IDC, 2cm, Stage I, Grade 1, 0/3 nodes, ER+/PR+, HER2- Radiation Therapy 11/21/2011 Breast, Lymph nodes Hormonal Therapy 2/1/2012 Aromasin (exemestane) Hormonal Therapy 5/11/2014
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Jan 21, 2012 04:02PM , edited Jan 21, 2012 04:12PM by Hindsfeet

 Artemis, in defense of the celebrites who go on t.v. and say they are cancer free it's not all their fault. They are told by the medical establishment that they are cured. After my first lumpectomy, the bc surgeon came into the little room where I waited with a huge smile and said, you are one of the lucky ones. You had the good cancer. You only had DCIS. No node involvemnet. A few days later she called and gave me the final report. I got wide margins so I got it all. I was cancer free. She did send me to a rad oncologist for consultation as it's "standard" care. I did my homework and brought in a list of information, studies, and questions. I said to the rad oncologist, I only have stage 0 ... they got it all. Can rads cause a recurrence? What's the likely hood for me to have a recurrence? Since they only considered the final path report the cancer wasn't as large as expected. The rad oncologist said (he might not have been correct about the %) I had a 5% advantage if I did rads. He did say, yes, rads could cause another cancer...he wouldn't guarantee it wouldn't. I said in the very beginning I was open to further treatment for stage 0 if it meant my life. He said, no ... the odds is you will never again be dx with bc ... most early stage bc women feel better throwing the kitchen sink at the big C.(cancer). He said, I recommend it because they feel better about doing everything they can to keep the cancer from ever returning.

With that said, I felt confident that I was cancer free. After all I was only stage 0 as the ro said the odds were on my favor. The rads was mostly to catch any rouge cancer cells and even then I could have a recurrence.

One yr. later I was dx again...final path report multifocal dcis, again grade 3 como type. Different bc surgeon said again I was fortunate that there was no invasive component, stage 0....but I was high risk for a recurrence. I needed to be watched like a hawk...screenings every 6 months. She would had done more, but being self pay, I had to wait until I turned 65 before considering more.

Because, the second surgeon didn't say, I was lucky, and cancer free for the first time, I knew although early stage 0, I became very cancer concern and for the first time began a journey to learn why my body was making cancer cells. It's been a very complex journey and I'm still getting it together.  

The whole early stage staging to me is all screwed up. Stage 0 gives you the false sense that you are one of the lucky ones. You got the good cancer. Because, the first dx in 2007 right under the lumpectomy scar they of recent found idc, grade 3, with the her2+++ factor....so one of the stage 0 dcis on what they said were wide margins ended up showing it' self again Oct 4th 2011. So, I had a mx on the right breast. Aftewards I again told that I am cancer free. The oncologist also said with the mx and scans showed no cancer that I am cancer free. Yea! I'm done.

Don't tell me I'm cancer free, and then in the next breath tell me now you have to do chemo, herceptin, anti hormone drugs, and whatever. I said what if there are side effects, and she said, we'll give you more drugs for the side affects. All this for stage 1a. In one breath I am lucky and in the next breath I'm not so lucky. Also, with treatment that there still 15% for a recurrence.

So, when people learn they say to you, how lucky you are that you aren't stage IV. If I was to follow the protocol as most stage 1 bc women cancers I would be doing just about the same treatment as those who have stage 2 or maybe 3 cancers (loosing your hair, hormone treatments for 5 yrs, rads or heceptin with its risks of heart problems) and then the doctor tells you that you might have micromets not picked up by the scans and in a year or so you could have mets. I am lucky???

Last March in my other breast I was dx with mucinious. I was told, you are really lucky. Yes you have idc, but this is a good cancer, favorable. I read and learn it moves slowly and rarely mets or goes into the nodes. I am dx as stage 1. I don't need chemo. So my two dx are the same, stage 1a yet different treatment plans. I thought staging was for treatment plans? This is really mixed up because you assume stage 1 treatment plans are pretty much the same.

So for three years since my 2nd dx, I've had to make sure I'm screened every six months. So far, I'm forunate. I've caught it early...but I know that my body can make cancer cells. Even if I do the herceptin for a year there is no guarantee that in another few years I won't again be dx with cancer.

Altough, my oncologist did say due to my history, I'm at high risk for cancer. That was said much later after I questioned the treatment for stage 1a. Yet, I am not going to let cancer define me. I am a senior, and with what days in my life are granted for me to live, I want to live without cancer lurking at my heels. I want to stay positive. I will have to continue to be screened every 6 months. But, I've decided after my reconstruction and treatment, I'm moving on for awhile. This whole cancer thing can get into your head in a negative way. So...between screenings or whatever I want to feel good, eat well, exercise, stay positive, not worry, and live life.

So feeling fooled...yes...I think the staging 0 and early staging can fool you into a false sense of feeling cancer free. Once dx, we've vulnerable to another dx...and as we age, we are vulnerable to heart attacks, strokes and other diseases. We can't live the rest of our lives in fear of dying or disease. Life happens.

  

Dx 6/13/2014, IDC, 1cm, Stage IV, Grade 3, mets, ER+/PR+, HER2+
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Jan 21, 2012 09:24PM Mandalala wrote:

Artemis – Then I understand – it depends on what you mean by "cured". (Whoever Wanda Sykes is, of course she can't be 100% sure of not getting bc again, unless she knows she will die from something else the next day.)
Dx 9/13/2011, IDC, 1cm, Stage I, Grade 1, 0/1 nodes, ER+/PR+, HER2-
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Jan 23, 2012 07:42PM inthepink49 wrote:

oh boy when I read this forum I thought I have to join. I am having such a time dealing with my decision in the beginning and how I was mislead by my BS. She did tell me I had stage 1 curable cancer. I would just need rads no chemo and just take a little pill for 5 years and thats it piece of cake she said.oh and she does not believe in taking a breast when one doesnt need it taken. a lumpectomy in my case was the way to go. I knowing nothing and scared and not given time to think left the office that day with a surgical date.well no chemo no chemo she said.your oncotype will be 0 im sure. I thought great I believed it. My oncologist said if it below 18 no chemo but if it fall in the middle they would recommend it because I was 48 and should go aggresive. I said ok cause I believed my BS and it would be 0 Well to makemit short my oncotype was 20 I did chemo and rads and now have come to find out that I 2 nodules found not 1 which she never told me until she had to and I canniot take the little pill that was a piece of cake because my body cannot tolerate them. We tried 4 different ones and my onc said enough is enough. If I could do it all again I would have had a mast if maybe I was given a chance to think and told of some of the things that can happen. Not everything goes perfect all the time. I would have liked to know everything good  or bad. i have trunkal lymphadema that my BS says I dont even though the pt specialist says I do and have been treated twice for. I am now stuck with worrying about a reoccurance because I have my breasts still and cannot do the HT which i was told was the most important part of my treatment.

I have been thinking about going for a second opinion(new BS) and maybe think about whether I should listen to my friends and other bc girlfriends about having the mast now if it will give me piece of mind. Anybody have any thoughts on this. I am so confused about whether it is something to think about. 

Dx 7/24/2010, IDC, 1cm, Stage I, Grade 1, 0/2 nodes, ER+, HER2-
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Jan 24, 2012 05:13AM sbaaronson wrote:

I have never felt that I was cured or this was over. I vacillate from certain it will return, to certain it won't. My pathology showed an aggressive tumor with every bad marker possible, not BRCA+, but the p53, bcl-2 and ki-67 are all part of the equation. In addition, being a health-nut and exercise fanatic didn't prevent this, so I have a hard time believing that this behavior will make much of a difference now. I think the best case scenario is it doesn't come back, the second best is we all have years, preferably into our 80's before it does return. In the meantime, tomorrow is promised to no one... I'll tell you, I had a big career and was a crazy working divorced mother for my children's childhood. With one at college now and the second on her way, I am hoping to have years ahead to be a part of their lives.

Dx 8/15/2010, IDC, 4cm, Stage IIA, Grade 3, 0/13 nodes, ER+/PR+, HER2-
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Jan 24, 2012 05:21AM , edited Jan 24, 2012 05:26AM by LtotheK

I felt so overwhelmed it would probably be unfair to point fingers at my team.  What I really had issue with was the fact the hospital where I got treated has a slew of important, free services for patients they never bothered telling me about and I had to find out by coming here!

I think a lot of this is perspective.  I am a stage 1, grade 3 IDC patient, ER+.  Is it serious?  My goodness, yes.  Will it come back?  Well, statistically, I have 1% each year of a secondary primary, which means if I live long enough, it is quite possible.

As a young patient, what was abundantly clear is that there were no correct or straightforward answers.  Oh, how I wish my oncologist could say "no, you don't need chemo".  But after three opinions, I was convinced that was the best option for me.  So, in fact I felt my team was pretty pushy about going agressive and taking this very seriously.

But what are we comparing it to?  Our stage III and IV sisters?  I think our oncologists see such grim scenarios every day that their perspective is one of great hope and happiness when they see a patient they believe can be cured, or at least helped to the point of moving on.

I also believe, and it's one person's opinion, that those who speak of cures and absolutes are not living in the real world.  Life doesn't work that way, why would cancer?  I do have to be a public service announcement for friends because so many of our celebs give such insane erroneous info on this disease.

I also maintain sincere hope that if I make it to my five year mark (three to go!), we will start to see improvements in treatment.  They are already figuring out a way to do the SNB without cutting!

Keep the faith, my friends.

Inthepink, et al:  when in doubt, seek THREE opinions.  This will help, trust me!

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Jan 24, 2012 05:23AM , edited Jan 24, 2012 05:24AM by LtotheK

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Jan 24, 2012 05:29AM LtotheK wrote:

Otter and Annette, glorious posts!

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Jan 24, 2012 05:37AM barbe1958 wrote:

LtotheK, as an ER+ patient, though you were grade 3, ER+ tends to be a slower growing breast cancer. We have to start worrying WHEN we reach year 5!!!! Don't kill the messenger!!

As for stage, bear with me, but I think ANYONE hearing cancer and their name in the same sentence are changed forever. It's like being "a little bit pregnant", there isn't just a "little cancer diagnosis".

Religion is for people who are afraid of hell, spirituality is for people who have already been there. (Lakota Nation) Dx 12/10/2008,
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Jan 24, 2012 06:16AM LtotheK wrote:

Hi Barbe,  interesting! I thought we were at risk the whole way through (year 1 and 2 being the most dangerous), and the newest studies indicate ER+ patients are at risk for recurrence forever.  But, I've also heard the percentage goes down.  Confusing.  Any further info on this so appreciated.

No doubt re: stage.  I'm not trying to suggest ours is "less", I'm trying to speak from the oncologist's perspective.  I saw my onc's crestfallen look day after day telling patients there was nothing more that could be done.  Their treatment of me was very, very hopeful!

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Jan 24, 2012 06:19AM barbe1958 wrote:

Oh, no mistake! We do have to worry the first 5 years too, but then we have to kick it up a notch after the 5-year mark! I got angry when I found that out as I "assumed" we were considered in remission after 5 years. There are all sorts of articles on Google to read. When you start reading it sounds like ER+ is SUCH a good prognosis...and then you keep reading...sigh.

Religion is for people who are afraid of hell, spirituality is for people who have already been there. (Lakota Nation) Dx 12/10/2008,
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Jan 24, 2012 07:22AM Beanpole wrote:

I too have felt like I have nothing to worry about as far as a re-occurance until I saw the Today Show today that Charla Krupp died from Breast Cancer. They said she was diagnosed three years ago with stage one and was treated with a lumpectomy, radiation, and Tamoxifen and it came back as stage 4. I sure wish we had the whole story and knew what her grade and her  HER2 status was.

Dx 8/19/2011, IDC, <1cm, Grade 1, ER+/PR+, HER2-
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Jan 24, 2012 07:35AM dancetrancer wrote:

Beanpole, I just saw that story this morning, too.  Any story like this makes my anxiety level go up.  <sigh>  It is what it is.  Wish we knew more of her specific story as well. 

Cold caps work! coldcapphotos.shutterfly.com/p... TCH: 4/10 - 6/13/12; 33 rads; BMX w/fat grafting; DX: 7/29/11 @ age 43: Stage 1A on L (3 mm IDC w/ 6 cm DCIS, Gr 2 ER/PR+, HER2+) 0/3 nodes; Stage 0 on R (2 mm DCIS); see bio.
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Jan 24, 2012 08:58AM LittleMelons wrote:

Beanpole - Yes, this is scary for people who have had lumpectomy, radiation, anti-hormonals and no chemo.  I've been looking all over the internet for more information on Charla Krupp's original diagnosis and her treatments, but couldn't find anything.  Do you know of a site where there is more information about this.  Thanks!

Dx 8/18/2010, IDC, 1cm, Stage IA, Grade 2, 0/2 nodes, ER+/PR+, HER2-

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