Topic: CALLING ALL STAGE I SISTERS

Forum: Stage I Breast Cancer — Meet other members with a Stage I breast cancer diagnosis to share information and support.

Posted on: Nov 6, 2009 11:34AM - edited Apr 6, 2018 09:42PM by sheila888

Posted on: Nov 6, 2009 11:34AM - edited Apr 6, 2018 09:42PM by sheila888

sheila888 wrote:


Sheila♥ Dx 4/8/2005, IDC, Right, 1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2+ Dx 8/21/2015, IDC, Left, 1cm, Stage IIB, Grade 2, 1/3 nodes, ER+/PR+, HER2- Surgery 10/12/2015 Mastectomy: Left; Prophylactic mastectomy: Right Dx 11/2018, IDC, Stage IV, metastasized to bone/liver/lungs, Grade 2, ER+/PR+, HER2-
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Aug 20, 2020 11:45AM - edited Aug 20, 2020 11:52AM by joan811

Hi Lucy55,
I am doing well. It has been a tough year for BCO old-timers...will send a PM.
I hope you are doing well and that the virus threat is getting better.
It will be 9 years (next week) since my Stage I lumpectomy. I am happy to say my surgeon's reassurance about all my concerns turned out to be well-founded so far!
I am glad to see that newly diagnosed ladies are finding this thread where they can talk about their upcoming procedures and concerns. I remember it well...all those questions and uncertainties.
I have made life-long friends here. My original thread from August 2011 has gone quiet but occasionally we touch base.
====
farmerlucy, you had quite a time with your BMX followed by dx. I am going to send a PM about your elective ovary removal.
====
My question remains -- why oh why have female cancers not been decoded for vaccine or cure? Yes, it's "treatable" but disrupts physical, emotional, family, social, and occupational life, to name a few.
Best wishes,
Joan

Courage is not choosing to be brave; it is standing firm in the face of adversity when choice is limited. Dx 7/20/2011, IDC, Left, 1cm, Stage IA, Grade 2, 0/2 nodes, ER+/PR+, HER2- Surgery 8/29/2011 Lumpectomy; Lumpectomy (Left) Radiation Therapy 11/29/2011 Hormonal Therapy Femara (letrozole)
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Sep 12, 2020 08:44PM Nadinenadine wrote:

Hi there my fellow Breast Cancer Sisters and Brothers...I am still cancer free after 11 years. In the beginning and for a long time I had a rough time with the reality of having BC. I did the 5 year drugs and gained a ton of weight. ( I have since lost it all and then some). I wrote a journal when I was up to it on my daily/and or weekly ways I felt. I have only opened it a couple of times over the years and to this day know it was the best thing I did to write it out. I have not been able to actually sit down and read it all. It was difficult times for me. Now all of the years later I will admit I have life long chemo brain and other side effects due to chemo. But over all things are a thousand times better for me. I decided against reconstruction. That was my personal choice and still feel the same on that choice. I wear bras that are more attractive than I did back before BC. I have a form that fits nicely into these "special" bras and unless I tell someone I have only one breast no one knows. My BC wasn't found by a mammo but rather a growth of a different sort that my primary doctor found. Within two weeks I had my surgery and had my breast removed. The thing I can't stress enough now is ask a lot of questions and ask even more questions. My cancer was found in a biopsy that was done. I was stage one. My surgeon didn't feel I would need to have chemo but was told to meet the chemo doctor anyways. Way that is where my questions were not coming out of my mouth. All I could think of was I had just lost a breast and now he wants to do chemo. My chemo was a rough road. Long story short I had no port but did beg the doctor to give me one since my veins were blown and I was a terrible sore mess and only limited to one arm for the chemo. He actually laughed at me and told me I was have way done with the treatments. Stupid me I didn't know where to turn or what to do and continued on. My very last treatment check up I fired him!!! I then got a different doctor who is a wonderful doctor and continues to this day to be my doctor. I see him once a year. He is my saving grace for sure!

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Sep 14, 2020 06:05AM joan811 wrote:

Hi Nadine,
Thanks for sharing your story. I think your advice to ask questions all along the journey is the best advice.
It's too bad that your chemo oncologist was not listening. Did you ever get that port put in? I cannot tell from your story...Yes, you probably should have consulted another oncologist about that problem with the veins.
Good for you for switching doctors.

I did not like my first medical oncologist who was young and flipping her hair and looking at the computer and not at me during my appointment. She told me that it was my choice after surgery whether to have chemo or not. (all her years of education, and she left it up to me) She explained the side effects and i said I felt terrified. Her answer was "well, you asked me to tell you!"

I did the onco type test which came out at 13. She told me that was a borderline score. I spent the next two weeks agonizing over my decision. I called a few other doctors. I finally had one doctors tell me that my score was low...and that if I were her patient she would not recommend.

So I chose not to have chemo. There was a frequent turnover in oncologists, so I had a few. That was 9 years ago this fall.
===The other thing you mentioned was keeping a journal. I strongly believe that writing things down helps so much. When we look back, we can remember what happened; but the memory is safe in our writings so we no longer have to keep it in our mind. And when we do choose to look back, we often realize how much better we feel now, and how we rose to the challenge.

I hope you continue to do well!

Eight more days of summer!!!!

Joan

Courage is not choosing to be brave; it is standing firm in the face of adversity when choice is limited. Dx 7/20/2011, IDC, Left, 1cm, Stage IA, Grade 2, 0/2 nodes, ER+/PR+, HER2- Surgery 8/29/2011 Lumpectomy; Lumpectomy (Left) Radiation Therapy 11/29/2011 Hormonal Therapy Femara (letrozole)
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Sep 16, 2020 04:03PM edwards750 wrote:

13 is not a borderline score. Good grief. It’s low. Mine was 11

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Oct 1, 2020 10:51AM Carrieleeb wrote:

I am stage I Grade 2. I have been given the choice of lumpectomy with radiation or mastectomy. My HER2 came back negative so for now no chemo is needed. I am waiting for my genetics test results.

I am contemplating doing a double mastectomy with reconstruction with implants. I really don't want to do radiation or worry about having breast cancer again.

Any pros or cons or help with deciding which route to go? I understand we are all different but could use some other's experience.


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Oct 1, 2020 11:57AM debal wrote:

hi Carrie, I had very dense breasts, PR neg and just could not deal with worrying about what would be missed on mammogram every year. It took 3 years for my BC to show up. No regrets for the path I chose. Please know there is still worry after double mastectomy. Statistically it does not lessen your chance of metastasis but I believe slightly lower for local recurrence. Take your time in deciding. I'm sure others will chime in. Take care

Dx 1/22/2018, IDC, Left, <1cm, Stage IA, Grade 1, 0/3 nodes, ER+/PR-, HER2- Surgery 2/11/2018 Reconstruction (Left): Tissue Expander; Reconstruction (Right): Tissue Expander Surgery 2/12/2018 Mastectomy; Mastectomy (Left); Mastectomy (Right) Chemotherapy 4/1/2018 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 6/13/2018 Arimidex (anastrozole) Surgery 8/8/2018 Reconstruction (Left): Fat grafting, Silicone implant; Reconstruction (Right): Fat grafting, Silicone implant Surgery 12/19/2018 Reconstruction (Left): Fat grafting; Reconstruction (Right): Fat grafting Surgery
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Oct 2, 2020 07:32PM janett2014 wrote:

Carrileeb,

I was also Stage 1, Grade 2, Her2 neg. Because it was in both breasts, my breast surgeon recommended bilateral mastectomy, and I chose to have reconstruction with implants. I had surgeries, but no chemo and no radiation. I’m happy with my choice which was 6 years ago.

I feel like I got two “good” things out of it: a breast reduction which I needed, and no more mammograms. Make no mistake though, I definitely CAN get breast cancer again. I do have regular checkups though with my breast surgeon and oncologist (plastic surgeon too for 3 or 4 years or so after surgery). I think there’s a good chance that if it happens it will be caught early.

The decision is very personal; do what feels right for you.

Diagnosed age 60 with IDC in 2014. Stage 1A, Grade 2, 0/10 nodes, ER+/PR+, HER2- Cancer on both sides, bilateral mastectomy, reconstruction with silicone implants, Oncotype 16, Arimidex (Anastrozole) 5 years. There are more details in my biography.
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Oct 2, 2020 07:40PM celiac wrote:

Carrieleeb - I went with lumpectomy, radiation and aromatase inhibitors. My tumor was small and not rapidly growing. No chemo was done, based on Oncotype results. Not sure exactly what size tumor you have or if other factors are leading you towards mastectomy & implants. Tough decisions once this journey begins. Hope you have a good cancer care team and support system.

Dx 12/2/2016, DCIS/IDC, Left, <1cm, Stage IA, Grade 1, 0/1 nodes, ER+/PR+, HER2- Surgery 12/20/2016 Lumpectomy; Lumpectomy (Left); Lymph node removal Radiation Therapy 2/20/2017 Whole breast: Breast Hormonal Therapy 4/4/2017 Arimidex (anastrozole)
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Oct 4, 2020 06:11AM - edited Oct 4, 2020 06:12AM by farmerlucy

My thought is if you are unsure, start with the least invasive surgery. My breasts were extremely dense and up to no good. I did the Bi lateral mastectomy and never looked back. It's not the same as my original breasts, but it is what it is. My implants are under the muscle. I don't even own a bra. That is the best part. I did 3D nipple tattoos so there is no bump. I'll be nine years out in February. I still have the original set. I haven't had any issues with them. It always feels a bit tight over the muscle, but there is no pain. It's the new normal.

Dx at 51 after a preventive mx that wasn't. Oncotype dx 3. 3D tattoos from Vinnie! PTSD?? You are not alone! Surgery 2/21/2012 Prophylactic mastectomy; Reconstruction (Left): Tissue Expander; Reconstruction (Right): Tissue Expander Dx 2/24/2012, IDC, Right, 1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2- Surgery 3/11/2012 Lymph node removal Surgery 7/22/2012 Reconstruction (Left): Silicone implant; Reconstruction (Right): Silicone implant Hormonal Therapy 4/10/2013 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 4/14/2015
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Oct 4, 2020 07:20AM marie914 wrote:

lostpup - I had a single mastectomy and reconstruction on September 14. I had two drains and both were removed. One at 4 days and one at 9 days. They wanted to give me six weeks and I took two weeks. So I started back this past Monday. I work from home and on a laptop. I did have trouble with typing with left arm. I was really tired the first two days but by the end of the week was okay except for left arm aching. I tried to support it when I was typing.

I would maybe take three weeks if I had to do it again. especially if you have to go into work or really active at work. I mostly sit at work.

Good luck with recovery.

Dx 7/31/2020, DCIS/IDC, Left, 2cm, Stage IIA, Grade 2, 0/8 nodes, ER+/PR+, HER2-, Surgery 9/14/2020 Lymph node removal: Sentinel; Mastectomy: Left; Reconstruction (left): Tissue expander placement Chemotherapy 11/6/2020 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Surgery 1/31/2021 Reconstruction (left): Silicone implant Hormonal Therapy 2/8/2021 Femara (letrozole)

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