Nov 27, 2018 09:38PM Oceanbum wrote:
Thank you, DeeBB. Hugs to you.
Posted on: Nov 6, 2009 02:34PM - edited Apr 7, 2018 12:42AM by sheila888
Posts 15121 - 15150 (15,236 total)
Nov 27, 2018 09:38PM Oceanbum wrote:
Thank you, DeeBB. Hugs to you.
Nov 28, 2018 03:20PM DeeBB wrote:
Good afternoon! Hope everyone is doing well today. I tell you what, it feels like if it's not one thing it's another. I had to go the doctor today because of a sore on the breast I had a lumpectomy on and guess what? I now also have the shingles.
I hope everyone else is doing ok.
Oceanbum; I was thinking about you today hope you're feeling ok. Gentle hugs to you.
Nov 28, 2018 03:29PM Oceanbum wrote:
Oh no, DeeBB! I pray that you heal quickly!
I'm feeling ok today. I'm still very sore but working through it. I am using a heating pad in the evening when I get home from work and that helps some. My scan is still a week away so the worries will continue for another week. Thank you so much for thinking of me! Hugs to you, too!! I hope you are feeling OK and aren't experiencing too much discomfort from the shingles.
Nov 28, 2018 04:01PM Wised wrote:
DeeBB, oh dear lady that sounds miserable! Lots of light and love coming your way.
Dec 5, 2018 10:23PM Hmissy34 wrote:
Hello all, I’m new to this page and I was a stage 1’er also who decided to go with a double Mastectomy as well. I felt that was best for me. The whole process was way too emotional and stressful.
I just had part 2 of my reconstruction on 11/29/18, and looking forward to putting this whole thing behind me!
By the way, I love this page and I hope everyone’s recovery goes well. ❤️
Dec 5, 2018 11:27PM - edited Dec 5, 2018 11:27PM by egregious
Hope your recovery goes well too!
Dec 6, 2018 08:39AM Oceanbum wrote:
Hi Hmissy34! Welcome! Wishing you a speedy recovery as well!! I love this page, too!!
Dec 6, 2018 09:15AM Oceanbum wrote:
I did. They were uncomfortable but they didn't hurt. I really didn't feel the fills either because I was so numb.
Dec 6, 2018 02:01PM - edited Dec 6, 2018 02:14PM by Lucy55
Just popping in to welcome the new girls ..I didn't have reconstruction, so I can't give any advice there .
So busy at the moment..we are down to the last week's of building our new home , Christmas is getting so close ..I'm starting to feel overwhelmed!
Just thinking ..maybe we could share a little about ourselves ( only if you want to ) to get to know each other a bit ..???
Here's my story ..I 'm 59, diagnosed at 55 ..never felt healthier or fitter before I got a call back after my routine mammogram..☹️
I am a mother of 3 ..and a grandmother of 8 precious little ones ..the oldest is 8 ..the youngest 3 ..so family get to-togethers are crazy 😳..and the kids always have a wonderful time !! 🤗
Hugs to all
Edited for spelling mistakes !!!!
Dec 6, 2018 02:47PM DeeBB wrote:
I'm 47 was just diagnosed this past September. I eat healthy take care of myself and then I got the dreaded phone call. I have 3 rescues dogs that I adore, a husband that is my best friend and wonderful family. No children of my own but I do have 3 beautiful grand kids and a nephew that is pretty damn awesome.
I love spending time with family and friends. Unfortunately, I also love to spend money on shoes and clothes, especially this time of year I always feel like I need more boots.
Dec 6, 2018 03:08PM Oceanbum wrote:
Great idea, Lucy!!
I'm 55. Diagnosed one month shy of my 54th birthday.
I have been married 36 years to my high school sweetheart & best friend. We have 2 beautiful daughters whom we adopted at birth. The oldest was 2 days old, the youngest was 4 days old. They are biological half sisters having the same birthmother. We have a beautiful 8 month old grandson.
Dec 6, 2018 04:36PM Wised wrote:
Hi, this is a great idea!
I'm a middle school teacher, I teach English to speakers of other languages and feel so fortunate to have such a great job. I'm passionate about all things language and culture, so it's a good fit. I'm bilingual English/Spanish.
I have one child, a son, also by adoption, Oceanbum! I have an adorable soon to be 5 year old grandson who I dote on.
I love animals and have a dog, two cats, and a parrot.
This is, unfortunately, my second cancer. I was stunned when I got the call saying that yes, indeed, lightening struck twice. And I'm surprised that having had it before didn't prepare me for the inevitable emotional ups and downs of this process!
Dec 6, 2018 05:35PM Dani444 wrote:
I like the idea Lucy!
I am 46 and diagnosed in August, just started Rads today.
I am single right now, and have no children. I have two nieces that I have been able to spoil, they are 18 and 20 now! Yikes, the oldest is in college for respiratory therapy and the youngest graduates high school this year. I have a cute fluff ball of a dog named Leroy.
I work as an EMT in an emergency room, 23 years now. I like my job most days, it certainly can be interesting at times. My work family has been absolutely amazing through my diagnosis and treatment.
Dec 6, 2018 06:03PM GreenHarbor wrote:Lucy, what a great idea! I was diagnosed at 51 at my annual mammogram, with no family history of BC. I’ve been married for 30 years. No kids, but I love being an auntie! We also have an almost 17 year old Jack Russell terrier named Hector who is the real head of the household. I’m an office administrator at a church near my home. I’m a homebody who loves to read and try new recipes. I’m a student of American Sign Language. I’m a couch potato by nature who is trying reeeeally hard to get more exercise, but do love my weekly yoga class.
Dec 6, 2018 06:17PM Cherryi3 wrote:
Great idea! I’m 51 with husband, son 17, and daughter 19 in her first year of college. Another dog lover, I have 2 poodle mixes. I like to run 2x a week and grow produce in raised beds. This diagnosis comes after 3 previous cancer scares that were benign. (Ovarian, endometrial and colon). I quit my job working in my husband’s family business and was taking classes to renew a 20 year long expired teaching license when this happened. I was a reading specialist in my previous life and had been missing the pitter patter of little feet. Grandchildren are a long way off, but my greatest desire
Dec 6, 2018 06:52PM egregious wrote:
What a nice idea to share. I'm a mom of 3 and grandma of 2, grew up in Ohio and now retired with my husband in California. Dog lover, but in between pets at the moment. Keep the pictures coming!
I've worked in public health and in hospital administration. This is a whole different view of a hospital, it's not the same when you're the patient! For fun I like music and reading fiction. We have a book club of all the women on the two closest blocks, makes for an interesting variety of people.
My challenge during this treatment is to stay positive mentally, which is hard for me in general, and to keep up with my daily walking. I had to make the walk shorter as I'm soooo tired. One day at a time.
Dec 7, 2018 01:50AM Lucy55 wrote:
So great hearing all your stories !!! I see there's lots of fur -baby lovers ..thought I'd share a pic of my 6 year old grand-daughter with my poodle..I love them both 🤗
Dec 7, 2018 11:19AM - edited Dec 7, 2018 11:22AM by keepthefaith
Hi ladies, It is nice to get to "know" everyone here! Great idea.
I was DX'd by routine mammo at 58 yrs old, in 2013. I would have never found the culprit by self-exam.
I am a self-employed Realtor, since 2001. I love my work. I am always meeting new people and learning new things. Never a dull moment! I volunteer for a local Boxer Rescue Group when I have time. I love gardening, antiquing, spending time outdoors, read, (but, not as much as I should), do needlework sometimes. I have my "foster fail" Boxer, Sweet Pea and a Cockatiel, Harley, to keep me company. I am single, have 2 wonderful children, DD, 32 and DS 35. They have blessed me with 6 grand-children, who are the light of my life! They all live close enough so that I get my Grandma-time in, often. Two of them will be spending the night tonight:).
Happy Holidays and blessings to you all!!!
Dec 8, 2018 01:02AM Lovinggrouches wrote:
I was 41 when diagnosed in Jan of 2016. I have been a nurse for 22 years. I have a wonderful hubby whom I have been with since i was 19. We never had children but our kitties are our children lol!!! We also love gardening and growing edible trees and plant
Dec 8, 2018 09:03AM farmerlucy wrote:
I'll be seven years out soon. I'm 58 now, five grandchildren born since dx (we have six precious girls, first boy grandson due early March). I had no perspective about BC back then. I prayed for just a couple more years. I did a lot of grief work at dx re: my mom's passing at 29, my own years of high risk screening, then a surprise dx. I try to bring an awareness to how many are affected by PTSD after dx/ when active treatment ends. Regardless of age or stage we all react in our own way. I used to think I had some control of my life, now I know that t'aint necessarily so. That alone is a source of freedom. I try to remember that sweating the small stuff is a waste of time. Carpe Diem. That's all we're promised.
Married to my best friend for 36 years. He lets me be me . . scars, moods, warts and all. Also I have filled my life with rescue animals in the past seven years. Two donkeys, a pony, two goats, five ducks, six barn kitties, four dogs. And a partridge in a pear tree. Oh and I’m in my third year of growing gourmet garlic. Did I mention Carpe Diem?
Dec 9, 2018 08:04AM - edited Dec 9, 2018 08:05AM by Janett2014
I found the tissue expanders to be very uncomfortable; it felt like a too-tight belt around my chest. They did their job though, and I'm happy with my reconstruction. The expanders were in for three months which is doable, and they did get better with time.
Dec 9, 2018 02:48PM Snickersmom wrote:
I love the idea of sharing our stories! I was diagnosed just before my 70th birthday (what a great present, right??) and we had a cruise and tour of Alaska already scheduled. We cancelled it and I had a BMX instead. Or as my husband said, I saved my life for my birthday.
Anyway, I am now 71, married for 36 years to a super guy, and I have 3 daughters and 4 granddaughters. They range in age from 13 to 10-1/2. We moved to The Villages, Florida full-time about 8 years ago and we love being here. The only things we miss about New England are our daughters and granddaughters. Sure don't miss the winter weather!
I discovered quilting when we moved here and I love it. I have my own room now for quilting/sewing and call it my she shack! It saved me from going crazy last year after my BMX and I don't know what I would have done without it.
Anyone who ever comes down my way -- stop in for a visit!
Dec 9, 2018 06:15PM MDRR wrote:
this is the best community! good to have others who truly understand. my story is that a routine mammogram last year (age 61) detected my BC, initially diagnosed as DCIS grade 2/3. No family history and no other health issues, so truly a surprise. I was pretty surprised at my reaction, which was 'ok, so what do we need to do?' So after a lumpectomy, the pathology returned that it had become invasive -- was on the move. My surgeon and I decided on a mastectomy, and that went very well. Again, I was surprised at how easily the surgery went. I'm kind of used to surgeries; I've been an athlete all my life and so have had 5 knee surgeries. Maybe I just have it ingrained in me that we just need to fix it and move on? Not sure. But I decided against reconstruction -- I wanted to get on with everything and get back out on the field. Being a member of a senior traveling softball team (all of us age 60+) definitely helped -- many peers who got involved to support, encourage, laugh and help me get back out on the field. My goal was a planned hike to the bottom of the grand canyon scheduled for 3 months post-mastectomy. My surgeon was all-in for getting me down there (and back!) and fortunately, I was able to do it. Now I'm on arimidex and while it crosses my mind periodically in terms of the 'what ifs', I guess this experience has helped me realize that you can 'what if' yourself crazy, so I try to focus on moving forward and enjoying each day. It's only been a year since diagnosis and 9 months since surgery, but so far so good. I'm glad we have this forum to support each other!
Dec 9, 2018 07:00PM - edited Dec 9, 2018 07:03PM by Salamandra
I also had birthday cancer! I got myself a hormonal IUD for a 39th birthday present. It was kind of aspirational - I do hope to have a sex life again at some point... in the mean time at least it should give me the gift of no periods.
I went to a new gyn to get it inserted, pretty randomly, someone in my neighborhood who took my insurance and had availability. She offered to do a breast exam and found a lump. The ultrasound radiologist and the breast surgeon both gave her kudos on that 'pick up' so I guess she now has a loyal patient in me, even though I don't like the rest of the practice.
I'm more or less on my own. My biological mother died of breast cancer when I was 20 (yes, it has made this whole thing traumatic on a whole other level) and my co-mother had very debilitating dementia for years before she passed away about six months before I was diagnosed. My siblings live halfway across the country.
Most of the time I'm not lonely. I'm so lucky to have truly wonderful friends. One of them made me a radiation care package with a little gift for every single day of treatment!
I did take off of work. I changed careers into teaching a few years ago (high school special education) and though I like it and I'm so grateful for the health insurance it is providing me, I didn't have the physical/logistical/emotional capacity to deal with the treatment and the intensity of the workload at the same time. Treatment is about fifty minutes to an hour in the opposite direction of my school, no car. (Live and work in Brooklyn, go to MSK in Manhattan). I'd started bicycle commuting to work this fall and now I'm bicycle commuting to radiation.
I have a scaredy cat who nevertheless makes life more interesting. Friday I had the door open for her and a raccoon came in and sat on my bathroom mat. My neighbors dubbed it Moisheh the Hannukah Raccoon.
I've been reading a lot about breast cancer and trying to take care of my mental and emotional health too. It's been quite a year. I really hope I'll be in shape to not hate going back to work when it's time.
And I still hope I'll be able to put my IUD to it's proper use at some point! Even if dating isn't something I have much energy for lately :)
My doctors wanted me to remove it since it's hormonal and my cancer was HR+. But it was more on general principle than specific data. I feel like somehow it represents my sometimes tenuous connection to normalcy, and also a good luck charm because it's responsible for my cancer being found now rather than until whenever I started regular mammograms (which should have been at 40 but who knows if I'd have actually done it promptly). So I'm keeping the damn IUD. I did the surgeries, I'm doing the tamoxifen and radiation, but I'm not going to have periods too if I can help it.
Anyone else play Pokemon Go, and want to be friends? Or Boggle?
Dec 9, 2018 07:55PM Julesm59 wrote:
Hi, I love the idea of sharing our stories. I am 59 and went to the doctor for a lump I found in my left breast. It was questionable, due to location (right next to my nipple), but he sent me anyway. I hadn't had a mammogram for 5 years. My doctor frowned on at me for not getting my mammograms. So two days later, I go for the mammogram. I was having a 3d mammogram, but when the technician did it she wanted to do a diagnostic 2d. Then while I am waiting (I knew something was up) but I thought it was my left side, she came in and said we are going to do an ultrasound, now. So then I trot off to ultrasound, in the same area for the ultrasound. The tech spent alot of time on my right breast. Then said, she needed to go get the doctor. The doctor then came in and move the ultrasound around and got a very serious, concerned tone and stated that it wasn't good news. My right breast has two very suspicious area which are considered BiRad 5 (she explained it) and the left looked like an abscess but BiRad 4. I needed a Needle Core Biopsy. They scheduled me for the next day. Then sent me to the nurse navigator who asked me who I wanted for a surgeon. The results came back as IDC about 1.5cm and 1.6cm in the right WOW, moved very quickly and within a week and a half, I was having a lumpectomy. Surgery went well. Margins were good and sentinel nodes (2) neg. They excised the left mass and indeed it was an abscess. My ocotype came back as 7. Stage 1c Grade 2 with ICD and DCIS between the two masses in my right breast. I am halfway through radiation treatments 16 of them. Takes all of 15 mins, but treatment is more like 2 mins. Skin is doing well. I meet with my MO and started on Anastrozole for at least 5 years. I will be finished with Rads on Dec 18th.
So thanks to my abscess (which had no symptoms except for the lump) I found my cancer. So I should be done with active treatment within 2 1/2 months of finding the lump. I consider myself extremely lucky and blessed to have a wonderful center. They have shared everything with me and answered all of my questions. If feel well taken care of and the staff, technicians and reception personnel have all been very wonderful. I have a wonderful DH that is very supportive. However, I haven't told his kids about the diagnosis since they are all drama queens. I also didn't want any information getting to my own biological son who is deployed currently in the Navy. I preferred he only worry about doing his job and not on his Mother. I will tell him when he comes home in June. I only told those at work who needed to know. I took off work for 3 days for surgery but have worked every day before and since.
Sorry this was so long, but writing my story was very therapeutic. I am not much of a worrier, and tried to see this cancer as a task to completed. I tend to worry when there is something substantial to worry about. And this was doable. As of December 18th I will be completed, except for taking a pill a day and paying off the co-pays....insurance won't cover. LOL. Thanks for reading.
Best of luck you warrior ladies. I don't consider myself a survivor but a warrior. With a task or a job to complete. Makes me more in control.
Dec 9, 2018 08:41PM Wised wrote:
Salamandra, when you were writing about your kitty, I was looking at the picture of the raccoon trying to make it make sense... Yes, another teacher! BOGGLE
I'm reading through our posts and trying to find similarities in our stories. How many of us did not have bio children? How many of us took fertility meds? I was on clomid for more than 2 years.