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Topic: CALLING ALL STAGE I SISTERS

Forum: Stage I Breast Cancer — Meet other members with a Stage I breast cancer diagnosis to share information and support.

Posted on: Nov 6, 2009 02:34PM - edited Apr 7, 2018 12:42AM by sheila888

sheila888 wrote:


Sheila♥ Dx 4/8/2005, IDC, Right, 1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2+ Dx 8/21/2015, IDC, Left, 1cm, Stage IIB, Grade 2, 1/3 nodes, ER+/PR+, HER2- Surgery 10/12/2015 Mastectomy: Left; Prophylactic mastectomy: Right Dx 11/2018, IDC, Stage IV, metastasized to bone/liver/lungs, Grade 2, ER+/PR+, HER2-
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Jan 7, 2019 04:05PM Lucy55 wrote:

As far as taking Tamoxifen goes I was very scared to start taking it .The only other medication I can usually take without side effects is Tylenol...but I was too scared not to take it either ...I was very pleasantly surprised to have no side effects at all ...

I decided to try the Tamoxifen , and then decide . Some people have terrible side effects and have to stop ..but there are lots of people who have none .


Dx 8/27/2014, IDC, <1cm, Stage IA, Grade 2, 0/4 nodes, ER+/PR+, HER2- Hormonal Therapy 9/15/2014
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Jan 7, 2019 04:27PM Oceanbum wrote:

I was scared to take Tamoxifen, too. I've read and heard of many bad side effects. But I was very luck to not have side effects with it. I was recently switched from Tamoxifen to Arimidex. The only thing I have really noticed with it is a little bit of nausea in the morning and a slight headache until I eat something. The last few nights I have been having trouble sleeping, too. I don't know if that's related or just life itself. There's been alot going on. So I will just and see if that sorts itself out.

Becky ~ "Sometimes we're tested not to show our weaknesses, but to discover our strengths." Surgery 11/2/2000 Dx 3/6/2017, IDC, Right, <1cm, Stage IA, Grade 1, ER+/PR+, HER2- Dx 3/21/2017, IDC, Left, 1cm, Stage IA, Grade 3, ER+/PR+, HER2+ Targeted Therapy 4/20/2017 Perjeta (pertuzumab) Chemotherapy 4/21/2017 Carboplatin (Paraplatin), Taxotere (docetaxel) Targeted Therapy 4/21/2017 Herceptin (trastuzumab) Surgery 9/5/2017 Lymph node removal: Sentinel; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Hormonal Therapy 9/24/2017 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Targeted Therapy 10/2/2017 Herceptin (trastuzumab) Surgery 12/14/2017 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Surgery 4/20/2018 Reconstruction (left): Fat grafting; Reconstruction (right): Fat grafting Hormonal Therapy 12/6/2018 Arimidex (anastrozole) Surgery 6/7/2019 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant
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Jan 7, 2019 05:43PM Jenkins00 wrote:

Just found this thread! I was classified as Stage I after my BMX surgery. Starting chemo next Monday as my MammaPrint came back high risk, Luminal B.

I've had issues since I was 13 when I first got my menstrual cycle. On the pill for 10 years until I got pregnant with my son. This was pure luck as I got pregnant right after I stopped taking the pill. I could never get pregnant after, my cycle was just so messed up, even tried AI. Only to discover I had endometriosis which resulted in a hysterectomy with only my right ovary remaining. On top of this I was dealing with nipple discharge on and off for 18 years that was a result from a microadema on my pituitary gland. Test after test it felt like for female issues. Now, BC.

Whatever will be, will be!

Dx 8/2/2018, ILC/IDC, Left, 1cm, Stage IA, Grade 2, 0/4 nodes, ER+/PR+, HER2- Surgery 9/26/2018 Lymph node removal: Sentinel; Mastectomy: Left, Right Chemotherapy 1/13/2019 Cytoxan (cyclophosphamide), Taxotere (docetaxel)
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Jan 8, 2019 12:11AM Lucy55 wrote:

Jenkins...welcome ..sorry you have to join our group ..but lots of caring women here ..We will be with you on Monday when your chemo starts

Dx 8/27/2014, IDC, <1cm, Stage IA, Grade 2, 0/4 nodes, ER+/PR+, HER2- Hormonal Therapy 9/15/2014
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Jan 10, 2019 08:56PM Jenkins00 wrote:

Lucy55 - Thank you. Means a lot to me.

Dx 8/2/2018, ILC/IDC, Left, 1cm, Stage IA, Grade 2, 0/4 nodes, ER+/PR+, HER2- Surgery 9/26/2018 Lymph node removal: Sentinel; Mastectomy: Left, Right Chemotherapy 1/13/2019 Cytoxan (cyclophosphamide), Taxotere (docetaxel)
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Jan 10, 2019 10:15PM Beaverntx wrote:

Jenkins, thinking of you on Monday!

Diagnosed at age 77-- Oncotype 17, dealing with this bump in the road of life!!🎆 Dx 1/24/2018, IDC, Right, 2cm, Stage IB, Grade 3, 0/9 nodes, ER+/PR+, HER2- (IHC) Dx 1/30/2018, DCIS, Right, <1cm, Stage 0 Surgery 1/30/2018 Lumpectomy: Right; Lymph node removal: Right, Sentinel Radiation Therapy 3/11/2018 Whole-breast: Breast Surgery 6/15/2018 Prophylactic ovary removal Hormonal Therapy 6/19/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Jan 11, 2019 08:27AM Oceanbum wrote:

Jenkins00, you will be in my thoughts & prayers Monday!! Let us know how it goes.

Becky ~ "Sometimes we're tested not to show our weaknesses, but to discover our strengths." Surgery 11/2/2000 Dx 3/6/2017, IDC, Right, <1cm, Stage IA, Grade 1, ER+/PR+, HER2- Dx 3/21/2017, IDC, Left, 1cm, Stage IA, Grade 3, ER+/PR+, HER2+ Targeted Therapy 4/20/2017 Perjeta (pertuzumab) Chemotherapy 4/21/2017 Carboplatin (Paraplatin), Taxotere (docetaxel) Targeted Therapy 4/21/2017 Herceptin (trastuzumab) Surgery 9/5/2017 Lymph node removal: Sentinel; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Hormonal Therapy 9/24/2017 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Targeted Therapy 10/2/2017 Herceptin (trastuzumab) Surgery 12/14/2017 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Surgery 4/20/2018 Reconstruction (left): Fat grafting; Reconstruction (right): Fat grafting Hormonal Therapy 12/6/2018 Arimidex (anastrozole) Surgery 6/7/2019 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant
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Jan 11, 2019 11:09AM DebAL wrote:

Jenkins, first I'm sorry you found yourself here. I'm not a regular on this thread. I just wanted to chime in that I had essentially zero side effects with my 4 rounds of TC. I walked 3 miles everyday. Including chemo day. Took day of and 2 days after treatment off work to hydrate, rest, pee alot lol. Then back to work to a fast paced job as a nurse. I'll admit , I'm the exception to the rule. Just wanted to give you hope. Please feel free to PM with any questions. Joining the chemo January 2019 group would be helpful. I found it additionally helpful to talk with those that are on the same regimen. Please dont get ahead of yourself and worry too much. You will get through it and it will be over in a snap! I will bottle up my experience and throw it your way! Take care! Deb

Dx 1/22/2018, IDC, Left, <1cm, Stage IA, Grade 1, 0/3 nodes, ER+/PR-, HER2- (IHC) Surgery 2/12/2018 Mastectomy: Left, Right Surgery 2/12/2018 Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 4/2/2018 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 6/14/2018 Arimidex (anastrozole) Surgery 8/9/2018 Reconstruction (left): Fat grafting, Silicone implant; Reconstruction (right): Fat grafting, Silicone implant Surgery 12/20/2018 Reconstruction (left): Fat grafting; Reconstruction (right): Fat grafting Surgery
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Jan 11, 2019 12:02PM PennyK wrote:

I have a 1.9 cm plus a second tumor that’s only 8 mm

Dx 11/27/2018, IDC, Left, 1cm, Stage IA, Grade 3, 0/3 nodes, ER+/PR+, HER2+ Surgery 1/2/2019 Lymph node removal: Sentinel; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Hormonal Therapy Chemotherapy Taxol (paclitaxel)
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Jan 11, 2019 12:38PM DebAL wrote:

How are you doing Penny?

Dx 1/22/2018, IDC, Left, <1cm, Stage IA, Grade 1, 0/3 nodes, ER+/PR-, HER2- (IHC) Surgery 2/12/2018 Mastectomy: Left, Right Surgery 2/12/2018 Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 4/2/2018 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 6/14/2018 Arimidex (anastrozole) Surgery 8/9/2018 Reconstruction (left): Fat grafting, Silicone implant; Reconstruction (right): Fat grafting, Silicone implant Surgery 12/20/2018 Reconstruction (left): Fat grafting; Reconstruction (right): Fat grafting Surgery
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Jan 11, 2019 10:29PM PennyK wrote:

I am ok. Drains were removed yesterday. Almost off prescription pain killers. Tired some days and still very uncomfortable.Chemo will start in two weeks.

Dx 11/27/2018, IDC, Left, 1cm, Stage IA, Grade 3, 0/3 nodes, ER+/PR+, HER2+ Surgery 1/2/2019 Lymph node removal: Sentinel; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Hormonal Therapy Chemotherapy Taxol (paclitaxel)
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Jan 12, 2019 12:13AM - edited Jan 12, 2019 12:14AM by Meow13

PennyK, did you have an oncodx test or mammoprint test?

Whoops sorry didn't see the her2+. Triple positive means more drugs to fight with.

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Jan 12, 2019 12:48AM PennyK wrote:

I will get my full treatment plan when I meet with the oncologist early next week. She ran through options with me before surgery but they depended on whether pathology matched the biopsy and MRI results. I can’t remember the 2 chemo drugs she said I would get if the results didn’t increase my stage. I had clean margins, the tumors were free-floating and hadn’t grown. Sentinel lymph nodes were clear

I’ll know next week what the chemo drugs are. I will have an anti-HER2 injection once a month for a year. Chemo will be once a week for 12 weeks. Hormone therapy for 5-10 years. The surgeon placed a port during my surgery.

Dx 11/27/2018, IDC, Left, 1cm, Stage IA, Grade 3, 0/3 nodes, ER+/PR+, HER2+ Surgery 1/2/2019 Lymph node removal: Sentinel; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Hormonal Therapy Chemotherapy Taxol (paclitaxel)
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Jan 14, 2019 11:37AM Oceanbum wrote:

Thinking of you today, Jenkins00!! Pray all goes well!!

Will be thinking of you and praying for you as well, PennyK as you meet with your oncologist this week!! Keep us updated!!

Sending hugs to you both!!

Becky ~ "Sometimes we're tested not to show our weaknesses, but to discover our strengths." Surgery 11/2/2000 Dx 3/6/2017, IDC, Right, <1cm, Stage IA, Grade 1, ER+/PR+, HER2- Dx 3/21/2017, IDC, Left, 1cm, Stage IA, Grade 3, ER+/PR+, HER2+ Targeted Therapy 4/20/2017 Perjeta (pertuzumab) Chemotherapy 4/21/2017 Carboplatin (Paraplatin), Taxotere (docetaxel) Targeted Therapy 4/21/2017 Herceptin (trastuzumab) Surgery 9/5/2017 Lymph node removal: Sentinel; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Hormonal Therapy 9/24/2017 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Targeted Therapy 10/2/2017 Herceptin (trastuzumab) Surgery 12/14/2017 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Surgery 4/20/2018 Reconstruction (left): Fat grafting; Reconstruction (right): Fat grafting Hormonal Therapy 12/6/2018 Arimidex (anastrozole) Surgery 6/7/2019 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant
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Jan 14, 2019 01:40PM magiclight wrote:

PennyK: I hope all goes well. One of the treasured pieces of advice I received was that I need to be kind to myself. I pass that on to you. Wrap yourself in personal kindness in whatever form that takes.

Life is available only in the present...the here and the now. Thich Nhat Hanh Dx 4/15/2015, IDC, Both breasts, 1cm, Stage IA, Grade 1, 0/3 nodes, ER+, HER2+ (FISH) Surgery 4/26/2015 Mastectomy: Left, Right
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Jan 14, 2019 05:55PM Jenkins00 wrote:

First infusion is done. All went well. Nurses were great. Iced my hands and feet for me. Explained everything in detail and so patient answering questions. Thank you all for the well wishes and prayers. I appreciate each and everyone of you! Hugs!


Dx 8/2/2018, ILC/IDC, Left, 1cm, Stage IA, Grade 2, 0/4 nodes, ER+/PR+, HER2- Surgery 9/26/2018 Lymph node removal: Sentinel; Mastectomy: Left, Right Chemotherapy 1/13/2019 Cytoxan (cyclophosphamide), Taxotere (docetaxel)
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Jan 14, 2019 05:58PM Beaverntx wrote:

Glad to learn all went well, and may that continue to be the case!

Diagnosed at age 77-- Oncotype 17, dealing with this bump in the road of life!!🎆 Dx 1/24/2018, IDC, Right, 2cm, Stage IB, Grade 3, 0/9 nodes, ER+/PR+, HER2- (IHC) Dx 1/30/2018, DCIS, Right, <1cm, Stage 0 Surgery 1/30/2018 Lumpectomy: Right; Lymph node removal: Right, Sentinel Radiation Therapy 3/11/2018 Whole-breast: Breast Surgery 6/15/2018 Prophylactic ovary removal Hormonal Therapy 6/19/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Jan 14, 2019 06:05PM Jenkins00 wrote:

PennyK - I’m not sure if this was already suggested to you. There is a January 2019 Chemo group going if you want to join.

Dx 8/2/2018, ILC/IDC, Left, 1cm, Stage IA, Grade 2, 0/4 nodes, ER+/PR+, HER2- Surgery 9/26/2018 Lymph node removal: Sentinel; Mastectomy: Left, Right Chemotherapy 1/13/2019 Cytoxan (cyclophosphamide), Taxotere (docetaxel)
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Jan 17, 2019 04:48PM Cgbelokin wrote:

I am on my 4 th year of Letrozole following stage 1a lumpectomy and radiation. Just recently my right leg swells. Only the right leg. Anyone else experience this?

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Jan 17, 2019 06:18PM egregious wrote:

Welcome, cgbelokin!

Hope you find the support and encouragement that you need here.

Swelling in one leg like that is a concern. I would at a minimum call your regular doctor's office and ask if they want to see you. It's unlikely to be cancer, but in the general unfairness of life we can have more than one thing go haywire in our lives.

Take care and keep us posted.

Sometimes I feel brave, and sometimes I get tired of feeling brave. I keep going for my children. Age 67 at diagnosis Dx 9/5/2018, DCIS/IDC, Left, <1cm, Stage IA, Grade 2, ER+/PR+, HER2- (FISH) Surgery 9/25/2018 Lumpectomy: Left Radiation Therapy 11/28/2018 Whole-breast: Breast, Lymph nodes Hormonal Therapy 1/25/2019 Arimidex (anastrozole)
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Jan 20, 2019 01:51PM Lucy55 wrote:

Cgbelokin...Welcome ..Sorry about the leg swelling ...I hope someone comes along here soon that may have some information for you .I'd definitely go and see the doctor though.

Dx 8/27/2014, IDC, <1cm, Stage IA, Grade 2, 0/4 nodes, ER+/PR+, HER2- Hormonal Therapy 9/15/2014
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Jan 21, 2019 12:50AM CindyNY wrote:

Cgbelokin- I'm with Lucy55, contact your doctor. It could be a blood clot, DVT, or something less serious, but I wouldn't wait.

dx at 58, no family history, onco = 19 Dx 10/6/2017, DCIS/IDC, Left, 1cm, Stage IA, Grade 2, 0/5 nodes, ER+/PR+, HER2- Surgery 11/1/2017 Lumpectomy: Left; Lymph node removal: Sentinel Surgery 11/14/2017 Lumpectomy: Left Radiation Therapy 12/26/2017 Whole-breast: Breast Hormonal Therapy 3/1/2018 Arimidex (anastrozole)
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Jan 25, 2019 09:50AM Oceanbum wrote:

Cgbelokin, hope all is well with you. Did you see a doctor about the swelling? Has there been any change? Can we have an update please? Just checking up on you.

Becky ~ "Sometimes we're tested not to show our weaknesses, but to discover our strengths." Surgery 11/2/2000 Dx 3/6/2017, IDC, Right, <1cm, Stage IA, Grade 1, ER+/PR+, HER2- Dx 3/21/2017, IDC, Left, 1cm, Stage IA, Grade 3, ER+/PR+, HER2+ Targeted Therapy 4/20/2017 Perjeta (pertuzumab) Chemotherapy 4/21/2017 Carboplatin (Paraplatin), Taxotere (docetaxel) Targeted Therapy 4/21/2017 Herceptin (trastuzumab) Surgery 9/5/2017 Lymph node removal: Sentinel; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Hormonal Therapy 9/24/2017 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Targeted Therapy 10/2/2017 Herceptin (trastuzumab) Surgery 12/14/2017 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Surgery 4/20/2018 Reconstruction (left): Fat grafting; Reconstruction (right): Fat grafting Hormonal Therapy 12/6/2018 Arimidex (anastrozole) Surgery 6/7/2019 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant
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Jan 26, 2019 01:10PM Loral wrote:

Hello...

I have been cancer free for 6 years this past October took Tamoxifen for 5 years and really had no problems with it...Fingers crossed for NED every year here after....Love to All Heart

Oncotype DX 34....When NOTHING is sure, EVERYTHING is possible ,so NEVER, EVER, GIVE UP HOPE!! Dx 9/11/2012, DCIS/IDC, Left, 1cm, Stage IA, Grade 1, 0/5 nodes, ER+/PR-, HER2- Surgery 10/9/2012 Lumpectomy: Left; Lymph node removal: Left, Sentinel Hormonal Therapy 12/13/2012 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Jan 26, 2019 01:47PM Dani444 wrote:

Loral congratulations on 6 years NED. And thank you for sharing. It really helps to read stories like this! I will be starting tamoxifen soon and I am pretty nervous about it.

DX @ 46, premenopausal, mammaprint low risk Dx 8/21/2018, LCIS/ILC, Right, 4cm, Stage IB, Grade 2, 2/3 nodes, ER+/PR+, HER2- (IHC) Surgery 10/24/2018 Lymph node removal: Sentinel; Mastectomy: Right; Reconstruction (right): Silicone implant Radiation Therapy 12/6/2018 Lymph nodes, Chest wall Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Jan 29, 2019 11:57AM Lucy55 wrote:

Loral ..That's great ! Thanks for sharing ..

Dani ..I was very nervous about starting Tamoxifen too ..but I've been lucky too and have had no side effects ..I hope it will be the same for you .

Hugs to all

Dx 8/27/2014, IDC, <1cm, Stage IA, Grade 2, 0/4 nodes, ER+/PR+, HER2- Hormonal Therapy 9/15/2014
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Mar 2, 2019 03:47PM Lucy55 wrote:

Thought I'd give this thread a bump to see how everyone is !

Dx 8/27/2014, IDC, <1cm, Stage IA, Grade 2, 0/4 nodes, ER+/PR+, HER2- Hormonal Therapy 9/15/2014
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Mar 4, 2019 12:21PM Jenkins00 wrote:

Hi Lucy55! Slowly turning the corner after round 3 last week. Seems this round really hit me hard and of course my mouth is tore up. Thrush and sores. Only one round left!

Winter is hitting us in Texas right now. Pretty late for us usually we are in the 60's about now.

Dx 8/2/2018, ILC/IDC, Left, 1cm, Stage IA, Grade 2, 0/4 nodes, ER+/PR+, HER2- Surgery 9/26/2018 Lymph node removal: Sentinel; Mastectomy: Left, Right Chemotherapy 1/13/2019 Cytoxan (cyclophosphamide), Taxotere (docetaxel)
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Mar 4, 2019 05:58PM everetta wrote:

I am so glad to hear you are doing so well. I too had an oncotype in the 30s but it looks like you didn't do chemo. Had it been recommended? I also thought that with these small stage 1a tumors that chemo generally wasn't recommended but it looks like lots of people have had chemo. Any guidelines? Is this different for people over and younger then 50?

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Mar 4, 2019 09:01PM Mncteach wrote:

There definitely is an age component. I’m under 50 and was told almost from the beginning thatbecause of age and grade I would definitely have chemo.

Dx 8/31/2018, IDC, Right, 1cm, Stage IB, Grade 3, 0/4 nodes, ER-/PR-, HER2- Surgery 11/5/2018 Lymph node removal: Sentinel; Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap Chemotherapy 1/30/2019 AC + T (Taxol)

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