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Jan 23, 2011 07:21AM
Lovelillian - I had a oncotype score of 25. But I had some other issues, multifocal disease (6 places of cancer on the right) and bilateral tumors (one on left was oncotype 13). Nodes were negative, but age was younger -44. I saw 3 oncologists, 2 said they would recommend TCx4 mostly because of my young age, the other said (at MSK) do AC+ DD. I was presented at the tumor board at my hospital, the consensus was do TCx4 but there were still a couple of oncs who thought no chemo.
So i reluctantly agreed to the TCx4, even though my greatest benefit will come from Tamoxifen. I've had one round, and it has been harder then expected. My WBC went to zero, and I got a mild fever, luckily this was treated with antibiotics at home, but if my fever went up 0.2 degrees more I would be in the hospital with IV antibiotics. From what I read there is 10% mortalitly in people hospitalized for neutropenic fever. Now I have neuropathy in my hands, just from one treatment, I'm scared it might become permanent. All this for a treatment that might not even benefit me? We are all damned if we do and damned if we don't. Make your decision and own it, then never question yourself. recurrence or not
I'm learning more and more that all we can do is what is best for ourselves at any particular time.
11/17/2010, 2cm, Stage IB, Grade 2, 0/5 nodes, ER+/PR+, HER2-
11/30/2010 Lymph node removal: Left, Right, Sentinel; Mastectomy: Left, Right
1/13/2011 Cytoxan (cyclophosphamide), Taxotere (docetaxel)
4/1/2011 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
5/21/2014, ILC/IDC, Stage IV, metastasized to bone, mets, ER+/PR-, HER2-
6/1/2014 Arimidex (anastrozole)
12/1/2015 Aromasin (exemestane)
3/18/2016 Ibrance (palbociclib)
3/18/2016 Faslodex (fulvestrant)
10/10/2016 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
11/18/2016 Xeloda (capecitabine)