Join Us

We are 221,759 members in 83 forums discussing 162,136 topics.

Help with Abbreviations

Topic: Stage 1, grade 1 and pre-menopausal

Forum: Stage I Breast Cancer — Meet other members with a Stage I breast cancer diagnosis to share information and support.

Posted on: Aug 23, 2011 06:25AM - edited Jun 12, 2012 06:18PM by Annicemd

Annicemd wrote:

hi sisters,
It has struck me that most grade 1, stage 1 sisters seem to be post-menopausal (aka low estrogen) and younger women seem to be more often stage 2/grade 2. I am 42, recently diagnosed ER positive, still full of estrogen and becoming a little paranoid that there is something different about me or my cancer! I am not having chemo as i dont qualify for it. Low oncoDX score etc. On tamoxifen but am a little worried that my long term outcome may be worse because am am in no-mans land!! Are there any sisters out there in similar situation??***************************************************************************************************

May 2012 Decided to update this post as your responses have shown me that there are many of us who started out premenopausal with stage 1 grade 1 disease! What has become evident is that the choices for treatment can be tricky for us. Dilemmas include whether or not to use ovarian suppression or ooph (the definitive study - the SOFT trial will start to publish results hopefully around winter 2013), whether to do chemox if oncotype is intermediate (there is a study looking at this -The TAILORx but results are years off, whether adding zometa to treatment helps reduce recurrence (data remain somewhat conflicting although there appears to be a benefit for women over 40 years provided they are also treated with ovarian suppression), whether ovarian suppression alone or in combination with AI is a good alternative to tamoxifen for those of us who can't take/tolerate tamoxifen (TEXT trial results anticipated with SOFT results) and does Cyp2d6 status matter? So if you are stage 1, grade 1 and diagnosed when you were pre-menopausal you are definitely not alone. There is not a "one size fits all" answer to how we should be treated but hearing the treatment routes others have chosen does help with decision making... and optimism, there are 20 year survivors posting here! >

Multifocal IDC, oncoDX 8 & 1. No chemo. Left Mx, exchange to implant April 25th 2012. Tamoxifen & zoladex Dx 6/22/2011, IDC, 1cm, Stage I, Grade 1, 0/10 nodes, ER+/PR+, HER2-
Log in to post a reply

Page 57 of 57 (1,691 results)

Posts 1681 - 1691 (1,691 total)

Log in to post a reply

Sep 10, 2020 03:56AM robinorbit wrote:

LadyC — I do think there’s less pain. Finding a more supportive bra seemed to help a lot.

Hope you were able to get your surgery scheduled soon so you’re able to start work by 10/—let us know!

Surgery 8/21/2020 Dx 9/3/2020, DCIS, Left, <1cm, Stage 0, Grade 2 Dx 9/3/2020, IDC, Left, 1cm, Stage IA, Grade 2, 0/2 nodes, ER+/PR+, HER2- (IHC) Radiation Therapy Whole-breast: Breast
Log in to post a reply

Sep 11, 2020 03:15PM Ladyc2020 wrote:

robin - so glad to hear your pain is less!

My surgery is scheduled 9/18 and I don’t think I will be able to work for a while afterwards, as I found out I shouldn’t lift anything heavier than a milk jug.

Hormonal Therapy 2/28/2020 Femara (letrozole), Zoladex (goserelin) Dx 8/6/2020, IDC, Left, 1cm, Stage IA, Grade 1, 0/2 nodes, ER+/PR+, HER2- (FISH) Hormonal Therapy 8/21/2020 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 9/18/2020 Lumpectomy: Left Dx 9/23/2020, DCIS, Left, 2cm, Stage 0, Grade 1 Radiation Therapy 10/31/2020 Whole-breast: Breast, Chest wall
Log in to post a reply

Sep 11, 2020 04:17PM arabiansrock wrote:

Robin

I had that same pain, at my post op (3 weeks after surgery) my Dr told me I can take advil or aleve now to reduce inflammation. She said that pain is inflammation from the tissues being disturbed from looking for the sentinal nodes. Also the underarm pain is from cut nerves. She said it will get better, eventually. I have been taking Aleve for 3 days now (at prescription strength, so 2 tabs am and pm) and my left side almost feels 100%. It is an amazing difference. Now, idk if it will stay that way once I stop taking it.

My BS told me NO lifting anything heavier than a glass of water for 3 weeks. Period, end of discussion. Your dr has cleared you to do chores and yardwork? It's funny how different surgeons have diff after care requirements for the same procedure.

biopsy Jul13, 2020, dx lt idc grade 2 and DCIS. RT Radial Scar/sclerosing lesion. Aug 19, 2020 bilateral lumpectomy
Log in to post a reply

Sep 12, 2020 11:37AM robinorbit wrote:

Arabiansrock,


My surgeon didn’t clear me to do things, he just never gave me any restrictions. Only advice was to wear a supportive sports bra and call if incisions looked infected. But I agree that the doctors are all different,even in that small office.

So glad to hear the Aleve helped you feel better! I’m going to try taking some ibuprofen today!

Surgery 8/21/2020 Dx 9/3/2020, DCIS, Left, <1cm, Stage 0, Grade 2 Dx 9/3/2020, IDC, Left, 1cm, Stage IA, Grade 2, 0/2 nodes, ER+/PR+, HER2- (IHC) Radiation Therapy Whole-breast: Breast
Log in to post a reply

Oct 3, 2020 08:04AM Annicemd wrote:

robinorbit, sorry you are going through this. I had 2 foci of 10mm and 7mm. So my BS recommended mastectomy and axiliary node clearance. I was 42 so I took tamoxifen (I also started pre-surgery) and also zoladex to block estrogen. From everything I found researching it, multifocal doesn’t seem to specifically affect prognosis as long as margins are clear at surgery and there are no other negative stats. x

Multifocal IDC, oncoDX 8 & 1. No chemo. Left Mx, exchange to implant April 25th 2012. Tamoxifen & zoladex Dx 6/22/2011, IDC, 1cm, Stage I, Grade 1, 0/10 nodes, ER+/PR+, HER2-
Log in to post a reply

Oct 5, 2020 07:18PM mallokg wrote:

I was 51 at diagnosis, Stage 1 IDC Grade 1, had a lumpectomy and radiation and am now on tamoxifen. I am also seeing a Gynecological Oncologist because I have polycystic ovaries and they are recommending a hysterectomy with oophrectomy to stop the estrogen production. Has anyone else done this or know anything about this? I'm torn...

Dx 9/20/2019, DCIS/IDC/IDC: Tubular, Left, 1cm, Stage IA, Grade 1, 0/3 nodes, ER+/PR+, HER2- (IHC)
Log in to post a reply

Mar 16, 2021 02:45PM Prahan wrote:

2 years completed after diagnosis. This thread gave me a lot of insights .

Waiting to hear from the people.

Dx 3/18/2019, IDC, Left, 1cm, Stage IB, Grade 1, 1/1 nodes, ER+/PR+, HER2- (IHC) Surgery 3/28/2019 Lumpectomy: Left Hormonal Therapy 5/8/2019 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone), Zoladex (goserelin) Radiation Therapy 5/8/2019 Whole-breast: Breast, Lymph nodes
Log in to post a reply

Mar 16, 2021 03:46PM voraciousreader wrote:

Eleven years and counting.....


stay safe and well

Doctor told me regarding my prognosis that I WASN'T on the Titanic! Hmmm...Really?....Okay! 02/2010 Pure Mucinous Breast Cancer, Oncotype DX 15, Stage 1, Grade 1, 1.8 cm, 0/2 nodes, ER+ 90% /PR+ 70% HER2- (+1)
Log in to post a reply

Mar 16, 2021 05:09PM Valentina7 wrote:

I remember after my diagnosis and treatment going on a short vacation to London...my husband was excited showing me around and I was just reading and reading from this community. I have learned a lot and didn't feel alone anymore.

Thank you.


3 years completed from my last radiation and counting :-)

Dx 11/27/2017, IDC, Right, <1cm, Stage IA, Grade 1, 0/5 nodes, ER+/PR+, HER2- Surgery 12/21/2017 Lumpectomy: Right; Lymph node removal: Sentinel Hormonal Therapy 1/12/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy 1/23/2018 3DCRT: Breast
Log in to post a reply

Apr 23, 2021 10:33PM abg712 wrote:

hi Ladies, I was wondering if anyone had experience with... being on Tamoxifen for a while and then doing Lupron shots and transitioning to an AI.

I had multi-focal IDC, oncotype: 11, ER/PR+, HER2- and I was diagnosed in 2017 at age 44. I had just completed IVF which I think caused the BC, BTW. Had a unilateral mastectomy. I am now almost 48, was on Tamox for 4 years and just got monster ovarian cysts. I was ordered off Tamox to see if the cysts would shrink. They did. Now, Onc would like to try Lupron for 3 months and the re-evaluate (presumably see how I do on Lupron? Add back Tamox? Add in an AI? Do an oophorectomy and then go back on Tamox? or an AI?)

I was wondering if anyone else had experience with this crossroads and what did you do? Any advice?

Lots of love to you strong sisters.

a
Log in to post a reply

Apr 24, 2021 04:21AM Prahan wrote:

I am taking 3 month Lupron shots along with Tamoxifen for the past 2 years

Dx 3/18/2019, IDC, Left, 1cm, Stage IB, Grade 1, 1/1 nodes, ER+/PR+, HER2- (IHC) Surgery 3/28/2019 Lumpectomy: Left Hormonal Therapy 5/8/2019 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone), Zoladex (goserelin) Radiation Therapy 5/8/2019 Whole-breast: Breast, Lymph nodes

Page 57 of 57 (1,691 results)