Posted on: Sep 10, 2014 01:01PM
Hi, I was dx with stage 1b TN with a micro metastasis (tiny microscopic spec) in 1 out of 3 nodes. Tumor size 7mm. My onc suggested cmf. My 2nd and 3rd opinion all thought ACT so that's what I did (though I used the dr who suggested cmf because I liked him best and he agreed to give me ACT. Only now am I researching things (was too scared before) and the latest research is showing cmf virtually as effective and much less toxic with less side effects. Plus your hair usually just thins! My hair was very thick so a little thinning would've been fine. Losing my hair has been so hard. Anyone had cmf for their TN please share your experience/success with it!Log in to post a reply
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Posts 1 - 14 (14 total)
Sep 13, 2014 03:37AM anotherNYCGirl wrote:
i was on cmf in 2000 for first bout. (i was er/pr+ then)
my current onc said cmf is hardly used any more, and never really considered anything other than ACT for trip neg, which is what I am now on.
Seems to me that you made the right choice!
Sep 13, 2014 04:00AM Tesoricx wrote:
thx anothernycgirl. I am near you in CT just over the NY border. My onc said cmf is showing to be very effective against TN and he thinks that will soon become standard of care. I know dr clifford hudis at Sloan is becoming a proponent of cmf for TN too. Thanks for sharing your experience and good luck.
Sep 16, 2014 12:24AM VerukaNY wrote:
Have you seen any studies that show clear advantage for cmf over act for tnbc? I couldn't find any except a very small study in China and something else in Canada. I think it is still an ongoing debate. Are you through treatment already?
Sep 16, 2014 03:03AM Tesoricx wrote:
I am thru chemo, 6 more radiation treatments. I don't know where the studies originated from but if you google dr clifford hudis tnbc and cmf, you'll see the studies. I had act but now I'm worried it was overly toxic, that cmf could've done the job and been gentler on the body without the risk of heart/ leukemia. How long has ACT been around, does anyone know? Cmf has women who used it 25+ years ago and have no ill long term effect. My aunt (thru marriage) took it 23 years ago and is on great health now. Runs around with grand kids all day long.
Sep 16, 2014 04:09AM redheeledwomen wrote:
Can you please educate us on what CMF is? I am also TN but due to age was only given the chemo option of TC. Nothing else was offered or advised. I have heard of ACT as an option in older women but, I wasn't a candidate here in WA State. Thanks.
Sep 16, 2014 04:59AM anotherNYCGirl wrote:
CMF is cytoxin, methyltrexate, and 5FU.
I did find it much easier to tolerate than Adriamycin, Cytoxin and Taxol. I did not lose my hair on CMF, I continued working full time as a preschool teacher, and I did not even tell my elderly Mom about my situation then. AC was an option for me then, too, and would have been less months of treatment, but I have a heart condition, so the onc opted for CMF.
I am currently being treated at a major oncological center on Long Island, and I have to assume they feel that the benefit of ACT outweigh the risks.
Wishing you both GOOD HEALTH !
Sep 16, 2014 11:46AM redheeledwomen wrote:
anotherNYCGirl- Thank you for the info. I really enjoy bco because I learn something new everyday. Thanks again!
Mar 9, 2019 06:56AM - edited Mar 9, 2019 06:58AM by Dleon24
I was just diagnosed age 48 with TNBC stage 2 , I went for three opinions and I found a great oncologist who attended MD Anderson as a student ( only 15-20 students per year are accepted) he is also triple board certified. He refuses to work for these big hospitals like Sloan etc because they all have standard protocols due to new types of drugs that they force the Drs to use them. Sloan and Summit Medical group all suggested ACT to me, however he explained to me on cellular level why CMF is just as effective if not more and less toxic, also less expensive which I find interesting, I read all about CMF and not one study showed that ACT works better. All it says it is the newest type of chemo. My Dr feels why bring out the :" big Guns" now when god forbid I ever have a relapse he can then go to ACT because once you use that you can never use it again. So for me he was extremely brilliant and stepped out of the box and customized a plan for me with no threat to my health. I researched all he said and it all is true. Statistics are no different. I look at it this way it is kind of like phones, old phones are out of date however still made the phone call just as effectively, today we have more fancy expensive phones where people make more money off of,,,,, that is how I compare CMF and ACT, I will be starting my chemo in three weeks. That's my analogy. Anyone else use CMF?
Mar 15, 2019 02:26AM Farfalla6 wrote:
I am also 48 and just diagnosed with TN; I don't meet with oncologist (at Sloane) till next week, so very interested in reading this. I really need to continue to work, so that is a big concern of mine, as I know I will need chemotherapy. I'm not sure what they will recommend, but a friend whose had personal experience a few years ago said AC+T was standard for TN tumors.
Mar 15, 2019 03:08AM santabarbarian wrote:
Nobody but me seemed to get my chemo but it worked well and I believe it was easier to tolerate than AC with fewer long term SEs.
I had carboplatin and Taxotere... these are the chemos that seem to be given to Her2+ along with Herceptin and Peralta (?sp)
Mar 16, 2019 03:08PM - edited Mar 20, 2019 12:27PM by Dleon24
Yes Sloan will tell you ACT is the standard protocol now they will not give you anything else ,,, again my Dr stands alone working as an independent oncologust for these reasons . He is considered one of the best Oncologists in N.J. and as mentioned before in my previous message attended the best school in the country and is triple board certified . He is not forced to use any drug .He doesn't have contracts with pharmaceutical companies and uses what he wanst. Plenty of studies show that it is just as effective if not more ACT actually has a higher reoccurance rate
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