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Topic: Oncotype score for grade 2?

Forum: Stage I Breast Cancer — Meet other members with a Stage I breast cancer diagnosis to share information and support.

Posted on: Jul 14, 2017 06:25PM

KristieLynn wrote:

Hi everyone ! I am waiting for my oncotype score to come back . I am Stage 1 grade2, ER + AND PR + 100% receptor+ for each . Just wondering what your scores were?

Th

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Jul 14, 2017 06:42PM Pi-Xi wrote:

My IDC was grade 2 as well with mitotic score 1 and ER 100% / PR 95%(?). Oncotype 12.

Oncotype 12 Dx 4/7/2016, DCIS, Left, 2cm, Stage 0, Grade 1, ER+/PR+ Surgery 7/11/2016 Mastectomy: Left; Prophylactic mastectomy: Right; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Dx 8/3/2016, DCIS/IDC/IDC: Papillary, Left, 1cm, Grade 2, ER+/PR+, HER2- Hormonal Therapy 9/1/2016 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Jul 14, 2017 07:01PM MinusTwo wrote:

Kristie - you can go to "all topics" on the left and find lots of active threads with your diagnosis. And lots of discussion about oncotype scores. When you get time, do go to My Profile and post your diagnosis and when you get to that point, your treatment plans.

2/15/11 BMX-DCIS 2SNB clear-TEs; 9/15/11-410gummies; 3/20/13 recurrance-5.5cm,mets to lymphs, Stage IIIB IDC ER/PRneg,HER2+; TCH/Perjeta/Neulasta x6; ALND 9/24/13 1/18 nodes 4.5cm; AC chemo 10/30/13 x3; herceptin again; Rads Feb2014
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Jul 14, 2017 07:30PM KristieLynn wrote:

Nerdythank you!

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Jul 14, 2017 07:32PM KristieLynn wrote:

thank you for your reply! I am hoping mine is low too. Can I ask how it is going on tamoxifen ? I'm going to be starting that soon.

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Jul 14, 2017 08:29PM letsgogolf wrote:

I would guess that your Oncotype score will be low. My er & pr were about the same as yours and my score was 3. My sister's er was 90% but her pr was only 15. Her Oncotype score was 17. There are some online programs that I found to be very accurate such as cancer math. You might want to plug your stats in there to see what they estimate your score will be.

Oncotype DX = 3. IDC with Lobular Features. Sentinel Node had Micrometastases - Estrogen 100%, Progesterone 99.89%, Ki67= 3.3% Dx 2/14/2017, IDC, Left, 1cm, Stage IB, Grade 1, 0/8 nodes, ER+/PR+, HER2- Surgery 2/27/2017 Lumpectomy: Left Radiation Therapy 4/6/2017 Whole-breast: Lymph nodes Hormonal Therapy 6/1/2017 Arimidex (anastrozole)
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Jul 14, 2017 10:13PM KristieLynn wrote:

let's go golf,

Thank you so much for the response! I hope you are right !i am not patient and hate waiting . The test won't be complete until next week .... which will be three weeks total . Thank you for the info ! Can I ask you how the Arimidex is ?

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Jul 14, 2017 11:01PM micronancy wrote:

IDC Grade 2, mitotic score1, ER and PR both 100% Oncotype 13

66 at diagnosis Oncotype 13 Dx 1/2013, IDC, 1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2- Surgery 2/3/2013 Lumpectomy: Left; Lymph node removal: Left, Sentinel
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Jul 15, 2017 12:10AM Hopfull2 wrote:

hi kristie, i wasER 95% stage 1 and my score was 39. So chemo it was for me. My Drs were almost positive my score would be low. They were very surprised. Of course I cried but then knew what I had to do. I hope your score is low fingers crossed. I'm on my 3rd month of tamoxifen and my SE are not bad at all. I get hot flashes but not all day sometimes not even every day

E🌺37yrs.old/ oncotype score 39 Dx 7/5/2016, DCIS/IDC, Right, <1cm, Stage IA, Grade 2, ER+/PR+, HER2- Surgery 8/7/2016 Mastectomy: Right Surgery 9/15/2016 Mastectomy Chemotherapy 11/10/2016 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 3/23/2017 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 6/9/2017 Prophylactic mastectomy: Left; Reconstruction (left): Tissue expander placement; Reconstruction (right): Latissimus dorsi flap, Tissue expander placement
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Jul 15, 2017 12:58AM ChiSandy wrote:

IDC Stage IA, Grade 2, 75% ER+, 97% PR+, mitotic score 1, OncotypeDX 16. No chemo. I was 64 at diagnosis, 10 years post-menopausal, so that was a factor (older age post-menopause, less-aggressive…I hope). Were I in my 40s (even early 50s) I might have considered chemo.

Diagnosed at 64 on routine annual mammo, no lump. OncotypeDX 16. I cried because I had no shoes...but then again, I won’t get blisters.... Dx 9/9/2015, IDC, Right, 1cm, Stage IA, Grade 2, 0/4 nodes, ER+/PR+, HER2- Surgery 9/23/2015 Lumpectomy: Right Radiation Therapy 11/2/2015 3DCRT: Breast Hormonal Therapy 12/31/2015 Femara (letrozole)
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Jul 15, 2017 01:29AM Meow13 wrote:

I was grade 2, mitotic rate 1, one Ilc and one idc stage 1. My er was 95% but pr less than 1% oncodx was 34. I chose no chemo did 4 years AI. Almost 6 years NED.

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Jul 15, 2017 06:19AM KristieLynn wrote:

Meow thank you for your reply! I have decided if my score comes back high I won't get chemo. I will just take the hornone meds. I glad you are doing well! Nerdy

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Jul 15, 2017 10:35AM wallycat wrote:

My sig line tells you mine---20. My first onco swore it would be low. As with all of my journey, they were wrong.

My mitotic score was 0-1 and I did not get a percent of ER/PR but rather an "8" for both er and pr, which he explained to me once but at the time, I was too panic stricken to pay attention and now I don't want to go back and know. I'm trying to forget about my path report and I keep hoping all the new information/science/discoveries will be available should I need them.

I skipped chemo. Only a 2% benefit if I recall...but don't quote me. My BS and onco said 4% or less benefit, may not be worth the side effects chemo has.

Tamoxifen side effects started about 8 or 9 months in...i'm sure I posted it somewhere here. Uterine issues continued years after I stopped it. Arimidex also caused horrible weight gain and joint pain. We do what we have to when we have to and hope it is the right decision.

Good luck and i hope your score is low so you have more options!

Dx 4/07 1 month before turning 50; ILC 1.8cm, ER+/PR+, HER2 neg., Stage 1, Grade 2, 0/5 nodes. Onco score 20, Bilateral Mast., tamoxifen 3-1/2 years, arimidex-completed 4/20/2012
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Jul 15, 2017 07:33PM KristieLynn wrote:

Wallycat sorry you had a rough time with the tamoxifen and that other med. I had a hysterectomy so I don't have a uterus but I do still have my ovaries. I was told my oncotype should be low to intermediate. Should find out next week . Thx

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Jul 15, 2017 07:45PM kira1234 wrote:

None of us really know. My oncologist thought low as well. I was 24. You can see my stats. My guess is because I was low by oncotype test no progesterone and having lobular.

Dx 6/2010, ILC, Left, <1cm, Stage IA, Grade 1, 0/1 nodes, ER+/PR+, HER2- Surgery 7/8/2010 Lumpectomy: Left; Lymph node removal: Left, Right, Sentinel Radiation Therapy 8/3/2010 Hormonal Therapy 10/5/2010 Aromasin (exemestane) Dx 2/2017, ILC, Left, <1cm, Stage IA, Grade 1, 0/2 nodes, ER+/PR-, HER2- Hormonal Therapy Arimidex (anastrozole) Surgery Lymph node removal: Sentinel; Mastectomy: Left, Right
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Jul 15, 2017 08:14PM farmerlucy wrote:

FWIW - I found this on the internet.

Slide 23 shows a calculation.

Not sure how I got to 3. ER/PR mid to low nineties.

http://meta-x.com/advancesbioinformatics/Rick_Baeh...



Dx at 51 after a preventive mx that wasn't. Oncotype dx 3. 3D tattoos from Vinnie! PTSD?? You are not alone! Surgery 2/21/2012 Prophylactic mastectomy; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Dx 2/24/2012, IDC, Right, 1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2- (FISH) Surgery 3/11/2012 Lymph node removal: Sentinel Surgery 7/22/2012 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Hormonal Therapy 4/10/2013 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 4/14/2015 Prophylactic ovary removal
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Jul 15, 2017 08:28PM kira1234 wrote:

Thanks so much for posting this. I'll look at it tomorrow . I'd love some of our very knowledgeable people to check it out. Beesie please

Dx 6/2010, ILC, Left, <1cm, Stage IA, Grade 1, 0/1 nodes, ER+/PR+, HER2- Surgery 7/8/2010 Lumpectomy: Left; Lymph node removal: Left, Right, Sentinel Radiation Therapy 8/3/2010 Hormonal Therapy 10/5/2010 Aromasin (exemestane) Dx 2/2017, ILC, Left, <1cm, Stage IA, Grade 1, 0/2 nodes, ER+/PR-, HER2- Hormonal Therapy Arimidex (anastrozole) Surgery Lymph node removal: Sentinel; Mastectomy: Left, Right
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Jul 15, 2017 08:53PM letsgogolf wrote:

KristieLynn…I have "0" side effects from Arimidex. My sister is the same. Feel no difference at all. I hope to stay on this for 10 years instead of 5.


Oncotype DX = 3. IDC with Lobular Features. Sentinel Node had Micrometastases - Estrogen 100%, Progesterone 99.89%, Ki67= 3.3% Dx 2/14/2017, IDC, Left, 1cm, Stage IB, Grade 1, 0/8 nodes, ER+/PR+, HER2- Surgery 2/27/2017 Lumpectomy: Left Radiation Therapy 4/6/2017 Whole-breast: Lymph nodes Hormonal Therapy 6/1/2017 Arimidex (anastrozole)
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Jul 15, 2017 08:59PM Tappermom383 wrote:

That's very encouraging, letsgogolf, as I'm starting on Arimidex Monday. Glad you and your sister have had such good experiences with it.

MJ


Diagnosed at 70 after four excisional biopsies over the course of 47 years. MammaPrint came back Low Risk. DexaScan: osteopenia. Dx 3/23/2017, DCIS/IDC, Right, 1cm, Stage IA, Grade 2, 0/3 nodes, ER+/PR+, HER2- Surgery 3/31/2017 Lumpectomy: Right; Lymph node removal: Sentinel Radiation Therapy 5/22/2017 Whole-breast: Breast Hormonal Therapy 7/17/2017 Arimidex (anastrozole)
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Jul 15, 2017 09:02PM kira1234 wrote:

letsgogolf that's unusual most of us have some effects. Some more than others. Mine are osteoarthritis, osteoporosis, yes I was prone to them from family. Most of us have reactions.

As far as hot flashes, they were horrible at the beginning. I'm 7 years in with a reacurrance will I continue to deal with them hell yes

Dx 6/2010, ILC, Left, <1cm, Stage IA, Grade 1, 0/1 nodes, ER+/PR+, HER2- Surgery 7/8/2010 Lumpectomy: Left; Lymph node removal: Left, Right, Sentinel Radiation Therapy 8/3/2010 Hormonal Therapy 10/5/2010 Aromasin (exemestane) Dx 2/2017, ILC, Left, <1cm, Stage IA, Grade 1, 0/2 nodes, ER+/PR-, HER2- Hormonal Therapy Arimidex (anastrozole) Surgery Lymph node removal: Sentinel; Mastectomy: Left, Right
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Jul 16, 2017 06:17PM Pi-Xi wrote:

KristieLynn,

My tamoxifen experience has been manageable. I'm a year out from surgery and I've been on tamoxifen for 10 1/2 months. Starting the drug when there are so many other physical and emotional factors makes it difficult to decouple what is really the fault of tamoxifen. My sleep is definitely not as deep. I take melatonin (dual release) which gets me to sleep and the slow release allows me to fall back to sleep, even when I get night sweats, which only come at certain times of my cycle. I think the brain fog and most of the word finding difficulty I had at the beginning can be attributed to the longer term effects of anesthesia. My fatigue has also lifted substantially. One thing that is for sure due to tamoxifen is dryness including eyes (the worst!), mouth and other mucous membranes...I had my first pelvic ultrasound after being on tamoxifen for nine months. It showed fibroids, an ovarian cyst (simple) and a slightly thickened endometrial lining. I'm not hopeful for the future of my uterus, but without having had a baseline US, it's hard to know what can be blamed on the tamoxifen.I just hope that the drug is working.

Oncotype 12 Dx 4/7/2016, DCIS, Left, 2cm, Stage 0, Grade 1, ER+/PR+ Surgery 7/11/2016 Mastectomy: Left; Prophylactic mastectomy: Right; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Dx 8/3/2016, DCIS/IDC/IDC: Papillary, Left, 1cm, Grade 2, ER+/PR+, HER2- Hormonal Therapy 9/1/2016 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)

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