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Topic: Did you have any scans when you were diagnosed?

Forum: Stage I Breast Cancer — Meet other members with a Stage I breast cancer diagnosis to share information and support.

Posted on: Jul 16, 2019 09:18AM

kec1972 wrote:

I'm just curious what others have had. When I was first diagnosed via ultrasound/biopsy, my surgeon ordered a breast MRI but no other body scans(bone scan, etc) were ordered to check for any spread. Wondering if anyone else had any type of scan after being diagnosed as Stage one?

Dx 12/17/2018, IDC, Left, 1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2- (IHC) Surgery 1/7/2019 Lumpectomy: Left; Lymph node removal: Sentinel Radiation Therapy 2/19/2019 Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Jul 16, 2019 09:20AM - edited Jul 16, 2019 09:21AM by edj3

I had an MRI with and w/o contrast. Then I had a chest x-ray (my request) because the MRI showed a small pleural effusion.

Edited to add that the MRI was after a mammogram, ultrasound, and US core needle biopsy which is when the cancer was officially dx'd.

Tried the tamoxifen, no thanks. Dx 4/9/2019, IDC, Left, <1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2- (IHC) Dx 5/6/2019, LCIS, Left, <1cm, 0/1 nodes Surgery 5/6/2019 Lumpectomy; Lymph node removal: Sentinel Radiation Therapy 6/2/2019 Whole-breast: Breast Hormonal Therapy 9/23/2019 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Jul 16, 2019 09:30AM - edited Jul 16, 2019 09:31AM by kec1972

edj3, was that a breast MRI?

Dx 12/17/2018, IDC, Left, 1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2- (IHC) Surgery 1/7/2019 Lumpectomy: Left; Lymph node removal: Sentinel Radiation Therapy 2/19/2019 Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Jul 16, 2019 10:03AM SimoneRC wrote:

3D Mammogram, Ultrasound, Ultrasound Core Biopsy, MRI of breasts with and without contrast. Had Bilateral Mastectomy with Sentinel Node Biopsy. Clean margins, no lymphovascular invasion, clear node. No further imaging as all was clear.

ATM Gene Mutation, Deletion. IDC w/Lobular Features and Focal Mucinous Features. Pre Pectoral Reconstruction. Hysterectomy
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Jul 16, 2019 10:07AM Betrayal wrote:

I had a repeat 3-D mammogram, an ultrasound and then a core needle biopsy performed using ultrasound for a mass that was not palpable. I was not sent for a MRI and have very dense breasts. Bx showed IDC but initial lumpectomy showed IDC, DCIS and ILC with slim margins necessitating second lumpectomy. I always wonder if MRI had been ordered I might have just had one lumpectomy? Results of surgery were not aesthetically pleasing. So insist on all diagnostic procedures you can to obtain a diagnosis.

Surgery 1/31/2016 Lumpectomy: Left Surgery 1/31/2016 Lymph node removal: Sentinel Surgery 3/3/2016 Lumpectomy: Left Radiation Therapy 3/31/2016 Whole-breast: Breast Hormonal Therapy 6/24/2016 Arimidex (anastrozole) Hormonal Therapy 5/18/2017 Femara (letrozole) Hormonal Therapy 6/16/2020 Aromasin (exemestane)
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Jul 16, 2019 10:08AM Veeder14 wrote:

I had a breast MRI which showed the tumor, then an ultrasound and mammogram that didn’t show it. Then the MRI biopsy. I also had a whole body PET scan which was for melanoma follow up and it didn’t show the breast tumor and was clear for lymph nodes

Dx 1/2/2018, ILC, Left, <1cm, Stage IB, Grade 1, 0/7 nodes, ER+/PR+, HER2- Surgery 1/26/2018 Lumpectomy: Left; Lymph node removal: Sentinel Radiation Therapy 3/8/2018 Hormonal Therapy 2/28/2019 Hormonal Therapy
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Jul 16, 2019 11:49AM - edited Jul 16, 2019 11:50AM by edj3

kec1972, yes it was. That MRI confirmed the left breast (which didn't need confirmation actually) but also checked out the right breast. I have very dense breast tissue so I was glad to get the right breast checked.

Of course then LCIS showed up in the path report from the lumpectomy on my left breast and that stuff is hard to find and apparently doesn't show up on scans.

Edited to add that the mammogram this year was a 3D and the first time I'd opted for that.

Tried the tamoxifen, no thanks. Dx 4/9/2019, IDC, Left, <1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2- (IHC) Dx 5/6/2019, LCIS, Left, <1cm, 0/1 nodes Surgery 5/6/2019 Lumpectomy; Lymph node removal: Sentinel Radiation Therapy 6/2/2019 Whole-breast: Breast Hormonal Therapy 9/23/2019 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Jul 16, 2019 12:45PM - edited Jul 16, 2019 01:05PM by Spoonie77

I had a baseline Mammo originally, called back for further imaging. Then 3D Mammogram, Ultrasound, Ultrasound Core Biopsy, Genetic Testing, MRI of breasts with/without contrast prior to surgery to be sure my other breast was indeed clear. Then had my LX with SLNB.

Due to my other chronic health conditions/bone joint pain, I asked for a Bone Scan which my first MO grudginly allowed. It revealed a healing broken rib (from RADs) and a benign tumor in my jaw that is now being followed yearly. I had asked for a PET scan, again given my complicated medical history, but was declined.

It's my understanding that PET scans are usually only ordered for Stage III and above, or when/if symptoms of METs present. IMO it doesn't make sense, however I've come to learn that like most things, cost controls the health world in most aspects.

"Spoonie" who entered BC World @ 41. DXd w/MS & Thyroid Cancer @42. Treatment: LX/SLNB/RADs. Plan A: 5mg Tamox = 0 QOL. Plan B: OS/AI = Rare allergy to OS meds. Plan C: Only option left,  Diet & Exercise. PS: Not a dr, just a Googler. Dx 7/20/2018, IDC, Left, 3cm, Stage IIA, Grade 2, 0/3 nodes, ER+/PR+, HER2- (FISH) Dx 8/30/2018, DCIS, Left, 1cm, Stage 0, Grade 2 Surgery 8/30/2018 Lumpectomy: Left; Lymph node removal: Left, Sentinel Radiation Therapy 10/1/2018 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy 3/30/2019 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy 7/2/2019 Zoladex (goserelin)
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Jul 16, 2019 12:51PM Elephant wrote:

I too only had a biopsy and MRI. They also wanted me to do genetic testing. I was under the impression that PET scan are for higher grade cancers.

Dx 11/5/2018, IDC, Left, <1cm, Stage IA, Grade 1, 0/2 nodes, ER+/PR+, HER2- Surgery 12/16/2018 Lumpectomy: Left Radiation Therapy 2/19/2019 Whole-breast: Breast Hormonal Therapy 4/14/2019 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Jul 16, 2019 08:46PM Ladyofthelake wrote:

After my initial diagnosis I had genetics testing and then a breast mri with and without contrast. This showed a questionable area in my sternum which need further evaluation, so then had a bone scan which came back all fine with the exception of a few areas of arthritis 😝. No other tests needed.

ADH found on left side after prophylactic mastectomy Dx 10/15/2018, IDC, Right, 2cm, Stage IA, Grade 2, 0/3 nodes, ER+/PR+, HER2- (IHC) Surgery 1/22/2019 Lymph node removal: Sentinel; Mastectomy: Left, Right; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Hormonal Therapy 3/7/2019 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Jul 17, 2019 01:02AM AliceBastable wrote:

I had the mammogram, then the ultrasound and biopsy on the same day about a week later, then an MRI with and w/out contrast the next week. The oncologist ordered a chest CT because I was still a smoker then and she wanted more detail than an x-ray would show. It showed a LOT, but nothing related to breast cancer. That was just a few days before surgery. I've had to have periodic scans for something else, and my oncologist is getting irritated that the other specialist expects her to order the scans, because, as she explained, she doesn't do CT scans unless there are symptoms to justify them. So I guess that's the basic protocol.

Endometrial cancer 2010, basal cell multiples, breast cancer 2018, kidney cancer 2018. Cancer's a bitch, but I'm a bigger one with more practice. Dx 5/2018, ILC/IDC, Left, 2cm, Stage IA, Grade 2, 1/1 nodes, ER+/PR+, HER2- Surgery 7/11/2018 Lumpectomy: Left; Lymph node removal: Sentinel Surgery 8/8/2018 Radiation Therapy 10/29/2018 Whole-breast: Breast, Lymph nodes
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Jul 17, 2019 06:02AM DogMomRunner wrote:

I had the screening mammogram, then diagnostic mammogram with ultrasound. After the biopsy (core), I got a breast MRI because the surgeon and MO couldn't agree which should take place first - chemo or lumpectomy. MRI gave a better idea of tumor size and lymph node involvement which was none.I also had to have an echocardiogram prior to starting the Herceptin. I will get one of those every 3 months.

You ain't run far enough to say My legs have failed You ain't gone far enough You ain't worked hard enough You ain't run far enough to say It ain't gonna get any better. Nathaniel Rateliff Dx 4/24/2019, DCIS/IDC, Left, 1cm, Stage IA, Grade 3, 0/8 nodes, ER-/PR-, HER2+ (FISH) Surgery 5/17/2019 Lumpectomy: Left; Lymph node removal: Left, Sentinel Targeted Therapy 6/6/2019 Herceptin (trastuzumab) Chemotherapy 6/6/2019 Taxol (paclitaxel) Radiation Therapy 9/22/2019 Whole-breast: Breast
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Jul 17, 2019 06:23AM Sjacobs146 wrote:

All I had was mammogram, ultrasound, biopsy, no MRI. I had a CT scan as part of the prep for rads, my RO said that sometimes those scans turn up mets in the lungs and liver, but I was clear. I don't believe that they do any other types of scans unless there is reason to believe that you have mets. There are risks to these scans as well. False positives, exposure to radiation. I understand how you feel. I used to imagine that the cancer had spread everywhere and I wish we could go looking for it. PET scans only turn up tumors of a certain size. It's a bit sobering to think that you don't know if you have mets unless you have symptoms. My docs always ask if I have pain anywhere. Believe me, if I felt any weird pain, I'd be at the docs ASAP

Dx 8/26/2014, IDC, Right, 1cm, Stage IIA, Grade 2, 1/3 nodes, ER+/PR+, HER2- Surgery 9/22/2014 Lumpectomy: Right; Lymph node removal: Right, Sentinel Chemotherapy 10/23/2014 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 1/25/2015 Breast Hormonal Therapy 4/16/2015 Arimidex (anastrozole), Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Jul 17, 2019 07:59AM SUPer52 wrote:

My annual screening consisted of 3-D/tomosynthesis mammo and ultrasound. My suspicious areas did not show on the ultrasound since they were calcifications, but they were seen on the mammo, so at the same appointment the radiologist had magnified views with mammogram completed. After that, other than the additional mammograms that were taken to complete my core biopsy and the ultrasound to guide the needle to the location of the area for my lumpectomy, I had no other scans. I was not given an MRI or any other scans to look for more cancer. My surgeon knew how nervous I was about the possibility of lymph node involvement, so he did have me get an ultrasound of the axillary area to see if any nodes looked enlarged or abnormal, but I think he was just trying to ease my mind because I was having the sentinel node biopsy anyway at the same time as the lumpectomy. During my radiation setup appointment, my ct scan did show the hematoma that I knew I had, so before my boost at the end of radiation, they gave me another ct scan just to redo my markings since it started to go down during treatment.

I have my first mammogram since completing radiation next month, and I will also be getting an ultrasound as there is an area on the other side they believe is a complicated cyst and they want to follow up on it a little more frequently. Back in January when I was diagnosed, I was so anxious to get into surgery. I just wanted the cancer out and to know if it had spread to lymph nodes, but in hindsight, I realize I didn't need to be in such a rush and maybe I should have at least inquired about why they weren't recommending me for an MRI. The 3-D mammograms are supposed to be very sensitive, but when I meet with my breast surgeon after my imaging tests next month, I am going to inquire about receiving MRI's as part of my monitoring plan moving forward. I don't want tests that will give me false positives and cause anxiety, but I also want to know that my follow up care is as thorough as it can be. My cancer was also extremely posterior and very difficult to get into view on the mammogram. On my screening mammogram, one group of calcifications only showed on one view, and the radiologist had to get quite creative with how to position me in the mammogram machine in order to get a better view and to complete the biopsy.

Now with all of that being said, my sister, who sees exactly the same doctors I do, does receive an MRI every year as part of her continued follow ups, and I know she had one at the time of diagnosis as well. However, her tumor was larger than mine and was an easily palpable lump, and her initial biopsy showed it was also positive for Her2. Maybe because she was obviously more advanced at time of diagnosis than I was, MRI was more standard in her case that it would have been for my early stage calcifications.

Kec, I am glad you asked this question because I have just started wondering myself how the imaging tests that were ordered for me compared to others with early stage bc.

"My mission in life is not merely to survive, but to thrive; and to do so with some passion, compassion, some humor, and some style." -Maya Angelou Dx 1/15/2019, DCIS/IDC, Right, 0/4 nodes, ER+/PR+, HER2- (FISH) Surgery 1/23/2019 Lumpectomy: Right; Lymph node removal: Sentinel Surgery 2/25/2019 Lumpectomy: Right Radiation Therapy 4/7/2019 Whole-breast: Breast, Chest wall Hormonal Therapy 5/10/2019 Arimidex (anastrozole)
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Jul 17, 2019 11:25AM wallycat wrote:

Before dx, I went for mammogram (intuitive dreams that something wasn't right). That was normal so I went for ultrasound. Pretty much nothing there but I was not OK with that. Hospital had just gotten a new breast MRI machine, so they told me to do that. Yup, there it was. Went back for a biopsy with the ultrasound, but again, the ultrasound could not see anything, so back to MRI to do a needle guided biopsy. Yup. Cancer.

I did have genetic tests since I was 49 at dx. No BRCA mutations. I don't believe they checked for much more but I was in a fog...and that was nearly 13 years ago so not sure what the panel consisted of.

No scans to date since I have no boobs (bmx). I did participate in an ovarian cancer study so was going for CA-125 tests and ultrasound (which found an incidental polyp in my uterus--thanks tamoxifen..grrrr).

Dx 4/07 1 month before turning 50; ILC 1.8cm, ER+/PR+, HER2 neg., Stage 1, Grade 2, 0/5 nodes. Onco score 20, Bilateral Mast., tamoxifen 3-1/2 years, arimidex-completed 4/20/2012
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Jul 19, 2019 10:09PM meeko1452 wrote:

Other than breast imaging (mammo, US, and MRI), I have not had any scans. Actually, now that I think about it I don't even think I had any bloodwork done before my mastectomy.

47 at diagnosis. Brip1 gene Variant of unknown significance. Onoctype score 8. Dx 4/4/2019, DCIS, Left, Stage 0, Grade 3, ER+/PR+ Surgery 4/17/2019 Lumpectomy: Left Dx 5/9/2019, IDC, Left, <1cm, Stage IA, Grade 1, 0/1 nodes, ER+/PR+, HER2- (FISH) Surgery 5/9/2019 Lymph node removal: Sentinel; Mastectomy: Left; Reconstruction (left): Silicone implant Hormonal Therapy 5/22/2019 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Jul 20, 2019 03:58AM ItsHandled444 wrote:

I had baseline mammogram, called back for diagnostic mammogram and biopsy. No ultrasound or MRI. Went right to lumpectomy, reincision to get bigger margins and check lymph nodes. Always wonder why no ultrasound or MRI, guess they knew what it was but only diagnosed DCIS until lumpectomy which also showed IDC.

Dx 12/26/2018, DCIS/IDC, Right, <1cm, Stage IA, Grade 2, 0/2 nodes, ER+/PR+, HER2- Surgery 2/27/2019 Lumpectomy: Right; Lymph node removal: Sentinel, Underarm/Axillary Radiation Therapy 4/15/2019 Whole-breast: Breast Hormonal Therapy 6/17/2019 Arimidex (anastrozole) Surgery Lumpectomy: Right; Lymph node removal: Right, Sentinel, Underarm/Axillary
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Jul 20, 2019 09:12AM Catsme wrote:

The only scan I had post diagnosis and MX was a nuclear bone scan. This was 1 month after surgery and only ordered because of hip pain. All clear and the hip pain did go away.

I do get CBC and liver, kidney blood work every 6 months, but no scans unless I have symptoms.

Dx 12/7/2016, ILC, Left, 1cm, Stage IA, Grade 1, 0/4 nodes, ER+/PR+, HER2- Surgery 1/3/2017 Lymph node removal: Sentinel; Mastectomy: Left; Prophylactic mastectomy: Right Hormonal Therapy 1/19/2017 Arimidex (anastrozole)
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Aug 13, 2019 12:25AM Alexb31 wrote:

i had the ultrasound and breast MRI. Then after chemo ended I demanded a CT scan to make sure there was no spread, I was way too worried about every ache and pain.

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Aug 13, 2019 08:47AM kec1972 wrote:

Alexb, that’s what I want! I’m having all these pains that are so worrying to me. I want a CT scan to find out or ease my mind

Dx 12/17/2018, IDC, Left, 1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2- (IHC) Surgery 1/7/2019 Lumpectomy: Left; Lymph node removal: Sentinel Radiation Therapy 2/19/2019 Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Aug 18, 2019 08:51PM OnTarget wrote:

I had ultrasound, breast MRI, bone scan, CT scan followed by a GI MRI.

I got the CT scan after the breast MRI saw something on my liver which ended up being benign.

Diagnosed at 42, Oncotype score 16, ITC in one node- considered node negative. Lost right implant to infection March 2020. Waiting to start reconstruction all over again. Dx 4/8/2019, ILC, Left, 3cm, Stage IB, Grade 2, 0/3 nodes, ER+/PR+, HER2- Dx 4/23/2019, ILC, Right, <1cm, Stage IA, Grade 2, 0/2 nodes, ER+/PR+, HER2- Surgery 5/15/2019 Lymph node removal: Sentinel; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Hormonal Therapy 6/13/2019 Zoladex (goserelin) Chemotherapy 8/5/2019 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Surgery 11/5/2019 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant
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Oct 29, 2019 04:39PM mitziandbubba wrote:

I had basically every scan in the universe - MUGA, Bone, CT, two MRIs - but they thought my situation was far more advanced. Originally no one expected me to be Stage 1. I am guessing I'd have had almost none of these scans if they had suspected Stage 1 from the get go. Long story short, I am a very lucky woman.

Surgery 5/9/2019 Lumpectomy: Left Surgery 5/28/2019 Lymph node removal: Sentinel Dx IDC, Left, 1cm, Stage IA, Grade 1, 0/4 nodes, ER+/PR+, HER2- Radiation Therapy Whole-breast: Breast Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Oct 29, 2019 04:54PM april1964 wrote:

no scans after the mammogram that indicated a problem... then surgery and radiation ... I get a yearly screening mammo and once every two year DEXA Scan...


oncotype 18 Dx LCIS/DCIS/IDC, Right, 1cm, Stage IA, Grade 2, 0/3 nodes, ER+/PR+, HER2-
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Jan 2, 2020 02:24PM - edited Jan 2, 2020 02:53PM by FNPMom

hello all - I requested a diagnostic mammogram after a negative screening 7 months prior - after that they did an ultrasound, then ultrasound guided biopsy - saw the breast surgeon then the onc - had my port placed before the MRI - MRI confirmed the right breast CA and showed a spot on the left breast - another ultrasound that showed a reactive lymph node on the left - had needle biopsy on the left breast/left lymph node - all negative - PET scan was also negative except for the breast CA on the right breast - also had CT of abdomen for the DIEP flap

The PET scan was done prior to the neoadjuvant chemo - it helped deal with my fear of Mets as my tumor was 4.3 cm - 1.1 cm after neoadjuvant chemo

Dx 5/1/2019, DCIS/IDC, Right, 4cm, Stage IB, Grade 2, 0/2 nodes, ER+/PR+, HER2+ Targeted Therapy 5/24/2019 Herceptin (trastuzumab) Targeted Therapy 5/24/2019 Perjeta (pertuzumab) Chemotherapy 5/24/2019 Carboplatin (Paraplatin), Taxotere (docetaxel) Surgery 10/10/2019 Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap Targeted Therapy 11/8/2019 Kadcyla (T-DM1, ado-trastuzumab) Hormonal Therapy 12/6/2019 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Jan 2, 2020 02:50PM MountainMia wrote:

I had a screening mammogram (2/20/29), followed by diagnostic mammo and ultrasound and biopsy (2/26/19.)

Then came surgery (lumpectomy) and chemo. Prior to radiation (8/19) I had a chest CT as part of that prep.

And on 12/30/19 I fell and hit my head, knocking me out and giving me a concussion. I went to the ER, where they did a brain CT and a chest Xray, as well as a pile of other blood and urine tests, and an EKG. The doctor said the CT and Xray found nothing "remarkable." While I wish the fall/concussion hadn't happened, I guess I'm glad to have one more layer of testing to tell me nothing untoward seems to be going on!

Next imaging, a mammo and whole breast ultrasound, are scheduled for 1/31/20.

The rain comes and the rain goes, but the mountain remains. I am the mountain.
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May 29, 2020 08:50AM Whatjusthappened wrote:

I had screening mammogram, diagnostic mammogram, ultrasound, and breast MRI. I also had a PET scan because I had back pain. An MRI done later showed the back pain to be caused by stenosis and arthritis, not mets. I also had a bone density scan before starting AI's. It is my understanding that if you have any symptoms, your MO can order tests to rule out mets. My MO has been very good about this, and I've had multiple tests done over the past year. A word of caution though. While every test has been negative for mets, I have had a number of other conditions turn up on these tests, which has led to a plethora of referrels, appointments, and even more tests. Now I'm more cautious about reporting aches and pains to my MO. I figure if it is anything to worry about, it will get worse, and then I'll mention it.

BRCA2 positive; multifocal LCIS/ILC found after sugery Dx 2/1/2019, LCIS/ILC, Right, 4cm, Stage IB, Grade 2, 1/3 nodes, ER+/PR+, HER2- (FISH) Surgery 2/22/2019 Mastectomy: Right; Prophylactic mastectomy: Left Radiation Therapy 4/23/2019 External: Lymph nodes, Chest wall Surgery 6/17/2019 Prophylactic ovary removal Surgery Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap Hormonal Therapy Arimidex (anastrozole)

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