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Topic: Stage 1 IDC without any hormone treatment after surgery?

Forum: Stage I Breast Cancer — Meet other members with a Stage I breast cancer diagnosis to share information and support.

Posted on: Sep 29, 2019 10:17AM

BCboard63 wrote:

Diagnosed as IDC three moths ago and had mastectomy in July. Stage 1c, node-negative, tumor size 12mm, ER+, PR-, HER2-, Grade 2, Oncotype 21. One MO prescribed Arimidex and another Letrozole. but I don't want to take it due to existing medical conditions-osteoporosis, high cholesterol, poor liver history, frequent rashes, wrist pain, urinary frequency etc…From what I read, it seems the treatment related risks outweigh the benefits. For me, quality of life is more important. Mastectomy has already made my life miserable and really hate to live another 5 years with SEs. Also, I am over 63, kids grown up and wouldn't mind to leave sooner or later. Does anybody have similar diagnosis or experience share with me?

Thank you!

Dx 5/29/2019, IDC, Left, 1cm, Grade 2, 0/3 nodes, ER+/PR-, HER2- (FISH) Surgery
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Mar 15, 2020 11:15PM dtad wrote:

Hi everyone. I refused aromatase inhibitors from the start due to poor health at the time of diagnosis. I have multiple autoimmune disease with poor QOL. Thankfully I just hit the 5 year mark. This was the right decision for me. I'm not advocating it for anyone else. We all have to make our own informed decisions. Good luck to all navigating this complicated disease.

Dx 3/20/2015, IDC, Left, 1cm, Stage IA, Grade 2, ER+/PR+, HER2- Dx 4/10/2015, ILC, 1cm, Stage IA, Grade 2, ER+/PR+, HER2- Surgery 5/21/2015 Lymph node removal: Sentinel; Mastectomy: Left, Right; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant
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Mar 16, 2020 09:50AM - edited Mar 22, 2020 01:02AM by Georgia1

Hi BCboard63,

I'm going to chime in with the others who recommended at least trying Tamoxifen. It reduces your recurrence risk, builds bones, and most women find the side effects quite temporary. You get results even with two years, five years is better of course. I am 61, with osteoporosis, and also take Fosomax for the osteoporosis. In terms of your question on supplements, I only take calcium and vitamin D. Side effects of Tamoxifen can be quite minimal in post-menopausal women and they certainly are in my case.

Cancer touched my breast so I kicked its ass. Dx 9/3/2017, ILC/IDC, Right, <1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2- Dx 10/10/2017, LCIS, Right, 0/1 nodes Surgery 10/10/2017 Lumpectomy; Lymph node removal: Right, Sentinel Radiation Therapy 11/27/2017 Whole-breast: Breast Hormonal Therapy 1/2/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Mar 21, 2020 12:17AM - edited Mar 23, 2020 03:22AM by CTMOM1234

Coming back on here to pay it forward, so appreciative for those who were here for me when I needed guidance and support during my bc journey, and I was reminded of that when today I was private messaged by someone who somehow found my old post(s). I've been where many of you are: annual routine mammogram revealed questionable micro-calcifications, no family history, hematoma after biopsy, surgeon trying to steer me to mastectomy, genetic testing for BRCA1 and 2 (thankfully negative), more stress when sent for MRI biopsy of other breast (thankfully nothing), oncology appointment regarding tamoxifen, etc. And not seeing too many survivors return to these boards.

I will be 55 years old on Monday. Ten years ago, I spent part of my 45th birthday on a radiation table getting zapped. I am a private person and suffered in silence but turned to these boards to help get me through this. So Happy 10 years to me, and wishing you all light at the end of this very scary tunnel and that you come back to provide comfort to others. Please pm me if I can be of help, many did the same for me a decade ago.

Jan'10 lumpect.grade 2 DCIS. SURPRISE 1.75mm grade 2 IDC in path report, so stage 1a. Jan'10 SNB 0/3 nodes. Mar-Apr'10 rads: 25 full+5 boosts LEFT PRONE position, stickers/NO TATS. May'10 DECLINED tamox. Mar'20 -- 10 yrs later! I'm doing fine:) ! Dx 11/1/2009, ER+/PR+
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Mar 21, 2020 06:57AM KIDI919 wrote:

Good news CTMOM1234!!

Dx 9/17/2019, DCIS/IDC, Left, 1cm, Stage IA, Grade 3, 0/2 nodes, ER+/PR+, HER2- (IHC) Radiation Therapy 1/15/2020 Whole-breast: Breast
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Mar 22, 2020 12:51PM BCboard63 wrote:

Hi dtad,

Congratulations on the 5 year mark and thank you for response here! I am very happy to find your situation is quite similar to mine. Your experience is a very encouraging news to me.

Dx 5/29/2019, IDC, Left, 1cm, Grade 2, 0/3 nodes, ER+/PR-, HER2- (FISH) Surgery
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Mar 22, 2020 12:59PM BCboard63 wrote:

Hi Georgia1,

None of my MOs recommended Tamoxifen. I asked MOs about this and she said AIs are more effective.

Dx 5/29/2019, IDC, Left, 1cm, Grade 2, 0/3 nodes, ER+/PR-, HER2- (FISH) Surgery
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Mar 22, 2020 01:03PM BCboard63 wrote:

Happy 10 years CTMOM1234! I totally agree with you that these boards are very helpful.

Dx 5/29/2019, IDC, Left, 1cm, Grade 2, 0/3 nodes, ER+/PR-, HER2- (FISH) Surgery

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