Join Us

We are 217,485 members in 84 forums discussing 160,589 topics.

Help with Abbreviations

Topic: Tumor Markers Elevated - Does Your Doc Monitor Them

Forum: Stage I Breast Cancer — Meet other members with a Stage I breast cancer diagnosis to share information and support.

Posted on: Dec 3, 2019 01:01PM

mitziandbubba wrote:

I got a call yesterday that my tumor markers have gone up slightly from my last blood test. First off, I had no idea that tumor markers were even going to be a thing in my case. I I read that a lot of docs don't use tumor markers and especially not for Stage 1 people? And that they can throw up lots of false positives? And that a lot of conditions can cause them to rise including inflammation? I had a bad cold for over a month when I was tested last week so maybe it could even be that?

My oncologist is super cautious. For example I have had every scan in the universe, genetic testing etc. I know other Stage 1's don't get a bone scan but they did think I was further along - but still. I'm realizing that my doctor is thorough but maybe it is too much? I really do not want to live in constant fear and worry. I cried for hours last night. Maybe I will get used to it eventually but I am not sure.

My husband thinks it is great that my onc is this way and says it is my choice to be fearful or not. Of course I am the one who went through cancer, not him. And it is so soon after treatment ends already there is an issue. Just last week when I had the blood test my onc said 2020 will be a great year for you! Go live your life!

And then a week later I'm back in it again.

But I'm confused about why I'm having the tumor markers tested to begin with - does your doc test them?

Surgery 5/9/2019 Lumpectomy: Left Surgery 5/29/2019 Lymph node removal: Sentinel Dx IDC, Left, 1cm, Stage IA, Grade 1, 0/4 nodes, ER+/PR+, HER2- Radiation Therapy Whole-breast: Breast Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Log in to post a reply

Page 1 of 2 (33 results)

Posts 1 - 30 (33 total)

Log in to post a reply

Dec 3, 2019 01:29PM MountainMia wrote:

Consider whether you want all the testing. It is your choice, even if you keep the same oncologist. What is the next step after having the blood test results? Is there something else to do, some other testing? And then what? If there is no change in treatment plan, it's possible there isn't much value in the testing.

My MO is a minimalist. I didn't have lots of scans or diagnostic tests. I am not having blood tests for tumor markers. When I asked him (at my 3-month follow-up after the end of chemo) about the schedule for appts with him, he said it was my choice. I could schedule to see him regularly, or not at all, or something in between. He said for a lot of people, their anxiety increases so much for each appointment, that unless they actually have symptoms or something wrong, it is not helpful to them to come in. So he and I agreed I won't see him anymore, unless needed.

So no, I don't have tumor marker testing. Good luck finding out what you need to from this round, and deciding what schedule you want for more testing.

The rain comes and the rain goes, but the mountain remains. I am the mountain.
Log in to post a reply

Dec 3, 2019 01:52PM mitziandbubba wrote:

MountainMia thank you. On the one hand, I understood the need for the testing at the beginning of my journey. They originally thought I was possibly Stage III vs Stage 1A so they were checking to see if I was maybe Stage IV. It's a complicated story, my case presented itself in a very rare way. My onc said I am 1 in 1000. In that case, I was grateful for all the testing b/c the way my case presented itself, I was headed straight to chemo. And I bet that is what would have happened a lot of other places - I did read of a few similar cases where they did do this And in the end, no chemo and a very short journey (and I hope it is not going to start up again now!). My oncotype score was 10.

How the heck do I move on from cancer if every three months there's another scare?

After my active treatment was complete, they sent me for both a lung and liver scan b/c the original scans had shown a cyst on my liver and some kind of something on my lungs. Both ended up being nothing but of course, I was scared. So many scans. Of course I want to know if something is amiss but - wasn't I supposed to be Stage 1A with a Grade 1 tumor? My rad onc told me I will live for 100 years now and probably die of boredom, not cancer.

I swear, every single medical person in the city knows me know. I have had so many scans I'm like a medical celebrity. One guy saw me in the hall and was like "Hey! I did your MRI, how's it going?" And I was thinking oh, which MRI was that? The guy who did my bone and muga scans is like an old friend.


Surgery 5/9/2019 Lumpectomy: Left Surgery 5/29/2019 Lymph node removal: Sentinel Dx IDC, Left, 1cm, Stage IA, Grade 1, 0/4 nodes, ER+/PR+, HER2- Radiation Therapy Whole-breast: Breast Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Log in to post a reply

Dec 3, 2019 04:47PM arizonaboundgal wrote:

Hey Mitzi. Me again! Was just taking a look at your post from earlier today. I also had Grade 1 ILC, less than 2 mm. and my doctors did nothing but the surgery. Now, these are some of the finest doctor's in the country since I'm lucky enough to live so close to Mass General, Dana, Brigham, etc. My oncologist even gave me the option of not taking an aromatase inhibitor because she thought it wouldn't make much of a difference in survival time. (Using charts, I think it would have given me maybe a month longer if I stayed on them for 5 years.) I had no tumor marker tests, no scans, no anything but surgery. Wait, I did have an MRI. Sure sounds like you'd like some solid answers to your question. I'm sure medical celebrity is something you never aspired to be. ;)

Enjoy every sandwich--Warren Zevon
Log in to post a reply

Dec 3, 2019 04:57PM mitziandbubba wrote:

Well hi! You see what you are telling me is exactly my thinking - that my doctor is being overzealous. I am getting treatment in a major city and I am confident that it is very good care (although like not what you are describing), but it is possible that it is just too much. I am absolutely fine to take Tamoxifen (I actually see some positive benefits from it besides you know, keeping cancer away!) but the tumor marker thing seems like it is not done for someone with my stats? Like I said, the scans early on made sense b/c of my weird situation, I am very grateful that they really examined me vs jumping into things, but I do not want to be constantly afraid.

When I get the blood taken again next week I will ask to see my doctor. I want to know the reason for the tumor marker monitoring if my cancer was found so early and my prognosis is so good. Perhaps there is some very good reason that I don't know about. Or maybe she is just very cautious, in which case, I might request that we step the tests down a bit? I really like my doctor very much so I don't want to switch but it has crossed my mind.

Surgery 5/9/2019 Lumpectomy: Left Surgery 5/29/2019 Lymph node removal: Sentinel Dx IDC, Left, 1cm, Stage IA, Grade 1, 0/4 nodes, ER+/PR+, HER2- Radiation Therapy Whole-breast: Breast Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Log in to post a reply

Dec 3, 2019 05:09PM arizonaboundgal wrote:

Yes! Talk with your doc. That sounds great. Hang in there!

Enjoy every sandwich--Warren Zevon
Log in to post a reply

Dec 3, 2019 05:13PM MinusTwo wrote:

Tumor markers are an indication - not a diagnosis. They can go up & down. If you track them every 6 months with continual large increases, maybe you should look for something. If they jump one time - it doesn't usually mean much. Many docs don't use them because a) they confuse the patients and b) they show a tread over time.

2/15/11 BMX-DCIS 2SNB clear-TEs; 9/15/11-410gummies; 3/20/13 recurrance-5.5cm,mets to lymphs, Stage IIIB IDC ER/PRneg,HER2+; TCH/Perjeta/Neulasta x6; ALND 9/24/13 1/18 nodes 4.5cm; AC chemo 10/30/13 x3; herceptin again; Rads Feb2014
Log in to post a reply

Dec 3, 2019 05:36PM mitziandbubba wrote:

Thank you MinusTwo! TBH I had not really understood what tumor markers were before. No one had ever mentioned them to me, I had just heard the term in passing. I just became so upset when I got the call to come back for another test b/c I just want to be DONE. I realize that technically we are not done even when we are "done" with active treatment. But I really did feel like I was moving on.

Surgery 5/9/2019 Lumpectomy: Left Surgery 5/29/2019 Lymph node removal: Sentinel Dx IDC, Left, 1cm, Stage IA, Grade 1, 0/4 nodes, ER+/PR+, HER2- Radiation Therapy Whole-breast: Breast Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Log in to post a reply

Dec 3, 2019 06:15PM mitziandbubba wrote:

Also, it would be nice if the doc EXPLAINED what tumor markers are to me and how they operate before telling me one of mine is slightly elevated! I suppose slightly means don't worry but why does no one explain things to me?

I'm generally a worrier but I did not really have medical issues or spend a lot of time going to doctors before cancer. I am sure this is true for many people. I went to the doctor maybe 4x a year - checkup, gyno visit, mammogram and maybe that one bad cold. So all of this testing and waiting or results is a new feeling. The constant doctors visits are a new feeling.

My PCP actually told me that I was in "absolutely spectacular health" just one year before this cancer shizz. I would have had cancer when she said it, they just didn't detect it yet. So healthy, except for one tiny tumor huh?



Surgery 5/9/2019 Lumpectomy: Left Surgery 5/29/2019 Lymph node removal: Sentinel Dx IDC, Left, 1cm, Stage IA, Grade 1, 0/4 nodes, ER+/PR+, HER2- Radiation Therapy Whole-breast: Breast Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Log in to post a reply

Dec 3, 2019 06:36PM Spookiesmom wrote:

All my MOs have done tumor markers on me, past 7 years. Unless it jumped sky high in a short time*I* don’t have much faith in them. It didn’t catch my reoccurrence in January, only my symptoms clued MO. Current MO does test, guess he’s watching for trends.

Reoccurrence 3-19. Dx IDC, Stage IIIA, Grade 3
Log in to post a reply

Dec 3, 2019 06:38PM mitziandbubba wrote:

Sorry to hear about the recurrence, spookiesmom. But that is good to know that other people are having them watched. And not so good to hear that they didn't catch the recurrence. I wish you continued healing and happiness.

Surgery 5/9/2019 Lumpectomy: Left Surgery 5/29/2019 Lymph node removal: Sentinel Dx IDC, Left, 1cm, Stage IA, Grade 1, 0/4 nodes, ER+/PR+, HER2- Radiation Therapy Whole-breast: Breast Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Log in to post a reply

Dec 3, 2019 06:41PM Scrafgal wrote:

My MO tests tumor markers once per year...

Dx 12/2016, IDC, Right, 4cm, Stage IIA, Grade 3, 0/7 nodes, ER+/PR+, HER2- Surgery 2/5/2017 Mastectomy: Right; Reconstruction (right): Silicone implant, Tissue expander placement Chemotherapy 3/21/2017 Taxol (paclitaxel) Chemotherapy 6/14/2017 FAC Hormonal Therapy 9/24/2017 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 10/12/2017 Reconstruction (right): Fat grafting, Silicone implant Surgery 5/9/2018 Reconstruction (left): Fat grafting, Silicone implant; Reconstruction (right): Fat grafting Surgery 10/15/2018 Reconstruction (right): Nipple tattoo Surgery 5/8/2019 Reconstruction (left): Fat grafting; Reconstruction (right): Fat grafting Hormonal Therapy 7/22/2019 Arimidex (anastrozole) Surgery 9/5/2019 Reconstruction (right): Nipple tattoo
Log in to post a reply

Dec 3, 2019 06:46PM mitziandbubba wrote:

Scrafgal, thanks. I guess every doctor has their own methods. I wish it would be once a year!

Surgery 5/9/2019 Lumpectomy: Left Surgery 5/29/2019 Lymph node removal: Sentinel Dx IDC, Left, 1cm, Stage IA, Grade 1, 0/4 nodes, ER+/PR+, HER2- Radiation Therapy Whole-breast: Breast Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Log in to post a reply

Dec 3, 2019 07:07PM AliceBastable wrote:

I don't think my tumor markers are tested. I do get chest, abdomen, and pelvic scans every four months, but that's because I had two kinds of cancer last year (and two previously). They're ordered by my urologist but scheduled by my oncologist. She stays on top of a lot of other bloodwork, mostly to do with kidney function, but she's mentioned a few things she's tracking that might require more testing next time I see her. She has me on an every three month schedule until I'm two years out from the surgeries, then I'll go to every four months - and the scans should go to twice a year. I had one wonky blood result that had me going in to get retested weekly for about a month, and it felt weird to be there so often when I'm technically healthy as a horse.

Endometrial cancer 2010, basal cell multiples, breast cancer 2018, kidney cancer 2018. Cancer's a bitch, but I'm a bigger one with more practice. Dx 5/2018, ILC/IDC, Left, 2cm, Stage IA, Grade 2, 1/1 nodes, ER+/PR+, HER2- Surgery 7/10/2018 Lumpectomy: Left; Lymph node removal: Sentinel Surgery 8/7/2018 Radiation Therapy 10/28/2018 Whole-breast: Breast, Lymph nodes
Log in to post a reply

Dec 3, 2019 07:23PM gb2115 wrote:

I've never had mine tested. In fact she's never done blood work. I did have CT and bone scan after surgery, but the surgeon ordered those. I think onc would have halted that but I hadn't been seen by her yet.

Anyway, at stage 2, my oncologist said she will only further investigate things if I have symptoms of a problem. I get the impression there's no hurry to catch spread, because it moves slow and either responds to treatment or not. So why worry a patient to death by chasing markers that are not always accurate?

Dx IDC in October 2016, stage 2A, 1.2 cm ER/PR+ Her2-, Grade 2, 1/3 nodes. Mammaprint low risk luminal A, Lumpectomy + radiation + tamoxifen. Age 38 at diagnosis.
Log in to post a reply

Dec 3, 2019 07:39PM - edited Dec 3, 2019 07:43PM by mitziandbubba

Alice, I am on 3 month schedule too. gb- I agree with you. They are scaring me with this. I cried most of the afternoon yesterday.

What if the tumor marker is still elevated on the next test or goes up further? Then what? More scans? How many false positives am I going to have to endure over the years if I have this type of doctor?

Surgery 5/9/2019 Lumpectomy: Left Surgery 5/29/2019 Lymph node removal: Sentinel Dx IDC, Left, 1cm, Stage IA, Grade 1, 0/4 nodes, ER+/PR+, HER2- Radiation Therapy Whole-breast: Breast Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Log in to post a reply

Dec 3, 2019 07:43PM Scrafgal wrote:

I was on an every 4 month schedule for the first two years post chemo. I am now starting an every 6 months until I am 5 years out...I think I go to once per year after that. I had a very aggressive tumor, high oncotype score, etc...I had to "earn" my way into less frequent screening by having things go well for this first two years, I guess...

Dx 12/2016, IDC, Right, 4cm, Stage IIA, Grade 3, 0/7 nodes, ER+/PR+, HER2- Surgery 2/5/2017 Mastectomy: Right; Reconstruction (right): Silicone implant, Tissue expander placement Chemotherapy 3/21/2017 Taxol (paclitaxel) Chemotherapy 6/14/2017 FAC Hormonal Therapy 9/24/2017 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 10/12/2017 Reconstruction (right): Fat grafting, Silicone implant Surgery 5/9/2018 Reconstruction (left): Fat grafting, Silicone implant; Reconstruction (right): Fat grafting Surgery 10/15/2018 Reconstruction (right): Nipple tattoo Surgery 5/8/2019 Reconstruction (left): Fat grafting; Reconstruction (right): Fat grafting Hormonal Therapy 7/22/2019 Arimidex (anastrozole) Surgery 9/5/2019 Reconstruction (right): Nipple tattoo
Log in to post a reply

Dec 3, 2019 09:17PM AliceBastable wrote:

I don't get worried over scans or blood tests. I think of them as preventive maintenance. I did have to have a biopsy on my kidney ghost earlier this year, and I got pretty nervous waiting for the results. But the routine tests are no big deal to me.

Endometrial cancer 2010, basal cell multiples, breast cancer 2018, kidney cancer 2018. Cancer's a bitch, but I'm a bigger one with more practice. Dx 5/2018, ILC/IDC, Left, 2cm, Stage IA, Grade 2, 1/1 nodes, ER+/PR+, HER2- Surgery 7/10/2018 Lumpectomy: Left; Lymph node removal: Sentinel Surgery 8/7/2018 Radiation Therapy 10/28/2018 Whole-breast: Breast, Lymph nodes
Log in to post a reply

Dec 3, 2019 09:47PM mitziandbubba wrote:

Alice, that is a great way to think about it. I'd like to try to see it that way too. After all, until BC I NEVER worried over mammograms. The whole point of the mammograms were to find cancer early if it was present. That is precisely what happened. So the scans did their job well.

Surgery 5/9/2019 Lumpectomy: Left Surgery 5/29/2019 Lymph node removal: Sentinel Dx IDC, Left, 1cm, Stage IA, Grade 1, 0/4 nodes, ER+/PR+, HER2- Radiation Therapy Whole-breast: Breast Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Log in to post a reply

Dec 3, 2019 10:09PM OnTarget wrote:

I had my tumor markers tested when I was diagnosed. I also asked for a bone scan. I ended up with a CT and gut MRI because my liver had a lesion which was picked up on my breast MRI.

I also got a baseline DEXA.

I like to be proactive and I'd love an MO who tested lots of stuff.

I am happy that they now have a baseline of just about everything on me!


Diagnosed at 42, Oncotype score 16, ITC in one node- considered node negative. Lost right implant to infection March 2020. Waiting to start reconstruction all over again. Dx 4/8/2019, ILC, Left, 3cm, Stage IB, Grade 2, 0/3 nodes, ER+/PR+, HER2- Dx 4/23/2019, ILC, Right, <1cm, Stage IA, Grade 2, 0/2 nodes, ER+/PR+, HER2- Surgery 5/15/2019 Lymph node removal: Sentinel; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Hormonal Therapy 6/13/2019 Zoladex (goserelin) Chemotherapy 8/5/2019 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Surgery 11/6/2019 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant
Log in to post a reply

Dec 3, 2019 11:59PM AliceBastable wrote:

Yes, seeing the "no change" is great on a series of scans over time. Even better is when something got smaller!

Endometrial cancer 2010, basal cell multiples, breast cancer 2018, kidney cancer 2018. Cancer's a bitch, but I'm a bigger one with more practice. Dx 5/2018, ILC/IDC, Left, 2cm, Stage IA, Grade 2, 1/1 nodes, ER+/PR+, HER2- Surgery 7/10/2018 Lumpectomy: Left; Lymph node removal: Sentinel Surgery 8/7/2018 Radiation Therapy 10/28/2018 Whole-breast: Breast, Lymph nodes
Log in to post a reply

Dec 4, 2019 07:51PM mitziandbubba wrote:

Thanks everyone. I feel calmer about it today. I think I was just in shock initially. I'm still a bit worried but less so. OnTarget - you would LOVE my MO. I suppose I should love her or leave her, right?

Surgery 5/9/2019 Lumpectomy: Left Surgery 5/29/2019 Lymph node removal: Sentinel Dx IDC, Left, 1cm, Stage IA, Grade 1, 0/4 nodes, ER+/PR+, HER2- Radiation Therapy Whole-breast: Breast Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Log in to post a reply

Dec 5, 2019 07:57PM letsgogolf wrote:

mitziandbubba Like you, I had a stage 1, grade 1 tumor and this was nearly 3 years ago. I have never had a scan or tumor markers. I see my doctor every 6 months and I always have a CBC prior to my visit. I also have a mammogram once each year. I believe my treatment falls within the recommended guidelines. I am not an expert but your doctor's plan seems unusual to me, given your excellent prognosis. with your small, low grade tumor.

Oncotype DX = 3. IDC with Lobular Features. Sentinel Node had Micrometastases - Estrogen 100%, Progesterone 99.89%, Ki67= 3.3% Dx 2/14/2017, IDC, Left, 1cm, Stage IB, Grade 1, 0/8 nodes, ER+/PR+, HER2- Surgery 2/27/2017 Lumpectomy: Left Radiation Therapy 4/6/2017 Whole-breast: Lymph nodes Hormonal Therapy 6/1/2017 Arimidex (anastrozole) Targeted Therapy
Log in to post a reply

Dec 5, 2019 09:24PM mitziandbubba wrote:

Letsgogolf - originally they thought my cancer was far more advanced, so I think they rushed into all the scans b/c they were so worried. But now I don't get it. I am definitely someone like you said with a great prognosis. Why the tumor markers? Anyway I go there next week for another blood draw so I am going to ask why.

Surgery 5/9/2019 Lumpectomy: Left Surgery 5/29/2019 Lymph node removal: Sentinel Dx IDC, Left, 1cm, Stage IA, Grade 1, 0/4 nodes, ER+/PR+, HER2- Radiation Therapy Whole-breast: Breast Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Log in to post a reply

Dec 20, 2019 11:18AM mitziandbubba wrote:

Just b/c I feel like sharing - my elevated tumor markers are now normal. No oncologist visit for another 3 months! I didn't get to talk to my onc actually, just went in for the blood test. I decided I do not mind having the tumor markers checked periodically and I am going to let my doc do her job the way she sees fit for now.

Surgery 5/9/2019 Lumpectomy: Left Surgery 5/29/2019 Lymph node removal: Sentinel Dx IDC, Left, 1cm, Stage IA, Grade 1, 0/4 nodes, ER+/PR+, HER2- Radiation Therapy Whole-breast: Breast Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Log in to post a reply

Dec 20, 2019 02:47PM april1964 wrote:

...my mo won’t do tumor markers for stage 1 bc with no nodes involved because she said that current guidelines don’t call for it and that insurance won’t pay for it...???

oncotype 18 Dx LCIS/DCIS/IDC, Right, 1cm, Stage IA, Grade 2, 0/3 nodes, ER+/PR+, HER2-
Log in to post a reply

Dec 20, 2019 03:46PM Lucy55 wrote:

Mitzi..that's great your markers are all normal now...my doctor checks all his patients tumour markers yearly ...and all patients with invasive cancer have full CT scan and Bone Scans at diagnosis as part of his staging process . I told him the tumour marker test causes me stress....and he said if I don't want it I don't have to ..but he said he feels there's a big advantage to finding out early if there is a recurrence...so I decided to keep doing it !

Dx 8/27/2014, IDC, <1cm, Stage IA, Grade 2, 0/4 nodes, ER+/PR+, HER2- Hormonal Therapy 9/13/2014
Log in to post a reply

Dec 20, 2019 04:27PM sbelizabeth wrote:

My prior oncologist checked tumor markers every visit. She didn't draw them soon after a surgery because she said they'd be wonky and worrisome, just due to the post-op inflammation. They rose a bit during chemo but have remained normal for many years.

After I moved a thousand miles away from my beloved onc, I found a new one that I like as much here. He said we could draw them once a year now, just to follow any trending.

I always found it a little stressful waiting for lab results, but reassurred when they came back normal every time.

pinkribbonandwheels.wordpress.... Dx 10/20/2011, IDC/IBC, Left, 1cm, Stage IIIA, Grade 2, 6/28 nodes, ER+/PR+, HER2- Chemotherapy 12/15/2011 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Taxotere (docetaxel) Surgery 4/18/2012 Mastectomy: Left Radiation Therapy 5/21/2012 Breast, Lymph nodes Hormonal Therapy 7/19/2012 Femara (letrozole) Surgery 4/15/2013 Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap
Log in to post a reply

Dec 20, 2019 04:29PM mitziandbubba wrote:

April - that concerns me. I need to chat with my doctor. My insurance has not billed me for anything though but I have a high deductible plan and met my out of pocket a while ago.

Lucy - your stats are similar to mine and your comment puts me more at ease. I was given MRI, CT and Bone scans up front too - but IDK if my onc does this for everyone or if it was bc they did not originally think I was quite so lucky. If anything, I have extra piece of mind that I had those scans and they were clear.



Surgery 5/9/2019 Lumpectomy: Left Surgery 5/29/2019 Lymph node removal: Sentinel Dx IDC, Left, 1cm, Stage IA, Grade 1, 0/4 nodes, ER+/PR+, HER2- Radiation Therapy Whole-breast: Breast Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Log in to post a reply

May 20, 2020 10:07PM jcp wrote:

Mitziandbubba,

I had the almost exact same features as you did and I have never been tested for tumor markers. In fact, my mom had br ca and she went through years

of that blood work testing and it is soo anxiety ridden. I asked my dr when I was diagnosed and he said my Mom had it because two of her nodes were positive out of 16.

Idk I would probably be going completely insane if I had been doing that these last 14 years. I'm not saying it is bad. IDK Maybe I should be doing the same. I see others on here

without node involvement or past Stage 1 that are getting regular tumor marker tests done. I think I read and saw two but I haven't been everywhere on this site.

Tomorrow I have a CT scan at 3:30 pm for chest b/c an area of calcifications was found on chest xray ordered by asthma and allergy dr. Then I had to see pulmonologist

in a televisit and they want to see it better. So....here I go. I'm pretty scared. She said if it's okay, then I'll probably be good but if not I will need a biopsy. There is a good chance it is okaybut I know that game. They never know really. I saw it with my Mom. Please if you think about it, say a prayer for me.

Thank you,

JCP

Log in to post a reply

May 20, 2020 11:21PM mitziandbubba wrote:

JCP, I will pray for you and hold you in my thoughts. Please come back here and update us.

Getting my tests for tumor markers has been getting easier. I'm a lot less anxious about it now.

Surgery 5/9/2019 Lumpectomy: Left Surgery 5/29/2019 Lymph node removal: Sentinel Dx IDC, Left, 1cm, Stage IA, Grade 1, 0/4 nodes, ER+/PR+, HER2- Radiation Therapy Whole-breast: Breast Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)

Page 1 of 2 (33 results)