Topic: scanxiety, cant stop thinking im going to die

Forum: Stage I Breast Cancer — Meet other members with a Stage I breast cancer diagnosis to share information and support.

Posted on: Dec 26, 2021 08:54AM

Posted on: Dec 26, 2021 08:54AM

minarchist wrote:

hi, i have no one to talk to and im freaking out and i need just anyone to please help me think everything is going to be OK

i have been in treatment for stage one since the end of 2019, lumpectomy, sentinal node removal, radiation, tamoxifen--you know the drill

my mammos have been clean, i dont feel bad, i take my tamoxifen religiously, Dr.s have been happy with my progress every time

last time i had blood drawn my CA 27.29 was elevated to 43 and i have to wait til the 30th for a full chest abdomen and pelvis CT scan. i cant stop worrying that i have ovarian cancer and im going to die. like this is it. i dotn know what anyoen alive could say to me to help me. i take care of my 102 yr old deaf blind grandmother, if i have to put her in respite care for soem kind of surgery it will cost me 10k a month, just to die anyway.

anyway, i have literally no way of comprehending what the chances are theyre going to find something worse, i cant stop thinking that elevated number DEFINITELY means "this is it", even though my dr didnt seem too alarmed by it and said she just wanted to check, just the fact that she ordered such a big scan makes me think she DOES think its something

i feel like im going to burst into tears and scream "OMG IM GOING TO DIE" every second

if anyone can help me i would really appreciate it, because i dont think i can take this


Dx 10/24/2019, IDC, Right, <1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2- Surgery 12/3/2019 Lumpectomy; Lumpectomy (Right); Lymph node removal Radiation Therapy 1/27/2020 Whole breast: Breast, Lymph nodes Hormonal Therapy 3/7/2020 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Dx DCIS, Right, 4cm, Stage 0, Grade 2, 0/1 nodes, ER+
Log in to post a reply

Page 4 of 5 (42 results)

Log in to post a reply

Jan 4, 2022 03:11PM minarchist wrote:

aye aye captain!

Dx 10/24/2019, IDC, Right, <1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2- Surgery 12/3/2019 Lumpectomy; Lumpectomy (Right); Lymph node removal Radiation Therapy 1/27/2020 Whole breast: Breast, Lymph nodes Hormonal Therapy 3/7/2020 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Dx DCIS, Right, 4cm, Stage 0, Grade 2, 0/1 nodes, ER+
Log in to post a reply

Jan 4, 2022 04:05PM laughinggull wrote:

So happy for you, minarchist !!!


ACx4, THPx4, HP (to complete 1y); Nerlynx (1y); AI (expected 10y), Surgery: BMX + ALND, Reconstruction, Oophorectomy. Radiation. Dx 10/26/2017, IDC, Right, 3cm, Stage IIB, Grade 3, 2/6 nodes, ER+/PR+, HER2-
Log in to post a reply

Jan 4, 2022 04:26PM minarchist wrote:

thank you LaughingGull!

Dx 10/24/2019, IDC, Right, <1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2- Surgery 12/3/2019 Lumpectomy; Lumpectomy (Right); Lymph node removal Radiation Therapy 1/27/2020 Whole breast: Breast, Lymph nodes Hormonal Therapy 3/7/2020 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Dx DCIS, Right, 4cm, Stage 0, Grade 2, 0/1 nodes, ER+
Log in to post a reply

Jan 12, 2022 05:28PM minarchist wrote:

just a last follow up in case someone finds this thread one day and wants hopeful results, in the end the MRI turned up a multilocular simple cyst that was smaller than the cat scan found, no evidence of malignancy, no follow up recommended

Dx 10/24/2019, IDC, Right, <1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2- Surgery 12/3/2019 Lumpectomy; Lumpectomy (Right); Lymph node removal Radiation Therapy 1/27/2020 Whole breast: Breast, Lymph nodes Hormonal Therapy 3/7/2020 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Dx DCIS, Right, 4cm, Stage 0, Grade 2, 0/1 nodes, ER+
Log in to post a reply

Jan 12, 2022 07:02PM salamandra wrote:

Yay!!!

Dx at 39. 1.8cm. Oncotype 9. Dx 9/19/2018, IDC, Right, 1cm, Stage IA, Grade 2, 0/3 nodes, ER+/PR+, HER2- Surgery 10/18/2018 Lumpectomy; Lymph node removal Hormonal Therapy 11/1/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy 12/3/2018 Whole breast: Breast Hormonal Therapy 12/19/2019 Fareston (toremifene)
Log in to post a reply

Jan 24, 2022 11:08AM SupportforAmy12 wrote:

minarchist, you have a ton on your plate! Anxiety is what brought so many of us here to threads like this. Cancer is a complete whirlwind. Something that's helped people I know with getting rid of anxious thoughts and emotions is doing something with your body that is in your current ability to do. It's easy to feel so disconnected from your body when going through cancer since it seems like the body is turning on itself!

Hang in there and control what you can control! Journaling has really helped me dealing with my mind going on and on about things in a spiraling whirlwind of emotions. That obviously isn't getting your body moving, but it at least gets your thoughts fully out and you can express all that you need. A journal will always be there to listen and be your sounding board! There's never judgment there. Here are a few journals I haven't used most of them but I'm sure there are some good ones. Experience with different things that fit your style and preference. Emotions can seem like impossible mountains to climb at times. Here's a good list of natural remedies for anxiety that may help. Not all are meant for everyone. If you can find ones that you enjoy, hang on to those and double down!

Log in to post a reply

Jan 24, 2022 02:55PM 2019whatayear wrote:

Glad all is well. FWIW the CA 27/29 is not the marker they check for ovarian cancer. If you have ovarian cancer you may have an elevated CA-125, that's the test they run for that.

None of the tumor marker tests at this time are anything close to a sure thing, they are only a possible ticket to a scan --

5/6/2019 IDC 2cm, micromet 1/9 nodes, BRCA2+, ER+, PR+, HER- BMX 6/2019, A/C & Taxol 2019, Radiation, BSO - preventative 2/2020, Letrozole 3/1/2020, Started Lynparza for 1 year preventative on 7/18/2021
Log in to post a reply

Jan 28, 2022 11:27PM - edited Jan 28, 2022 11:27PM by minarchist

thank you so much for the resources and advice. I have never really had anxiety in my life and I have no tools to deal with it lol

Dx 10/24/2019, IDC, Right, <1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2- Surgery 12/3/2019 Lumpectomy; Lumpectomy (Right); Lymph node removal Radiation Therapy 1/27/2020 Whole breast: Breast, Lymph nodes Hormonal Therapy 3/7/2020 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Dx DCIS, Right, 4cm, Stage 0, Grade 2, 0/1 nodes, ER+
Log in to post a reply

Feb 7, 2022 02:35PM lovelau wrote:

still have anxiety after 5 years

Anyone have good advice on a way to stop it. It is getting in the way of living my life. Want to stay at home in bed but I do not do that but walking around scared all the time does not serve me. I had a coach dr shani and I went to dbt and I go to psych and take meds but still very stressed. I’m in remission but maybe I don’t believe them. I think I do. I’m tired of feeling so miserable so much of the time. Looking for advice to help me calm down and live my life thanks anyone with similar problem solved it?

Dx 10/2016, LCIS/ILC, Right, 1cm, Stage IB, Grade 2, 1/24 nodes, ER+/PR-, HER2-
Log in to post a reply

Feb 7, 2022 02:49PM minarchist wrote:

if you find any help with this let me know lol. I think it must just come with the territory, I dont understand how we could NOT be anxious

Dx 10/24/2019, IDC, Right, <1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2- Surgery 12/3/2019 Lumpectomy; Lumpectomy (Right); Lymph node removal Radiation Therapy 1/27/2020 Whole breast: Breast, Lymph nodes Hormonal Therapy 3/7/2020 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Dx DCIS, Right, 4cm, Stage 0, Grade 2, 0/1 nodes, ER+

Page 4 of 5 (42 results)

Scroll to top button